Linked bibliography for the SEP article "Disability and Health Care Rationing" by Jerome Bickenbach

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If everything goes well, this page should display the bibliography of the aforementioned article as it appears in the Stanford Encyclopedia of Philosophy, but with links added to PhilPapers records and Google Scholar for your convenience. Some bibliographies are not going to be represented correctly or fully up to date. In general, bibliographies of recent works are going to be much better linked than bibliographies of primary literature and older works. Entries with PhilPapers records have links on their titles. A green link indicates that the item is available online at least partially.

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  • Albrecht, G.A. and P.J. Devlieger, 1999, “The disability paradox: High quality of life against all odds”, Social Science and Medicine, 48: 977–988. (Scholar)
  • Amundson, R., 2010, “Quality of life, disability, and hedonic psychology”, Journal for the Theory of Social Behaviour, 40(4): 374–392. (Scholar)
  • Anand, S. and K. Hanson, 1997, “Disability-Adjusted Life Years: A critical review”, Journal of Health Economics, 16: 685–702. (Scholar)
  • Anand, P. and A. Wailoo, 2000, “Utilities versus rights to publicly provided goods: arguments and evidence from health care rationing”, Economica, 67: 543–477. (Scholar)
  • Anand, S., F. Peter, and A. Sen (eds), 2004, Public Health, Ethics and Equity, Oxford: Oxford University Press. (Scholar)
  • Arneson, R., 2000, “Luck egalitarianism and prioritarianism”, Ethics, 110(2): 339–349. (Scholar)
  • Arneson, R. and E. Nord, 1999, “The Value of DALY Life: Problems with ethics and validity of Disability Adjusted Life Years”, British Medical Journal, 319: 1423–1425. [Arneson and Nord 1999 available online] (Scholar)
  • Asch, Adrienne, 2001, “Disability, bioethics, and human rights”, in G.L. Albrecht, K.D. Seelman, and M. Bury (eds.), Handbook of Disability Studies, Thousand Oaks, CA: Sage Publications, pp. 297–326. (Scholar)
  • Baltussen, Rob and Louis Niessen, 2006, “Priority setting of health interventions: the need for multi-criteria decision analysis”, Cost Effectiveness and Resource Allocation, 4: 14–23. [Baltussen and Niessen 2006 available online] (Scholar)
  • Batavia, A.I., 2002, “Disability versus futility in rationing health care services: Defining medical futility based on permanent unconsciousness—PVS, coma, and anencephaly”, Behavioral sciences and the law, 20: 219–233. (Scholar)
  • Bickenbach, Jerome E., 2008, “Stein, Justice and Disability”, Social Theory and Practice, 34: 300–306. (Scholar)
  • Bognar, Greg, 2010, “Does Cost Effectiveness Analysis Unfairly Discriminate against People with Disabilities?”, Journal of Applied Philosophy, 27(4): 394–408. (Scholar)
  • –––, 2011, “Impartiality and Disability Discrimination”, Kennedy Institute of Ethics Journal, 21(1): 1–23. (Scholar)
  • Brock, Dan., 1988, “Ethical issues in recipient selection for organ transplantation”, in Debra Mathieu (ed.), Organ Substitution Technology: Ethical, Legal, and Public Policy Issues, Boulder CO: Westview Press, pp. 86–99. (Scholar)
  • –––, 1995, “Justice and the Ada: Does Prioritizing and Rationing Health Care Discriminate against the Disabled?”, Social Philosophy and Policy, 12(2): 159–185. (Scholar)
  • –––, 1998, “Ethical issues in the development of summary measures of population health states”, in Field and Gold 1998: 63–81. (Scholar)
  • –––, 1999, “Ethical issues in the construction of cost effectiveness analysis for the prioritization and rationing of health care”, in J. Hintikka, et al. (eds.) The Proceedings of the Twentieth World Congress of Philosophy Volume 1, Bowling Green, OH: Philosophy Documentation Center, pp. 215–229. (Scholar)
  • –––, 2000, “Health care resource prioritization and discrimination against persons with disabilities”, in L. Francis and A. Silvers (eds.) Americans with disabilities: exploring implications of the law for individuals and institutions, New York: Routledge, pp. 223–35. (Scholar)
  • –––, 2002, “Fairness and health”, in Christopher J.L. Murray, Joshua A. Salomon, Colin D. Mathers, and Alan D. Lopez (eds.), Summary Measures of Population Health Concepts, Ethics, Measurement and Applications, pp. 717–726. (Scholar)
  • –––, 2003, “Separate spheres and indirect benefits”, Cost effectiveness and resource allocation, 1(1): 1–12. [Brock 2003 available onlines] (Scholar)
  • –––, 2004, “Ethical issues in the use of cost-effectiveness analysis for the prioritization of health care resources”, in G. Khushf (ed.), Handbook of Bioethics, Dordrecht: Springer, 353-380. (Scholar)
  • –––, 2005, “Preventing Genetically Transmitted Disabilities while respecting Persons with Disabilities”, in D. Wasserman, J.E. Bickenbach, and R. Wachbroit (eds), Quality of Life and Human Difference, Cambridge: Cambridge University Press, pp. 67–100. (Scholar)
  • –––, 2009, “Cost-effectiveness and disability discrimination”, Economics and Philosophy, 25: 27–47. (Scholar)
  • Brock, Dan W. and Daniel Wikler, 2006, “Ethical Issues in Resource Allocation, Research, and New Product Development”, in Jamison et al. 2006: 259–270. (Scholar)
  • Broome, J., 1988, “Goodness, fairness and QALYs”, in J. Bell and S. Mendus (eds.), Philosophy and Medical Welfare, Cambridge: Cambridge University Press, pp. 57–73. (Scholar)
  • –––, 2004, Weighing Lives, Oxford: Oxford University Press. (Scholar)
  • Calabresi, Guido and Philip Bobbitt, 1978, Tragic Choices, New York: W.W. Norton & Company. (Scholar)
  • Cappelen, A.W. and O.F. Norheim, 2006, “Responsibility, fairness and rationing in health care”, Health Policy, 76: 312–319. (Scholar)
  • Cookson, R and P. Dolan, 1999, “Public views on health care rationing: a group discussion study”, Health Policy, 49: 63–74. (Scholar)
  • Crossley, M.A., 1995, “Medical Futility and Disability Discrimination”, Iowa Law Review, 81: 179–259. (Scholar)
  • –––, 2000, “Becoming visible: The ADA’s impact on health care for persons with disabilities”, Alabama Law Review, 52(1): 51–89. (Scholar)
  • Daniels, N., 1985, Just Health Care, New York: Cambridge University Press. (Scholar)
  • –––, 1993, “Rationing Fairly: programmatic considerations”, Bioethics, 7:224–233. (Scholar)
  • –––, 1994, “Four Unsolved Rationing Problems A Challenge”, The Hastings Center Report, 24(4): 27–29. (Scholar)
  • –––, 1998, “Distributive Justice and the Use of Summary Measures of Population Health Status”, in Field and Gold 1998: 58–71. (Scholar)
  • –––, 2008, Just Health, New York: Cambridge University Press. (Scholar)
  • Daniels, N., et al., 2000, “Benchmarks of Fairness for Health Care Reform: A Policy Tool for Developing Countries”, Bulletin of the World Health Organization, 78: 740–750. (Scholar)
  • Das, Pamela and Udani Samarasekera, 2012, “The story of GBD 2010: a “super-human” effort”, The Lancet, 380: 2067–70. (Scholar)
  • Dennett, Daniel, 2013, Intuition pumps and other tools for thinking, New York: W.W. Norton & Company. (Scholar)
  • Doyal, Len, 1998, “Public participation and the moral quality of healthcare rationing”, Quality in Health Care, 7: 98–102. (Scholar)
  • Field, M. and M. Gold (eds.), 1998, Summarizing Population Health: directions for the development and application of population metrics, Washington: National Academy Press. (Scholar)
  • Garvey, James V., 1992, “Health care rationing and the Americans with Disabilities Act of 1990: What protection should the disabled be afforded”, Notre Dame Law Review, 68(3): 581–618. (Scholar)
  • Hadorn, David, 1992, “The problem of discrimination in health care priority setting”, Journal of the American Medical Association, 268, 1454–59. (Scholar)
  • Harris, J., 1986, “QALYfying the Value of Life”, Journal of Medical Ethics, 13(3): 117–123. (Scholar)
  • Jamison, Dean T., Joel G. Breman, Anthony R. Measham, George Alleyne, Mariam Claeson, David B. Evans, Prabhat Jha, Anne Mills, and Philip Musgrove (eds)., 2006, Disease Control Priorities in Developing Countries, Washington, DC: Oxford University Press and the World Bank. [Jamison et al. 2006 available online] (Scholar)
  • Jonsen, Albert, 1986, “Bentham in a box: Technology assessment and health care allocation”, Law, Medicine and Health Care, 14: 172–4. (Scholar)
  • Kahneman, D., E. Diener, and N. Schwarz (eds.), 1999, Well-being: The foundations of hedonic psychology, New York: Russell Sage Foundation. (Scholar)
  • Kamm, F.M., 1993, Morality/Mortality, Volume One, Death and Whom to Save From It, Oxford: Oxford University Press. (Scholar)
  • –––, 2004, “Deciding whom to help, health-adjusted life years and disabilities”, in Anand, Peter, and Sen 2004: 225–242. (Scholar)
  • –––, 2009a, “Aggregation, allocating scarce resources, and the disabled”, Social Philosophy and Policy, 26: 148–197. (Scholar)
  • –––, 2009b, “Disability, discrimination, and irrelevant goods”, in K. Brownlee and A. Cureton (eds.), Disability and Disadvantage, New York: Oxford University Press, pp. 260–318. (Scholar)
  • Koch, Tom, 2000, “Life Quality vs the ‘Quality of Life’: Assumptions Underlying Prospective Quality of Life Instruments in Health Care Planning”, Social Science and Medicine, 51: 419–427. (Scholar)
  • Kuhse, H. and P. Singer, 1985, Should the Baby Live? The Problem of Handicapped Infants, New York: Oxford University Press. (Scholar)
  • McKie, John, Jeff Richardson, Peter Singer, and Helga Kuhse, 1998, The Allocation of Health Care Resources: An Ethical Evaluation of the ‘QALY’ Approach, Aldershot, UK: Ashgate. (Scholar)
  • Menzel, Paul, 1989, Strong Medicine, New York: Oxford University Press. (Scholar)
  • Menzel, P., P. Dolan, J. Richardson, and J.A. Olsen, 2002, “The Role of adaptation to disability and disease in health state valuation: A preliminary normative analysis”, Social Science and Medicine 55: 2149–2158. (Scholar)
  • Moss, Alvin and Mark Siegler, 1991, “Should Alcoholics Compete Equally for Liver transplantation?”, Journal of the American Medical Association, 265(10): 1295–1298. (Scholar)
  • Murray, Christopher J.L., 1996, “Rethinking DALYs”, in Christopher J.L. Murray and Alan D. Lopez (eds.), The Global Burden of Disease: A Comprehensive Assessment of Mortality and Disability from Diseases, Injuries, and Risk Factors in 1990 and Projected to 2020, Cambridge, MA: Harvard School of Public Health on behalf of the WHO and the World Bank, pp. 1–98. (Scholar)
  • Nord, Erik, 1999, Cost-Value Analysis in Health Care: Making Sense out of QALYs, Cambridge: Cambridge University Press. (Scholar)
  • Nussbaum, Martha, 2000, “The Costs of Tragedy: Some Moral Limits of Cost-Benefit Analysis”, Journal of Legal Studies, 29(S2): 1005–1036. (Scholar)
  • Oliver, M., 1990, The politics of disablement, New York, NY: St. Martin’s. (Scholar)
  • Orentlicher, D., 1996, “Destructuring Disability: Rationing of Health Care and Unfair Discrimination Against the Sick”, Harvard Civil Rights-Civil Liberties Law Review, 31: 49–89. (Scholar)
  • Parfit, Derek, 1997, “Equality and priority”, Ratio, 10(3): 202–221. (Scholar)
  • Peters, P.G., 1995, “Health Care Rationing and Disability Rights”, Indiana Law Journal, 70(2): 491–547. (Scholar)
  • Riddle, Christopher A., 2014, Disability and Justice: The capabilities approach in practice, New York: Lexington Books (Scholar)
  • Rock, M., 2000, “Discounted Lives? Weighing Disability When Measuring Health and Ruling on ‘Compassionate’ Murder”, Social Science and Medicine, 51(3): 407–417. (Scholar)
  • Ruger, J.P., 2010, Health and Social Justice, Oxford University Press, Oxford (Scholar)
  • Russell, L.B., M.R. Gold, J.E. Siegel, and N. Daniels, 1996, “The Role of Cost-effectiveness Analysis in Health and Medicine”, Journal of the American Medical Association, 276: 1172–1177. (Scholar)
  • Sen, A.K., 1999, Development as freedom, New York: Knopf. (Scholar)
  • Singer, Peter, 1983, “Sanctity of Life or Quality of Life?”, Pediatrics, 72: 128–29. (Scholar)
  • Stein, Mark S., 2006, Distributive Justice and Disability: Utilitarianism against Egalitarianism, New Haven, CT: Yale University Press. (Scholar)
  • Ubel, Peter A., 2000, Pricing Life: Why Its Time for Health Care Rationing, Cambridge, MA: The MIT Press. (Scholar)
  • Ubel, P.A., G. Loewenstein, and C. Jepson, 2003, “Whose quality of life? A commentary exploring discrepancies between health state evaluations of patients and the general public”, Quality of Life Research, 12: 599–607. (Scholar)
  • United Nations (UN), 2007, Convention on the Rights of Persons with Disabilities, General Assembly Resolution 61/106. [UN Convention available online] (Scholar)
  • Veach, Robert, 1986, The Foundations of Justice, New York: Oxford University Press. (Scholar)
  • Wasserman, David, Adrienne Asch, and Jerome Bickenbach, 2008, “Mending, Not Ending: Cost-effectiveness analysis, preferences and the right to a life with disabilities”, in Luke Clements and Janet Read (eds), Disabled People and the Right to Life, London: Routledge, pp. 30–57. (Scholar)
  • WHO, 2001, International Classification of Functioning, Disability and Health (ICF), Geneva: World Health Organization. [WHO ICF available online] (Scholar)
  • –––, 2011, The World Report on Disability, Geneva: World Health Organization. [WHO 2011 available online] (Scholar)
  • Wikler, Daniel, 2002, “Personal and social responsibility for health”, Ethics and International Affairs, 16(2): 47–55. (Scholar)
  • Williams, A., 1997, “Intergenerational equity: An exploration of the ‘fair innings’ argument”, Health Economics, 6(2): 117–32. (Scholar)
  • Wolff, Jonathan and Avner De-Shalit, 2007, Disadvantage, Oxford: Oxford University Press. (Scholar)

Generated Sun May 15 07:22:33 2022