Linked bibliography for the SEP article "Internet Research Ethics" by Elizabeth A. Buchanan and Michael Zimmer

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If everything goes well, this page should display the bibliography of the aforementioned article as it appears in the Stanford Encyclopedia of Philosophy, but with links added to PhilPapers records and Google Scholar for your convenience. Some bibliographies are not going to be represented correctly or fully up to date. In general, bibliographies of recent works are going to be much better linked than bibliographies of primary literature and older works. Entries with PhilPapers records have links on their titles. A green link indicates that the item is available online at least partially.

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  • Acquisti, Alessandro and Ralph Gross, 2006, “Imagined Communities: Awareness, Information Sharing, and Privacy on the Facebook”, in Privacy Enhancing Technologies: PET 2006, George Danezis and Philippe Golle (eds.), (Lecture Notes in Computer Science 4258), Berlin, Heidelberg: Springer Berlin Heidelberg, pp. 36–58. doi:10.1007/11957454_3 (Scholar)
  • Allen, Christina, 1996, “What’s Wrong with the ‘Golden Rule’? Conundrums of Conducting Ethical Research in Cyberspace”, The Information Society, 12(2): 175–188. doi:10.1080/713856146 (Scholar)
  • Annas, George J., 2009, “Globalized Clinical Trials and Informed Consent”, New England Journal of Medicine, 360(20): 2050–2053. doi:10.1056/nejmp0901474 (Scholar)
  • Aycock, John, Elizabeth Buchanan, Scott Dexter, and David Dittrich, 2012, “Human Subjects, Agents, or Bots: Current Issues in Ethics and Computer Security Research”, in Financial Cryptography and Data Security, George Danezis, Sven Dietrich, and Kazue Sako (eds.), (Lecture Notes in Computer Science 7126), Berlin, Heidelberg: Springer Berlin Heidelberg, pp. 138–145. doi:10.1007/978-3-642-29889-9_12 (Scholar)
  • Banks, Will and Michelle Eble, 2007, “Digital Spaces, Online Environments, and Human Participant Research: Interfacing with Institutional Review Boards”, in Digital Writing Research: Technologies, Methodologies, and Ethical Issues, Heidi A. McKee and Dànielle Nicole DeVoss (eds.), Cresskill, NJ: Hampton Press, pp. 27–47. (Scholar)
  • Barbaro, Michael and Tom Zeller Jr., 2006, “A Face Is Exposed for AOL Searcher No. 4417749”, The New York Times, 9 August 2006, pp. A1. (Scholar)
  • Barratt, Monica Jane and Simon Lenton, 2010, “Beyond Recruitment? Participatory Online Research with People Who Use Drugs”, International Journal of Internet Research Ethics, 3(1): 69–86. [Barratt and Lenton 2010 available online] (Scholar)
  • BBC, 2011, “US Scientists ‘Knew Guatemala Syphilis Tests Unethical’”, BBC News, 30 August 2011, sec. Latin America & Caribbean. [BBC 2011 available online] (Scholar)
  • Beauchamp, Tom L. and James F. Childress, 2008, Principles of Biomedical Ethics, Oxford: Oxford University Press. (Scholar)
  • Blackstone, Mary, Lisa Given, Joseph Levy, Michelle McGinn, Patrick O’Neill, Ted Palys, and Will van den Hoonaard, 2008, Extending the Spectrum: The TCPS and Ethical Issues Involving Internet-Based Research, Interagency Advisory Panel and Secretariat on Research Ethics, Ottawa, Canada. [Blackstone et al. 2008 available online] (Scholar)
  • Boehlefeld, Sharon Polancic, 1996, “Doing the Right Thing: Ethical Cyberspace Research”, The Information Society, 12(2): 141–152. doi:10.1080/713856136 (Scholar)
  • Boga, Mwanamvua, Alun Davies, Dorcas Kamuya, Samson M. Kinyanjui, Ester Kivaya, Francis Kombe, Trudie Lang, Vicki Marsh, Bibi Mbete, Albert Mlamba, et al., 2011, “Strengthening the Informed Consent Process in International Health Research through Community Engagement: The KEMRI-Wellcome Trust Research Programme Experience”, PLoS Medicine, 8(9): e1001089. doi:10.1371/journal.pmed.1001089 (Scholar)
  • Bonneau, Joseph and Sören Preibusch, 2010, “The Privacy Jungle: On the Market for Data Protection in Social Networks”, in Economics of Information Security and Privacy, Tyler Moore, David Pym, and Christos Ioannidis (eds.), Boston: Springer US, pp. 121–167. doi:10.1007/978-1-4419-6967-5_8 (Scholar)
  • Booth, Robert, 2014, “Facebook reveals news feed experiment to control emotions”, The Guardian, 29 June 2014. [Booth 2014 available online] (Scholar)
  • Bromseth, Janne C. H., 2002, “Public Places: Public Activities? Methodological Approaches and Ethical Dilemmas in Research on Computer-mediated Communication Contexts”, in Researching ICTs in Context, Andrew Morrison (ed.), InterMedia Report 3/2002, Oslo: University of Oslo, pp. 33–61. [Bromseth 2002 available online] (Scholar)
  • Brothers, Kyle Bertram and Ellen Wright Clayton, 2010, “‘Human Non-Subjects Research’: Privacy and Compliance”, The American Journal of Bioethics, 10(9): 15–17. doi:10.1080/15265161.2010.492891 (Scholar)
  • Bruckman, Amy, 2006, “Teaching Students to Study Online Communities Ethically”, Journal of Information Ethics, 15(2): 82–98. doi:10.3172/jie.15.2.82 (Scholar)
  • Buchanan, Elizabeth A. (ed.), 2004, Readings in Virtual Research Ethics: Issues and Controversies, Hershey, PA: Information Science Publishing. (Scholar)
  • –––, 2006, “Introduction: Internet Research Ethics at a Critical Juncture”, Journal of Information Ethics, 15(2): 14–17. doi:10.3172/jie.15.2.14 (Scholar)
  • –––, 2011, “Internet Research Ethics: Past, Present, and Future”, in Consalvo and Ess 2011: 83–108. doi:10.1002/9781444314861.ch5">10.1002/9781444314861.ch5 (Scholar)
  • –––, 2016, “Ethics in Digital Research”, in Handbuch Soziale Praktiken und Digitale Alltagswelten, Heidrun Friese, Gala Rebane, Marcus Nolden, and Miriam Schreiter (eds.), Wiesbaden: Springer Fachmedien Wiesbaden, pp. 1–9. doi:10.1007/978-3-658-08460-8_47-1 (Scholar)
  • Buchanan, Elizabeth A. and Charles M. Ess, 2008, “Internet Research Ethics: The Field and Its Critical Issues”, in The Handbook of Information and Computer Ethics, Kenneth Einar Himma and Herman T. Tavani (eds.), Hoboken, NJ: John Wiley & Sons, Inc., pp. 273–292. doi:10.1002/9780470281819.ch11 (Scholar)
  • –––, 2009, “Internet Research Ethics and the Institutional Review Board: Current Practices and Issues”, ACM SIGCAS Computers and Society, 39(3): 43–49. doi:10.1145/1713066.1713069 (Scholar)
  • Buchanan, Elizabeth A. and Erin E. Hvizdak, 2009, “Online Survey Tools: Ethical and Methodological Concerns of Human Research Ethics Committees”, Journal of Empirical Research on Human Research Ethics, 4(2): 37–48. doi:10.1525/jer.2009.4.2.37 (Scholar)
  • Buchanan, Elizabeth, John Aycock, Scott Dexter, David Dittrich, and Erin Hvizdak, 2011, “Computer Science Security Research and Human Subjects: Emerging Considerations for Research Ethics Boards”, Journal of Empirical Research on Human Research Ethics, 6(2): 71–83. doi:10.1525/jer.2011.6.2.71 (Scholar)
  • Carpenter, Katherine J. and David Dittrich, 2012, “Bridging the Distance: Removing the Technology Buffer and Seeking Consistent Ethical Analysis in Computer Security Research”, in Digital Ethics: Research & Practice (Digital Formations 85), Don Heider and Adrienne Massanari (eds.), New York: Peter Lang, pp. 1–29. (Scholar)
  • [CASRO] Council of American Survey Research, 2011, “CASRO Code of Standards and Ethics for Survey Research”, First adopted 1977 and revised since. [CASRO code available online] (Scholar)
  • Chen, Jenny J., Natala J. Menezes, and Adam D. Bradley, 2011, “Opportunities for Crowdsourcing Research on Amazon Mechanical Turk”, Interfaces, 5(3). [J. Chen, Menezes, and Bradley 2011 available online] (Scholar)
  • Colvin, Jan and Jane Lanigan, 2005, “Ethical Issues and Best Practice Considerations for Internet Research”, Journal of Family and Consumer Sciences, 97(3): 34–39. (Scholar)
  • Conley, Caryn and Jennifer Tosti-Kharas, 2014, “Crowdsourcing Content Analysis for Managerial Research”, Management Decision, 52(4): 675–688. doi:10.1108/md-03-2012-0156 (Scholar)
  • Consalvo, Mia and Charles Ess (eds.), 2011, The Handbook of Internet Studies, Oxford: Wiley-Blackwell. doi:10.1002/9781444314861 (Scholar)
  • Crawford, Kate and Jason Schultz, 2014, “Big Data and Due Process: Toward a Framework to Redress Predictive Privacy Harms”, Boston College Law Review, 55(1): 93–128. (Scholar)
  • Dittrich, David, Michael Bailey, and Sven Dietrich, 2011, “Building an Active Computer Security Ethics Community”, IEEE Security & Privacy Magazine, 9(4): 32–40. doi:10.1109/msp.2010.199 (Scholar)
  • Drew, David A., Long H. Nguyen, Claire J. Steves, Cristina Menni, Maxim Freydin, Thomas Varsavsky, Carole H. Sudre, M. Jorge Cardoso, Sebastien Ourselin, Jonathan Wolf, et al., 2020, “Rapid Implementation of Mobile Technology for Real-Time Epidemiology of COVID-19”, Science, 368(6497): 1362–1367. doi:10.1126/science.abc0473 (Scholar)
  • Elgesem, Dag, 2002, “What Is Special about the Ethical Issues in Online Research?”, Ethics and Information Technology, 4(3): 195–203. doi:10.1023/a:1021320510186 (Scholar)
  • Emanuel, Ezekiel J., Robert A. Crouch, John D. Arras, Jonathan D. Moreno, and Christine Grady (eds.), 2003, Ethical and Regulatory Aspects of Clinical Research: Readings and Commentary, Baltimore: Johns Hopkins University Press. (Scholar)
  • Ess, Charles, 2016, “Phronesis for machine ethics? Can robots perform ethical judgments?”, Frontiers in Artificial Intelligence and Applications, 290: 386–389. doi:10.3233/978-1-61499-708-5-386 (Scholar)
  • Ess, Charles and the Association of Internet Researchers (AoIR) Ethics Working committee, 2002, “Ethical Decision-Making and Internet Research: Recommendations from the AoIR Ethics Working Committee”, Approved by the AoIR, 27 November 2002. [Ess and AoIR 2002 available online] (Scholar)
  • Eysenbach, Gunther, 1999, “Welcome to the Journal of Medical Internet Research”, Journal of Medical Internet Research, 1(1): e5. doi:10.2196/jmir.1.1.e5 (Scholar)
  • Eysenbach, Gunther and James E. Till, 2001, “Ethical Issues in Qualitative Research on Internet Communities”, BMJ, 323(7321): 1103–1105. doi:10.1136/bmj.323.7321.1103 (Scholar)
  • Fairfield, Joshua A., 2012, “Avatar Experimentation: Human Subjects Research in Virtual Worlds”, U.C. Irvine Law Review, 2: 695–772. (Scholar)
  • Federal Register, 2011, “Submission for Review and Comment: ‘The Menlo Report: Ethical Principles Guiding Information and Communication Technology Research’” (“Menlo Report”) for the Department of Homeland Security (DHS), Science and Technology, Cyber Security Division (CSD), Protected Repository for the Defense of Infrastructure Against Cyber Threats (PREDICT)”, 28 December 2011, Volume 76, Number 249, Docket No. DHS-2011-0074. [Federal Register 2011 available online] (Scholar)
  • –––, 2017, “Federal Policy for the Protection of Human Subjects”, 19 January 2017, Volume 82, Number 12 [Federal Register 2017 available online] (Scholar)
  • Fiesler, Casey, Nathan Beard, and Brian C. Keegan, 2020, “No Robots, Spiders, or Scrapers: Legal and Ethical Regulation of Data Collection Methods in Social Media Terms of Service”, Proceedings of the International AAAI Conference on Web and Social Media, 14: 187–196. [Fiesler, Beard, and Keegan 2020 available online] (Scholar)
  • Fiesler, Casey, Jeff Hancock, Amy Bruckman, Michael Muller, Cosmin Munteanu, and Melissa Densmore, 2018, “Research Ethics for HCI: A Roundtable Discussion”, in Extended Abstracts of the 2018 CHI Conference on Human Factors in Computing Systems, , Montreal QC Canada: ACM, 1–5. doi:10.1145/3170427.3186321 (Scholar)
  • Fiesler, Casey and Nicholas Proferes, 2018, “‘Participant’ Perceptions of Twitter Research Ethics”, Social Media + Society, 4(1), first online 10 March 2018. doi:10.1177/2056305118763366 (Scholar)
  • Flicker, Sarah, Dave Haans, and Harvey Skinner, 2004, “Ethical Dilemmas in Research on Internet Communities”, Qualitative Health Research, 14(1): 124–134. doi:10.1177/1049732303259842 (Scholar)
  • Fossheim, Hallvard and Helene Ingierd (eds.), 2016, Internet Research Ethics:, Oslo: Cappelen Damm Akademisk/NOASP. doi:10.17585/noasp.3.1 (Scholar)
  • Frankel, Mark S. and Sanyin Siang, 1999, “Ethical and Legal Aspects of Human Subjects Research in Cyberspace”, A Report of a Workshop, 10–11 June 1999, Washington, DC: American Association for the Advancement of Science. [Frankel and Siang 1999 available online] (Scholar)
  • Franzke, Aline Shakti, Anja Bechmann, Michael Zimmer, Charles M. Ess, and the Association of Internet Researchers (AoIR), 2020, Internet Research: Ethical Guidelines 3.0, AoIR. [Franzke et al. available online (pdf)] (Scholar)
  • Frauenberger, Christopher, Amy S. Bruckman, Cosmin Munteanu, Melissa Densmore, and Jenny Waycott, 2017, “Research Ethics in HCI: A Town Hall Meeting”, in Proceedings of the 2017 CHI Conference Extended Abstracts on Human Factors in Computing Systems – CHI EA ’17, Denver: ACM Press, pp. 1295–1299. doi:10.1145/3027063.3051135 (Scholar)
  • Gaw, Allan and Michael H. J. Burns, 2011, On Moral Grounds: Lessons from the History of Research Ethics, Westerwood, Glasgow: SA Press. (Scholar)
  • [GDPR] General Data Protection Regulation (GDPR), 2016, “Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46”. [available online] (Scholar)
  • Gilbert, Brendan James, 2009, “Getting to Conscionable: Negotiating Virtual Worlds’ End User License Agreements without Getting Externally Regulated”, Journal of International Commercial Law and Technology, 4(4): 238–251. [Gilbert 2009 available online] (Scholar)
  • Glickman, Seth W., Sam Galhenage, Lindsay McNair, Zachry Barber, Keyur Patel, Kevin A. Schulman, and John G. McHutchison, 2012, “The Potential Influence of Internet-Based Social Networking on the Conduct of Clinical Research Studies”, Journal of Empirical Research on Human Research Ethics, 7(1): 71–80. doi:10.1525/jer.2012.7.1.71 (Scholar)
  • Goldfarb, Norman M., 2008, “Age of Consent for Clinical Research”, Journal of Clinical Research Best Practices, 4(6). [Goldfarb 2008 available online] (Scholar)
  • [HHS] Health and Human Services, 2017, “Excerpts from the January 19, 2017 Revised Common Rule Preamble”. [HHS 2017 available online] (Scholar)
  • Hill, Kashmir, 2014, “Facebook Added ‘Research’ To User Agreement 4 Months After Emotion Manipulation Study”, Forbes.com., 30 June 2014. [Hill 2014 available online] (Scholar)
  • Hoffmann, Anna Lauren, 2016, “Facebook has a New Process for Discussing Ethics. But is It Ethical?” The Guardian, 17 June 2016. [Hoffmann 2016 available online] (Scholar)
  • Homeland Security Department, 2011, “Submission for Review and Comment: ‘The Menlo Report: Ethical Principles Guiding Information and Communication Technology Research’”, Federal Register: The Daily Journal of the United States Government, FR Doc. 2011-3323, 28 December 2011. [Homeland Security Department 2011 available online]. (Scholar)
  • Hubach, Randolph D., Andrew O’Neil, Mollie Stowe, Zachary Giano, Brenda Curtis, and Celia B. Fisher, forthcoming, “Perceived Confidentiality Risks of Mobile Technology-Based Ecologic Momentary Assessment to Assess High-Risk Behaviors Among Rural Men Who Have Sex with Men”, Archives of Sexual Behavior, first online: 20 February 2020. doi:10.1007/s10508-019-01612-x (Scholar)
  • Hudson, James M. and Amy Bruckman, 2004, “‘Go Away’: Participant Objections to Being Studied and the Ethics of Chatroom Research”, The Information Society, 20(2): 127–139. doi:10.1080/01972240490423030 (Scholar)
  • –––, 2005, “Using Empirical Data to Reason about Internet Research Ethics”, in ECSCW 2005: Proceedings of the Ninth European Conference on Computer-Supported Cooperative Work, 18–22 September 2005, Paris, France, Hans Gellersen, Kjeld Schmidt, Michel Beaudouin-Lafon, and Wendy Mackay (eds.), Berlin/Heidelberg: Springer-Verlag, pp. 287–306. doi:10.1007/1-4020-4023-7_15 (Scholar)
  • Hunsinger, Jeremy, Lisbeth Klastrup, and Matthew Allen (eds.), 2010, International Handbook of Internet Research, Dordrecht: Springer Netherlands. doi:10.1007/978-1-4020-9789-8 (Scholar)
  • Illingworth, Nicola, 2001, “The Internet Matters: Exploring the Use of the Internet as a Research Tool”, Sociological Research Online, 6(2): 79–90. doi:10.5153/sro.600 [Illingworth 2001 available online] (Scholar)
  • International Telecommunications Union, 2019, “New ITU Data Reveal Growing Internet Uptake but a Widening Digital Gender Divide”, ITU Media Centre, [ITU 2019 available online] (Scholar)
  • Jackman, Molly and Lauri Kanerva, 2016, “Evolving the IRB: Building Robust Review for Industry Research”, Washington and Lee Law Review Online, 72(3): 442–457. (Scholar)
  • Jacobson, David, 1999, “Doing Research in Cyberspace”, Field Methods, 11(2): 127–145. doi:10.1177/1525822x9901100204 (Scholar)
  • Johns, Mark D., Shing-Ling Sarina Chen, and G. Jon Hall (eds.), 2003, Online Social Research: Methods, Issues, and Ethics, New York: Peter Lang. (Scholar)
  • Jones, Arnita, 2008, “AHA Statement on IRB’s and Oral History Research”, American Historical Association Activities, 1 February 2008. [A. Jones 2008 available online] (Scholar)
  • Jones, Steve (ed.), 1999, Doing Internet Research: Critical Issues and Methods for Examining the Net, Thousand Oaks, CA: Sage. (Scholar)
  • Kaplan, Andreas M. and Michael Haenlein, 2010, “Users of the World, Unite! The Challenges and Opportunities of Social Media”, Business Horizons, 53(1): 59–68. doi:10.1016/j.bushor.2009.09.003 (Scholar)
  • Kerry, Cameron F., 2020, “Protecting privacy in an AI-driven world” (AI Governance), 10 February 2020, Center for Technology Innovation, Brookings Institute. [Kerry 2020 available online] (Scholar)
  • Keyes, Os, 2019, “Counting the Countless: Why data science is a profound threat for queer people”, Real Life, 8 April 2019. [Keyes 2019 available online] (Scholar)
  • King, Storm A., 1996, “Researching Internet Communities: Proposed Ethical Guidelines for the Reporting of Results”, The Information Society, 12(2): 119–128. doi:10.1080/713856145 (Scholar)
  • Kitchin, Heather A., 2003, “The Tri-Council Policy Statement and Research in Cyberspace: Research Ethics, the Internet, and Revising a ‘Living Document’”, Journal of Academic Ethics, 1(4): 397–418. doi:10.1023/b:jaet.0000025671.83557.fa (Scholar)
  • –––, 2008, Research Ethics and the Internet: Negotiating Canada’s Tri-Council’s Policy, Winnipeg, Manitoba: Fernwood Publishing (Scholar)
  • Kramer, Adam D. I., James E. Guillory, and Jeffrey T. Hancock, 2014, “Experimental Evidence of Massive-Scale Emotional Contagion through Social Networks”, Proceedings of the National Academy of Sciences, 111(24): 8788–8790. doi:10.1073/pnas.1320040111 (Scholar)
  • Kraut, Robert, Judith Olson, Mahzarin Banaji, Amy Bruckman, Jeffrey Cohen, and Mick Couper, 2004, “Psychological Research Online: Report of Board of Scientific Affairs’ Advisory Group on the Conduct of Research on the Internet.”, American Psychologist, 59(2): 105–117. doi:10.1037/0003-066x.59.2.105 (Scholar)
  • Krogstad, Donald J., Samba Diop, Amadou Diallo, Fawaz Mzayek, Joseph Keating, Ousmane A. Koita, and Yéya T. Touré, 2010, “Informed Consent in International Research: The Rationale for Different Approaches”, The American Journal of Tropical Medicine and Hygiene, 83(4): 743–747. doi:10.4269/ajtmh.2010.10-0014 (Scholar)
  • Lawson, Danielle, 2004, “Blurring the Boundaries: Ethical Considerations for Online Research Using Synchronous CMC Forums”, in Buchanan 2004: 80–100. (Scholar)
  • Leibovici, Didier G., Suchith Anand, Jerry Swan, James Goulding, Gobe Hobona, Lucy Bastin, Sergiusz Pawlowicz, Mike Jackson, and Richard James, 2010, “Workflow Issues for Health Mapping ‘Mashups’ of OGC”, University of Nottingham, CGS Technical Report, 2010 DL1. [Leibovici et al. 2010 available online] (Scholar)
  • Madejski, Michelle, Maritza Lupe Johnson, and Steven Michael Bellovin, 2011, “The Failure of Online Social Network Privacy Settings”. Columbia Research Report CUCS-010-11, Columbia University. doi:10.7916/d8ng4zj1 (Scholar)
  • Mann, Chris, 2003, “Generating Data Online: Ethical Concerns and Challenges for the C21 Researcher”, in Thorseth 2003: 31–49. (Scholar)
  • Markham, Annette N., 1998, Life Online: Researching Real Experience in Virtual Space, Walnut Creek, CA: Altamira Press. (Scholar)
  • –––, 2012, “Fabrication as Ethical Practice: Qualitative Inquiry in Ambiguous Internet Contexts”, Information, Communication & Society, 15(3): 334–353. doi:10.1080/1369118x.2011.641993 (Scholar)
  • Markham, Annette N. and Nancy K. Baym (eds.), 2008, Internet Inquiry: Conversations about Method, Thousand Oaks, CA: Sage Publications. (Scholar)
  • Markham, Annette, N. and Elizabeth Buchanan, 2012. : Ethical decision-making and internet research: Version 2.0. recommendations from the AoIR ethics working committee Association of Internet Researchers. [Markham and Buchanan 2012 available online] (Scholar)
  • Markoff, John, 2010, “In a Video Game, Tackling the Complexities of Protein Folding”, New York Times, 4 August 2010. [Markoff 2010 available online] (Scholar)
  • McKee, Heidi A. and James E. Porter, 2009, The Ethics of Internet Research: A Rhetorical, Case-based Process, New York: Peter Lang Publishing. (Scholar)
  • Mendelson, Cindy, 2007, “Recruiting Participants for Research From Online Communities”, CIN: Computers, Informatics, Nursing, 25(6): 317–323. doi:10.1097/01.ncn.0000299653.13777.51 (Scholar)
  • Metcalf, Jacob, 2017, “‘The Study Has Been Approved by the IRB’: Gayface AI, Research Hype and the Pervasive Data Ethics Gap”. PERVADE Team: Pervasive Data Ethics for Computational Research, Report. [Metcalf 2017 available online] (Scholar)
  • Metcalf, Jacob, Emanuel Moss, and danah boyd, 2019, “Owning Ethics: Corporate Logics, Silicon Valley, and the Institutionalization of Ethics”, Social Research: An International Quarterly, 86(2): 449–476. (Scholar)
  • Milne, George R. and Mary J. Culnan, 2004, “Strategies for Reducing Online Privacy Risks: Why Consumers Read (or Don’t Read) Online Privacy Notices”, Journal of Interactive Marketing, 18(3): 15–29. doi:10.1002/dir.20009 (Scholar)
  • Mondschein, Christopher F. and Cosimo Monda, 2018, “The EU’s General Data Protection Regulation (GDPR) in a Research Context”, in Fundamentals of Clinical Data Science, Pieter Kubben, Michel Dumontier, and Andre Dekker (eds.), Cham: Springer International Publishing, pp. 55–71. doi:10.1007/978-3-319-99713-1_5 (Scholar)
  • Moor, James H., 1985, “What Is Computer Ethics?”, Metaphilosophy, 16(4): 266–275. doi:10.1111/j.1467-9973.1985.tb00173.x (Scholar)
  • Alexander, Larry and Michael Moore, 2007, “Deontological Ethics”, The Stanford Encyclopedia of Philosophy (Winter 2007 Edition), Edward N. Zalta (ed.). URL = <https://plato.stanford.edu/archives/win2007/entries/ethics-deontological/> (Scholar)
  • Narayanan, Arvind and Vitaly Shmatikov, 2008, “Robust de-anonymization of Large Sparse Datasets”, Proceedings of the 29th IEEE Symposium on Security and Privacy, Oakland, CA, May 2008, IEEE, pp. 111–125. doi:10.1109/sp.2008.33 [Narayanan and Shmatikov 2008 available online (pdf)] (Scholar)
  • [NCPHSBBR] The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, 1979, “The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research”, Office for Human Research Protections, Department of Health and Human Services, United States. [NCPHSBBR 1979 available online] (Scholar)
  • [NESH] The National Committee for Research Ethics in the Social Sciences and the Humanities [Norway], 2006, “Guidelines for Research Ethics in the Social Sciences, Law, and Humanities”, Published September 2006. [NESH 2006 available online]. (Scholar)
  • –––, 2019, “A Guide to Internet Research Ethics”. [NESH 2019 available online]. (Scholar)
  • Nissenbaum, Helen, 2009, Privacy in Context: Technology, Policy, and the Integrity of Social Life, Stanford, CA: Stanford University Press. (Scholar)
  • [NSTC] National Science and Technology Council, 2016, “National Privacy Research Strategy”, Office of the President of the United States, June 2016. [NSTC 2016 available online] (Scholar)
  • Nuremberg Code, 1947 (1996), “The Nuremberg Code”, BMJ, 313. doi:https://doi.org/10.1136/bmj.313.7070.1448
  • Ohm, Paul, 2010, “Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization”, UCLA Law Review, 57: 1701–1777. (Scholar)
  • Overbeke, Grace, 2008, “Pro-Anorexia Websites: Content, Impact, and Explanations of Popularity”, Mind Matters: The Wesleyan Journal of Psychology, 3: 49–62. [Overbeke 2008 available online] (Scholar)
  • [PRIM&R] Public Responsibility in Medicine and Research, Bankert, E., Gordon, B., Hurley, E., and Shriver, S. (eds), 2021, Institutional Review Board: Management and Function (third edition). Burlington, MA: Jones and Bartlett. (Scholar)
  • Reid, Elizabeth, 1996, “Informed Consent in the Study of On-Line Communities: A Reflection on the Effects of Computer-Mediated Social Research”, The Information Society, 12(2): 169–174. doi:10.1080/713856138 (Scholar)
  • Reynolds, Ren, and Melissa de Zwart, 2010, “The Duty to ‘Play’: Ethics, EULAs and MMOs”, International Journal of Internet Research Ethics, 3(1): 48–68. [Reynolds & de Zwart 2010 available online] (Scholar)
  • Ritchie, Donald A., 2003, Doing Oral History: A Practical Guide, New York: Oxford University Press. (Scholar)
  • Rosenberg, Åsa, 2010, “Virtual World Research Ethics and the Private/Public Distinction”, International Journal of Internet Research Ethics, 3(1): 23–37. (Scholar)
  • Rosser, B. R. Simon, J. Michael Oakes, Joseph Konstan, Simon Hooper, Keith J. Horvath, Gene P. Danilenko, Katherine E. Nygaard, and Derek J. Smolenski, 2010, “Reducing HIV Risk Behavior of Men Who Have Sex with Men through Persuasive Computing: Results of the Menʼs INTernet Study-II”, AIDS, 24(13): 2099–2107. doi:10.1097/qad.0b013e32833c4ac7 (Scholar)
  • [SACHRP] Secretary’s Advisory Committee to the Office for Human Research Protections, Unitd States Department of Health & Human Services, 2010, “SACHRP July 20–21, 2010 Meeting Presentations”. (Scholar)
  • –––, 2013, “Attachment B: Considerations and Recommendations concerning Internet Research and Human Subjects Research Regulations, with Revisions”, Final document approved 12–13 March 2013. (SACHRP 2013 pdf version) (Scholar)
  • –––, 2013, “Considerations and Recommendations Concerning Internet Research and Human Subjects Research Regulations, with Revisions”. [SACHRP 2013 available online] (Scholar)
  • –––, 2015, “Attachment A: Human Subjects Research Implications of ‘Big Data’ Studies”, 24 April 2015. (Scholar)
  • Samuel, Gabrielle and Elizabeth Buchanan, 2020, “Guest Editorial: Ethical Issues in Social Media Research”, Journal of Empirical Research on Human Research Ethics, 15(1–2): 3–11. doi:10.1177/1556264619901215 (Scholar)
  • Scholz, Trebor, 2008, “Market Ideology and the Myths of Web 2.0”, First Monday, 13(3): 3 March 2008. [Scholz 2008 available online] (Scholar)
  • Schwartz, Paul M. and Daniel J. Solove, 2011, “The PII Problem: Privacy and a New Concept of Personally Identifiable Information”, New York University Law Review, 86(6): 1814–1893. (Scholar)
  • Seaboldt, James A. and Randy Kuiper, 1997, “Comparison of Information Obtained from a Usenet Newsgroup and from Drug Information Centers”, American Journal of Health-System Pharmacy, 54(15): 1732–1735. doi:10.1093/ajhp/54.15.1732 (Scholar)
  • Sharf, Barbara F., 1997, “Communicating Breast Cancer On-Line: Support and Empowerment on the Internet”, Women & Health, 26(1): 65–84. doi:10.1300/j013v26n01_05 (Scholar)
  • Sieber, Joan E., 1992, Planning Ethically Responsible Research: A Guide for Students and Internal Review Boards, Thousand Oaks, CA: Sage. (Scholar)
  • –––, 2015, Planning Ethically Responsible Research: A Guide for Students and Internal Review Boards, second edition, Thousand Oaks, CA: Sage. (Scholar)
  • Simmhan, Yogesh, Roger Barga, Catharine van Ingen, Ed Lazowska, and Alex Szalay, 2008, “On Building Scientific Workflow Systems for Data Management in the Cloud”, in 2008 IEEE Fourth International Conference on EScience, Indianapolis, IN: IEEE, pp. 434–435. doi:10.1109/escience.2008.150 (Scholar)
  • Simmhan, Yogesh, Catharine van Ingen, Girish Subramanian, and Jie Li, 2009, “Bridging the Gap between the Cloud and an EScience Application Platform”. Microsoft Research Tech Report MSR-TR-2009-2021. [Simmhan et al. 2009 available online] (Scholar)
  • Skloot, Rebecca, 2010, The Immortal Life of Henrietta Lacks, New York: Crown Publishers. (Scholar)
  • Sloan, Luke, Curtis Jessop, Tarek Al Baghal, and Matthew Williams, 2020, “Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving”, Journal of Empirical Research on Human Research Ethics, 15(1–2): 63–76. (Scholar)
  • Smith, Michael A. and Brant Leigh, 1997, “Virtual Subjects: Using the Internet as an Alternative Source of Subjects and Research Environment”, Behavior Research Methods, Instruments, & Computers, 29(4): 496–505. doi:10.3758/bf03210601 (Scholar)
  • Spriggs, Merle, 2010, A Handbook for Human Research Ethics Committees and Researchers: Understanding Consent in Research Involving Children: The Ethical Issues, Melbourne: The University of Melbourne/Murdoch Childrens Research Institute/The Royal Children’s Hospital Melbourne, version 4. Spriggs 2010 available online] (Scholar)
  • Stahl, Bernd Carsten and David Wright, 2018, “Ethics and Privacy in AI and Big Data: Implementing Responsible Research and Innovation”, IEEE Security & Privacy, 16(3): 26–33. doi:10.1109/msp.2018.2701164 (Scholar)
  • Sveningsson, Malin, 2004, “Ethics in Internet Ethnography” in Buchanan 2004: 45–61. (Scholar)
  • Sweeney, Latanya, 2002, “K-Anonymity: A Model for Protecting Privacy”, International Journal of Uncertainty, Fuzziness and Knowledge-Based Systems, 10(5): 557–570. doi:10.1142/s0218488502001648 (Scholar)
  • Thomas, Jim, 2004, “Reexamining the Ethics of Internet research: Facing the Challenge of Overzealous Oversight”, in Johns, Chen, and Hall 2004: 187–201. (Scholar)
  • Thorseth, May (ed.), 2003, Applied Ethics in Internet Research (Programme for Applied Ethics Publication Series No. 1), Trondheim, Norway: NTNU University Press. (Scholar)
  • Tsai, Janice, Lorrie Faith Cranor, Alessandro Acquisti, and Christina M. Fong, 2006, “What’s It To You? A Survey of Online Privacy Concerns and Risks”. NET Institute Working Paper No. 06–29. doi:10.2139/ssrn.941708 (Scholar)
  • Turkle, Sherry,1997, Life on the Screen: Identity in the Age of the Internet, New York: Touchstone. (Scholar)
  • Van Heerden, Alastair, Doug Wassenaar, Zaynab Essack, Khanya Vilakazi, and Brandon A. Kohrt, 2020, “In-Home Passive Sensor Data Collection and Its Implications for Social Media Research: Perspectives of Community Women in Rural South Africa”, Journal of Empirical Research on Human Research Ethics, 15(1–2): 97–107. doi:10.1177/1556264619881334 (Scholar)
  • Vitak, Jessica, Nicholas Proferes, Katie Shilton, and Zahra Ashktorab, 2017, “Ethics Regulation in Social Computing Research: Examining the Role of Institutional Review Boards”, Journal of Empirical Research on Human Research Ethics, 12(5): 372–382. doi:10.1177/1556264617725200 (Scholar)
  • Walstrom, Mary K., 2004, “Ethics and Engagement in Communication Scholarship: Analyzing Public, Online Support Groups as Researcher/Participant-Experiencer”, in Buchanan 2004: 174–202. (Scholar)
  • Walther, Joseph B., 2002, “Research Ethics in Internet-Enabled Research: Human Subjects Issues and Methodological Myopia”, Ethics and Information Technology, 4(3): 205–216. doi:10.1023/a:1021368426115 (Scholar)
  • White, Michele, 2002, “Representations or People?”, Ethics and Information Technology, 4(3): 249–266. doi:10.1023/a:1021376727933 (Scholar)
  • World Medical Association, 1964/2008, “Declaration of Helsinki: Ethical Principles for Medical Research Involving Human Subjects”. Adopted by the 18th World Medical Assembly. Amended 1975, 1983, 1989, 1996, 2000, 2002, 2004, 2008. [Declaration of Helsinki available online] (Scholar)
  • Wright, David R., 2006, “Research Ethics and Computer Science: An Unconsummated Marriage”, in Proceedings of the 24th Annual Conference on Design of Communication: SIGDOC ’06, Myrtle Beach, SC: ACM Press, pp. 196–201. doi:10.1145/1166324.1166369 (Scholar)
  • Zimmer, Michael T., 2010, “‘But the Data Is Already Public’: On the Ethics of Research in Facebook”, Ethics and Information Technology, 12(4): 313–325. doi:10.1007/s10676-010-9227-5 (Scholar)
  • –––, 2016, “OkCupid Study Reveals the Perils of Big-Data Science”, Wired.com, 14 May 2016. [Zimmer 2016 available online] (Scholar)
  • Zimmer, Michael and Edward Chapman, 2020, “Ethical Review Boards and Pervasive Data Research: Gaps and Opportunities”, Paper presented at AoIR 2020: The 21st Annual Conference of the Association of Internet Researchers. [Zimmer and Chapman 2020 extended abstract available online (pdf)] (Scholar)
  • Zimmer, Michael T. and Katharina Kinder-Kurlanda (eds.), 2017, Internet Research Ethics for the Social Age: New Challenges, Cases, and Contexts, New York: Peter Lang Publishing. (Scholar)

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