Abstract
This Discussion Note calls for attention to the cultural practices of Neural Engineering as part of the life sciences as practices and technologies of manufacturing life. Through focusing on Disability, Ableism, and especially Technoableism within the field, I point out instances of onto-epistemological violence, which influence the likelihood of survival of disabled people individually and as a (cultural and political) group. By drawing on Crip Technoscience, a method assemblage is introduced that allows to address these issues in an intersectional-kyriarchal understanding of interlocking systems of privilege and oppression through generative critique and productive collaborative work. Criptical Neural Engineering is dedicated to disability justice and disability gain. It centers disabled people as epistemic activists and demands response-ability and accountability from non-disabled people, specifically engineers that want to build adaptive technologies with disabled people.
Notes
Pos. is the position in the Kindle Version of the book if page numbers are unavailable.
The term “interlocking systems of privilege and oppression” is puzzled together from the work of Elisabeth Schüssler Fiorenza, who coined the term “kyriarchy” via Natalie Osborne’s proposal for an integrated framework of intersectionality and kyriarchy that is attentive to “relative privilege” ([3], p. 136f) and Sami Schalk’s use of “social systems of privilege and oppression” to counter critique of how intersectionality is only applied to “multiply marginalized people,” “minority identity positions,” or as “purely additive and expanding” ([4], Pos. 177, 240). Kimberlé Crenshaw, who coined intersectionality, thinks that these positions are not additive, but “fundamentally reconstitutive” (Tweet by Kimberlé Crenshaw on 26.06.2020 https://twitter.com/sandylocks/status/1276571389911154688).
I use identity first language (IFL) instead of person first language (PFL) to highlight that disability cannot be separated from the person but encompasses the experiences thoroughly and to reclaim disability as valuable, valid — even “desirable” — way of being in this world, which is often referred to as “Disability Gain” ([5]; [6], p. 4).
For more information visit: https://sites.google.com/view/cybertum/cerebro
I coin this term in reference to Karen Barad’s “intra-action” which radicalises accounts of interactive relationality (Barad 2003). She posits that instead of simply interacting with one another as pre-existing sources of agency, such elements are mutually constituted and reconfigured by entering into a relation [8]. Based upon this understanding, intra-vention takes the mutual constitution and reconfiguration into account but emphasizes the goal of change as “artful contamination” (and at times “mutual betrayal”) in a “hybrid space in which many agents constantly negotiate and influence each other to achieve multiple conflicting goals” ([9], p.371).
Wording taken from the Interdisciplinary Network for Studies Investigating Science and Technology (INSIST e.V., https://insist-network.com/).
Bodymind as a concept states that “because mental and physical processes not only affect each other but also give rise to each other—that is, because they tend to act as one, even though they are conventionally understood as two—it makes more sense to refer to them together, in a single term” ([24], p. 269).
For example, the recent Forbes article that has been published under the title Will Elon Musk’s Neuralink Wipe Disability Off The Face Of The Earth? but has been changed to Could Elon Musk’s Neuralink Be A Game-Changer For People With Disabilities? in the meantime. This however does not affect the general message of the article that is emblematic for the described narrative structure [32].
Original: „[Anderskörperliche sind in dieser Logik] privilegierte Subjekte einer Teleologie der technischen Erweiterung, die als Evolution mit anderen Mitteln gedacht ist “ [2].
Jillian Weise uses the pronoun “cy”. As cy wrote: “I’m a cyborg. Here’s my pronoun: cy. Pronounced: sigh. Here’s how you use that in a sentence: ‘Yeah, I know Jillian. Cy is a poet.’ My pronouns are cy/she/her and that is the order of my preference for my own pronouns. I’m being very serious.” (https://twitter.com/JillianWeise/status/1324865589408636933).
I follow Sara Hendren in using “adaptive technology” over “assistive technology”. She states: “Assistance usually implies linearity. A problem that needs fixing, that seeks a solution. But adaptation is flexible, rhizomatic, multi-directional. It implies a technological design that works in tandem, reciprocally, with the magnificence that is the human body in all its forms. Adaptation implies change over time. Adaptive systems might require the environment to shift, rather than the body” [35].
I do not argue against reproductive technologies and position against conservative efforts to co-opt disability for their agenda to illegalize and punish abortion. The objective must be fully legalized right for abortion without restrictions, comprehensive information on options, and societal support systems that move beyond subsidizing nuclear families ([23], p. 166; [38]). Until then, disability often provides a “minimal right to abortion” but “[m]aking disability do the work of defending abortion may be effective in securing abortion rights in the short term, but it does so by trafficking in discriminatory stereotypes about disability” ([23], p. 166f).
“Supercrip stories rely heavily on the individual/medical model of disability, portraying disability as something to be overcome through hard work and perseverance […]. [T]he same language of overcoming used traditionally in relation to nature conquests also informs much writing about disability: conquest and vanquishing, lording over or being lorded over, climbing the mountain or perishing on its slopes.” ([23], p. 141). As shown by the example, this holds also true for the story Herr is telling.
As the source is a video, the timestamp is given where the quote and/or relevant information is shared.
This is not limited to the engineers who work with this kind of data but can also become relevant for the subjects or users through Neurofeedback [52].
This can be related to Martha Nussbaum’s work on capabilities [66].
The concept of “kyriarchy helps us understand how interlocking systems of oppression ‘criss-cross the subject-positions that the politics of domination offers individuals’” and offers “a way to conceptually grapple with multiple, intersecting, and co-constitutive structures of power and oppression, kyriarchy also accounts for relative privilege “ ([3], p. 136).
References
Compagna D, Şahinol M (2019) CfP special issue: “Manufacturing Life” in NanoEthics. Studies of new and emerging technologies #sts #enhancement #cyborg #multispecies #innovation #feministSTS #anthropocene #sociology #ethics. https://melikesahinol.wordpress.com/2019/10/01/cfp-special-issue-manufacturing-life-in-nanoethics-studies-of-new-and-emerging-technologies-sts-enhancement-cyborg-multispecies-innovation-feministsts-anthropocene-sociolog/. Accessed 11 Sept 2020
Harrasser K (2013) Körper 2.0. Über die technische Erweiterbarkeit des Menschen. Transcript, Bielefeld
Osborne N (2013) Intersectionality and kyriarchy: A framework for approaching power and social justice in planning and climate change adaptation. Plan Theory 14(2):130–151. https://doi.org/10.1177/2F1473095213516443
Schalk S (2018) Bodyminds reimagined: (Dis)ability, race, and gender in Black women’s speculative fiction. Duke University Press. Kindle Edition, Durham
Thorpe JR (2017) This is how to talk about disability, according to disabled people. Bustle. https://www.bustle.com/p/what-is-identity-first-language-should-you-use-it-74901. Accessed 12 Sept 2020
Fritsch K, Hamraie A, Mills M, Serlin D (2019) Introduction to special section: Crip technoscience. Catalyst: Feminism, Theory, Technoscience 5(1):1–10. https://doi.org/10.28968/cftt.v5i1.31998
Karlsruhe Institute of Technology, Institute for Technology Assessment and Systems Analysis (KIT-ITAS) (2019) FUTUREBODY – The Future of the Body in the Light of Neurotechnology. https://www.itas.kit.edu/english/projects_coen18_futurebody.php. Accessed 11 Sept 2020
Lipp BM (2019) Interfacing RobotCare. On the techno-politics of innovation. http://nbn-resolving.de/urn/resolver.pl?urn:nbn:de:bvb:91-diss-20190624-1472757-1-8. Accessed 11 Sept 2020
Zuiderent-Jerak T, Bruun Jensen C (2007) Editorial introduction: Unpacking ‘intervention’ in science and technology studies. Science as Culture 16(3):227–235. https://doi.org/10.1080/09505430701568552
Berberich N (2019) Human-centered neuroengineering. Action research on challenges of educational institutionalization. Unpublished thesis for the attainment of the degree master of science at the technical university of Munich
Brey P, Nagel S (2016) Bioengineering. In: ten Have H (ed) Encyclopedia of global bioethics. Springer, Dordrecht, pp 280–291
Durand DM (2006) What is neural engineering? J Neural Eng 4. https://doi.org/10.1088/1741-2552/4/4/E01
Conradt J, Everding L, Lutter M, Richter C (2017) Neural engineering: Implants, interfaces and algorithms. https://campus.tum.de/tumonline/wbLv.wbShowLVDetail?pStpSpNr=950290061&pSpracheNr=2&pMUISuche=FALSE. Accessed 09 Feb 2022
Dastin J (2018) Amazon scraps secret AI recruiting tool that showed bias against women. Reuters. https://www.reuters.com/article/us-amazon-com-jobs-automation-insight/amazon-scraps-secret-ai-recruiting-tool-that-showed-bias-against-women-idUSKCN1MK08G. Accessed 11 Sept 2020
Obermeyer Z, Powers B, Vogeli C, Mullainhathan S (2019) Dissecting racial bias in an algorithm used to manage the health of populations. Science 366(6464):447–453. https://doi.org/10.1126/science.aax2342
Partnership on AI (2019) Report on algorithmic risk assessment tools in the U.S. criminal justice system. https://www.partnershiponai.org/report-on-machine-learning-in-risk-assessment-tools-in-the-u-s-criminal-justice-system/. Accessed 11 Sept 2020
Birhane A, van Dijk J (2020) Robot rights? Let’s talk about human welfare instead. In 2020 AAAI/ACM Conference on AI, Ethics, and Society (AIES’20). https://doi.org/10.1145/3375627.3375855
Hoffmann AL (2019) Where fairness fails: Data, algorithms, and the limits of antidiscrimination discourse. Inf Commun Soc 22(7):900–915. https://doi.org/10.1080/1369118X.2019.1573912
Bennett C, Keyes O (2020) What is the point of fairness? ACM Interactions 27(3):35–39. https://doi.org/10.1145/3386383
Goering S (2017) Think differently: Neurodiversity and neural engineering. In: Johnson LSM, Rommelfanger KS (eds) The Routledge handbook of neuroethics. Routledge, New York, pp 37–50
Campbell FK (2009) Contours of ableism. The production of disability and able-ness. Palgrave Macmillan, Basingstoke
Urry J (2016) What is the future? Polity Press, Cambridge
Kafer A (2013) Feminist, queer, crip. Indiana University Press, Bloomington and Indianapolis
Price M (2015) The bodymind problem and the possibilities of pain. Hypatia 30(1):265–284. https://doi.org/10.1111/hypa.12127
Kirby DA (2010) The future is now: Diegetic prototypes and the role of popular films in generating real-world technological development. Soc Stud Sci 40(1):41–70
Clynes ME, Kline NS (1960) Cyborgs and Space. Astronautics 5(9): 26–27, 74–76
Shew, A (2021) The minded body in technology and disability. In: Vallor S (ed) The Oxford handbook of philosophy of technology, pp 516–534. https://doi.org/10.1093/oxfordhb/9780190851187.013.22
Nelson MK, Shew A, Stevens B (2019) Transmobility: Rethinking the possibilities in cyborg (cripborg) bodies. Catalyst: Feminism, Theory, Technoscience 5(1):1–20. https://doi.org/10.28968/cftt.v5i1.29617
Haraway D (1991) Simians, cyborgs and women: The reinvention of nature. Routledge. Kindle Edition, New York
Weise J (2018) Common cyborg. Granta. https://granta.com/common-cyborg/. Accessed 11 Sept 2020
Jain SL (1999) The prosthetic imagination: Enabling and disabling the prosthesis trope. Sci Technol Human Values 24(1):31–54. https://doi.org/10.1177/2F016224399902400103
Alexiou G (2020) Could Elon Musk’s Neuralink be a game-changer for people with disabilities? Forbes. https://www.forbes.com/sites/gusalexiou/2020/09/08/could-elon-musks-neuralink-be-a-game-changer-for-people-with-disabilities/. Accessed 11 Sept 2020
Haraway D (1988) Situated knowledges: The science question in feminism and the privilege of partial perspective. Fem Stud 14(3):575–599. https://doi.org/10.2307/3178066
Weise J (2016) The dawn of the ‘tryborg’. The New York Times. https://www.nytimes.com/2016/11/30/opinion/the-dawn-of-the-tryborg.html. Accessed 11 Sept 2020
Hendren S (2014) Guidelines for an adaptive technology working group. adaptation + ability group. http://aplusa.org/#manifesto. Accessed 10 Sept 2020
Haraway D (2008) When species meet. University of Minnesota Press, Minneapolis
Jackson L (2018) We are the original lifehackers. The New York Times. https://www.nytimes.com/2018/05/30/opinion/disability-design-lifehacks.html. Accessed 11 Sept 2020
Lewis S (2019) Full surrogacy now: Feminism against family. Verso, London/New York
MIT (n.d. a) Biomechatronics Group. http://biomech.media.mit.edu/. Accessed 11 Sept 2020
MIT (n.d. b) People at the Biomechatronics Group. http://biomech.media.mit.edu/people/. Accessed 11 Sept 2020
Herr H (2018) How we'll become cyborgs and extend human potential. TED Talk. https://youtu.be/PLk8Pm_XBJE. Accessed 10 Sept 2020
Herr H (2014): New bionics let us run, climb and dance. TED Talk. https://youtu.be/CDsNZJTWw0w. Accessed 14 Jun 2021
Earle J (2020) Embodiment, diffracted: Transhumanism, morphological freedom, and the myth of multiplicity. Virginia Tech STS. https://www.facebook.com/371547056251476/videos/1442389972612992. Accessed 12 Sept 2020
Facebook (2020) Imagining a new interface: Hands-free communication without saying a word. Tech@Facebook. https://tech.fb.com/imagining-a-new-interface-hands-free-communication-without-saying-a-word/. Accessed 11 Sept 2020
Hamilton IA (2019) Elon Musk said his AI-brain-chips company could ’solve’ autism and schizophrenia. Business Insider. https://www.businessinsider.de/international/elon-musk-said-neuralink-could-solve-autism-and-schizophrenia-2019-11/?r=US&IR=T. Accessed 11 Sept 2020
Brown N (2003) Hope against hype - accountability in biopasts, presents and futures. Science Studies 16(2):3–21. https://sciencetechnologystudies.journal.fi/article/view/55152
Shew A (2020) Ableism, technoableism, and future AI. IEEE Technology and Society Magazine 39(1):40–50, 85. https://doi.org/10.1109/MTS.2020.2967492
Westman N (2020) Elon Musk trots out pigs in demo of Neuralink brain implants. The Verge. https://www.theverge.com/2020/8/28/21406143/elon-musk-neuralink-ai-pigs-demo-brain-computer-interface. Accessed 11 Sept 2020
Carr D (2020) Shit for brains. The Baffler. https://thebaffler.com/latest/shit-for-brains-carr. Accessed 16 Jun 2021
Vuckovic A et al. (2014) Interaction of BCI with the underlying neurological conditions in patients: Pros and cons. Front Neuroeng 7. https://doi.org/10.3389/fneng.2014.00042
Horrocks S (2019) Materializing datafied body doubles: Insulin pumps, blood glucose testing, and the production of usable bodies. Catalyst: Feminism, Theory, Technoscience 5(1):1–26. https://doi.org/10.28968/cftt.v5i1.29613
Brenninkmeijer J (2010) Taking care of one’s brain: How manipulating the brain changes people’s selves. Hist Hum Sci 23(1):107–126. https://doi.org/10.1177/2F0952695109352824
Brock A Jr (2020) Distributed blackness. African American cyber-culture. New York University Press, New York
Goering S, Klein E (2019) Neurotechnologies and justice by, with, and for disabled People. In: Wasserman DT, Cureton A (eds) The Oxford handbook of philosophy and disability. Oxford University Press, New York, pp 616–632
Kenney M (2015) Counting, accounting, and accountability: Helen Verran’s relational empiricism. Soc Stud Sci 45(5):749–771. https://doi.org/10.1177/2F0306312715607413
Hamraie A, Fritsch K (2019) Crip technoscience manifesto. Catalyst: Feminism, Theory, Technoscience 5(1):1–34. https://doi.org/10.28968/cftt.v5i1.29607
Law J (2004) After method: Mess in social science research. Routledge, London/New York
Feely M (2016) Disability studies after the ontological turn: A return to the material world and material bodies without a return to essentialism. Disability & Society 31(7):863–883. https://doi.org/10.1080/09687599.2016.1208603
Barad K (2007) Meeting the universe halfway. Duke University Press, Durham
Geerts E (2016) Ethico-onto-epistem-ology. Almanac of New Materialism. https://newmaterialism.eu/almanac/e/ethico-onto-epistem-ology.html. Accessed 11 Sept 2020
Choudhury S (2009) Critical neuroscience: Linking neuroscience and society through critical practice. BioSocieties 4:61–77. https://doi.org/10.1017/S1745855209006437
Lieberman H (2015) If you mold it, they will come: How Gosnell Duncan’s device changed the feminist sex-toy game forever. Bitch Media. https://bitchmedia.org/article/if-you-mold-it-they-will-come-dildo-history-feminist-sex-toy-stores. Accessed 12 Sept 2020
Ymous A, Spiel K, Keyes O, Williams RM, Good J, Hornecker E, Bennett CL (2020): “I am just terrified of my future” – epistemic violence in disability related technology research. Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems (CHI EA ’20). Association for Computing Machinery, New York, NY, USA, 1–16. https://doi.org/10.1145/3334480.3381828
Bauchspies WK, Puig de la Bellacasa M (2009) Feminist science and technology studies: A patchwork of moving subjectivities. An interview with Geoffrey Bowker, Sandra Harding, Anne Marie Mol, Susan Leigh Star and Banu Subramaniam. Subjectivity 28:334–344. https://doi.org/10.1057/sub.2009.21
Barad K (1999) Agential realism: Feminist interventions in understanding scientific practices. In: Biagioli M (ed) The science studies reader. Routledge, New York, pp 1–11
Zalta EN, Nodelman U, Allen C, Anderson RL (eds.) (2016) The capability approach. Stanford Encyclopedia of Philosophy (Winter 2016 Edition). Stanford University, Stanford
Barad K (2003) Posthumanist performativity: Toward an understanding of how matter comes to matter. Signs: Journal of Women in Culture and Society 28(3):801–883. https://doi.org/10.1086/345321
Bennett J (2010) Vibrant matter: A political ecology of things. Duke University Press, Durham
Munsterhjelm M (2014) Some comments on the problem of ontological violence in STS. Asia-Pacific STS Network News. https://web.archive.org/web/20160406115537/https:/apstsn.files.wordpress.com/2015/02/20140900-apstsn-newsletter.pdf. Accessed 14 Sept 2020
Taguchi HL (2012) A diffractive and Deleuzian approach to analysing interview data. Fem Theory 13(3):265–281. https://doi.org/10.1177/1464700112456001
Acknowledgements
I want to thank Nicholas Berberich for the friendship and his, as well as the Cybertum Project’s, continued collaboration; Prof. Dr. Ruth Müller and Dr. Benjamin Lipp for their guidance and support throughout my master’s thesis which made this Discussion Note possible; and Dr. Melike Şahinol, Prof. Dr. Diego Compagna and Christopher Coenen for the opportunity to publish in this special section and their support throughout the process. Moreover, thanks to Julian Bärlin, lou kordts, Ash Brugger, Mika Murstein, Dr. Danya Glabau, Liz Jackson, Alex Haagaard, Dr. Ashley Shew, Dr. Joshua Earle, Dr. Katta Spiel, Dr. Rua M. Williams, Os Keyes, Dr. Rebecca Monteleone, The Cyborg Jillian Weise, Marina Tsapalina, Logan Kirkland, and Stella Dixon. Furthermore, I want to thank the (online) feminist, activist, academic, and disabled communities I am part of, who enrich my life, enable me to grow continuously, and where I made a lot of meaningful connections.
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Competing Interests
The author declares no competing interests.
Additional information
Publisher's Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Appendix
Appendix
Rights and permissions
About this article
Cite this article
Rasper, R. Prototyping Criptical Neural Engineering — Tentatively Cripping Neural Engineering’s Cultural Practices for Cyborg Survival and Flourishing. Nanoethics 16, 35–49 (2022). https://doi.org/10.1007/s11569-021-00405-8
Received:
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s11569-021-00405-8