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  1. Opening the Door: Rethinking “Difficult Conversations” about Living and Dying with Dementia.Mara Buchbinder & Nancy Berlinger - 2024 - Hastings Center Report 54 (S1):22-28.
    This essay looks closely at metaphors and other figures of speech that often feature in how Americans talk about dementia, becoming part of cultural narratives: shared stories that convey ideas and values, and also worries and fears. It uses approaches from literary studies to analyze how cultural narratives about dementia may surface in conversations with family members or health care professionals. This essay also draws on research on a notable social effect of legalizing medical aid in dying: patients may find (...)
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  • Guiding the Future: Rethinking the Role of Advance Directives in the Care of People with Dementia.Barak Gaster & Thaddeus Mason Pope - 2024 - Hastings Center Report 54 (S1):33-39.
    When people lose capacity to make a medical decision, the standard is to assess what their preferences would have been and try to honor their wishes. Dementia raises a special case in such situations, given its long, progressive trajectory during which others must make substituted judgments. The question of how to help surrogates make better‐informed decisions has led to the development of dementia‐specific advance directives, in which people are given tools to help them communicate what their preferences are while they (...)
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