The Patient as Professor: How My Life as a Person with Quadriplegia Shaped My Thinking as an Ethicist

Perspectives in Biology and Medicine 62 (2):342-351 (2019)
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Abstract

I should not be here. By nearly all medical prognostication and statistical realism, I should not be here. In fact, anyone with any wagering savvy might have—and quite justifiably—placed her chips on someone else. But lives do not always adhere to probabilities, bell curves, or standard deviations. Personal will favors the long game over the short; determination and hopefulness strive for the less likely instead of the more—the extreme rather than the mean.I have lived for 28 years with quadriplegia, a duration that is, in itself, far outside of the expected. However, the circumstances under which I became quadriplegic reduce the likelihood of this longevity even further.It was 1990, and I was 11 years old. In what...

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