Whose Data Are They Anyway? Identification of Relatives and Genetic Exceptionalism

American Journal of Bioethics 21 (12):78-79 (2021)
  Copy   BIBTEX

Abstract

In developing a framework for assessing privacy risks, Dupras and Bunnik’s “Toward a framework for assessing privacy risks in multi-omic research and databases” considers the question of whe...

Categories

Keywords

Reprint years

DOI

10.1080/15265161.2021.1991036

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 91,423

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

My notes

Similar books and articles

Coming to Grips with Genetic Exceptionalism: Roots and Reach of an Explanatory Model. [REVIEW]Ilhan Ilkilic - 2009 - Medicine Studies 1 (2):131-142.
The Right Not to Know and the Duty to Tell: The Case of Relatives.Niklas Juth - 2014 - Journal of Law, Medicine and Ethics 42 (1):38-52.
Genetic information: Important but not “exceptional”. [REVIEW]Ruth Hannah Wilkinson - 2010 - Identity in the Information Society 3 (3):457-472.
Caught you: threats to confidentiality due to the public release of large-scale genetic data sets. [REVIEW]Matthias Wjst - 2010 - BMC Medical Ethics 11 (1):1-4.
Property rights in genetic information.Richard A. Spinello - 2004 - Ethics and Information Technology 6 (1):29-42.
Genetic Exceptionalism and Legislative Pragmatism.Mark A. Rothstein - 2007 - Journal of Law, Medicine and Ethics 35 (S2):59-65.
Genetic Discrimination and Health Insurance.Kasper Lippert-Rasmussen - 2015 - Res Publica 21 (2):185-199.
What is genetic information, and why is it significant? A contextual, contrastive, approach.Neil C. Manson - 2006 - Journal of Applied Philosophy 23 (1):1–16.
Priest’s Anti-Exceptionalism, Candrakīrti and Paraconsistency.Koji Tanaka - 2019 - In Can Başkent & Thomas Macaulay Ferguson (eds.), Graham Priest on Dialetheism and Paraconsistency. Cham, Switzerland: Springer Verlag. pp. 127-138.
The Right Not to Know and the Duty to Tell: The Case of Relatives.Niklas Juth - 2014 - Journal of Law, Medicine and Ethics 42 (1):38-52.
Genetic Exceptionalism and Legislative Pragmatism.Mark A. Rothstein - 2007 - Journal of Law, Medicine and Ethics 35 (s2):59-65.
Healthcare professionals’ responsibility for informing relatives at risk of hereditary disease.Kalle Grill & Anna Rosén - 2021 - Journal of Medical Ethics 47 (12):e12-e12.
Disclosure 'downunder': misadventures in Australian genetic privacy law.B. Arnold & W. Bonython - 2014 - Journal of Medical Ethics 40 (3):168-172.
Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives.Ben Chan, Flavia M. Facio, Haley Eidem, Sara Chandros Hull, Leslie G. Biesecker & Benjamin E. Berkman - 2012 - American Journal of Bioethics 12 (10):1-8.
Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey.Aslihan Akpinar & Nermin Ersoy - 2014 - BMC Medical Ethics 15 (1):39.

Analytics

Added to PP
2021-11-22

Downloads
16 (#889,721)

6 months
8 (#346,782)

Historical graph of downloads
How can I increase my downloads?

Citations of this work

Add more citations

References found in this work

Add more references