Authors
Kenneth A. Richman
Massachusetts College of Pharmacy and Health Sciences
Abstract
This chapter addresses ethical issues for informed consent when recruiting autistic participants for research. The process of informed consent for participation in research involves some abilities, such as dialogue and understanding the intentions of the researchers, that can be especially challenging when autistic individuals are being asked to participate. This chapter reviews these abilities, and suggests ways to provide meaningful support to promote autonomy and help researchers meet their responsibilities. Beyond these more general challenges, it explores Hans Jonas’s suggestion that true informed consent for research requires that participants identify with the goals of the researchers. Given the plurality of perspectives on how to respond to autism, Jonas’s ideas point to additional ethical concerns that can arise when autistic people are recruited for research on autism.
Keywords autism  informed consent  research ethics  Jonas, Hans
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References found in this work BETA

Principles of Biomedical Ethics.Tom L. Beauchamp - 1979 - Oxford University Press.
Phase I Cancer Trials: A Collusion of Misunderstanding.Matthew Miller - 2000 - Hastings Center Report 30 (4):34-43.
The Right to Participate in High-Risk Research.David Shaw - 2014 - The Lancet 38:1009 – 1011.

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