Choosing deafness with PHD: an ethical way to carry on a cultural bloodline?
Cambridge Quarterly Healthcare Ethics 19 (1):86-96 (2010)
| Abstract | These words were written by ethicist Jonathan Glover in his paper “Future People, Disability and Screening” in 1992. Whereas screening and choosing for a disability remained a theoretical possibility 16 years ago, it has now become reality. In 2006, Susannah Baruch and colleagues at John Hopkins University published a survey of 190 American preimplantation genetic diagnosis (PGD) clinics, and found that 3% reported having the intentional use of PGD “to select an embryo for the presence of a disability.” Even before, in 2002, a controversy was generated by the case of Candace A. McCullough and Sharon M. Duchesneau, a lesbian and deaf couple from Maryland who set out to have a deaf child (then, Gauvin) by intentionally soliciting a deaf sperm donor. | |||||||||
| Keywords | deafness PGD genetic test | |||||||||
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S. Matthew Liao (2005). The Ethics of Using Genetic Engineering for Sex Selection. Journal of Medical Ethics 31 (2):116-118.
S. Matthew Liao (2005). The Ethics of Using Genetic Engineering for Sex Selection. Journal of Medical Ethics 31 (2):116-118.
Crystal K. Liu (2007). 'Saviour Siblings'? The Distinction Between PGD with HLA Tissue Typing and Preimplantation HLA Tissue Typing. Journal of Bioethical Inquiry 4 (1).
Tanja Krones & Gerd Richter (2004). Preimplantation Genetic Diagnosis (PGD): European Perspectives and the German Situation. Journal of Medicine and Philosophy 29 (5):623 – 640.
Jeffrey P. Kahn & Anna C. Mastroianni (2004). Creating a Stem Cell Donor: A Case Study in Reproductive Genetics. Kennedy Institute of Ethics Journal 14 (1):81-96.
Robert Sparrow (2002). Better Off Deaf. Res Publica 11 (1): 11-16..
Silvia Camporesi (2009). Choosing Deafness with Preimplantation Genetic Diagnosis: An Ethical Way to Carry on a Cultural Bloodline? Cambridge Quarterly of Healthcare Ethics 19 (01):86-.
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