End of Life Pediatric Research: What About the Ethics? [Book Review]
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Academic Ethics 7 (1-2):87-91 (2009)
Clinical trials are required in order to develop new treatments and improve both patient life expectancy and quality of life. In this respect the last 10 years proved their efficiency. However clinical research shows one of the most difficult dilemmas from an ethical point of view. Patients included in clinical trials are submitted to known and unknown risks and hazards, but rarely benefit from the results. This is even more evident when clinical trials use children who are terminally ill. The core consideration becomes how far should we go with research when considering the child best interest
|Keywords||Oncological pediatric Clinical research Patient best interest End of life Ethics|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
Simon Woods & Pauline Mccormack (2013). Disputing the Ethics of Research: The Challenge From Bioethics and Patient Activism to the Interpretation of the Declaration of Helsinki in Clinical Trials. Bioethics 27 (5):243-250.
Marek Czarkowski (2006). The Protection of Patients' Rights in Clinical Trials. Science and Engineering Ethics 12 (1):131-138.
Maurie Markman (2004). The Research Misconception. International Journal of Applied Philosophy 18 (2):241-252.
Margaret B. Liu (2010). A Clinical Trials Manual From the Duke Clinical Research Institute: Lessons From a Horse Named Jim. Wiley-Blackwell.
Joan Box (2004). Placebos and the UK Medical Research Council — and the Consumer Perspective. Science and Engineering Ethics 10 (1):95-101.
Malcolm G. Booth (2007). Informed Consent in Emergency Research: A Contradiction in Terms. Science and Engineering Ethics 13 (3):351-359.
Jacquelyn Slomka (2009). Manufacturing Mistrust: Issues in the Controversy Regarding Foster Children in the Pediatric Hiv/Aids Clinical Trials. Science and Engineering Ethics 15 (4):503-516.
Howard Kunin (1997). Ethical Issues in Pediatric Life-Threatening Illness: Dilemmas of Consent, Assent, and Communication. Ethics and Behavior 7 (1):43 – 57.
Lawrence Scahill, Mary Solanto & Joseph McGuire (2008). The Science and Ethics of Placebo in Pediatric Psychopharmacology. Ethics and Behavior 18 (2 & 3):266 – 285.
David Wendler (2012). A New Justification for Pediatric Research Without the Potential for Clinical Benefit. American Journal of Bioethics 12 (1):23 - 31.
Added to index2009-07-29
Total downloads28 ( #111,105 of 1,726,249 )
Recent downloads (6 months)2 ( #289,836 of 1,726,249 )
How can I increase my downloads?