Ethical Considerations in Clinical Trials for Rare Genetic Diseases: The Case of Huntington’s Disease

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American Journal of Bioethics 23 (7):94-96 (2023)
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Abstract

Research and clinical trial development for rare diseases pose unique bioethical challenges. Much of the literature on rare diseases focuses on patient advocacy and drug development to manage or cu...

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10.1080/15265161.2023.2207511

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