The Linacre Quarterly 86 (2-3):198-206 (2019)

Michal Pruski
Manchester Metropolitan University
The English cases of Charlie Gard and Alfie Evans involved a conflict between the desires of their parents to preserve their children’s lives and judgments of their medical teams in pursuit of clinically appropriate therapy. The treatment the children required was clearly extraordinary, including a wide array of advanced life-sustaining technological support. The cases exemplify a clash of worldviews rooted in different philosophies of life and medical care. The article highlights the differing perspectives on parental authority in medical care in England, Canada, and the United States. Furthermore, it proposes a solution that accommodates for both reasonable parental desires and professional medical opinion. This is achieved by looking at concepts of extraordinary therapy, best interest, reasonable parenthood and medical objections.
Keywords Care of dying minors  End-of-life care  Family  Minors/parental consent  Rights of conscience  Right to healthcare
Categories (categorize this paper)
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 60,842
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

No references found.

Add more references

Citations of this work BETA

No citations found.

Add more citations

Similar books and articles

Regulating Trust in Pediatric Clinical Trials.Wim Pinxten, Herman Nys & Kris Dierickx - 2008 - Medicine, Health Care and Philosophy 11 (4):439-444.
Parental Consent and the Use of Dead Children's Bodies.T. M. Wilkinson - 2001 - Kennedy Institute of Ethics Journal 11 (4):337-358.
The Child as Living Donor: Parental Consent and Child Assent.Rosalind Ekman Ladd - 2004 - Cambridge Quarterly of Healthcare Ethics 13 (2):143-148.
Parents, Adolescents, and Consent for Research Participation.A. S. Iltis - 2013 - Journal of Medicine and Philosophy 38 (3):332-346.
Extraordinary Means and Depression at the End of Life.Jeri Gerding - 2014 - The National Catholic Bioethics Quarterly 14 (4):697-710.
Parental Authority and Pediatric Bioethical Decision Making.M. J. Cherry - 2010 - Journal of Medicine and Philosophy 35 (5):553-572.


Added to PP index

Total views
5 ( #1,155,769 of 2,438,869 )

Recent downloads (6 months)
2 ( #283,061 of 2,438,869 )

How can I increase my downloads?


My notes