Investigative genetic genealogy: can collective privacy and solidarity help?

Journal of Medical Ethics 47 (12):796-797 (2021)
  Copy   BIBTEX

Abstract

In their article, de Groot et al respond to a call to bring investigative genetic genealogy i to the bioethical debate.1 They explore the extent to which the ethical approach used in the medical clinical genetics context can be helpful for conceptualising the ethical issues associated with IGG. They conclude that such an individual-based model, which revolves around notions of consent and privacy, has significant limitations in the IGG context. The authors call for a broader balancing of the benefits and risks of IGG, and the need for collective democratic engagement. de Groot et al ’s paper is a welcome addition to the literature—not only because it is an interesting and important analysis in its own right, but also because it foregrounds the importance of bringing forensic genetic debate to the bioethical audience. While forensic genetics has become increasingly widespread in the criminal justice system, bioethicists have often shied away from engaging with the ethical issues these practices raise.ii Perhaps this relates to the narrowing of bioethics debate over the past half a century to focus primarily on health-related issues,iii or to the techno-legal normative separation of DNA analysis in these two sectors, or perhaps both. Either way, as our desire for an ever-increasing collection and analysis of genetic data continues—and as we have seen in the IGG context—the lines between health, forensics and recreational associated DNA analysis and use are set to become …

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 93,990

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Quasi-Universal Forensic DNA Databases.Seumas Miller & Marcus Smith - 2022 - Criminal Justice Ethics 41 (3):238-256.
Privacy Versus Public Interest In Developing Human Genetic Databases.Baoqi Su & Darryl Macer - 2004 - Eubios Journal of Asian and International Bioethics 14 (3):82-85.
Shifting Ethical Boundaries in Forensic Use of DNA.Barbara Prainsack & Gabrielle Samuel - 2019 - Jahrbuch für Wissenschaft Und Ethik 24 (1):155-172.

Analytics

Added to PP
2021-11-29

Downloads
10 (#1,207,573)

6 months
8 (#505,340)

Historical graph of downloads
How can I increase my downloads?

Citations of this work

No citations found.

Add more citations