Regulatory and ethical principles in research involving children and individuals with developmental disabilities

Ethics and Behavior 14 (1):31 – 49 (2004)
Children and individuals with developmental disabilities compared to typical participants are disadvantaged not only by virtue of being vulnerable to risks inherent in research participation but also by the higher likelihood of exclusion from research altogether. Current regulatory and ethical guidelines although necessary for their protection do not sufficiently ensure fair distributive justice. Yet, in view of disproportionately higher burdens of co-occurring physical and mental disorders in individuals with DD, they are better positioned to benefit from research by equitable participation. Greater elucidation of this ethical dilemma is called for by researchers, institutional review boards, and funding agencies to urgently redress the imbalance. This article discusses many of the regulatory principles to ensure better research participation of children and individuals with DD: human rights, validity, distributive justice, beneficence/nonmaleficence, and autonomy
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1207/s15327019eb1401_3
 Save to my reading list
Follow the author(s)
My bibliography
Export citation
Find it on Scholar
Edit this record
Mark as duplicate
Revision history
Request removal from index
Download options
Our Archive

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 28,824
Through your library
References found in this work BETA
Principles of Biomedical Ethics.Tom L. Beauchamp - 1979 - Oxford University Press.
The Patient as Person.Paul Ramsey - 1970 - New Haven: Yale University Press.
Descartes Against the Skeptics.E. M. Curley - 1978 - Harvard University Press.

View all 10 references / Add more references

Citations of this work BETA
CQ Sources/Bibliography.Bette Anton - 2009 - Cambridge Quarterly of Healthcare Ethics 18 (2):155.
CQ Sources/Bibliography.Bette Anton - 1999 - Cambridge Quarterly of Healthcare Ethics 8 (4):348-350.

Add more citations

Similar books and articles

Monthly downloads

Added to index


Total downloads

15 ( #318,183 of 2,178,175 )

Recent downloads (6 months)

1 ( #316,504 of 2,178,175 )

How can I increase my downloads?

My notes
Sign in to use this feature

There  are no threads in this forum
Nothing in this forum yet.

Other forums