10 found
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  1.  5
    Click Here to Complete This Survey: Online Research, Adolescents, and Parental Consent.Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2020 - American Journal of Bioethics 20 (10):82-83.
    Volume 20, Issue 10, October 2020, Page 82-83.
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  2.  4
    Conflicts of Interest and Recommendations for Clinical Treatments That Benefit Researchers.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (10):90-91.
    Volume 20, Issue 10, October 2020, Page 90-91.
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  3.  5
    Ethical Drug Development for Rare Childhood Diseases: When There Are Limited But Promising Data in Adults, How to Choose Between Safety or Efficacy Studies?Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2020 - American Journal of Bioethics 20 (4):111-113.
    Volume 20, Issue 4, May 2020, Page 111-113.
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  4.  7
    Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.Stephanie A. Kraft, Devan M. Duenas, Hannah Lewis & Seema K. Shah - 2020 - American Journal of Bioethics 20 (5):31-33.
    Volume 20, Issue 5, June 2020, Page 31-33.
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  5.  3
    Greater Than Minimal Risk, No Direct Benefit – Bridging Drug Trials and Novel Therapy in Pediatric Populations.Benjamin S. Wilfond, Devan M. Duenas & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (4):102-103.
    Volume 20, Issue 4, May 2020, Page 102-103.
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  6.  3
    Demonstrating ‘Respect for Persons’ in Clinical Research: Findings From Qualitative Interviews with Diverse Genomics Research Participants.Stephanie A. Kraft, Erin Rothwell, Seema K. Shah, Devan M. Duenas, Hannah Lewis, Kristin Muessig, Douglas J. Opel, Katrina A. B. Goddard & Benjamin S. Wilfond - forthcoming - Journal of Medical Ethics:medethics-2020-106440.
    The ethical principle of ‘respect for persons’ in clinical research has traditionally focused on protecting individuals’ autonomy rights, but respect for participants also includes broader, although less well understood, ethical obligations to regard individuals’ rights, needs, interests and feelings. However, there is little empirical evidence about how to effectively convey respect to potential and current participants. To fill this gap, we conducted exploratory, qualitative interviews with participants in a clinical genomics implementation study. We interviewed 40 participants in English or Spanish (...)
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  7.  4
    Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study.Stephanie A. Kraft, Kathryn M. Porter, Devan M. Duenas, Claudia Guerra, Galen Joseph, Sandra Soo-Jin Lee, Kelly J. Shipman, Jake Allen, Donna Eubanks, Tia L. Kauffman, Nangel M. Lindberg, Katherine Anderson, Jamilyn M. Zepp, Marian J. Gilmore, Kathleen F. Mittendorf, Elizabeth Shuster, Kristin R. Muessig, Briana Arnold, Katrina A. B. Goddard & Benjamin S. Wilfond - 2021 - AJOB Empirical Bioethics 12 (1):1-11.
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  8.  5
    Clearing Muddy Waters: The Need to Reconceptualize Minor Increase Over Minimal Risk in Pediatric Rare Disease Research.Devan M. Duenas, Benjamin S. Wilfond & Liza-Marie Johnson - 2020 - American Journal of Bioethics 20 (4):8-10.
    Volume 20, Issue 4, May 2020, Page 8-10.
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  9. Supporting Investigators in Challenging Cases: Unease in the Face of an Ethically Appropriate Action.Liza-Marie Johnson, Devan M. Duenas & Benjamin S. Wilfond - 2021 - American Journal of Bioethics 21 (4):98-99.
    As medicine and science advance, new ethical questions emerge. Over time, deliberation and analysis result in a somewhat settled approach to a problem. Often the settled approach is based on group...
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  10.  7
    Reexamining the Categorical Exclusion of Pediatric Participants From Controlled Human Infection Trials.Sean C. Murphy, Devan M. Duenas, Thomas L. Richie & Seema K. Shah - 2020 - Bioethics 34 (8):785-796.
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