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  1. Patient Consent Preferences on Sharing Personal Health Information During the COVID-19 Pandemic: “The More Informed We Are, the More Likely We Are to Help”.Sarah Tosoni, Indu Voruganti, Katherine Lajkosz, Shahbano Mustafa, Anne Phillips, S. Joseph Kim, Rebecca K. S. Wong, Donald Willison, Carl Virtanen, Ann Heesters & Fei-Fei Liu - 2022 - BMC Medical Ethics 23 (1).
    Background Rapid ethical access to personal health information to support research is extremely important during pandemics, yet little is known regarding patient preferences for consent during such crises. This follow-up study sought to ascertain whether there were differences in consent preferences between pre-pandemic times compared to during Wave 1 of the COVID-19 global pandemic, and to better understand the reasons behind these preferences. Methods A total of 183 patients in the pandemic cohort completed the survey via email, and responses were (...)
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  2. COVID-19 Narratives and Layered Temporality.Jessica Howell - forthcoming - Medical Humanities:medhum-2021-012258.
    The essay outlines the ways in which narrative approaches to COVID-19 can draw on imaginative literature and critical oral history to resist the ‘closure’ often offered by cultural representations of epidemics. To support this goal, it analyses science and speculative fiction by Alejandro Morales and Tananarive Due in terms of how these works create alternative temporalities, which undermine colonial and racist medical discourse. The essay then examines a new archive of emerging autobiographical illness narratives, namely online Facebook posts and oral (...)
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  3. Are Conscientious Objectors Morally Obligated to Refer?Samuel Reis-Dennis & Abram Brummett - forthcoming - Journal of Medical Ethics.
    In this paper, we argue that providers who conscientiously refuse to provide legal and professionally accepted medical care are not always morally required to refer their patients to willing providers. Indeed, we will argue that refusing to refer is morally admirable in certain instances. In making the case, we show that belief in a sweeping moral duty to refer depends on an implicit assumption that the procedures sanctioned by legal and professional norms are ethically permissible. Focusing on examples of female (...)
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  4. A Chronological Discourse Analysis of Ancillary Care Provision in Guidance Documents for Research Conduct in the Global South.Blessings M. Kapumba, Nicola Desmond & Janet Seeley - 2022 - BMC Medical Ethics 23 (1).
    Introduction Numerous guidelines and policies for ethical research practice have evolved over time, how this translates to global health practice in resource-constrained settings is unclear. The purpose of this paper is to describe how the concept of ancillary care has evolved over time and how it is included in the ethics guidelines and policy documents that guide the conduct of research in the global south with both an international focus and providing a specific example of Malawi, where the first author (...)
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  5. Military Medical Ethics in Contemporary Armed Conflict: Mobilizing Medicine in the Pursuit of Just warMichael L.GrossOxford University Press:Oxford,2021. 304 Pp. ISBN 978‐0190694944. £29.99 (Paperback). [REVIEW]Saba Bazargan-Forward - forthcoming - Bioethics.
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  6. Mapping the Ethical Issues of Digital Twins for Personalised Healthcare Service.Pei-Hua Huang, Ki-hun Kim & Maartje Schermer - 2022 - Journal of Medical Internet Research 24 (1):e33081.
    Background: The concept of digital twins has great potential for transforming the existing health care system by making it more personalized. As a convergence of health care, artificial intelligence, and information and communication technologies, personalized health care services that are developed under the concept of digital twins raise a myriad of ethical issues. Although some of the ethical issues are known to researchers working on digital health and personalized medicine, currently, there is no comprehensive review that maps the major ethical (...)
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  7. COVID-19 Vaccination and the Right to Take Risks.Pei-Hua Huang - 2021 - Journal of Medical Ethics.
    The rare but severe cerebral venous thrombosis occurring in some AstraZeneca vaccine recipients has prompted some governments to suspend part of their COVID-19 vaccination programmes. Such suspensions have faced various challenges from both scientific and ethical angles. Most of the criticisms against such suspensions follow a consequentialist approach, arguing that the suspension will lead to more harm than benefits. In this paper, I propose a rights-based argument against the suspension of the vaccine rollouts amid this highly time-sensitive combat of COVID-19. (...)
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  8. Military Medical Ethics in Contemporary Armed Conflict: Mobilizing Medicine in the Pursuit of Just War Michael L. Gross Oxford University Press: Oxford, 2021. 304 Pp. ISBN 978‐0190694944. £29.99 (Paperback). [REVIEW]Saba Bazargan-Forward - forthcoming - Wiley: Bioethics.
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  9. The COVID-19 Vaccine Patent: A Right Without Rationale.Nabeel Mahdi Althabhawi & Ali Adil Kashef Al-Ghetaa - forthcoming - Medical Humanities:medhum-2022-012386.
    Since the approval of COVID-19 vaccines, international efforts have intensified on vaccination schemes perceived as the only light at the end of the tunnel. Governments are working tirelessly to scale up the number of vaccinated people, just as vaccine manufacturers are stretching their facilities to meet the increasing demand for doses. The international community is trying to help the poorest countries in the world by improving vaccine supplies and removing obstacles. In this regard, India and South Africa have applied to (...)
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  10. Relating Person‐Centredness to Quality‐of‐Life Assessments and Patient‐Reported Outcomes in Healthcare: A Critical Theoretical Discussion.Viktor Andersson, Richard Sawatzky & Joakim Öhlén - forthcoming - Nursing Philosophy.
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  11. Exploring the Intersection of Critical Disability Studies, Humanities and Global Health Through a Case Study of Scarf Injuries in Bangladesh.Anna Tupetz, Marion Quirici, Mohsina Sultana, Kazi Imdadul Hoque, Kearsley Alison Stewart & Michel Landry - forthcoming - Medical Humanities:medhum-2021-012244.
    This article puts critical disability studies and global health into conversation around the phenomenon of scarf injury in Bangladesh. Scarf injury occurs when a woman wearing a long, traditional scarf called an orna rides in a recently introduced autorickshaw with a design flaw that allows the orna to become entangled in the vehicle’s driveshaft. Caught in the engine, the orna pulls the woman’s neck into hyperextension, causing a debilitating high cervical spinal cord injury and quadriplegia. The circumstances of the scarf (...)
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  12. Finding More Constructive Ways Forward in the Debate Over Vaccines with Increased Disability Cultural Competence.Carolin Ahlvik-Harju - forthcoming - Medical Humanities:medhum-2021-012342.
    The aim of this article is to study the discursive construction of disability that takes place in the vaccine-autism controversy from the 1990s to 2000s, and an attempt to develop a more holistic framework to understand vaccine decisions and their motivations. It is argued that the debate over vaccines produces knowledge and meanings about disability, and that the vaccine-autism controversy is kept alive largely because of how it reproduces stigmatising accounts of disability and autism. The suggestion is that if the (...)
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  13. Sea of Bodies: A Medical Discourse of the Refugee Crisis in Tears of Salt: A Doctor’s Story.Lava Asaad & Matthew Spencer - forthcoming - Medical Humanities:medhum-2021-012242.
    In the memoir Tears of Salt: A Doctor’s Story, Pietro Bartolo relates visceral descriptions of illness, injury and death endured by refugees on their journey of escape to the shores of Lampedusa in the Mediterranean. The medical gaze of the doctor/author further complicates the political and philosophical discourse of mass migration, foregrounding and calling into question the myriad ways in which the migrating human body is subjugated to forms of structural violence that render it ungrievable and inhuman. The migrating body, (...)
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  14. Good Ethics and Bad Choices: The Relevance of Behavioural Economics for Medical Ethics. Jennifer S.Blumenthal‐BarbyMIT Press: Cambridge, MA, 2021. 251 Pp. ISBN 978‐0‐262‐54248‐7. US $45.00 (Soft Cover). [REVIEW]Kathryn MacKay - 2022 - Bioethics 36 (4):474-475.
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  15. Public Trust and Medical Ethics.Elizabeth Lanphier - 2022 - Hastings Center Report 52 (2):58-59.
    Hastings Center Report, Volume 52, Issue 2, Page 58-59, March‐April 2022.
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  16. Good Ethics and Bad Choices: The Relevance of Behavioural Economics for Medical Ethics. Jennifer S. Blumenthal‐Barby MIT Press: Cambridge, MA, 2021. 251 Pp. ISBN 978‐0‐262‐54248‐7. US $45.00 (Soft Cover). [REVIEW]Kathryn MacKay - 2022 - Wiley: Bioethics 36 (4).
    Bioethics, Volume 36, Issue 4, Page 474-475, May 2022.
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  17. Review of Jennifer S. Blumenthal-Barby, Good Ethics and Bad Choices: The Relevance of Behavioral Economics for Medical Ethics. [REVIEW]Sven Nyholm - 2022 - American Journal of Bioethics 22 (5):4-5.
    When Jennifer Blumenthal-Barby was a bioethics intern at the Cleveland Clinic while she was still a graduate student, she was puzzled by the decision making of some patients at the clinic. For exam...
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  18. Health Law and Medical Ethics in Singapore.Gary Chan Kok Yew - 2020 - Routledge.
    This book encompasses two inter-related disciplines of health law and medical ethics applicable to Singapore. Apart from Singapore legal materials, it draws upon relevant case precedents and statutory developments from other common law countries and incorporates recommendations and reports by health-related bodies, agencies and committees. The book is written in an accessible manner suitable for tertiary students. It should also serve as a useful resource for medico-legal practitioners, academics and healthcare professionals who wish to keep abreast of the evolving legal (...)
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  19. The Trouble with Personhood and Person‐Centred Care.Matthew Tieu, Alexandra Mudd, Tiffany Conroy, Alejandra Pinero de Plaza & Alison Kitson - 2022 - Nursing Philosophy.
    The phrase ‘person‐centred care’ (PCC) reminds us that the fundamental philosophical goal of caring for people is to uphold or promote their personhood. However, such an idea has translated into promoting individualist notions of autonomy, empowerment and personal responsibility in the context of consumerism and neoliberalism, which is problematic both conceptually and practically. From a conceptual standpoint, it ignores the fact that humans are social, historical and biographical beings, and instead assumes an essentialist or idealized concept of personhood in which (...)
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  20. Clinical Reasoning as Midwifery: A Socratic Model for Shared Decision Making in Person‐Centred Care.Julie D. Gunby & Jennifer Ryan Lockhart - forthcoming - Nursing Philosophy.
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  21. Writing the Worlds of Genomic Medicine: Experiences of Using Participatory-Writing to Understand Life with Rare Conditions.Richard Gorman & Bobbie Farsides - forthcoming - Medical Humanities:medhum-2021-012346.
    The diagnostic and treatment possibilities made possible by the development and subsequent mainstreaming of clinical genomics services have the potential to profoundly change the experiences of families affected by rare genetic conditions. Understanding the potentials of genomic medicine requires that we consider the perspectives of those who engage with such services; there are substantial social implications involved. There are increasing calls to think more creatively, and draw on more participatory approaches, in evoking rich accounts of lived experience. In this article, (...)
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  22. Situational Judgment Using Ethical Reasoning in Saudi Undergraduate Pharmacy Students.Fahad Saleh Alkhuzaee, Majid Ali, Khang Wen Goh, Yaser Mohammed Al-Worafi & Long Chiau Ming - 2022 - BMC Medical Ethics 23 (1).
    Introduction There is a paramount need for moral development for pharmacists and pharmacy students to practice the patient-centered profession. We aimed to explore the current situational judgment utilizing ethical reasoning among undergraduate pharmacy students. Methods A set of ten ethical dilemmas, representing potential real-life situations that the students come across in the university and may face in the future as a pharmacist were developed by a team of students, academic staff, and stakeholders. These ethical dilemmas were validated, checked for accuracy, (...)
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  23. Teaching Medical Ethics Through Medical Law.Christopher Cowley - 2022 - Teaching Philosophy 45 (2):139-152.
    Medical ethics is normally taught in a combination of three ways: through discussions of normative theories and principles; through for-and-against debating of topics; or through case studies. I want to argue that a fourth approach might be better, and should be used more: teaching medical ethics through medical law. Medical law is already deeply imbued with ethical concepts, principles and reasons, and allows the discussion of ethics through the “back door,” as it were. The two greatest advantages of the law (...)
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  24. Commitment Devices: Beyond the Medical Ethics of Nudges.Nathan Hodson - forthcoming - Journal of Medical Ethics:medethics-2021-107967.
    Commitment devices can help people overcome self-control problems to act on their plans and preferences. In these arrangements, people willingly make one of their options worse in order to change their own future behaviour, often by setting aside a sum of money that they will forfeit it if they fail to complete the planned action. Such applications of behavioural science have been used to help people stick to healthier lifestyle choices, overcome addictions and adhere to medication; they are acceptable to (...)
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  25. Varsity Medical Ethics Debate 2019: Is Authoritarian Government the Route to Good Health Outcomes?Azmaeen Zarif, Rhea Mittal, Ben Popham, Imogen C. Vorley, Jessy Jindal & Emily C. Morris - forthcoming - Journal of Medical Ethics:medethics-2021-107861.
    Authoritarian governments are characterised by political systems with concentrated and centralised power. Healthcare is a critical component of any state. Given the powers of an authoritarian regime, we consider the opportunities they possess to derive good health outcomes. The 2019 Varsity Medical Ethics Debate convened on the motion: ‘This house believes authoritarian government is the route to good health outcomes’ with Oxford as the Proposition and Cambridge as the Opposition. This article summarises and extends key arguments made during the 11th (...)
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  26. First Among Equals? Adaptive Preferences and the Limits of Autonomy in Medical Ethics.Susan Pennings & Xavier Symons - forthcoming - Journal of Medical Ethics:medethics-2021-107942.
    Respect for patient autonomy is a central principle of medical ethics. However, there are important unresolved questions about the characteristics of an autonomous decision, and whether some autonomous preferences should be subject to more scrutiny than others.In this paper, we consider whether inappropriately adaptive preferences—preferences that are based on and that may perpetuate social injustice—should be categorised as autonomous in a way that gives them normative authority. Some philosophers have argued that inappropriately adaptive preferences do not have normative authority, because (...)
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  27. Historiographies of Surgical Innovation: Endoscopic Endonasal Pituitary Surgery.Katherine Conroy - forthcoming - Medical Humanities:medhum-2021-012264.
    The historiography of medicine has shifted from narratives of inevitable progress, authored mainly by the medical profession, to a more complex, analytical approach in which historians place medicine in its social context. However, the history of surgery has lagged behind somewhat; Christopher Lawrence suggests this is because the recent focus on the construction of medical knowledge does not incorporate the practical aspects of surgery, which are difficult to extract from their previous linear narrative. Thomas Schlich likewise recognises that surgery is (...)
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  28. Adiaphorisation and the Digital Nursing Gaze: Liquid Surveillance in Long‐Term Care.Giovanni Rubeis - forthcoming - Nursing Philosophy.
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  29. Reflections of the Collaborative Care Planning as a Person‐Centred Practice.Ingela Jobe - forthcoming - Nursing Philosophy.
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  30. Understanding and Formation—A Process of Becoming a Nurse.Ann-Helén Sandvik & Yvonne Hilli - forthcoming - Nursing Philosophy.
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  31. What Makes Us Human? Exploring the Significance of Ricoeur's Ethical Configuration of Personhood Between Naturalism and Phenomenology in Health Care.Bengt Kristensson Uggla - forthcoming - Nursing Philosophy.
  32. Contemplating the Spirituality of Scholarship.David Coghlan - forthcoming - Nursing Philosophy.
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  33. Some Thoughts About the Future of Nursing and/in Philosophy.Miriam Bender & Stefanos Mantzoukas - 2022 - Nursing Philosophy 23 (2).
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  34. ‘Sono Solo Parole’: Facing Challenges Entailed in Developing and Applying Terminologies to Document Nursing Care.Cecilia Malabusini - forthcoming - Nursing Philosophy.
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  35. Practising the Ethics of Person‐Centred Care Balancing Ethical Conviction and Moral Obligations.Inger Ekman - forthcoming - Nursing Philosophy.
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  36. Exploring the Uses of Virtues in Woman‐Centred Care: A Quest, Synthesis and Reflection.Yvonne J. Kuipers - 2022 - Nursing Philosophy 23 (2).
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  37. Persuasive Discourses in Editorials Published by the Top‐Five Nursing Journals: Findings From a 5‐Year Analysis.Giovanna Iob, Chiara Visintini & Alvisa Palese - 2022 - Nursing Philosophy 23 (2).
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  38. Hospitals as Total Institutions.Danisha Jenkins, Candace Burton & Dave Holmes - 2022 - Nursing Philosophy 23 (2).
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  39. Making Things Work: Using Bourdieu's Theory of Practice to Uncover an Ontology of Everyday Nursing in Practice.Sarah Lake, Sandra West & Trudy Rudge - 2022 - Nursing Philosophy 23 (2).
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  40. Gilles Deleuze's Societies of Control: Implications for Mental Health Nursing and Coercive Community Care.Etienne Paradis-Gagné & Dave Holmes - 2022 - Nursing Philosophy 23 (2).
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  41. Existential Phenomenology as a Unifying Philosophy of Science for a Mixed Method Study.Birgith Pedersen, Mette Grønkjær & Charlotte Delmar - 2022 - Nursing Philosophy 23 (2).
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  42. What is the Foundation of Medical Ethics—Common Morality, Professional Norms, or Moral Philosophy?Søren Holm - 2022 - Cambridge Quarterly of Healthcare Ethics 31 (2):192-198.
    This paper considers the relation between medical ethics and common morality, professional norms, and moral philosophy. It proceeds by analyzing two recent book-length critical analyses of this relationship by Bob Baker in “The Structure of Moral Revolutions—Studies of Changes in the Morality of Abortion, Death, and the Bioethics Revolution” and Rosamond Rhodes in “The Trusted Doctor—Medical Ethics and Professionalism.” It argues that despite the strengths of these critical arguments, there is nevertheless a relationship between ME, understood as the professional ethics (...)
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  43. The Transition From Abortion to Miscarriage to Describe Early Pregnancy Loss in British Medical Journals: A Prescribed or Natural Lexical Change?Beth Malory - forthcoming - Medical Humanities:medhum-2021-012373.
    In British medical research, the transition from abortion to miscarriage, to describe early pregnancy loss, occurred in the late twentieth century. A 1985 letter to The Lancet by a group of eminent obstetricians was long considered unilaterally to have prompted this shift. More recently, however, this conclusion was challenged, and it was suggested instead that the transition constituted natural language change, as medical professionals responded to their changing social and professional milieu. This paper, however, uses a pioneering statistical modelling technique (...)
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  44. In Critique of Anthropocentrism: A More-Than-Human Ethical Framework for Antimicrobial Resistance.Jose A. Cañada, Salla Sariola & Andrea Butcher - forthcoming - Medical Humanities:medhum-2021-012309.
    Antimicrobial resistance is often framed as a One Health issue, premised on the interdependence between human, animal and environmental health. Despite this framing, the focus across policymaking, implementation and the ethics of AMR remains anthropocentric in practice, with human health taking priority over the health of non-human animals and the environment, both of which mostly appear as secondary elements to be adjusted to minimise impact on human populations. This perpetuates cross-sectoral asymmetries whereby human health institutions have access to bigger budgets (...)
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  45. Sparing the Doctor’s Blushes: The Use of Sexually Explicit Films for the Purpose of Sexual Attitude Reassessment (SAR) in the Training of Medical Practitioners in Britain During the 1970s.Robert Irwin - forthcoming - Medical Humanities:medhum-2021-012341.
    The general reluctance of medical practitioners in postwar Britain to ‘speak of sex’ during healthcare consultations increasingly became a matter of professional concern in the wake of legal reforms and social changes during the 1960s affecting sexual expression and reproductive health, and a growing optimism in the early 1970s concerning the treatment of sexual difficulties. In the mid-1970s, largely as a result of the work of Dr Elizabeth Stanley, Sexual Attitude Reassessment seminars were introduced from the USA into some medical (...)
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  46. ‘The Time is Out of Joint’: Temporality, COVID-19 and Graphic Medicine.Sathyaraj Venkatesan & Ishani Anwesha Joshi - forthcoming - Medical Humanities:medhum-2021-012357.
    This article aims to theorise the human experiences of time during the lockdown and the COVID-19 pandemic through the verbo-visual exposition of graphic medicine that combines the medium of comics and healthcare. The event of the pandemic has not only bifurcated our perception of time in terms of a ‘before’ and an ‘after’ but also complicated our awareness and experience of time. Put differently, an epochal transformation caused by pandemics has shifted our temporal experience from the calendar/clock time to a (...)
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  47. Unburdening Expectation and Operating Between: Architecture in Support of Palliative Care.Rebecca Mclaughlan & Beth George - forthcoming - Medical Humanities:medhum-2021-012340.
    The role of design and materials in the enactment and experience of healthcare has gained increasing attention across the fields of evidence-based design, architecture, anthropology, sociology and cultural geography. Evidence-based design, specifically, seeks to understand the ways in which the built environment can support the healing process. In the context of palliative care, however, the very measure of healing differs vastly. Physicians Mount and Kearney suggest that ‘it is possible to die healed’, and that such healing can be facilitated through (...)
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  48. Decolonising ‘Man’, Resituating Pandemic: An Intervention in the Pathogenesis of Colonial Capitalism.Rosemary J. Jolly - forthcoming - Medical Humanities:medhum-2021-012267.
    This paper brings together fifth-wave public health theory and a decolonised approach to the human informed by the Caribbean thinker, Sylvia Wynter, and the primary exponent of African Humanism, Es’kia Mpahlele. Sub-Saharan indigenous ways of thinking the human as co-constitutive in a subject we might call human-animal-‘environment’, in conjunction with the subcontinent’s experiences of colonial damage in disease ‘prevention’ and ‘treatment’, demonstrate the lack of genuine engagement with Indigenous wisdom in Western medical practice.The paper offers a decolonial reading of pandemic (...)
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  49. A Model for Abolitionist Narrative Medicine Pedagogy.Pooja M. Varman, Marcus P. Mosley & Billie Christ - forthcoming - Medical Humanities:medhum-2021-012153.
    To use narrative medicine as a means for action towards social justice in medical education, we need a renewal of our pedagogical methods that grapples not just with the worlds concocted within a text, but also our own world beyond the text. We propose a model for narrative medicine pedagogy that is oriented towards abolition. First, the composition of the classroom and syllabus must employ radical inclusion through recruitment of diverse voices and selection of diverse texts. After a traditional close (...)
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  50. Narratives of Prevention and Redemption in Opioid Overdose Obituaries.Elizabeth Troutman Adams & Mara Buchbinder - forthcoming - Medical Humanities:medhum-2021-012143.
    Obituaries of people who died from an opioid overdose represent a new territory for understanding cultural narratives of the US opioid epidemic. Drawing on textual analysis of 30 opioid overdose obituaries published on Legacy.com between 2015 and 2020, we describe a prototypical narrative conveyed through opioid overdose obituaries, which renders symbolic meaning through the voices of the bereaved. Obituary authors reimagine their subjects as tragic heroes and reconstitute opioid addiction as a curse, plight or affliction that befalls its victims. Many (...)
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