Individual, family, and societal dimensions of genetic discrimination: A case study analysis [Book Review]
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Lisa N. Geller, Joseph S. Alper, Paul R. Billings, Carol I. Barash, Jonathan Beckwith & Marvin R. Natowicz
Science and Engineering Ethics 2 (1):71-88 (1996)
Background. As the development and use of genetic tests have increased, so have concerns regarding the uses of genetic information. Genetic discrimination, the differential treatment of individuals based on real or perceived differences in their genomes, is a recently described form of discrimination. The range and significance of experiences associated with this form of discrimination are not yet well known and are investigated in this study. Methods. Individuals at-risk to develop a genetic condition and parents of children with specific genetic conditions were surveyed by questionnaire for reports of genetic discrimination. A total of 27,790 questionnaires were sent out by mail. Of 917 responses received, 206 were followed up with telephone interviews. The responses were analyzed regarding circumstances of the alleged discrimination, the institutions involved, issues relating to the redress of grievances, and strategies to avoid discrimination.
|Keywords||genetic discrimination genetic testing Medical Information Bureau state insurance commissions|
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Bernice S. Elger & Timothy W. Harding (2006). Should Children and Adolescents Be Tested for Huntington's Disease? Attitudes of Future Lawyers and Physicians in Switzerland. Bioethics 20 (3):158–167.
Lainie Friedman Ross (2006). Heterozygote Carrier Testing in High Schools Abroad: What Are the Lessons for the U.S.? Journal of Law, Medicine and Ethics 34 (4):753-764.
Karen Pollitz, Beth N. Peshkin, Eliza Bangit & Kevin Lucia (2007). Genetic Discrimination in Health Insurance: Current Legal Protections and Industry Practices. Inquiry 44 (3):350-368.
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