Individual, family, and societal dimensions of genetic discrimination: A case study analysis [Book Review]
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Lisa N. Geller, Joseph S. Alper, Paul R. Billings, Carol I. Barash, Jonathan Beckwith & Marvin R. Natowicz
Science and Engineering Ethics 2 (1):71-88 (1996)
Background. As the development and use of genetic tests have increased, so have concerns regarding the uses of genetic information. Genetic discrimination, the differential treatment of individuals based on real or perceived differences in their genomes, is a recently described form of discrimination. The range and significance of experiences associated with this form of discrimination are not yet well known and are investigated in this study. Methods. Individuals at-risk to develop a genetic condition and parents of children with specific genetic conditions were surveyed by questionnaire for reports of genetic discrimination. A total of 27,790 questionnaires were sent out by mail. Of 917 responses received, 206 were followed up with telephone interviews. The responses were analyzed regarding circumstances of the alleged discrimination, the institutions involved, issues relating to the redress of grievances, and strategies to avoid discrimination.
|Keywords||genetic discrimination genetic testing Medical Information Bureau state insurance commissions|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Bernice S. Elger & Timothy W. Harding (2006). Should Children and Adolescents Be Tested for Huntington's Disease? Attitudes of Future Lawyers and Physicians in Switzerland. Bioethics 20 (3):158–167.
Lainie Friedman Ross (2006). Heterozygote Carrier Testing in High Schools Abroad: What Are the Lessons for the U.S.? Journal of Law, Medicine and Ethics 34 (4):753-764.
Karen Pollitz, Beth N. Peshkin, Eliza Bangit & Kevin Lucia (2007). Genetic Discrimination in Health Insurance: Current Legal Protections and Industry Practices. Inquiry 44 (3):350-368.
Similar books and articles
Karen Eltis (2007). Genetic Determinism and Discrimination: A Call to Re-Orient Prevailing Human Rights Discourse to Better Comport with the Public Implications of Individual Genetic Testing. Journal of Law, Medicine and Ethics 35 (2):282-294.
L. J. (2001). Ideologies of Discrimination: Personhood and the 'Genetic Group'. Studies in History and Philosophy of Science Part C 32 (4):705-721.
V. Launis (2000). The Use of Genetic Test Information in Insurance: The Argument From Indistinguishability Reconsidered. Science and Engineering Ethics 6 (3):299-310.
M. O. (2001). Genetic Prediction: What Are the Limits? Studies in History and Philosophy of Science Part C 32 (4):619-633.
Neil A. Manson (2007). Why Shouldn't Insurance Companies Know Your Genetic Information? Journal of Philosophical Research 32 (Supplement):345-356.
Joseph S. Alper & Jon Beckwith (1998). Distinguishing Genetic From Nongenetic Medical Tests: Some Implications for Antidiscrimination Legislation. Science and Engineering Ethics 4 (2):141-150.
Margaret Otlowski (2005). Exploring the Concept of Genetic Discrimination. Journal of Bioethical Inquiry 2 (3):165-176.
B. M. Kious (2010). Genetic Nondiscrimination and Health Care as an Entitlement. Journal of Medicine and Philosophy 35 (2):86-100.
Mark Munsterhjelm (2011). “Unfit for Life”: A Case Study of Protector-Protected Analogies in Recent Advocacy of Eugenics and Coercive Genetic Discrimination. [REVIEW] Journal of Bioethical Inquiry 8 (2):177-189.
Added to index2009-01-28
Total downloads12 ( #150,301 of 1,692,743 )
Recent downloads (6 months)1 ( #182,244 of 1,692,743 )
How can I increase my downloads?