Familial Communication of Research Results: A Need to Know?

Journal of Law, Medicine and Ethics 39 (4):605-613 (2011)
  Copy   BIBTEX

Abstract

In recent years, the research participant’s family’s need, if not right, to know their disease risk has comprised a great deal of the genetic testing discourse. This most often arises in the context of clinical genetic tests for hereditary cancers, especially colorectal and breast cancer, and other genetic disorders where the presence of a genetic mutation greatly increases the likelihood of the disease’s manifestation. However, this discussion has not led to comprehensive or cohesive guidance for health care professionals or patients. Indeed, various governmental and professional bodies run the gamut of possibilities, from no disclosure to family without the consent of the patient, to recognition that genetic risk information is important enough to the family to allow exception to traditional notions of confidentiality.

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 93,098

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Analytics

Added to PP
2016-02-04

Downloads
28 (#589,033)

6 months
9 (#355,374)

Historical graph of downloads
How can I increase my downloads?