BMC Medical Ethics 16 (1):60 (2015)

Authors
Flavio D'Abramo
Freie Universität Berlin
Abstract
Appropriate information and consent has been one of the most intensely discussed topics within the context of biobank research. In parallel to the normative debate, many socio-empirical studies have been conducted to gather experiences, preferences and views of patients, healthy research participants and further stakeholders. However, there is scarcity of literature which connects the normative debate about justifications for different consent models with findings gained in empirical research. In this paper we discuss findings of a limited review of socio-empirical research on patients’ and healthy research participants’ experiences and views regarding consent to biobank research in light of ethical principles for appropriate information and consent
Keywords Consent  Research ethics  Genomic research  Biobank
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DOI 10.1186/s12910-015-0053-5
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References found in this work BETA

The Birth of Bioethics.Albert R. Jonsen - 2003 - Oxford University Press.
Can Broad Consent Be Informed Consent?M. Sheehan - 2011 - Public Health Ethics 4 (3):226-235.
Informed Consent: Its History, Meaning, and Present Challenges.Tom L. Beauchamp - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (4):515-523.

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