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  1.  36
    Engaging Communities to Strengthen Research Ethics in Low‐Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal K Enya.Dorcas M. Kamuya, Vicki Marsh, Francis K. Kombe, P. Wenzel Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):10-20.
    There is wide agreement that community engagement is important for many research types and settings, often including interaction with ‘representatives’ of communities. There is relatively little published experience of community engagement in international research settings, with available information focusing on Community Advisory Boards or Groups (CAB/CAGs), or variants of these, where CAB/G members often advise researchers on behalf of the communities they represent. In this paper we describe a network of community members (‘KEMRI Community Representatives’, or ‘KCRs’) linked to a (...)
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  2.  52
    Evolving Friendships and Shifting Ethical Dilemmas: Fieldworkers’ Experiences in a Short Term Community Based Study in K Enya.Dorcas M. Kamuya, Sally J. Theobald, Patrick K. Munywoki, Dorothy Koech, Wenzel P. Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):1-9.
    Fieldworkers (FWs) are community members employed by research teams to support access to participants, address language barriers, and advise on culturally appropriate research conduct. The critical role that FWs play in studies, and the range of practical and ethical dilemmas associated with their involvement, is increasingly recognised. In this paper, we draw on qualitative observation and interview data collected alongside a six month basic science study which involved a team of FWs regularly visiting 47 participating households in their homes. The (...)
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  3.  7
    “When They See Us, It’s Like They Have Seen the Benefits!”: Experiences of Study Benefits Negotiations in Community-Based Studies on the Kenyan Coast.Dorcas M. Kamuya, Vicki Marsh, Patricia Njuguna, Patrick Munywoki, Michael Parker & Sassy Molyneux - 2014 - BMC Medical Ethics 15 (1):90.
    Benefit sharing in health research has been the focus of international debates for many years, particularly in developing countries. Whilst increasing attention is being given to frameworks that can guide researchers to determine levels of benefits to participants, there is little empirical research from developing countries on the practical application of these frameworks, including in situations of extreme poverty and vulnerability. In addition, the voices of those who often negotiate and face issues related to benefits in practice - frontline researchers (...)
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  4.  35
    Benefits and Payments for Research Participants: Experiences and Views From a Research Centre on the Kenyan Coast.M. Marsh Vicki, M. Kamuya Dorcas, M. Mlamba Albert, N. Williams Thomas & S. Molyneux Sassy - 2010 - BMC Medical Ethics (1):13-.
    Background: There is general consensus internationally that unfair distribution of the benefits of research is exploitative and should be avoided or reduced. However, what constitutes fair benefits, and the exact nature of the benefits and their mode of provision can be strongly contested. Empirical studies have the potential to contribute viewpoints and experiences to debates and guidelines, but few have been conducted. We conducted a study to support the development of guidelines on benefits and payments for studies conducted by the (...)
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