5 found
Gabrielle N. Samuel [4]Gabrielle Natalie Samuel [2]
  1.  2
    The UK’s 100,000 Genomes Project: manifesting policymakers’ expectations.Gabrielle Natalie Samuel & Bobbie Farsides - 2017 - New Genetics and Society 36 (4):336-353.
    The UK’s 100,000 Genomes Project has the aim of sequencing 100,000 genomes from UK National Health Service (NHS) patients while concomitantly transforming clinical care such that whole genome sequencing becomes routine clinical practice in the UK. Policymakers claim that the project will revolutionize NHS care. We wished to explore the 100,000 Genomes Project, and in particular, the extent to which policymaker claims have helped or hindered the work of those associated with Genomics England – the company established by the Department (...)
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  2.  13
    The Evaluation Scale: Exploring Decisions About Societal Impact in Peer Review Panels.Gemma E. Derrick & Gabrielle N. Samuel - 2016 - Minerva 54 (1):75-97.
    Realising the societal gains from publicly funded health and medical research requires a model for a reflexive evaluation precedent for the societal impact of research. This research explores UK Research Excellence Framework evaluators’ values and opinions and assessing societal impact, prior to the assessment taking place. Specifically, we discuss the characteristics of two different impact assessment extremes – the “quality-focused” evaluation and “societal impact-focused” evaluation. We show the wide range of evaluator views about impact, and that these views could be (...)
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  3.  42
    Direct-to-Consumer Personal Genome Testing: The Problem Is Not Ignorance–It Is Market Failure.Christopher F. C. Jordens, Ian H. Kerridge & Gabrielle N. Samuel - 2009 - American Journal of Bioethics 9 (6-7):13-15.
  4.  23
    Public trust and ‘ethics review’ as a commodity: the case of Genomics England Limited and the UK’s 100,000 genomes project. [REVIEW]Gabrielle Natalie Samuel & Bobbie Farsides - 2018 - Medicine, Health Care and Philosophy 21 (2):159-168.
    The UK Chief Medical Officer’s 2016 Annual Report, Generation Genome, focused on a vision to fully integrate genomics into all aspects of the UK’s National Health Service. This process of integration, which has now already begun, raises a wide range of social and ethical concerns, many of which were discussed in the final Chapter of the report. This paper explores how the UK’s 100,000 Genomes Project —the catalyst for Generation Genome, and for bringing genomics into the NHS—is negotiating these ethical (...)
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  5.  63
    Equity, utility, and the marketplace: Emerging ethical issues of umbilical cord blood banking in australia. [REVIEW]Gabrielle N. Samuel & Ian H. Kerridge - 2007 - Journal of Bioethical Inquiry 4 (1):57-63.
    Over the past decade, umbilical cord blood (UCB) has routinely been used as a source of haematopoietic stem cells for allogeneic stem cell transplants in the treatment of a range of malignant and non-malignant conditions affecting children and adults. UCB banks are a necessary part of the UCB transplant program, but their establishment has raised a number of important scientific, ethical and political issues. This paper examines the scientific and clinical evidence that has provided the basis for the establishment of (...)
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