About this topic
Summary Genetic testing is carried out for different purposes: diagnostic, predictive, and reproductive. Diagnostic testing is complementary to other diagnostic techniques, yet it raises issues of confidentiality, privacy, data security, accidental findings, the right not to know and the duty to communicate valuable information to genetically related relatives. Predictive and reproductive testing are even more problematic. Predictive testing may raise different issues at the individual and population level (screening). At both the individual and the population level, it raises the issues of voluntariness, informed consent, legislative protection against discrimination. Reproductive testing raises issues of eugenics, nondirectiveness in reproductive decisions, and reproductive rights. Inequalities in access to testing technology and genetic counselling raise issues of justice. Other questions concern genetic knowledge itself: when is a genetic test sufficiently sensitive and reliable, when are its results adequately interpreted, in order for the test to be made available to individuals, commercialised, or offered to the population at large by health care institutions.
Key works Doukas & Berg 2001 and Brock 2001 offer a good and influential discussion of the conflict between confidentiality and the duty to prevent harm when a genetic test subject refuses to disclose own genetic information which might be relevant to a relative and allow an third party to prevent severe harm to herself. Beckman 2004 analyzes genetic self-tests and argues that while misperceptions and misunderstandings of genetic information compromise autonomy, genetic information does not (even if it causes anxiety, distress, and loss of life hope). Vehmas 2001 discusses whether prospective parents ought to find out about their genetic constitution for reproductive reasons and defends the parental right not to know. Influentially, Rhodes 1998 argues that no one has the right to remain in ignorance. Takala 1999 and Takala & Häyry 2000 defend the right not to know against Rhodes' attack. Rebecca 2001 defends the right of the woman to reject prenatal genetic testing. Savulescu 2001 argues that couples or single reproducers have a prima facie moral duty to select the embryo with the best life prospects,  selecting against harmful genetic susceptibilities and in favor of beneficial ones.
Introductions Robertson & Savelescu 2001 MacDonald & Williams-Jones 2002
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  1. added 2019-01-06
    The Future of Phage: Ethical Challenges of Using Phage Therapy to Fight Bacterial Infections.Jonathan Anomaly - manuscript
  2. added 2018-12-14
    Review of Colin Farrelly, Genetic Ethics. [REVIEW]Jonathan Anomaly - 2018 - Notre Dame Philosophical Reviews:X-Y.
  3. added 2018-12-03
    Finansowanie testów genetycznych ze źródeł publicznych.Olga Dryla - 2015 - Diametros 44:1-19.
    One of the signs of the rapid development of medical genetics is a gradual increase in the number of genetic tests available. Different aspects of this phenomenon have been addressed and debated in the source literature, but so far relatively little has been said about the obligation to provide equal access – in the social context – to selected kinds of tests. In this article, I attempt to reconstruct those few suggestions, dealing with the principles of funding genetic tests from (...)
  4. added 2018-11-02
    Well-Being, Opportunity, and Selecting for Disability.Andrew Schroeder - 2018 - Journal of Ethics and Social Philosophy 14 (1).
    In this paper I look at the much-discussed case of disabled parents seeking to conceive disabled children. I argue that the permissibility of selecting for disability does not depend on the precise impact the disability will have on the child’s wellbeing. I then turn to an alternative analysis, which argues that the permissibility of selecting for disability depends on the impact that disability will have on the child’s future opportunities. Nearly all bioethicists who have approached the issue in this way (...)
  5. added 2018-07-24
    Eugenics in Philosophy.Robert A. Wilson - 2017 - Oxford Bibliographies Online.
    Annotated bibliography on eugenics and philosophy.
  6. added 2018-03-06
    Identità e determinismo genetico. Bioetica e filosofia delle scienze genetiche.Gregory Tranchesi - 2013 - Edizioni Nuova Prhomos.
  7. added 2018-01-12
    Procreative Beneficence and Genetic Enhancement.Walter Veit - 2018 - Kriterion - Journal of Philosophy 32 (1):75-92.
    Imagine a world where everyone is healthy, intelligent, long living and happy. Intuitively this seems wonderful albeit unrealistic. However, recent scienti c breakthroughs in genetic engineering, namely CRISPR/Cas bring the question into public discourse, how the genetic enhancement of humans should be evaluated morally. In 2001, when preimplantation genetic diagnosis (PGD) and in vitro fertilisation (IVF), enabled parents to select between multiple embryos, Julian Savulescu introduced the principle of procreative bene cence (PPB), stating that parents have the obligations to choose (...)
  8. added 2017-02-16
    The Return of Lombroso? Ethical Aspects of Preventive Forensic Screening.Christian Munthe & Susanna Radovic - 2015 - Public Health Ethics 8 (3):270-283.
    The vision of legendary criminologist Cesare Lombroso to use scientific theories of individual causes of crime as a basis for screening and prevention programmes targeting individuals at risk for future criminal behaviour has resurfaced, following advances in genetics, neuroscience and psychiatric epidemiology. This article analyses this idea and maps its ethical implications from a public health ethical standpoint. Twenty-seven variants of the new Lombrosian vision of forensic screening and prevention are distinguished, and some scientific and technical limitations are noted. Some (...)
  9. added 2017-02-16
    Genetic Knowledge is a Civil Right. Towards a New Model of Health Contract as Social Contract.Hans-Martin Sass - 2010 - Eubios Journal of Asian and International Bioethics 20 (1):2-9.
    Genetic knowledge is a civil right and a civil obligation. New genetic knowledge in individual health risk prediction and prevention and new pharmacogenetic opportunities for developing more efficacious individualized drugs broaden human and civil rights for better health and health care. Public health policy has yet to develop and provide programs in genetic information and consultation together with other health risk information and health literacy education. Data availability and genetic knowledge will make citizens more competent partners in health risk management. (...)
  10. added 2017-02-16
    Prenatal and Preimplantation Genetic Screenin G: Emerging Ethical and Cultural Dilemmas in South Asia.Amy Patel & Vijay Rajput - 2008 - Eubios Journal of Asian and International Bioethics 18 (2):58-60.
    There is increasing use of genetic screening tests and pre-implantation genetic diagnosis techniques in all parts of the world. These new technologies have raised ethical issues that need closer attention. Sometimes these issues can scramble conventional notions into left or right. Prenatal or preimplantation genetic diagnosis brings a moral and ethical conundrum to South Asian society surrounding the rights of an embryo, disability rights and parental attitudes. There is debate whether testing will give control to parents or will result in (...)
  11. added 2017-02-16
    Genetic Testing and Research – Ethics and Legislations.Mandeep Kaur - 2005 - Eubios Journal of Asian and International Bioethics 15 (2):41-43.
    Technological advances in the field of genetics have brought some major issues into limelight concerning the rights of subjects under study and outcome in the form of benefits and risks associated with the genetic research. Applications resulting in genetic testing , gene therapy and cloning will potentially do much to reduce the impact of human diseases and improve the quality of life of nearly all our community. However, many ethical issues arise from how these applications should be implemented and other (...)
  12. added 2017-02-16
    Ethical Dilemmas in Medico-Genomic Research Need Open Debate.Chandra Singh & N. Kavitha - 2002 - Eubios Journal of Asian and International Bioethics 12 (4):147-148.
    Science has made tremendous advances during the last century. Its promises have attracted and excited the public, but this exposure to the people gaze has come at a price. The present article highlights the ethical, legal and social issues associated with developments in science particularly biomedical science and genomic research. Question is being asked, whether we can afford smuggling in the ethics in lieu of developments in science and technology?
  13. added 2017-02-16
    Genetics and Social Justice.Ann Boyd - 2002 - Eubios Journal of Asian and International Bioethics 12 (5):167-170.
    As the wealth of information streams in from research on the human genome project , the challenge to individuals and societies increases regarding ethical applications. The scientific achievement is impressive and provides a blueprint of the human genome. How shall we use the information as moral agents? The Socratic question, “What is good?” has haunted philosophers for thousands of years and seems the appropriate place to begin thinking through all the choices within genetic medicine. On the one hand, individuals or (...)
  14. added 2017-02-16
    Australian Empirical Study Into Genetic Discrimination.M. Otlowski & S. Taylor - 2002 - Eubios Journal of Asian and International Bioethics 12 (5):164-166.
    This paper outlines a major empirical study that is being undertaken by an interdisciplinary team into genetic discrimination in Australia. The three-year study will examine the nature and extent of this newly emerging phenomenon across the perspectives of consumers, third parties and the legal system, and will analyse its social and legal dimensions. Although the project is confined to Australia, it is expected that the outcomes will have significance for the wider research community as this is the most substantial study (...)
  15. added 2017-02-15
    Screening Madness in American Culture.Susanne Rohr - 2015 - Journal of Medical Humanities 36 (3):231-240.
  16. added 2017-02-15
    Sharing the Knowledge: Sharing Aggregate Genomic Findings with Research Participants in Developing Countries.Angeliki Kerasidou - 2015 - Developing World Bioethics 15 (3):267-274.
    Returning research results to participants is recognised as an obligation that researchers should always try to fulfil. But can we ascribe the same obligation to researchers who conduct genomics research producing only aggregated findings? And what about genomics research conducted in developing countries? This paper considers Beskow's et al. argument that aggregated findings should also be returned to research participants. This recommendation is examined in the context of genomics research conducted in developing countries. The risks and benefits of attempting such (...)
  17. added 2017-02-15
    The Right Not to Know and the Duty to Tell: The Case of Relatives.Niklas Juth - 2014 - Journal of Law, Medicine and Ethics 42 (1):38-52.
    Obtaining and sharing genetic information when there is a potential conflict of interest between patients and their relatives give rise to two questions. Do we have a duty to find out our genetic predispositions for disease for the sake of our relatives, or do we have a right to remain ignorant? Do we have a duty to disclose our known genetic predispositions for disease to our relatives? I argue that the answer to both questions is yes, but to a lesser (...)
  18. added 2017-02-15
    Challenging the Requirements for Disclosing Risk to Clinical Research Participants.Maurie Markman - 2014 - American Journal of Bioethics 14 (4):11-12.
  19. added 2017-02-15
    Direct-to-Consumer Genomics Companies Should Provide Guidance to Their Customers on (Not) Sharing Personal Genomic Information.Nanibaa’ A. Garrison & Amy L. Non - 2014 - American Journal of Bioethics 14 (11):55-57.
  20. added 2017-02-15
    AIDS and Insurance.Tom Sorell & Heather Draper - 2001 - In Rebecca Bennett & Charles A. Erin (eds.), Hiv and Aids, Testing, Screening, and Confidentiality. Clarendon Press.
  21. added 2017-02-15
    The History of a Genetic Disease: Duchenne Muscular Dystrophy or Meryon's Disease. [REVIEW]Paolo Palladino - 1997 - British Journal for the History of Science 30 (1):101-121.
  22. added 2017-02-15
    Case Vignette: Sharing Unanticipated Genetic Information-Discussion.F. P. Li, S. Leikin & S. Kumanyika - 1995 - Ethics and Behavior 5 (2):193-202.
  23. added 2017-02-15
    What Price Screening-Reply.J. Peters - 1994 - Hastings Center Report 24 (5):46-46.
  24. added 2017-02-15
    Case Vignette: Genetic Secrets.Richard A. McCormick, Bruce R. Korf & Nancy S. Wexler - 1992 - Ethics and Behavior 2 (2):129-139.
  25. added 2017-02-15
    What Tests, Whose Records.Bj Crigger - 1992 - Hastings Center Report 22 (1):2-2.
  26. added 2017-02-15
    Labor Market Characteristics and the Presence of Pre-Employment Drug Screening and Employee Assistance Programs'.N. Bunt, T. C. Blum & P. M. Roman - 1990 - Meeting of the Academy of Management, San Francisco, Ca, Quoted in Ce Schwoerer, Dr Mai, and B. Rosen (1995). Organisational Characteristics and Hrm Policies on Rights: Exploring the Patterns of Connection. Journal of Business Ethics 14:531-549.
  27. added 2017-02-14
    Population Screening.Ainsley J. Newson & A. Dawson - forthcoming - Public Health Ethics. Key Concepts and Issues in Policy and Practice:118--42.
  28. added 2017-02-14
    Every Child is Priceless: Debating Effective Newborn Screening Policy.Virginia Moyer, Ned A. Calonge, Steven M. Teutsch & Jeffrey Botkin - forthcoming - Hastings Center Report.
  29. added 2017-02-14
    Breast Cancer with Pregnancy in Cross Cultural Setting.Shamima P. Lasker - 2012 - Bangladesh Journal of Bioethics 3 (3):21-26.
  30. added 2017-02-14
    Are Students Being Coerced Into Testing for HIV? Ethical Considerations Related to Offering Incentives for HIV Counselling and Testing at Tertiary Institutions in South Africa.David Alan Cameron & Hanlie Van der Merwe - 2012 - South African Journal of Bioethics and Law 5 (2).
  31. added 2017-02-14
    Need for an Ethical Framework for Testing for Systemic Diseases in Dental Clinics.Marushka Leanne Silveira & Amit Chattopadhyay - 2011 - Ethics in Biology, Engineering and Medicine 2 (2):115-136.
  32. added 2017-02-14
    Reducing Enterprise Product Line Architecture Deployment and Testing Costs Via Model-Driven Deployment, Configuration, and Testing.Jules White & Douglas C. Schmidt - unknown
  33. added 2017-02-14
    M Any Common Diseases Are Believed to Result From Defects in Multiple Genes in Combination with Lifestyle.Bernice S. Elger - 2009 - In Vardit Ravitsky, Autumn Fiester & Arthur L. Caplan (eds.), The Penn Center Guide to Bioethics. Springer Publishing Company. pp. 403.
  34. added 2017-02-14
    Every Child Is Priceless: Debating Effective Newborn Screening Policy Reply.Mary Ann Baily & Thomas H. Murray - 2009 - Hastings Center Report 39 (1):7-7.
  35. added 2017-02-14
    Reading the Scar in Breast Cancer Poetry.Stephanie Hartman - 2004 - Feminist Studies 30:155-177.
  36. added 2017-02-14
    Genetic Counselors' Impact on the Genetics Revolution: Recommendations of an Informed Outsider.Jeffrey Kahn - 2004 - Bioethics Examiner 8.
  37. added 2017-02-14
    The Engagement of Consumers in Genetics Education: Lessons Learned.Michele A. Lloyd-Puryear, Penny Kyler & Gloria Weissman - 2003 - In Bartha Maria Knoppers (ed.), Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff. pp. 217--230.
  38. added 2017-02-14
    Testing and Measurement: Advances in Item Response Theory and Selected Testing Practices.R. K. Hambleton & M. J. Pitoniak - 2002 - In J. Wixted & H. Pashler (eds.), Stevens' Handbook of Experimental Psychology. Wiley. pp. 4--517.
  39. added 2017-02-14
    Anthony J. Stenson and Tim S. Gray, The Politics of Genetic Resource Control.G. Dutfield - 2001 - Ethics, Policy and Environment 4:68-70.
  40. added 2017-02-14
    Designer Myths: The Science, Law and Ethics of Preimplantation Genetic Diagnosis.D. A. Lucassen - 2001 - Journal of Medical Ethics 27 (6):416.
  41. added 2017-02-14
    Monica Arruda is a Candidate for the BSN/MSN in the University of Penn-Sylvania School of Nursing and Senior Research Assistant in the Center for Bioethics at Penn. Her Previous Work has Focused on the Commercialization of Genetic Testing.Adrienne Asch, Erika Blacksher, David A. Buehler, Ellen L. Csikai, Francesco Demartis, Joseph J. Fins, Nina Glick Schiller, Mark J. Hanson, H. Eugene Hern Jr & Kenneth V. Iserson - 1998 - Cambridge Quarterly of Healthcare Ethics 7:7-8.
  42. added 2017-02-14
    Genetic Counselling: Practice and Principles.Angus Clarke (ed.) - 1994 - Routledge.
    Contributions to this study are drawn both from health professionals engaged in genetic counselling and from observers and critics with backgrounds in law, philosophy, biology, and the social sciences. This diversity will enable health professonals to examine their activities with a fresh eye, and will help the observer-critic to understand the ethical problems that arise in genetic counselling practice, rather than in imaginary encounters. Most examinations of the ethical issues raised by genetics are concerned in a broad sense with the (...)
  43. added 2017-02-14
    Dystonia Musculorum Deformans: A Genetic and Clinical Population Study of 121 Cases.John Wilson - 1966 - The Eugenics Review 58 (4):208.
  44. added 2017-02-13
    The Role of Sentinel Lymph Node Biopsy in Breast Cancer Diagnosis.N. Dordevic, S. Filipovic & M. Pesic - forthcoming - Facta Universitatis.
  45. added 2017-02-13
    Returning Incidental Findings From Genetic Research to Children: Views of Parents of Children Affected by Rare Diseases.E. Kleiderman, B. M. Knoppers, C. V. Fernandez, K. M. Boycott, G. Ouellette, D. Wong-Rieger, S. Adam, J. Richer & D. Avard - 2014 - Journal of Medical Ethics 40 (10):691-696.
  46. added 2017-02-13
    Genetic Diaspora, Genetic Return.Petter Hellström - 2013 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 44 (3):439-442.
  47. added 2017-02-13
    God and Agency in the Era of Molecular Medicine: Religious Beliefs Predict Sun-Protection Behaviors Following Melanoma Genetic Test Reporting.Samantha L. Leaf, Lisa G. Aspinwall & Sancy A. Leachman - 2010 - Archive for the Psychology of Religion / Archiv für Religionspychologie 32 (1):87-112.
  48. added 2017-02-13
    Intervention to Enhance Empowerment in Breast Cancer Self-Help Groups.Ingun Stang & Maurice B. Mittelmark - 2010 - Nursing Inquiry 17 (1):47-57.
  49. added 2017-02-13
    ‘We've Fallen Into the Cracks’: Aboriginal Women's Experiences with Breast Cancer Through Photovoice.Jennifer Poudrier & Roanne Thomas Mac-Lean - 2009 - Nursing Inquiry 16 (4):306-317.
  50. added 2017-02-13
    Beyond Dichotomies of Health and Illness: Life After Breast Cancer.Roanne Thomas-MacLean - 2005 - Nursing Inquiry 12 (3):200-209.
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