Bei geriatrischen, oral ernährten Patienten mit Dysphagie entstehen insbesondere bei der Kostformanpassung ethische Konflikte. Die Abwägung zwischen Aspirationsrisiko und Lebensqualität fällt oft zugunsten der Fürsorge – also einer Risikominimierung – aus, Autonomie und das Nicht-Schadens-Prinzip werden in den Entscheidungen weniger beachtet.Ziel dieser Studie war die Erfassung relevanter Aspekte aus der Patienten- und Angehörigenperspektive bezüglich der Abwägungen zwischen Aspirationsrisiko und Lebensqualität. Zudem wurde die Erprobung des im Rahmen der Studie entwickelten Interviewleitfadens und die Entwicklung von Hypothesen für weiterführende Studien angestrebt. Acht (...) geriatrische Patienten mit leicht- bis schwergradiger Dysphagie und mindestens einer Woche stark adaptierter Kost sowie vier Angehörige wurden in halbstandardisierten, problemzentrierten Interviews befragt. Die Auswertung erfolgte auf Basis der qualitativen Inhaltsanalyse nach Mayring. Die problemzentrierten Interviews und der Interviewleitfaden erwiesen sich als geeignetes Instrument, das individuelle Erleben der Situation differenziert zu erfassen. Es konnte ein breit gefächertes Spektrum möglicher Hintergründe zu Risiko-Lebensqualitäts-Gewichtungen und ethischen Konfliktsituationen gefunden werden, die im Rahmen der Kostformadaption eine Rolle spielen. Diese wurden in drei Hauptkategorien zusammengefasst: Aspekte für eine höhere Risikotoleranz, Aspekte für eine niedrigere Risikotoleranz, Aspekte für die Instabilität von Entscheidungen.Die gewonnenen Kategorien geben einen ersten Überblick über die komplexen Einflüsse auf Risiko-Lebensqualitäts-Abwägungen oral ernährter, alter Menschen mit Dysphagie. Die Ergebnisse können ein Ausgangspunkt für weiterführende Studien mit einer größeren Fallzahl bilden und auf dieser Basis zur Entwicklung eines Orientierungsrahmens für Kostformentscheidungen in der geriatrischen Dysphagietherapie beitragen. (shrink)

Adults with dysphagia experience difficulties swallowing food and fluids with potentially harmful health and psychosocial consequences. Speech pathologists who manage patients with dysphagia are frequently required to address ethical issues when patients' food culture and/ or preferences are inconsistent with recommended diets. These issues incorporate complex links between food, identity and social participation. A composite case has been developed to reflect ethical issues identified by practising speech pathologists for the purposes of illustrating ethical concerns in dysphagia management. (...) The case examines a speech pathologist's role in supporting patient autonomy when patients and carers express different goals and values. The case presents a 68-year-old man of Australian/Italian heritage with severe swallowing impairment and strong values attached to food preferences. The case is examined through application of the dysphagia algorithm, a tool for shared decision-making when patients refuse dietary modifications. Case analysis revealed the benefits and challenges of shared decision-making processes in dysphagia management. Four health professional skills and attributes were identified as synonymous with shared decision making: communication, imagination, courage and reflection. (shrink)

BackgroundRepetitive transcranial magnetic stimulation applied to the mylohyoid cortical region has positive clinical effects on post-stroke. Therefore, we conducted a meta-analysis to investigate the efficacy of rTMS for patients with post-stroke dysphagia.MethodsAccording to PRISMA guidelines, we searched the databases of MEDLINE, Cochrane Library, Embase, Web of Science, CNKI, Wangfang. We searched for studies of randomized controlled trials of rTMS to treat dysphagia after stroke and screened by inclusion and exclusion criteria. Features of RCTs were extracted. The heterogeneity of (...) the trials was measured by I2 statistic.ResultsIn total, 11 RCTs with 463 dysphagia patients fulfilled our inclusion criteria. In our analysis, rTMS demonstrated a great beneficial effect for post-stroke dysphagia when combined with traditional swallowing exercises. Moreover, a greatly significant difference was noted based on stimulation frequency. Additionally, no significant difference was observed based on stimulation site.ConclusionsOverall, rTMS can effectively accelerate the improvement of swallowing function in patients with post-stroke swallowing disorders. (shrink)

BackgroundUse of modified texture diets—thickening of liquids and modifying the texture of foods—in the hope of preventing aspiration, pneumonia and choking, has become central to the current management of dysphagia. The effectiveness of this intervention has been questioned. We examine requirements for a valid informed consent process for this approach and whether the need for informed consent for this treatment is always understood or applied by practitioners.Main textValid informed consent requires provision of accurate and balanced information, and that agreement (...) is given freely by someone who knows they have a choice. Current evidence, including surveys of practitioners and patients in different settings, suggests that practice in this area is often inadequate. This may be due to patients’ communication difficulties but also poor communication—and no real attempt to obtain consent—by practitioners before people are ‘put on’ modified texture diets. Even where discussion occurs, recommendations may be influenced by professional misconceptions about the efficacy of this treatment, which in turn may poison the well for the informed consent process. Patients cannot make appropriate decisions for themselves if the information provided is flawed and unbalanced. The voluntariness of patients’ decisions is also questionable if they are told ‘you must’, when ‘you might consider’ is more appropriate. Where the decision-making capacity of patients is in question, inappropriate judgements and recommendations may be made by substitute decision makers and courts unless based on accurate information.ConclusionResearch is required to examine the informed consent processes in different settings, but there is ample reason to suggest that current practice in this area is suboptimal. Staff need to reflect on their current practice regarding use of modified texture diets with an awareness of the current evidence and through the ‘lens’ of informed consent. Education is required for staff to clarify the importance of, and requirements for, valid informed consent and for decision making that reflects people’s preferences and values. (shrink)

Provision of adequate nutrition to elderly patients who develop dysphagia after a stroke can be quite challenging, often leading to the placement of a percutaneous entero‐gastrostomy (PEG) tube for nutritional support. This hypothetical case describes the additional challenge of cross‐cultural belief that leads a daughter to provide oral feeding to her mother, an act that the medical team believes is dangerous and the daughter sees as salubrious. In this case, what is the proper balance between patient safety and deference (...) to cultural traditions and norms? Where are the limits? Two commentaries offer insights for conflict resolution, including recommending that the medical team seek to understand the cultural motivations of the family, balancing safety and respect for cultural norms. The second commentary also disagrees with the team's presumption that the daughter's feeding of her mother is a greater threat to the patient than the PEG tube feeding is. (shrink)

The response to feeding needs in advanced dementia patients is a subject of ethical inquiry. Advanced dementia is the debilitating result of a range of neurodegenerative diseases. As this terminal illness progresses, patients develop mild to severe dysphagia that can make swallowing difficult. Of the two available options, artificial tube feeding or oral hand feeding, an estimated one-third of these patients will receive artificial tube feeding. However, observational studies have failed to validate the clinical benefits of tube feeding. Ethics (...) of care, the feminist philosophical perspective, and Ubuntu philosophy offer arguments for the choice of oral hand-feeding as a preferrable first option by caregivers as far as possible. These moral theories acknowledge that human beings can be dependent for long periods, mostly early and later years of life. Both views reflect an approach that draws people into a system of interdependent caring relationships. They encourage hand feeding as a way of exhibiting solidarity and respecting human dignity even at the end of life. (shrink)