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  1.  25
    “You Cannot Collect Data Using Your Own Resources and Put It on Open Access”: Perspectives From Africa About Public Health Data‐Sharing.Evelyn Anane‐Sarpong, Tenzin Wangmo, Claire Leonie Ward, Osman Sankoh, Marcel Tanner & Bernice Simone Elger - 2018 - Developing World Bioethics 18 (4):394-405.
    Data-sharing is a desired default in the field of public health and a source of much ethical deliberation. Sharing data potentially contributes the largest, most efficient source of scientific data, but is fraught with contextual challenges which make stakeholders, particularly those in under-resourced contexts hesitant or slow to share. Relatively little empirical research has engaged stakeholders in discussing the issue. This study sought to explore relevant experiences, contextual, and subjective explanations around the topic to provide a rich and detailed presentation (...)
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  2.  24
    Application of Ethical Principles to Research Using Public Health Data in The Global South: Perspectives From Africa.Evelyn Anane‐Sarpong, Tenzin Wangmo, Osman Sankoh, Marcel Tanner & Bernice Simone Elger - 2018 - Developing World Bioethics 18 (2):98-108.
    Existing ethics guidelines, influential literature and policies on ethical research generally focus on real-time data collection from humans. They enforce individual rights and liberties, thereby lowering need for aggregate protections. Although dependable, emerging public health research paradigms like research using public health data raise new challenges to their application. Unlike traditional research, RUPD is population-based, aligned to public health activities, and often reliant on pre-collected longitudinal data. These characteristics, when considered in relation to the generally lower protective ethico-legal frameworks of (...)
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  3.  14
    Ethical Principles for Promoting Health Research Data Sharing with Sub‐Saharan Africa.Evelyn Anane‐Sarpong, Tenzin Wangmo & Marcel Tanner - 2020 - Developing World Bioethics 20 (2):86-95.
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  4.  16
    Defining Health Research for Development: The Perspective of Stakeholders From an International Health Research Partnership in Ghana and Tanzania.Claire Leonie Ward, David Shaw, Evelyn Anane‐Sarpong, Osman Sankoh, Marcel Tanner & Bernice Elger - 2018 - Developing World Bioethics 18 (4):331-340.
    Objectives The study uses a qualitative empirical method to define Health Research for Development. This project explores the perspectives of stakeholders in an international health research partnership operating in Ghana and Tanzania. Methods We conducted 52 key informant interviews with major stakeholders in an international multicenter partnership between GlaxoSmithKline and the global health nonprofit organisation PATH and its Malaria Vaccine Initiative program,. The respondents included teams from four clinical research centres and various collaborating partners. This paper analyses responses to the (...)
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