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  1.  2
    Donors, Authors, and Owners: How is Genomic Citizen Science Addressing Interests in Research Outputs?Christi J. Guerrini, Meaganne Lewellyn, Mary A. Majumder, Meredith Trejo, Isabel Canfield & Amy L. McGuire - 2019 - BMC Medical Ethics 20 (1):1-13.
    Background Citizen science is increasingly prevalent in the biomedical sciences, including the field of human genomics. Genomic citizen science initiatives present new opportunities to engage individuals in scientific discovery, but they also are provoking new questions regarding who owns the outputs of the research, including intangible ideas and discoveries and tangible writings, tools, technologies, and products. The legal and ethical claims of participants to research outputs become stronger—and also more likely to conflict with those of institution-based researchers and other stakeholders—as (...)
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    A Cohort of Pirate Ships”: Biomedical Citizen Scientists’ Attitudes Toward Ethical Oversight.Meredith Trejo, Isabel Canfield, Whitney Bash Brooks, Alex Pearlman & Christi Guerrini - 2021 - Citizen Science: Theory and Practice 6 (1).
    As biomedical citizen science initiatives become more prevalent, the unique ethical issues that they raise are attracting policy attention. One issue identified as a significant concern is the ethical oversight of bottom-up biomedical citizen science projects that are designed and executed primarily or solely by members of the public. That is because the federal rules that require ethical oversight of research by institutional review boards generally do not apply to such projects, creating what has been called an ethics gap. -/- (...)
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    How Biomedical Citizen Scientists Define What They Do: It’s All in the Name.Meredith Trejo, Isabel Canfield, Jill O. Robinson & Christi J. Guerrini - 2021 - AJOB Empirical Bioethics 12 (1):63-70.
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