1.  4
    Understanding the care.data conundrum: New information flows for economic growth.Stephen Timmons & Paraskevas Vezyridis - 2017 - Big Data and Society 4 (1).
    The analysis of data from electronic health records aspires to facilitate healthcare efficiencies and biomedical innovation. There are also ethical, legal and social implications from the handling of sensitive patient information. The paper explores the concerns, expectations and implications of the National Health Service England care.data programme: a national data sharing initiative of linked electronic health records for healthcare and other research purposes. Using Nissenbaum’s contextual integrity of privacy framework through a critical Science and Technology Studies lens, it examines the (...)
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  2.  29
    Dissenting from care.data: an analysis of opt-out forms.Paraskevas Vezyridis & Stephen Timmons - 2016 - Journal of Medical Ethics 42 (12):792-796.
    BackgroundCare.data was a programme of work led by NHS England for the extraction of patient-identifiable and coded information from general practitioner records for secondary uses. This study analyses the forms which enabled patients to opt out.MethodsTheoretical sampling and summative content analysis were used to collect and analyse dissent forms used by patients to opt out from care.data. Domains included basic information about the programme, types of objections and personal details required for identification purposes.ResultsOne hundred opt-out forms were analysed. Fifty-four forms (...)
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    On the adoption of personal health records: some problematic issues for patient empowerment.Paraskevas Vezyridis & Stephen Timmons - 2015 - Ethics and Information Technology 17 (2):113-124.
    The development of electronic personal health records by independent vendors and national health systems is understood to empower patients and create a new kind of consumerism in healthcare. With more personal health information at hand, active participation in the management of health and rational purchasing of healthcare services will be possible. Healthcare systems will also be able to contain costs and achieve sustainability. Based on a careful examination of the literature, we argue that many of the declared benefits of this (...)
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