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Qualitative thematic analysis of consent forms used in cancer genome sequencing
BMC Medical Ethics 12 (1):14 (2011)
Abstract
Large-scale whole genome sequencing (WGS) studies promise to revolutionize cancer research by identifying targets for therapy and by discovering molecular biomarkers to aid early diagnosis, to better determine prognosis and to improve treatment response prediction. Such projects raise a number of ethical, legal, and social (ELS) issues that should be considered. In this study, we set out to discover how these issues are being handled across different jurisdictionsLinks
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Citations of this work
The Challenge of Informed Consent and Return of Results in Translational Genomics: Empirical Analysis and Recommendations.Gail E. Henderson, Susan M. Wolf, Kristine J. Kuczynski, Steven Joffe, Richard R. Sharp, D. Williams Parsons, Bartha M. Knoppers, Joon-Ho Yu & Paul S. Appelbaum - 2014 - Journal of Law, Medicine and Ethics 42 (3):344-355.
Incorporating Exclusion Clauses into Informed Consent for Biobanking.Zubin Master & David B. Resnik - 2013 - Cambridge Quarterly of Healthcare Ethics 22 (2):203-212.
Revealing the results of whole-genome sequencing and whole-exome sequencing in research and clinical investigations: some ethical issues: Table 1.Nina Hallowell, Alison Hall, Corinna Alberg & Ron Zimmern - 2015 - Journal of Medical Ethics 41 (4):317-321.
Personalized medicine and informed consent: clinical and ethical considerations for developing a best practice guideline for biobank-based next generation sequencing in oncology.Eva C. Winkler, Dominik Ose, Hanno Glimm, Klaus Tanner & Christof von Kalle - 2013 - Ethik in der Medizin 25 (3):195-203.
Personalisierte Medizin und Informed Consent: Klinische und ethische Erwägungen im Rahmen der Entwicklung einer Best Practice Leitlinie für die biobankbasierte Ganzgenomforschung in der Onkologie.Eva C. Winkler, Dominik Ose, Hanno Glimm, Klaus Tanner & Christof von Kalle - 2013 - Ethik in der Medizin 25 (3):195-203.
References found in this work
False Hopes and Best Data: Consent to Research and the Therapeutic Misconception.Paul S. Appelbaum, Loren H. Roth, Charles W. Lidz, Paul Benson & William Winslade - 1987 - Hastings Center Report 17 (2):20-24.
Disclosing individual genetic results to research participants.Vardit Ravitsky & Benjamin S. Wilfond - 2006 - American Journal of Bioethics 6 (6):8 – 17.
Incidental Findings in Human Subjects Research: What Do Investigators Owe Research Participants?Franklin G. Miller, Michelle M. Mello & Steven Joffe - 2008 - Journal of Law, Medicine and Ethics 36 (2):271-279.
Public expectations for return of results from large-cohort genetic research.Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy & Kathy Hudson - 2008 - American Journal of Bioethics 8 (11):36 – 43.
Review of Ruth R. Faden and Tom L. Beauchamp: A History and Theory of Informed Consent. [REVIEW]William G. Bartholome - 1988 - Ethics 98 (3):605-606.
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