Improving dissemination of study results: perspectives of individuals with cystic fibrosis

, , &
Research Ethics 15 (3-4):1-14 (2019)
  Copy   BIBTEX

Abstract

The practice of communicating research findings to participants has been identified as important in the research ethics literature, but little research has examined empirically how this occurs and...

Categories

Keywords

Reprint years

DOI

10.1177/1747016119869847

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 93,990

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

My notes

Similar books and articles

What does 'respect for persons' require? Attitudes and reported practices of genetics researchers in informing research participants about research.F. A. Miller, R. Z. Hayeems, L. Li & J. P. Bytautas - 2012 - Journal of Medical Ethics 38 (1):48-52.
Examining the use of consent forms to promote dissemination of research results to participants.Dorothyann Curran, Mike Kekewich & Thomas Foreman - 2018 - Research Ethics 15 (1):1-28.
Fear of Dementia and the Obligation to Provide Aggregate Research Results to Study Participants.Mackenzie Graham, Francesca Farina, Craig W. Ritchie, Brian Lawlor & Lorina Naci - 2022 - Cambridge Quarterly of Healthcare Ethics 31 (4):498-505.
The foundations of attitudes about animal research.Donald A. Saucier & Mary E. Cain - 2006 - Ethics and Behavior 16 (2):117 – 133.
Perspectives of researchers, science policy makers and research ethics committee members on the feedback of individual genetic research findings in African genomics research.Faith Musvipwa, Ambroise Wonkam, Benjamin Berkman & Jantina de Vries - 2024 - BMC Medical Ethics 25 (1):1-11.
Why Governance? A Challenge to Good Governance of Biobanks.Katharine Browne - 2015 - Monash Bioethics Review 33 (4):295-300.
What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.Rwamahe Rutakumwa, Jantina de Vries, Michael Parker, Paulina Tindana, Oliver Mweemba & Janet Seeley - 2019 - Global Bioethics:1-15.
What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.Janet Seeley, Oliver Mweemba, Paulina Tindana, Michael Parker, Jantina de Vries & Rwamahe Rutakumwa - 2020 - Global Bioethics 31 (1):169-183.
What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.Rwamahe Rutakumwa, Jantina de Vries, Michael Parker, Paulina Tindana, Oliver Mweemba & Janet Seeley - 2020 - Global Bioethics 31 (1):169-183.
Familial Communication of Research Results: A Need to Know?Lee Black & Kelly A. McClellan - 2011 - Journal of Law, Medicine and Ethics 39 (4):605-613.

Analytics

Added to PP
2019-10-11

Downloads
11 (#1,149,206)

6 months
4 (#1,006,062)

Historical graph of downloads
How can I increase my downloads?

Citations of this work

No citations found.

Add more citations

References found in this work

Return of Results: Towards a Lexicon?Bartha Maria Knoppers & Amy Dam - 2011 - Journal of Law, Medicine and Ethics 39 (4):577-582.
Return of Results: Towards a Lexicon?Bartha Maria Knoppers & Amy Dam - 2011 - Journal of Law, Medicine and Ethics 39 (4):577-582.

View all 7 references / Add more references