Authors
Clair Morrissey
Occidental College
Rebecca Walker
University of North Carolina, Chapel Hill
Abstract
Advances in DNA sequencing technology open new possibilities for public health genomics, especially in the form of general population preventive genomic sequencing. Such screening programs would sit at the intersection of public health and preventive health care, and thereby at once invite and resist the use of clinical ethics and public health ethics frameworks. Despite their differences, these ethics frameworks traditionally share a central concern for individual rights. We examine two putative individual rights—the right not to know, and the child’s right to an open future—frequently invoked in discussions of predictive genetic testing, in order to explore their potential contribution to evaluating this new practice. Ultimately, we conclude that traditional clinical and public health ethics frameworks, and these two rights in particular, should be complemented by a social justice perspective in order adequately to characterize the ethical dimensions of general population PGS programs.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1093/jmp/jhx034
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 52,823
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

The Right Not to Know: An Autonomy Based Approach.R. Andorno - 2004 - Journal of Medical Ethics 30 (5):435-439.

View all 24 references / Add more references

Citations of this work BETA

The Right Not to Know and the Obligation to Know.Ben Davies - 2020 - Journal of Medical Ethics 46 (5):300-303.

Add more citations

Similar books and articles

From Health Care Reform to Public Health Reform.Micah L. Berman - 2011 - Journal of Law, Medicine and Ethics 39 (3):328-339.
Public Health and the Rights of States.A. Miklos - 2009 - Public Health Ethics 2 (2):158-170.
Public Health Ethics Theory: Review and Path to Convergence.Lisa M. Lee - 2012 - Journal of Law, Medicine and Ethics 40 (1):85-98.
Health, Human Rights, and Ethics.Eric Stover & Harvey Weinstein - 2001 - Cambridge Quarterly of Healthcare Ethics 10 (3):335-335.
Global Health Justice and the Right to Health.Heather Widdows - 2015 - Health Care Analysis 23 (4):391-400.

Analytics

Added to PP index
2018-01-12

Total views
12 ( #725,533 of 2,342,657 )

Recent downloads (6 months)
2 ( #332,871 of 2,342,657 )

How can I increase my downloads?

Downloads

My notes