A survey of members of the Japan Muscular Dystrophy Association , including patients and families, was conducted in October 1995. Some of the same questions that were included in a 1992 survey were included to allow comparisons. During the 1994 Annual Meeting in Kyoto a special session on fetal diagnosis and bioethics was included, attended by over 500 persons, which may have been a cause for increased awareness of genetic diagnosis seen in this survey. 60% of patients and 71% of (...) families said they would receive fetal diagnosis. 10% of patients and 24% of families could remember DNA diagnosis of themselves, and most had some type of consent or information. (shrink)

日本筋ジストロフィー協会は、シンポジウムは「遺伝子医療における社会的・倫理的問題を考える」を、平成10年度から12年度にかけて3回開催してきました。本書はこのシンポジウムの後半の2回の講演を中心に編集 されたものです。.