“It’s my blood”: ethical complexities in the use, storage and export of biological samples: perspectives from South African research participants

BMC Medical Ethics 15 (1):4 (2014)
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Abstract

The use of biological samples in research raises a number of ethical issues in relation to consent, storage, export, benefit sharing and re-use of samples. Participant perspectives have been explored in North America and Europe, with only a few studies reported in Africa. The amount of research being conducted in Africa is growing exponentially with volumes of biological samples being exported from the African continent. In order to investigate the perspectives of African research participants, we conducted a study at research sites in the Western Cape and Gauteng, South Africa

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