Solidaroty and equity : new ethical frameworks for genetic databases

(2001)

Authors
Ruth Chadwick
Cardiff University
Abstract
Genetic database initiatives have given rise to considerable debate about their potential harms and benefits. The question arises as to whether existing ethical frameworks are sufficient to mediate between the competing interests at stake. One approach is to strengthen mechanisms for obtaining informed consent and for protecting confidentiality. However, there is increasing interest in other ethical frameworks, involving solidarity — participation in research for the common good — and the sharing of the benefits of research.
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Protecting Communities in Research: Philosophical and Pragmatic Challenges.Charles Weijer - 1999 - Cambridge Quarterly of Healthcare Ethics 8 (4):501-513.

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