Journal of Bioethical Inquiry 14 (4):485-488 (2017)
Abstract |
In this Symposium on the Ethics and Epistemology of Big Data, we present four perspectives on the ways in which the rapid growth in size of research databanks—i.e. their shift into the realm of “big data”—has changed their moral, socio-political, and epistemic status. While there is clearly something different about “big data” databanks, we encourage readers to place the arguments presented in this Symposium in the context of longstanding debates about the ethics, politics, and epistemology of biobank, database, genetic, and epidemiological research.
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DOI | 10.1007/s11673-017-9815-8 |
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References found in this work BETA
Philosophical Justifications of Informed Consent in Research.D. Brock, E. J. Emanuel, C. Grady, R. Lie, F. Miller & D. Wendler - 2008 - In Ezekiel J. Emanuel (ed.), The Oxford Textbook of Clinical Research Ethics. Oxford University Press.
Biomedical Big Data: New Models of Control Over Access, Use and Governance.Alessandro Blasimme & Effy Vayena - 2017 - Journal of Bioethical Inquiry 14 (4):501-513.
Ethics and Epistemology in Big Data Research.Wendy Lipworth, Paul H. Mason, Ian Kerridge & John P. A. Ioannidis - 2017 - Journal of Bioethical Inquiry 14 (4):489-500.
Criminal Prohibition of Wrongful Re‑Identification: Legal Solution or Minefield for Big Data?Mark Phillips, Edward S. Dove & Bartha M. Knoppers - 2017 - Journal of Bioethical Inquiry 14 (4):527-539.
The Ethics of Biobanks.Sven Ove Hansson - 2004 - Cambridge Quarterly of Healthcare Ethics 13 (4):319-326.
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Citations of this work BETA
Power to the People?Michael A. Ashby & Bronwen Morrell - 2017 - Journal of Bioethical Inquiry 14 (4):457-459.
Science at Warp Speed: Medical Research, Publication, and Translation During the COVID-19 Pandemic.Wendy Lipworth, Melanie Gentgall, Ian Kerridge & Cameron Stewart - 2020 - Journal of Bioethical Inquiry 17 (4):555-561.
Mental Health, Big Data and Research Ethics: Parity of Esteem in Mental Health Research From a UK Perspective.Julie Morton & Michelle O’Reilly - 2019 - Clinical Ethics 14 (4):165-172.
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