6 found
  1.  14
    Moving From Understanding of Consent Conditions to Heuristics of Trust.Michael M. Burgess & Kieran C. O’Doherty - 2019 - American Journal of Bioethics 19 (5):24-26.
    Volume 19, Issue 5, May 2019, Page 24-26.
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  2.  12
    Navigating Social and Ethical Challenges of Biobanking for Human Microbiome Research.Kieran C. O’Doherty, David S. Guttman, Yvonne C. W. Yau, Valerie J. Waters, D. Elizabeth Tullis, David M. Hwang & Kim H. Chuong - 2017 - BMC Medical Ethics 18 (1):1.
    BackgroundBiobanks are considered to be key infrastructures for research development and have generated a lot of debate about their ethical, legal and social implications. While the focus has been on human genomic research, rapid advances in human microbiome research further complicate the debate.DiscussionWe draw on two cystic fibrosis biobanks in Toronto, Canada, to illustrate our points. The biobanks have been established to facilitate sample and data sharing for research into the link between disease progression and microbial dynamics in the lungs (...)
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  3.  7
    If you build it, they will come: unintended future uses of organised health data collections.Kieran C. O’Doherty, Emily Christofides, Jeffery Yen, Heidi Beate Bentzen, Wylie Burke, Nina Hallowell, Barbara A. Koenig & Donald J. Willison - 2016 - BMC Medical Ethics 17 (1):54.
    Health research increasingly relies on organized collections of health data and biological samples. There are many types of sample and data collections that are used for health research, though these are collected for many purposes, not all of which are health-related. These collections exist under different jurisdictional and regulatory arrangements and include: 1) Population biobanks, cohort studies, and genome databases 2) Clinical and public health data 3) Direct-to-consumer genetic testing 4) Social media 5) Fitness trackers, health apps, and biometric data (...)
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  4.  2
    Ethically Sustainable Governance in the Biobanking of Eggs and Embryos for Research.Kieran C. O’Doherty & Karla Stroud - 2015 - Monash Bioethics Review 33 (4):277-294.
    Biobanking of human tissues is associated with a range of ethical, legal, and social challenges. These include difficulties in operationalising informed consent protocols, protecting donors’ privacy, managing the return of incidental findings, conceptualising ownership of tissues, and benefit sharing. Though largely unresolved, these challenges are well documented and debated in academic literature. One common response to the ELS challenges of biobanks is a call for strong and independent governance of biobanks. Theorists who argue along these lines suggest that since fully (...)
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  5.  5
    Improving Dissemination of Study Results: Perspectives of Individuals with Cystic Fibrosis.Emily Christofides, Karla Stroud, Diana Elizabeth Tullis & Kieran C. O’Doherty - 2019 - Research Ethics 15 (3-4):1-14.
    The practice of communicating research findings to participants has been identified as important in the research ethics literature, but little research has examined empirically how this occurs and...
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  6.  8
    Deliberative Public Opinion.Kieran C. O’Doherty - 2017 - History of the Human Sciences 30 (4):124-145.