Order:
  1.  10
    A Trust‐Based Pact in Research Biobanks. From Theory to Practice.Virginia Sanchini, Giuseppina Bonizzi, Davide Disalvatore, Massimo Monturano, Salvatore Pece, Giuseppe Viale, Pier Paolo Di Fiore & Giovanni Boniolo - 2016 - Bioethics 30 (4):260-271.
    Traditional Informed Consent is becoming increasingly inadequate, especially in the context of research biobanks. How much information is needed by patients for their consent to be truly informed? How does the quality of the information they receive match up to the quality of the information they ought to receive? How can information be conveyed fairly about future, non-predictable lines of research? To circumvent these difficulties, some scholars have proposed that current consent guidelines should be reassessed, with trust being used as (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   3 citations  
  2.  43
    Trusted Consent and Research Biobanks: Towards a 'New Alliance' Between Researchers and Donors.Giovanni Boniolo, Pier Paolo di Fiore & Salvatore Pece - 2012 - Bioethics 26 (2):93-100.
    We argue that, in the case of research biobanks, there is a need to replace the currently used informed consent with trusted consent. Accordingly, we introduce a proposal for the structure of the latter. Further, we discuss some of the issues that can be addressed effectively through our proposal. In particular, we illustrate: i) which research should be authorized by donors; ii) how to regulate access to information; iii) the fundamental role played by a Third Party Authority in assuring compliance (...)
    Direct download (5 more)  
     
    Export citation  
     
    Bookmark   4 citations  
  3.  4
    A Defining Analysis of the Life and Death Dyad: Paving the Way for an Ethical Debate.Giovanni Boniolo & Pier Paolo Di Fiore - 2008 - Journal of Medicine and Philosophy 33 (6):609-634.
    We discuss the meaning of “being alive” and “being dead.” Our primary aim is to pave the way for a sound and accurate ethical debate concerning these two concepts. In particular, we analyze a metabolic approach and a genetic one and discuss the reasons for their failure to constitute a good starting point for successive debates. We argue that any ethical or social discussion of topics involving life and death must introduce cultural constructs such as, on the one hand, the (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   1 citation