Results for 'paediatric care'

981 found
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  1.  3
    Pediatric Care: Judgments about Best Interests at the Onset of Life.Michael Burgess, Patricia Rodney, Harold Coward, Pinit Ratanakul & Khannika Suwonnakote - 2006 - In Joan Anderson, Arthur Blue, Michael Burgess, Harold Coward, Robert Florida, Barry Glickman, Barry Hoffmaster, Edwin Hui, Edward Keyserlingk, Michael McDonald, Pinit Ratanakul, Sheryl Reimer Kirkham, Patricia Rodney, Rosalie Starzomski, Peter Stephenson, Khannika Suwonnakote & Sumana Tangkanasingh (eds.), A Cross-Cultural Dialogue on Health Care Ethics. Wilfrid Laurier Press. pp. 160-175.
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  2.  11
    Medical Futility in Pediatric Care.Felipe E. Vizcarrondo - 2019 - The National Catholic Bioethics Quarterly 19 (1):105-120.
    The transition from the paternalistic paradigm of the Hippocratic tradition to the present model of shared decision making has altered the patient–doctor relationship. This change has engendered conflicts between patients and physicians, especially in pediatric medicine, where the patients are depen­dent on their parents because of their inability to consent to an intervention independently. Navigating this complex relationship can become particularly fraught when medical futility is invoked. This situation is complicated further by the divergent approaches to shared decision making among (...)
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  3. Delineating paternalism in pediatric care.John H. Sorenson & Garrett E. Bergman - 1984 - Theoretical Medicine and Bioethics 5 (1).
    Paternalism in the medical care of children is appropriate and ethically justifiable. However, dilemmatic disagreement by paternalistic agents as to which clinical choice is in the child's best interest may occur because of the underlying conflict between two rival standards for the moral value of life: longevity versus quality. Neither standard is unreasonable. Either could be the basis for choice of medical care by the parents or by the pediatrician. Having the child choose between options disputed by his (...)
     
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  4.  13
    Covert Video Surveillance in Pediatric Care: The Fiduciary Relationship with a Child.Steven R. Leuthner - 2004 - Journal of Clinical Ethics 15 (2):173-175.
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  5.  14
    Caregivers blinded by the care: A qualitative study of physical restraint in pediatric care.Bénédicte Lombart, Carla De Stefano, Didier Dupont, Leila Nadji & Michel Galinski - forthcoming - Nursing Ethics:096973301983312.
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  6.  8
    Suffering and the dilemmas of pediatric care: a response to Tyler Tate.Brent Michael Kious - 2023 - Theoretical Medicine and Bioethics 44 (3):249-258.
    In a recent article, Tyler Tate argues that the suffering of children — especially children with severe cognitive impairments — should be regarded as the antithesis of flourishing, where flourishing is relative to one’s individual characteristics and essentially involves receiving care from others. Although initially persuasive, Tate’s theory is ambiguous in several ways, leading to significant conceptual problems. By identifying flourishing with receiving care, Tate raises questions about the importance of care that he does not address, giving (...)
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  7.  7
    The legal relevance of a minor patient’s wish to die: a temporality-related exploration of end-of-life decisions in pediatric care.Jozef H. H. M. Dorscheidt - 2023 - History and Philosophy of the Life Sciences 45 (1):1-24.
    Decisions regarding the end-of-life of minor patients are amongst the most difficult areas of decision-making in pediatric health care. In this field of medicine, such decisions inevitably occur early in human life, which makes one aware of the fact that any life—young or old—cannot escape its temporal nature. Belgium and the Netherlands have adopted domestic regulations, which conditionally permit euthanasia and physician-assisted suicide in minors who experience hopeless and unbearable suffering. One of these conditions states that the minor involved (...)
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  8.  8
    Physician Religion and End–of–Life Pediatric Care: A Qualitative Examination of Physicians’ Perspectives.Lori Brand Bateman & Jeffrey Michael Clair - 2015 - Narrative Inquiry in Bioethics 5 (3):251-269.
    Physician religion/spirituality has the potential to influence the communication between physicians and parents of children at the end of life. In order to explore this relationship, the authors conducted two rounds of narrative interviews to examine pediatric physicians’ perspectives (N=17) of how their religious/spiritual beliefs affect end–of–life communication and care. Grounded theory informed the design and analysis of the study. As a proxy for religiosity/spirituality, physicians were classified into the following groups based on the extent to which religious/spiritual language (...)
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  9.  31
    Persistent Misunderstandings about Being Transgender and Their Effect on Pediatric Care.Gerald D. Coleman - 2020 - The National Catholic Bioethics Quarterly 20 (1):29-39.
    There is no paucity of academic studies, medical literature, or media attention given to concerns about gender ideology and being transgender. When reporting their findings, however, some researchers and practitioners working from a purely secular perspective overstep medical observations to make metaphysical pronouncements. This causes considerable confusion and stifles dialogue that could occur if the line between medicine and philosophy were clearly delineated. Properly understood, transgender describes an observable distress due to incongruence between one’s birth sex and gender identity. Conversely, (...)
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  10.  11
    Case Study: Covert Video Surveillance in Pediatric Care.Wayne Vaught & Janet Fleetwood - 2002 - Hastings Center Report 32 (6):10.
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  11.  22
    Parents, Lies, and Videotape: Covert Video Surveillance in Pediatric Care.Wayne Vaught - 2004 - Journal of Clinical Ethics 15 (2):161-172.
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  12.  1
    The pediatric ethics forum: Exploring the ethical dimensions of pediatric care[REVIEW]R. Gordon Hutcheon, John J. Mitchell & Susan Schmerler - 1998 - HEC Forum 10 (3-4):338-349.
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  13.  31
    Pediatric Acute Care Decision Implications of Genetically Discoverable Mental Disorders.Danton Char - 2017 - American Journal of Bioethics 17 (4):32-33.
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  14.  9
    Pediatric Chiropractic Care: The Subluxation Question And Referral Risk.Samuel Homola - 2016 - Bioethics 30 (2):63-68.
    Chiropractors commonly treat children for a variety of ailments by manipulating the spine to correct a ‘vertebral subluxation’ or a ‘vertebral subluxation complex’ alleged to be a cause of disease. Such treatment might begin soon after a child is born. Both major American chiropractic associations – the International Chiropractic Association and the American Chiropractic Association – support chiropractic care for children, which includes subluxation correction as a treatment or preventive measure. I do not know of any credible evidence to (...)
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  15. Establishing pediatric palliative care : overcoming barriers.Joel E. Frader - 2018 - In Françoise Baylis & Alice Domurat Dreger (eds.), Bioethics in action. New York, NY: Cambridge University Press.
     
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  16.  8
    Opinions among pediatric critical care physicians regarding the ethics of withdrawal of ventricular assist devices and extracorporeal membrane oxygenation.Antonia A. Melas, Leanna L. Huard, Rong Guo & Robert B. Kelly - forthcoming - Clinical Ethics:147775092110015.
    Background Pediatric critical care physician attitudes about withdrawal of ventricular assist devices and extracorporeal membrane oxygenation in cases of medical futility are poorly defined. Our aim was to define current attitudes regarding the withdrawal of these devices. Methods IRB-approved, cross-sectional observational survey conducted among pediatric critical care attending physicians and fellow physicians in the United States between 2016 and 2017. Data was collected anonymously and statistically analyzed. Results A total of 158 physicians responded with 67% being attending physicians. (...)
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  17.  35
    Decision Making in Paediatric Care: an overview with reference to nursing care.Inger Hallström & Gunnel Elander - 2005 - Nursing Ethics 12 (3):223-238.
    The purpose of this overview of published articles on decision making in paediatric care was to identify important aspects of its possible use in clinical practice and to obtain a base for future research. A literature review was undertaken utilizing snowball sampling to identify articles because of the diversity present within the area of decision making in paediatric care. The databases PubMed and CINAHL were used. The search was limited to articles published in English during the (...)
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  18.  17
    Mitigating Moral Distress: Pediatric Critical Care Nurses’ Recommendations.Sadie Deschenes, Shannon D. Scott & Diane Kunyk - forthcoming - HEC Forum:1-21.
    In pediatric critical care, nurses are the primary caregivers for critically ill children and are particularly vulnerable to moral distress. There is limited evidence on what approaches are effective to minimize moral distress among these nurses. To identify intervention attributes that critical care nurses with moral distress histories deem important to develop a moral distress intervention. We used a qualitative description approach. Participants were recruited using purposive sampling between October 2020 to May 2021 from pediatric critical care (...)
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  19.  16
    Intervention principles in pediatric health care: the difference between physicians and the state.D. Robert MacDougall - 2019 - Theoretical Medicine and Bioethics 40 (4):279-297.
    According to various accounts, intervention in pediatric decisions is justified either by the best interests standard or by the harm principle. While these principles have various nuances that distinguish them from each other, they are similar in the sense that both focus primarily on the features of parental decisions that justify intervention, rather than on the competency or authority of the parties that intervene. Accounts of these principles effectively suggest that intervention in pediatric decision making is warranted for both physicians (...)
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  20.  21
    Pediatric nurses’ ethical difficulties in the bedside care of children.Kwisoon Choe, Yoonjung Kim & Yoonseo Yang - 2019 - Nursing Ethics 26 (2):541-552.
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  21.  1
    Parental agency in pediatric palliative care.Marta Szabat - forthcoming - Nursing Inquiry:e12594.
    The study discusses a new approach to parental agency in pediatric palliative care based on an active form of caregiving. It also explores the possibility of a positive conceptualization of parental agency in its relational context. The paper begins with an illustrative case study based on a clinical situation. This is followed by an analysis of various aspects of parental agency based on empirical studies that disclose the insufficiencies of the traditional approach to parental agency. In the next step, (...)
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  22.  23
    Closing the Gaps in Pediatric HIV/AIDS Care, One Step at a Time.Lisa V. Adams, Helga Naburi, Goodluck Lyatuu, Paul Palumbo & C. Fordham von Reyn - 2012 - Narrative Inquiry in Bioethics 2 (2):75-78.
    In lieu of an abstract, here is a brief excerpt of the content:Closing the Gaps in Pediatric HIV/AIDS Care, One Step at a TimeLisa V. Adams, Helga Naburi, Goodluck Lyatuu, Paul Palumbo, and C. Fordham von ReynFatuma's* doctors were completely perplexed. It was 2003 and she had returned to the DARDAR clinic in her hometown of Dar es Salaam, Tanzania three times that week with vague complaints of various pains and aches. Her doctors were considering whether these symptoms were (...)
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  23.  12
    Early Integration of Pediatric Participation in Health Care as Preventive Ethics.Austin Lawrence Dalgo - 2018 - American Journal of Bioethics 18 (3):22-24.
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  24. Should Pediatric Patients Be Prioritized When Rationing Life-Saving Treatments During the COVID-19 Pandemic.Ryan M. Antiel, Farr A. Curlin, Govind Persad, Douglas B. White, Cathy Zhang, Aaron Glickman, Ezekiel J. Emanuel & John Lantos - 2020 - Pediatrics 146 (3):e2020012542.
    Coronavirus disease 2019 can lead to respiratory failure. Some patients require extracorporeal membrane oxygenation support. During the current pandemic, health care resources in some cities have been overwhelmed, and doctors have faced complex decisions about resource allocation. We present a case in which a pediatric hospital caring for both children and adults seeks to establish guidelines for the use of extracorporeal membrane oxygenation if there are not enough resources to treat every patient. Experts in critical care, end-of-life (...), bioethics, and health policy discuss if age should guide rationing decisions. (shrink)
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  25.  15
    Triage Policies at U.S. Hospitals with Pediatric Intensive Care Units.Erica K. Salter, Jay R. Malone, Amanda Berg, Annie B. Friedrich, Alexandra Hucker, Hillary King & Armand H. Matheny Antommaria - 2023 - AJOB Empirical Bioethics 14 (2):84-90.
    Objectives To characterize the prevalence and content of pediatric triage policies.Methods We surveyed and solicited policies from U.S. hospitals with pediatric intensive care units. Policies were analyzed using qualitative methods and coded by 2 investigators.Results Thirty-four of 120 institutions (28%) responded. Twenty-five (74%) were freestanding children’s hospitals and 9 (26%) were hospitals within a hospital. Nine (26%) had approved policies, 9 (26%) had draft policies, 5 (14%) were developing policies, and 7 (20%) did not have policies. Nineteen (68%) institutions (...)
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  26.  12
    Bioethics in the Pediatric Icu: Ethical Dilemmas Encountered in the Care of Critically Ill Children.John Lantos, Ásdís Finnsdóttir Wagner & Laura Miller-Smith - 2019 - Springer Verlag.
    This book examines the many ethical issues that are encountered in the Pediatric Intensive Care Unit. It supports pediatricians, nurses, residents, and other providers in their daily management of critically ill children with the dilemmas that arise. It begins by examining the evolution of pediatric critical care, and who is now impacted by this advancing medical technology. Subsequent chapters explore specific ethical concerns and controversies that are commonly encountered. These topics include how to conduct end-of-life discussions with families (...)
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  27.  14
    Being heard – Supporting person‐centred communication in paediatric care using augmentative and alternative communication as universal design: A position paper.Gunilla Thunberg, Ensa Johnson, Juan Bornman, Joakim Öhlén & Stefan Nilsson - 2022 - Nursing Inquiry 29 (2):e12426.
    Person‐centred care, with its central focus on the patient in partnership with healthcare practitioners, is considered to be the contemporary gold standard of care. This type of care implies effective communication from and by both the patient and the healthcare practitioner. This is often problematic in the case of the paediatric population, because of the many communicative challenges that may arise due to the child's developmental level, illness and distress, linguistic competency and disabilities. The principle of (...)
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  28.  1
    Pediatric Decision-Making for Children in State Custody.Erin Talati Paquette & Lou Vinarcsik - 2024 - Perspectives in Biology and Medicine 67 (2):290-304.
    In summer 2022, six points of consensus emerged from a symposium addressing the question, “In the context of U.S. pediatric care, what moral precepts ought to guide parents and clinicians in medical decision making for children?” (Salter et al. 2023). The authors of this statement wrote, however, that the points of consensus may require modification or may not apply in their entirety to children in state custody. This article addresses the consensus recommendations in the context of the thousands of (...)
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  29.  73
    Ethical issues at the interface of clinical care and research practice in pediatric oncology: a narrative review of parents' and physicians' experiences.Martine C. de Vries, Mirjam Houtlosser, Jan M. Wit, Dirk P. Engberts, Dorine Bresters, Gertjan Jl Kaspers & Evert van Leeuwen - 2011 - BMC Medical Ethics 12 (1):1-11.
    Pediatric oncology has a strong research culture. Most pediatric oncologists are investigators, involved in clinical care as well as research. As a result, a remarkable proportion of children with cancer enrolls in a trial during treatment. This paper discusses the ethical consequences of the unprecedented integration of research and care in pediatric oncology from the perspective of parents and physicians. An empirical ethical approach, combining (1) a narrative review of (primarily) qualitative studies on parents' and physicians' experiences of (...)
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  30.  9
    Why the Individual Provider Approach to Pediatric Palliative Care Consultation Exacerbates Healthcare Disparities: A Moral Argument for Standard Referral Criteria.K. Sarah Hoehn & Suzanne R. Gouda - 2022 - Journal of Clinical Ethics 33 (4):352-356.
    Pediatric palliative care is specialized medical care for children who live with serious and life-limiting illnesses, with the central goal to improve quality of life for both children and their families. Presently, a majority of pediatric palliative care referrals are based on the traditional consultative model, in which primary providers serve as the gatekeepers to palliative care access. It is well-known that racial and ethnic healthcare disparities exist across the continuum of care, fraught with healthcare (...)
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  31. Emerging complexities in pediatric palliative care.Renee Boss & Nancy Hutton - 2014 - In Timothy E. Quill & Franklin G. Miller (eds.), Palliative care and ethics. New York: Oxford University Press.
     
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  32.  28
    Choosing to Care for Children Who Might Die: Conversations with Pediatric Residents.Amy E. Caruso Brown - 2017 - Perspectives in Biology and Medicine 60 (2):247-257.
    Not long after matriculation—sometimes even before—medical students begin hearing the question, "So, what are you going into?" It can be heard as a colloquial version of a practical question, "To which type of residency are you planning to apply?" Some will evade the question, claiming, perhaps sincerely, to be fascinated by everything from radiology to geriatrics, open to all possible paths. Others will acknowledge that they enjoy or dread working with children, that they crave long-term relationships or bursts of adrenaline, (...)
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  33.  8
    Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18.Marta Szabat - 2020 - Nursing Inquiry 2 (2):e12341.
    The purpose of this study is to analyze the experience of hope that appears in a parent's blog presenting everyday life while caring for a child with Trisomy 18 (Edwards syndrome). The author, Rebekah Peterson, began her blog on 17 March 2011 and continues to post information on her son Aaron's care. The analysis of hope in the blog is carried out using a mixed methodology: initial and focused coding using Charmaz's constructed grounded theory and elements of Colaizzi's method. (...)
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  34.  51
    The ethics of animal research: a survey of pediatric health care workers.Ari R. Joffe, Meredith Bara, Natalie Anton & Nathan Nobis - 2014 - Philosophy, Ethics, and Humanities in Medicine 9:20.
    Pediatric health care workers often perform, promote, and advocate use of public funds for animal research . We aim to determine whether HCW consider common arguments in support of AR convincing.
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  35.  16
    Pediatric Ethics: Theory and Practice.Nico Nortjé & Johan C. Bester (eds.) - 2021 - Springer Verlag.
    This book assists health care providers to understand the specific interplay of the roles and relationships currently forming the debates in pediatric clinical ethics. It builds on the fact that, unlike adult medical ethics, pediatric ethics begins within an acutely and powerfully experienced dynamic of patient-family-state-physician relationship. The book provides a unique perspective as it interacts with established approaches as well as recent developments in pediatric ethics theory, and then explores these developments further through cases. The book first focuses (...)
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  36.  22
    Withdrawal of treatment in a pediatric intensive care unit at a Children’s Hospital in China: a 10-year retrospective study.Huaqing Liu, Dongni Su, Xubei Guo, Yunhong Dai, Xingqiang Dong, Qiujiao Zhu, Zhenjiang Bai, Ying Li & Shuiyan Wu - 2020 - BMC Medical Ethics 21 (1):1-9.
    BackgroundPublished data and practice recommendations on end-of-life care generally reflect Western practice frameworks; there are limited data on withdrawal of treatment for children in China.MethodsWithdrawal of treatment for children in the pediatric intensive care unit of a regional children’s hospital in eastern China from 2006 to 2017 was studied retrospectively. Withdrawal of treatment was categorized as medical withdrawal or premature withdrawal. The guardian’s self-reported reasons for abandoning the child’s treatment were recorded from 2011.ResultsThe incidence of withdrawal of treatment (...)
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  37.  3
    Challenges in Providing Complex Paediatric Care in Rural Communities.Marj Nagel - 2019 - Narrative Inquiry in Bioethics 9 (2):E1-E2.
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  38.  55
    A Narrative Approach to the Clinical Reasoning Process in Pediatric Intensive Care: The Story of Matthew.Michele A. Carter & Sally S. Robinson - 2001 - Journal of Medical Humanities 22 (3):173-194.
    This paper offers a narrative approach to understanding the process of clinical reasoning in complex cases involving medical uncertainty, moral ambiguity, and futility. We describe a clinical encounter in which the pediatric health care team experienced a great deal of conflict and distrust as a result of an ineffective process of interpretation and communication. We propose a systematic method for analyzing the technical, ethical, behavioral, and existential dimensions of the clinical reasoning process, and introduce the Clinical Reasoning Discussion Tool—a (...)
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  39.  21
    Dignified death: Concept development involving nurses and doctors in Pediatric Intensive Care Units.K. Poles & R. Szylit Bousso - 2011 - Nursing Ethics 18 (5):694-709.
    The aim of this study was to develop the concept of the dignified death of children in Brazilian pediatric intensive care units (PICUs). The Hybrid Model for Concept Development was used to develop a conceptual structure of dignified death in PICUs in an attempt to define the concept. The fieldwork study was carried out by means of in-depth interviews with nine nurses and seven physicians working in PICUs. Not unexpectedly, the concept of dignified death was found to be a (...)
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  40.  27
    Dignified death: Concept development involving nurses and doctors in Pediatric Intensive Care Units.Kátia Poles & Regina Szylit Bousso - 2011 - Nursing Ethics 18 (5):694-709.
    The aim of this study was to develop the concept of the dignified death of children in Brazilian pediatric intensive care units . The Hybrid Model for Concept Development was used to develop a conceptual structure of dignified death in PICUs in an attempt to define the concept. The fieldwork study was carried out by means of in-depth interviews with nine nurses and seven physicians working in PICUs. Not unexpectedly, the concept of dignified death was found to be a (...)
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  41.  8
    The Intervention Areas of the Psychologist in Pediatric Palliative Care: A Retrospective Analysis.Anna Santini, Irene Avagnina, Anna Marinetto, Valentina De Tommasi, Pierina Lazzarin, Giorgio Perilongo & Franca Benini - 2022 - Frontiers in Psychology 13.
    Infants, children and adolescents with life-limiting and life-threatening disease need long-term care that may change according to disease’s natural history. With the primary goal of quality of life, the psychologist of pediatric palliative care network deals with a large variety of issues. Little consideration has been given to the variety of intervention areas of psychology in PPC that concern the whole life span of the patient and family. The PPC network is composed by a multidisciplinary team of palliative (...)
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  42.  14
    Focusing on Neutrality When Resolving Religious Conflicts in Pediatric Medical Care.Kevin Powell - 2021 - American Journal of Bioethics 21 (6):29-31.
    Consent for pediatric health care has been evolving for 50 years. Norms for child-rearing and laws concerning child neglect and child abuse are also evolving. Brummett correctly describes th...
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  43.  92
    A New Justification for Pediatric Research Without the Potential for Clinical Benefit.David Wendler - 2012 - American Journal of Bioethics 12 (1):23 - 31.
    Pediatric research without the potential for clinical benefit is vital to improving pediatric medical care. This research also raises ethical concern and is regarded by courts and commentators as unethical. While at least 10 justifications have been proposed in response, all have fundamental limitations. This article describes and defends a new justification based on the fact that enrollment in clinical research offers children the opportunity to contribute to a valuable project. Contributing as children to valuable projects can benefit individuals (...)
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  44.  22
    Commentary From a Pediatric Complexologist and a Pediatric Palliative Care and Ethics Consultant.Carl Tapia & Jill Ann Jarrell - 2016 - American Journal of Bioethics 16 (2):70-71.
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  45.  6
    What Is Best for the Child? Pediatric Dental Care during COVID-19.Elsa Alfonzo-Echeverri, Kimberly K. Patterson & Priyanshi Ritwik - 2021 - Journal of Clinical Ethics 32 (3):215-223.
    The coronavirus (COVID-19) pandemic has challenged the dental health profession in an unprecedented manner. Suspension of elective dental care across the United States during the initial phase of the pandemic was necessary to prevent viral transmission. The emergency dental care that was provided had to be tailored to minimize the generation of aerosols. With the suspension of elective care, over time, the proportion of dental emergencies was anticipated to rise. Dentists who care for children have continued (...)
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  46.  59
    Pediatric Ethics and Communication Excellence (PEACE) Rounds: Decreasing Moral Distress and Patient Length of Stay in the PICU.Lucia Wocial, Veda Ackerman, Brian Leland, Brian Benneyworth, Vinit Patel, Yan Tong & Mara Nitu - 2017 - HEC Forum 29 (1):75-91.
    This paper describes a practice innovation: the addition of formal weekly discussions of patients with prolonged PICU stay to reduce healthcare providers’ moral distress and decrease length of stay for patients with life-threatening illnesses. We evaluated the innovation using a pre/post intervention design measuring provider moral distress and comparing patient outcomes using retrospective historical controls. Physicians and nurses on staff in our pediatric intensive care unit in a quaternary care children's hospital participated in the evaluation. There were 60 (...)
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  47.  26
    Pediatric Off‐Label Use of Covid‐19 Vaccines: Ethical and Legal Considerations.Elizabeth Lanphier & Shannon Fyfe - 2021 - Hastings Center Report 51 (6):27-32.
    Can Covid-19 vaccines be used off-label? Should they be? These were questions on the minds of parents, pediatricians, and the media when the FDA fully approved the Pfizer-BioNTech Covid-19 vaccine for people aged 16 and up. Yet the American Academy of Pediatrics cautioned against pediatric off-label use of the vaccine, and the CDC Covid-19 Vaccine Provider Agreement appears to prohibit it. After briefly contextualizing ethical and legal precedents regarding off-label use, we offer an analysis of the ethical permissibility of and (...)
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  48.  9
    Pediatric Drug Labeling and Imperfect Information.Benjamin S. Wilfond - 2020 - Hastings Center Report 50 (1):3-3.
    I first became aware of bioethics in the spring of 1980. I had spent a thirty‐six‐hour shift shadowing a medical resident, and I was struck that many of the resident's decisions had ethical dimensions. The next day, I came across the Hastings Center Report, and I realized I wanted to explore ethical issues I found implicit in clinical care, even though I still wanted to become a pediatrician. In September 2019, when I attended my first meeting of the U.S. (...)
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  49.  2
    Pediatric Decision-Making: ethical aspects specific to neonates.Jay R. Malone, Mark R. Mercurio & Loretta M. Kopelman - 2024 - Perspectives in Biology and Medicine 67 (2):209-226.
    Recently published consensus recommendations on pediatric decision-making by Salter and colleagues (2023) did not address neonatal decision-making, due to the unique complexities of neonatal care. This essay explores three areas that impact neonatal decision-making: legal and policy considerations, rapid technological advancement, and the unique emotional burdens faced by parents and clinicians during the medical care of neonates. The authors evaluate the six consensus recommendations related to these considerations and conclude that the consensus recommendations apply to neonates.
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  50.  11
    WeChat-platform-based education and care program as a candidate approach to relieve anxiety, depression, and post-traumatic stress disorder in parents of pediatric and adolescent patients with osteosarcoma.Jing Wu, Jie Meng & Honghe Li - 2022 - Frontiers in Psychology 13.
    BackgroundWeChat is the main social platform in China, characterized by its versatility and ease of communication. This study aimed to explore the effect of a WeChat-platform-based education and care program on relieving anxiety, depression, and post-traumatic stress disorder in parents of pediatric and adolescent patients with osteosarcoma.MethodsIn total, 48 patients and 86 parents were enrolled in this randomized, controlled study and then assigned to the WBEC program and the usual education and care program for 6 months as a (...)
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