17 found
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  1.  66
    CRISPR and the Rebirth of Synthetic Biology.Raheleh Heidari, David Martin Shaw & Bernice Simone Elger - 2017 - Science and Engineering Ethics 23 (2):351-363.
    Emergence of novel genome engineering technologies such as clustered regularly interspaced short palindromic repeat has refocused attention on unresolved ethical complications of synthetic biology. Biosecurity concerns, deontological issues and human right aspects of genome editing have been the subject of in-depth debate; however, a lack of transparent regulatory guidelines, outdated governance codes, inefficient time-consuming clinical trial pathways and frequent misunderstanding of the scientific potential of cutting-edge technologies have created substantial obstacles to translational research in this area. While a precautionary principle (...)
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  2.  16
    Structural Racism in Precision Medicine: Leaving No One Behind.Tenzin Wangmo, Bernice Simone Elger, David Shaw, Andrea Martani & Lester Darryl Geneviève - 2020 - BMC Medical Ethics 21 (1):1-13.
    Precision medicine is an emerging approach to individualized care. It aims to help physicians better comprehend and predict the needs of their patients while effectively adopting in a timely manner the most suitable treatment by promoting the sharing of health data and the implementation of learning healthcare systems. Alongside its promises, PM also entails the risk of exacerbating healthcare inequalities, in particular between ethnoracial groups. One often-neglected underlying reason why this might happen is the impact of structural racism on PM (...)
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  3.  7
    Paternalistic Breaches of Confidentiality in Prison: Mental Health Professionals’ Attitudes and Justifications.Bernice Simone Elger, Violet Handtke & Tenzin Wangmo - 2015 - Journal of Medical Ethics 41 (6):496-500.
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  4. Ethical Norms and the International Governance of Genetic Databases and Biobanks: Findings From an International Study.Capron Alexander Morgan, Mauron Alexandre, Elger Bernice Simone, Boggio Andrea, Ganguli-Mitra Agomoni & Biller-Andorno Nikola - 2009 - Kennedy Institute of Ethics Journal 19 (2):101-124.
  5.  24
    Application of Ethical Principles to Research Using Public Health Data in The Global South: Perspectives From Africa.Evelyn Anane‐Sarpong, Tenzin Wangmo, Osman Sankoh, Marcel Tanner & Bernice Simone Elger - 2018 - Developing World Bioethics 18 (2):98-108.
    Existing ethics guidelines, influential literature and policies on ethical research generally focus on real-time data collection from humans. They enforce individual rights and liberties, thereby lowering need for aggregate protections. Although dependable, emerging public health research paradigms like research using public health data raise new challenges to their application. Unlike traditional research, RUPD is population-based, aligned to public health activities, and often reliant on pre-collected longitudinal data. These characteristics, when considered in relation to the generally lower protective ethico-legal frameworks of (...)
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  6.  31
    Disclosure of Past Crimes: An Analysis of Mental Health Professionals' Attitudes Towards Breaching Confidentiality.Tenzin Wangmo, Violet Handtke & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):347-358.
    Ensuring confidentiality is the cornerstone of trust within the doctor–patient relationship. However, health care providers have an obligation to serve not only their patient’s interests but also those of potential victims and society, resulting in circumstances where confidentiality must be breached. This article describes the attitudes of mental health professionals when patients disclose past crimes unknown to the justice system. Twenty-four MHPs working in Swiss prisons were interviewed. They shared their experiences concerning confidentiality practices and attitudes towards breaching confidentiality in (...)
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  7.  8
    Medical Ethics in Correctional Healthcare: An International Comparison of Guidelines.Bernice Simone Elger - 2008 - Journal of Clinical Ethics 19 (3):234.
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  8.  13
    Autonomy and Reproductive Rights of Married Ikwerre Women in Rivers State, Nigeria.Chitu Womehoma Princewill, Ayodele Samuel Jegede, Tenzin Wangmo, Anita Riecher-Rössler & Bernice Simone Elger - 2017 - Journal of Bioethical Inquiry 14 (2):205-215.
    A woman’s lack of or limited reproductive autonomy could lead to adverse health effects, feeling of being inferior, and above all being unable to adequately care for her children. Little is known about the reproductive autonomy of married Ikwerre women of Rivers State, Nigeria. This study demonstrates how Ikwerre women understand the terms autonomy and reproductive rights and what affects the exercise of these rights. An exploratory research design was employed for this study. A semi-structured interview schedule was used to (...)
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  9.  10
    Expert Perspectives on Western European Prison Health Services: Do Ageing Prisoners Receive Equivalent Care?Wiebke Bretschneider & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):319-332.
    Health care in prison and particularly the health care of older prisoners are increasingly important topics due to the growth of the ageing prisoner population. The aim of this paper is to gain insight into the approaches used in the provision of equivalent health care to ageing prisoners and to confront the intuitive definition of equivalent care and the practical and ethical challenges that have been experienced by individuals working in this field. Forty interviews took place with experts working in (...)
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  10.  26
    Defining Nano, Nanotechnology and Nanomedicine: Why Should It Matter?Priya Satalkar, Bernice Simone Elger & David M. Shaw - 2016 - Science and Engineering Ethics 22 (5):1255-1276.
    Nanotechnology, which involves manipulation of matter on a ‘nano’ scale, is considered to be a key enabling technology. Medical applications of nanotechnology are expected to significantly improve disease diagnostic and therapeutic modalities and subsequently reduce health care costs. However, there is no consensus on the definition of nanotechnology or nanomedicine, and this stems from the underlying debate on defining ‘nano’. This paper aims to present the diversity in the definition of nanomedicine and its impact on the translation of basic science (...)
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  11.  27
    Understanding Death in Custody: A Case for a Comprehensive Definition.Géraldine Ruiz, Tenzin Wangmo, Patrick Mutzenberg, Jessica Sinclair & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):387-398.
    Prisoners sometimes die in prison, either due to natural illness, violence, suicide, or a result of imprisonment. The purpose of this study is to understand deaths in custody using qualitative methodology and to argue for a comprehensive definition of death in custody that acknowledges deaths related to the prison environment. Interviews were conducted with 33 experts, who primarily work as lawyers or forensic doctors with national and/or international organisations. Responses were coded and analysed qualitatively. Defining deaths in custody according to (...)
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  12.  25
    “You Cannot Collect Data Using Your Own Resources and Put It on Open Access”: Perspectives From Africa About Public Health Data‐Sharing.Evelyn Anane‐Sarpong, Tenzin Wangmo, Claire Leonie Ward, Osman Sankoh, Marcel Tanner & Bernice Simone Elger - 2018 - Developing World Bioethics 18 (4):394-405.
    Data-sharing is a desired default in the field of public health and a source of much ethical deliberation. Sharing data potentially contributes the largest, most efficient source of scientific data, but is fraught with contextual challenges which make stakeholders, particularly those in under-resourced contexts hesitant or slow to share. Relatively little empirical research has engaged stakeholders in discussing the issue. This study sought to explore relevant experiences, contextual, and subjective explanations around the topic to provide a rich and detailed presentation (...)
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  13.  8
    Correction To: Synthetic Biology and the Translational Imperative.Raheleh Heidari Feidt, Marcello Ienca, Bernice Simone Elger & Marc Folcher - 2019 - Science and Engineering Ethics 25 (1):53-53.
    The author group of above-mentioned review paper was incorrectly published in the online article.
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  14.  16
    Synthetic Biology and the Translational Imperative.Raheleh Heidari Feidt, Marcello Ienca, Bernice Simone Elger & Marc Folcher - 2019 - Science and Engineering Ethics 25 (1):33-52.
    Advances at the interface between the biological sciences and engineering are giving rise to emerging research fields such as synthetic biology. Harnessing the potential of synthetic biology requires timely and adequate translation into clinical practice. However, the translational research enterprise is currently facing fundamental obstacles that slow down the transition of scientific discoveries from the laboratory to the patient bedside. These obstacles including scarce financial resources and deficiency of organizational and logistic settings are widely discussed as primary impediments to translational (...)
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  15.  19
    L’information et la gestion des risques dans le suivi de la grossesse lors du 1er trimestre : quelques réflexions sur le défi éthique et le cadre légal en Suisse.Ghislaine Issenhuth-Scharly, Manuella Epiney, Dominique Manaï & Bernice Simone Elger - 2009 - Médecine et Droit 2009 (96):94-99.
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  16.  15
    Education and Reproductive Autonomy: The Case of Married Nigerian Women.Chitu Womehoma Princewill, Eva De Clercq, Anita Riecher-Rössler, Ayodele Samuel Jegede, Tenzin Wangmo & Bernice Simone Elger - 2017 - Narrative Inquiry in Bioethics 7 (3):231-244.
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  17.  58
    Factors Affecting Women's Autonomous Decision Making In Research Participation Amongst Yoruba Women Of Western Nigeria.Chitu Womehoma Princewill, Ayodele S. Jegede, Karin Nordström, Bolatito Lanre‐Abass & Bernice Simone Elger - 2017 - Developing World Bioethics 17 (1):40-49.
    Research is a global enterprise requiring participation of both genders for generalizable knowledge; advancement of science and evidence based medical treatment. Participation of women in research is necessary to reduce the current bias that most empirical evidence is obtained from studies with men to inform health care and related policy interventions. Various factors are assumed to limit autonomy amongst the Yoruba women of western Nigeria. This paper seeks to explore the experience and understanding of autonomy by the Yoruba women in (...)
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