IVF as lottery or investment: contesting metaphors in discourses of infertilityThis paper reports an aspect of a poststructural feminist study in which I explored the discursive formations within which women for whom in vitro fertilisation (IVF) was unsuccessful constitute themselves. In my exploration I draw on data from interviews with women who discontinued infertility treatment, print media material and infertility self‐help books. Specifically, I highlight a metaphor of lottery in discourses of infertility, arguing that it is hegemonic and showing how (...) when women are situated as gamblers, the metaphor is instrumental in polarising them into ‘winners’ or ‘losers’ in relation to the subjectivity of motherhood. I further deconstruct these subjectivities, showing how ‘winners’ are valorised and ‘losers’ are pathologised. But importantly, I show how infertile women who are not mothers resisted locating themselves as ‘losers’ in a metaphor of lottery and instead situated themselves in a contesting metaphor of investment as diligent ‘workers’ and as active agents in choosing the best employment of their bodily and monetary resources. This paper therefore amplifies the marginalised perspective of infertile women who are not mothers. (shrink)

Maxwell J. Mehlman, Transhumanist dreams and dystopian nightmares: The promise and peril of genetic engineering, Baltimore: Johns Hopkins University Press, 2012, reviewed by Sheryl de Lacey.

As the demand for human eggs for stem cell research increases, debate about appropriate standards for recruitment and compensation of women intensifies. In the majority of cases, the source of eggs for research is women undergoing fertility treatment requiring ovarian stimulation and egg retrieval. The principle of "just participant selection" requires that research subjects be selected from the population that stands to benefit from the research. Based on this principle, infertile women should be actively recruited to donate eggs for fertility-related (...) research only. It is unethical to exclusively or predominantly recruit infertile women to donate eggs for stem cell research that concerns general medical conditions. It is preferable to recruit women from the general population to donate eggs for such research, and these women should be viewed as healthy volunteers. To avoid exploitation, these donors should receive compensation for both the direct and indirect costs associated with their donation. (shrink)

As the demand for human eggs for stem cell research increases, debate about appropriate standards for recruitment and compensation of women intensifies. In the majority of cases, the source of eggs for research is women undergoing fertility treatment requiring ovarian stimulation and egg retrieval. The principle of "just participant selection" requires that research subjects be selected from the population that stands to benefit from the research. Based on this principle, infertile women should be actively recruited to donate eggs for fertility-related (...) research only. It is unethical to exclusively or predominantly recruit infertile women to donate eggs for stem cell research that concerns general medical conditions. It is preferable to recruit women from the general population to donate eggs for such research, and these women should be viewed as healthy volunteers. To avoid exploitation, these donors should receive compensation for both the direct and indirect costs associated with their donation. (shrink)

As the demand for human eggs for stem cell research increases, debate about appropriate standards for recruitment and compensation of women intensifies. In the majority of cases, the source of eggs for research is women undergoing fertility treatment requiring ovarian stimulation and egg retrieval. The principle of “just participant selection” requires that research subjects be selected from the population that stands to benefit from the research. Based on this principle, infertile women should be actively recruited to donate eggs for fertility-related (...) research only. It is unethical to exclusively or predominantly recruit infertile women to donate eggs for stem cell research that concerns general medical conditions. It is preferable to recruit women from the general population to donate eggs for such research, and these women should be viewed as healthy volunteers. To avoid exploitation, these donors should receive compensation for both the direct and indirect costs associated with their donation. (shrink)

In this paper we comment on the changes in the provision of fertility care in Australia, New Zealand and the UK to illustrate how different funding arrangements of assisted reproductive technologies (ART) shape the delivery of patient care and the position of fertility nursing. We suggest that the routinisation of in vitro fertilisation technology has introduced a new way of managing the fertility patient at a distance, the distal fertility patient. This has resulted in new forms of organisational routines in (...) ART which challenge both traditional forms of nursing and advanced nursing roles. We discuss the consequences of this increasingly globalised approach to infertility through the lens of three national contexts, Australia, New Zealand and the UK to unpack the position of nursing within the new forms of organisational routines. (shrink)

The introduction of genomics and biobanking methodologies to the African research context has also introduced novel ways of doing science, based on values of sharing and reuse of data and samples. This shift raises ethical challenges that need to be considered when research is reviewed by ethics committees, relating for instance to broad consent, the feedback of individual genetic findings, and regulation of secondary sample access and use. Yet existing ethics guidelines and regulations in Africa do not successfully regulate research (...) based on sharing, causing confusion about what is allowed, where and when. In order to understand better the ethics regulatory landscape around genomic research and biobanking, we conducted a comprehensive analysis of existing ethics guidelines, policies and other similar sources. We sourced 30 ethics regulatory documents from 22 African countries. We used software that assists with qualitative data analysis to conduct a thematic analysis of these documents. Surprisingly considering how contentious broad consent is in Africa, we found that most countries allow the use of this consent model, with its use banned in only three of the countries we investigated. In a likely response to fears about exploitation, the export of samples outside of the continent is strictly regulated, sometimes in conjunction with regulations around international collaboration. We also found that whilst an essential and critical component of ensuring ethical best practice in genomics research relates to the governance framework that accompanies sample and data sharing, this was most sparingly covered in the guidelines. There is a need for ethics guidelines in African countries to be adapted to the changing science policy landscape, which increasingly supports principles of openness, storage, sharing and secondary use. Current guidelines are not pertinent to the ethical challenges that such a new orientation raises, and therefore fail to provide accurate guidance to ethics committees and researchers. (shrink)

Hugh Lacey (1939) é pesquisador emérito na Swarthmore College, Pennsylvania, Estados Unidos, onde começou a lecionar em 1972. É Doutor em História e Filosofia da Ciência pela Universidade de Indiana (EUA), tendosido professor visitante na Universidade de São Paulo em diversas ocasiões (1973, 1996, 2000 e 2004). Seus trabalhos atribuem lugares próprios aos valores dentro da tecnociência, procurando mostrar que a abordagem científica materialista precisa assumir também o lugar que as coisas ocupam em sistemas ecológicos e sociais. Lacey (...) é autor de diversos artigos e livros, entre os quais estão Valores e Atividade Científica 1, Valores e Atividade Científica 2, A Controvérsia sobre os transgênicos: questões científicas e éticas, entre outros. (shrink)

Urban legend has it that when the Lumiere brothers first showed their film L’Arrivée d’un train en gare de La Ciotat in 1896 (which was literally the moving ima.

In many parts of sub-Saharan Africa, mothers impacted by the genetic condition of albinism, whether as mothers of children with albinism or themselves with albinism, are disproportionately impacted by a constellation of health-related stigma, social determinants of health, and human rights violations. In a critical ethnographic study in Tanzania, we engaged with the voices of mothers impacted by albinism and key stakeholders to elucidate experiences of stigma. Their narratives revealed internalized subjective stigma, social stigma such as being ostracized by family (...) and community, and structural stigma on account of lack of access to SDH. An analysis of health systems as SDH revealed stigmatizing attitudes and behaviours of healthcare providers, especially at the time of birth; a lack of access to timely quality health services, in particular skin and eye care; and a lack of health-related education about the cause and care of albinism. Gender inequality as another SDH featured prominently as an amplifier of stigma. The findings pose implications for research, policy, and practice. A concrete avenue to de-stigmatization of mothers impacted by albinism exists by the application of principles of human rights, particularly equality and non-discrimination; contextual analysis of cultural dynamics including relevant ontology; meaningful participation of rights-claimants, such as peer groups of mothers; and accountability of governments and their obligation to ensure access to health information as a key social determinant of the right to health. (shrink)

O objetivo do artigo é o de extrair dos escritos de Taylor uma crítica da concepção de Kuhn a respeito de uma possível unidade entre as ciências naturais e as ciências humanas, e dos de Kuhn uma crítica à caracterização proposta por Taylor para as ciências naturais. Deste empreendimento resulta uma reconceptualização da unidade das ciências.

Epistemologies of the South explores “a set of inquiries into the construction and validation of knowledge born in struggle, of ways of knowing developed by social groups as part of their resistance against the systematic injustices and oppressions caused by capitalism, colonialism and patriarchy” . The author, Boaventura de Sousa Santos—Professor of Sociology at the University of Coimbra and Distinguished Legal Scholar at the University of Wisconsin–Madison—is one of the leading intellectuals of the World Social Forum , the network of (...) organizations from the “global South” that challenge the current dominant order, and whose activities are often informed by experiences, aspirations and understanding that lie outside of the comprehension of the world as provided by mainstream scientific, economic and social theories. Through the WSF, Santos has made profound contact with the knowledge, forms of knowledge , their strengths and limitations, and the practices infor .. (shrink)

Name der Zeitschrift: Deutsche Zeitschrift für Philosophie Jahrgang: 64 Heft: 2 Seiten: 258-272.

A legitimação de políticas públicas que apóiam o cultivo de lavouras transgênicas em larga escala pressupõe, entre outras condições, (1) que os dados empíricos garantem não haver riscos ambientais não-administráveis e, (2) a não-existência de modos melhores de produzir alimentos sem a utilização de técnicas transgênicas. O artigo discute: (a) Os tipos de investigação científica necessários para um exame adequado da condição (1), (b) como as investigações sobre (1) e (2) se relacionam entre si, e (c) como tais investigações se (...) relacionam com valores sociais controvertidos. (shrink)

The aim of the paper is to extract from Taylor's writings a critique of Kuhn's suggestion of the possible unity of the natural and the human sciences, and from Kuhn a critique of Taylor's account of the natural sciences. An outcome of this enterprise will be a re-construal of the unity of the sciences.O objetivo do artigo é o de extrair dos escritos de Taylor uma crítica da concepção de Kuhn a respeito de uma possível unidade entre as ciências naturais (...) e as ciências humanas, e dos de Kuhn uma crítica à caracterização proposta por Taylor para as ciências naturais. Deste empreendimento resulta uma reconceptualização da unidade das ciências. (shrink)

Legitimation of public policies that support the widespread plantings of transgenic crops presuppose, among other conditions, that evidence supports that there are no unmanageable environmental risks and there are no better ways to produce enough nourishing food that can dispense with the transgenics-oriented ways. This paper discusses: the kinds of scientific inquiry that are needed to address adequately, the connections between investigations of and , and how these investigations are related with controversial social values.A legitimação de políticas públicas que apóiam (...) o cultivo de lavouras transgênicas em larga escala pressupõe, entre outras condições, que os dados empíricos garantem não haver riscos ambientais não-administráveis e, a não-existência de modos melhores de produzir alimentos sem a utilização de técnicas transgênicas. O artigo discute: Os tipos de investigação científica necessários para um exame adequado da condição , como as investigações sobre e se relacionam entre si, e como tais investigações se relacionam com valores sociais controvertidos. (shrink)

Em primeiro lugar, apresenta-se uma visão geral das idéias de Lacey sobre a ciência em sua relação com os valores dos movimentos populares, e do Fórum Social Mundial. A seguir, num exercício de construção de pontes conceituais entre o discurso filosófico e o político sobre a ciência, desenvolve-se uma análise do pronunciamento do novo titular do Ministério da Ciência e Tecnologia do Brasil, feito por ocasião de sua posse.

First an overall view is provided of Lacey’s ideas concerning science in its relation with the values of popular movements, and of the World Social Forum. Then, as an exercise in the building of conceptual bridges betweeen philosophical and political discourses about science, an analysis is provided of a speech delivered by Brazil’s new minister for science and technology in the occasion of his taking office.Em primeiro lugar, apresenta-se uma visão geral das idéias de Lacey sobre a ciência (...) em sua relação com os valores dos movimentos populares, e do Fórum Social Mundial. A seguir, num exercício de construção de pontes conceituais entre o discurso filosófico e o político sobre a ciência, desenvolve-se uma análise do pronunciamento do novo titular do Ministério da Ciência e Tecnologia do Brasil, feito por ocasião de sua posse. (shrink)

In his introductory textbook, Philosophy of natural science, Hempel presents, as an illustration and a starting point for an analysis of the processes of inventing and testing scientific theories, an account of the researches of Semmelweis the Hungarian physician who, in the middle of the xixth century, discovered the cause of puerperal fever and an effective method of prevention. The account does not involve anything that is factually untrue, but it is quite succinct, leaving out many important aspects of the (...) case. Our thesis is that, although those omissions are justified in view of the aims of the account, they are also convenient to Hempel, because they help to propagate an image of science which goes much beyond the processes of invention and test. It is an image which reflects the positivist conception of science, and thus, whatever the intentions of the author, contributes to the dissemination and strengthening of that conception, but which, at least in this case, does not correspond to reality. To demonstrate the thesis, we give an account of the parts of Semmelweis's story omitted by Hempel, and we show how they do not fit in with the positivist image of science. Along the way, we distinguish three types of critique of positivist historiography: the Kuhnian, the post-modern, and the engagé. In the conclusion, we present some considerations concerning the medical research of today. -/- . (shrink)

As a general claim, most philosophers of science accept that science is not value-free. The disagreements lie in the proverbial details. The essays in Current Controversies in Values and Science, edited by Kevin Elliott and Daniel Steel focus on such details. Like other volumes in the Routledge Current Controversies in Philosophy’s series, this one asks ten well-known philosophers of science to engage with various questions. Each question receives roughly positive and negative responses, though the authors’ nuanced answers make clear that (...) the contrasting views also involve significant agreement.The first question asks whether we can distinguish epistemic from nonepistemic values. Hugh Lacey argues that such... (shrink)

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We argue that work on norms provides a way to move beyond debates between proponents of individualist and structuralist approaches to bias, oppression, and injustice. We briefly map out the geography of that debate before presenting Charlotte Witt’s view, showing how her position, and the normative ascriptivism at its heart, seamlessly connects individuals to the social reality they inhabit. We then describe recent empirical work on the psychology of norms and locate the notions of informal institutions and soft structures with (...) respect to it. Finally, we argue that the empirical resources enrich Witt’s ascriptivism, and that the resulting picture shows theorists need not, indeed should not, choose between either the individualist or structuralist camp. (shrink)

A growing literature examines the organizational factors that promote women’s access to positions of organizational power. Fewer studies, however, explore the implications of women in leadership positions for the opportunities and experiences of subordinates. Do women leaders serve to undo the gendered organization? In other words, is women’s greater representation in leadership positions associated with less gender segregation at lower organizational levels? We explore this question by drawing on Cohen and Huffman’s conceptual framework of women leaders as either “change agents” (...) or “cogs in the machine” and analyze a unique multilevel data set of workplaces nested within Fortune 1000 firms. Our findings generally support the “agents of change” perspective. Women’s representation among corporate boards of directors, corporate executives, and workplace managers is associated with less workplace gender segregation. Hence, it appears that women’s access to organizational power helps to undo the gendered organization. (shrink)

Providing an illuminating and informed introduction to central philosophical issues, concepts and perspectives in the core fields of metaphysics, epistemology and philosophical logic, the _Dictionary_ takes the most common terms and notions and clarifies what they mean to the philosopher and what sort of problems the philosopher finds associated with them. Thoroughly revised and updated, the bibliographies supply core reading lists, and each entry uses extensive cross referencing to related themes and concepts to provide a greater sense of access, control (...) and comprehension. The _Dictionary_ will also provide those working in proximate fields with an understanding of areas of overlapping interest, concepts of common applicability and the full range and diversity of philosophical analysis and insight. (shrink)

Individuals shift their language to converge with interlocutors. Recent work has suggested that convergence can target not only observed but also expected linguistic behavior, cued by social information. However, it remains uncertain how expectations and observed behavior interact, particularly when they contradict each other. We investigated this using a cooperative map task experiment, in which pairs of participants communicated online by typing messages to each other in a miniature “alien” language that exhibited variation between alien species. The overall task comprised (...) three phases, in each of which participants were told that they would be paired with a different partner. One member of the pair was given explicit linguistic expectations in each phase, while the software controlled whether or not observed behavior from their partner would be consistent or inconsistent with these expectations. The other participant was given no such expectations, allowing us to control for the role of expectation. Participants converged to both observed and expected linguistic behavior, and convergence was boosted when observation and expectation were aligned. When expected and observed behavior were misaligned, participants updated their expectations, though convergence levels did not drop. Furthermore, participants generalized what they learned about one partner to apparent novel partners of the same alien species. We also discuss individual variation in convergence patterns and the lack of a relationship between linguistic convergence and success at the map task. Findings are consistent with observations outside the laboratory that language users converge toward expected linguistic behavior. They also have broader implications for understanding linguistic accommodation and the influence of social information on linguistic processing and production. (shrink)

This article explores how ethics and religion interface in everyday life by drawing on a study examining the negotiation of religious and spiritual plurality in health care. Employing methods of critical ethnography, namely, interviews and participant observation, data were collected from patients, health care providers, administrators and spiritual care providers. The findings revealed the degree to which `lived religion' was intertwined with `lived ethics' for many participants; particularly for people from the Sikh faith. For these participants, religion was woven into (...) everyday life, making distinctions between public and private, secular and sacred spaces improbable. Individual interactions, institutional resource allocation, and social discourses are all embedded in social relationships of power that prevent religion from being a solely personal or private matter. Strategies for the reintegration of religion into nursing ethics are: adjusting professional codes and theories of ethics to reflect the influence of religion; and the contribution of critical perspectives, such as postcolonial feminism, to the understanding of lived ethics. (shrink)

This essay reviews recent feminist scholarship, autobiographical narrative and fiction which explores nurses' engagement with empire in Africa and elsewhere in this century. Such literature suggests that while nursing work may have improved native health in colonized regions, it also contributed significantly to the establishment and stabilization of the racialized order of colonial rule. Of particular significance was colonial nursing's intervention into the reproductive practices of native women, resulting in the loss of local knowledges and autonomy, the disruption of complex (...) social links and indigenous health strategies, and the expansion of markets for western capitalism. (shrink)

Can Martyrdom survive Secularization? is a survey of martyrdom in western society starting with the early Christian martyrs, and narrating its increasing politicization and secularization in more modern times. It argues that martyrdom is a two way street: the courage of men and women in the face of torture and death and the willingness of society to grant them the title of martyr. It recounts the careers of John Brown and his death on a Virginia gallows in 1859, Dietrich Bonhoeffer (...) and his execution by the Nazis in 1945, and Julius and Ethel Rosenberg and the atomic bomb. The story ends with the advent of suicide bombers, the apparent reintroduction of religion as a motive and their role as a political weapon. (shrink)

KEY POINTS In Canada, commercial data brokers collect deidentified patient data from pharmacies, private drug insurers, the federal government and medical clinics without patient consent. Although pharmaceutical companies are the data brokers’ primary customers, academics and nonprofit and public entities also use commercial data sets, given the absence of a coordinated public approach to collecting these data across Canada. Risks of commercialized patient data include loss of anonymity, surveillance and marketing, discrimination and violation of Indigenous data sovereignty. Coordinated infrastructure for (...) the collection and coordination of health data across Canada and updated privacy legislation would protect individuals and communities and enable appropriate data uses. (shrink)