Faced with the threat of pandemic influenza, several countries have made the decision to put a number of measures in place which have been incorporated into national plans. In view of the magnitude of the powers and responsibilities that States assume in the event of a pandemic, a review of the various national preparedness and response plans for pandemic influenza brought to light a series of extremely important ethical concerns. Nevertheless, in spite of the recent emergence of literature focusing specifically (...) on the ethical aspects of pandemics, too few studies explicitly examine public participation as one means of ethical contribution to public health policies. Thus this article seeks, in the first place, to present an analysis of the various national preparedness and response plans for pandemic influenza, and secondly, to outline the role that the plans envisage for ethics and more importantly for public participation. (shrink)

Faced with the threat of pandemic influenza, several countries have made the decision to put a number of measures in place which have been incorporated into national plans. In view of the magnitude of the powers and responsibilities that States assume in the event of a pandemic, a review of the various national preparedness and response plans for pandemic influenza brought to light a series of extremely important ethical concerns. Nevertheless, in spite of the recent emergence of literature focusing specifically (...) on the ethical aspects of pandemics, too few studies explicitly examine public participation as one means of ethical contribution to public health policies. Thus this article seeks, in the first place, to present an analysis of the various national preparedness and response plans for pandemic influenza, and secondly, to outline the role that the plans envisage for ethics and more importantly for public participation. (shrink)

This paper argues that, because Science and Technology Studies lost contact with political philosophy, its defense of public participation in policy-making involving technical claims is normatively unsatisfactory. Current penchants for political under-laboring and normative individualism are critiqued, and the connections between STS and theorists of deliberative democracy are explored. A conservative normativity is proposed, and STS positions on public participation are discussed in relation to current questions about individual and group rights in a liberal democracy. The (...) result is avenues to normatively defend public participation, by analogy with identity politics and Habermas, while also theorizing its limits.--------------------------------------------------------------------------------------------- ---------------------------------------------------------------------------------------------------- ---------------------------------------------------------------------------------------------------- ---------------------------------------------------------------------------------------------------- ---------------------------------------------------------------------------------------------------- ---------------------------------------------------------------------------------------------------- -----------------------------------------------. (shrink)

There is a growing call for greater public involvement in establishing science and technology policy, in line with democratic ideals. A variety of public participation procedures exist that aim to consult and involve the public, ranging from the public hearing to the consensus conference. Unfortunately, a general lack of empirical consideration of the quality of these methods arises from confusion as to the appropriate benchmarks for evaluation. Given that the quality of the output of any (...) participation exercise is difficult to determine, the authors suggest the need to consider which aspects of the process are desirable and then to measure the presence or quality of these process aspects. To this end, a number of theoretical evaluation criteria that are essential for effective public participation are specified. These comprise two types: acceptance criteria, which concern features of a method that make it acceptable to the wider public, and process criteria, which concern features of the process that are liable to ensure that it takes place in an effective manner. Future research needs to develop instruments to measure these criteria more precisely and identify the contextual and environmental factors that will mediate the effectiveness of the different participation methods. (shrink)

The concept of public participation is one of growing interest in the UK and elsewhere, with a commensurate growth in mechanisms to enable this. The merits of participation, however, are difficult to ascertain, as there are relatively few cases in which the effectiveness of participation exercises have been studied in a structured manner. This seems to stem largely from uncertainty in the research community as to how to conduct evaluations. In this article, one agenda for conducting (...) evaluation research that might lead to the systematic acquisition of knowledge is presented. This agenda identifies the importance of defining effectiveness and of operationalizing one’s definition. The article includes analysis of the nature of past evaluations, discussion of potential difficulties in the enactment of the proposed agenda, and discussion of some potential solutions. (shrink)

Climate change harmfully affects social and natural systems. These outcomes adversely affect the human and natural systems, resulting in adopting related-response measures whose implementation yields similar outcomes, especially when poorly designed. Climate-related projects, actions, and policies cause harmful environmental impacts, even though the United Nations Convention on Climate Change and its subsequent instruments urge parties, when dealing with climate change, to employ methods that preserve the quality of the environment. Few studies have established the effects of these environmentally, economically, culturally, (...) and socially unsound mechanisms on public participation, although research usually proves that ecological and environmental citizenship can enhance climate action. The study also highlights gaps in the common understanding of public participation in climate action. This reflection analyses the relationships between public participation and climate response measures and concludes that uncertainty related to response measures could affect the perception of climate action by the public. The reflection, therefore, shows that many international environmental law legal instruments, policies, and scholarships attempt to address the issue. (shrink)

In recent years there has been renewed interest in the participation of lay people in regulatory procedures. The debate peaked in the 1980s with the anti-nuclear movements and again more recently as a reaction to the food scandals of the mid-1990s. In the wake of the bovine spongiform encephalopathy (BSE) crisis there has been a proliferation of European Community rules on the production, processing and retailing of food products, along with the multiplication of scientific committees in order to cope (...) with increased ... (shrink)

This article uses nationwide survey data to answer two questions: who participates in environmental governance in China and why? First it explores the social structural characteristics that distinguish participants, finding that city dwellers, the more educated and those with higher incomes and higher social status are more likely to participate, while women, the elderly, those with rural residence registration and migrants are less likely. It then tests two main explanations as to why people participate in environmental governance: instrumentality and identity. (...) Participation is associated with attention to conservation issues, the perceived effectiveness of local environmental governance, knowledge of environmental problems, reading newspapers and magazines, voting in local elections, identification with a middle-class lifestyle and observance of Western holidays. Combining the analyses into a structural model shows that instrumental and identity-related variables account for nearly all of the social structural variation in participation. Participation is thus a function both of instrumental considerations and identities. (shrink)

The present work approaches a series of wide exploratory investigations in the Romanian rural area, most recently in Livezile-Rimetea micro-region (Apuseni Mountains). Within the civil society and public participation debate context, the study focuses on the variable of religious affiliation (orthodox, non-orthodox), which differentiates the real potential public participation at the population level in the studied area. The immediate conclusion to be drawn is that in the differences in religious affiliation induce variations in expressing the civic (...) activism and in the real or the potential public participation. At the end of our study, the paradox of public participation as diminishing factor of the civil society role is taken into account and this concerns new reflections and investigations on the subject. (shrink)

Perceptions of justice in decision outcomes and processes increases trust, support for authorities, and satisfaction with unfavorable outcomes (Lind and Tyler 1988). However, very little research has been done to apply justice concepts to natural resource decision making contexts (an exception is Lauber and Knuth 1997; 1998). In the study presented here, two rounds of focus groups with public participants in the Northern Lower Michigan Ecosystem Management Project were conducted. Participants were asked to describe their experiences with and attitudes (...) toward different types of public participation. They were also asked what criteria they use when judging the fairness of a natural resource agency decision. Themes emerging in the answers included the importance of representation, voice, consideration, logic, and desired outcomes. These are very similar to justice principles documented in other fields. This suggests managers would be wise to focus less on public participation techniques and more on achieving fair decision-making processes. (shrink)

Public participation is well known for its practitioner insights and wealth of case reports. This knowledge is essential and has been well employed. Likewise, the theoretical literature on public participation is growing rapidly. The need for better conceptual and theoretical understandings of public participation has become clear. Public participation theories have not received great attention, and few have been proposed or tested. Yet theory offers much to practitioners of various interventions. The authors (...) summarize work toward developing a public participation theory and propose a way to conceptualize its skeletal components. The authors recognize that any theory must acknowledge that different people have different beliefs about what public participation should accomplish. Further, contextual variables affect a process’s character and outcomes. The authors begin with a discussion of theory’s importance to scholars, practitioners, and participants and provide an overview of existing approaches. The authors present findings from two empirical case studies used to further develop their theory of fair and competent public participation. They conclude with some observations about challenges and ways forward. (shrink)

While fraught with ambiguities, support for greater public participation in environmental policy making is experiencing a renaissance amongst sections of government and academia, particularly within the field of land-use planning. There is concern within this cohort that the planning system silences public voices through its current mechanisms for community involvement. Proponents of participation often presuppose that more public participation will produce both 'better' decisions and environmental benefits, but to date research has focused on the (...) front-end, or 'processes', of participation rather than the 'products' that result. While procedural aspects of public participation are important it is imperative that critical consideration is also given to what emerges from the participation that is being exalted. This paper addresses this concern by focusing on the products of a public participation exercise conducted in Luton, South-east England in order to consider what it is that 'silence knows'. (shrink)

The 21st Century Cures Act is a major act of legislation that contains numerous changes to drug and device regulation. The House of Representatives passed the Act after considerable interest group lobbying, but the bill and the key changes made during its drafting remain controversial. Using publicly disclosed records of written comments on the bill, we reviewed the key areas of lobbying activity and the compromises made in the final text. We focused on legislative provisions relating to management of the (...) National Institutes of Health, incentives for medical product development, and approval standards for new drugs and devices. By the end of the first comment period, the Committee received 118 comments. Most respondents were patient organizations, professional societies, and pharmaceutical and device companies. Overall, the majority of public comments were positive, although public health and consumer organizations were underrepresented in the number of submitted comments. As the legislative process continued, the draft bill underwent several changes relating to NIH funding, market exclusivity provisions, and scrutiny of regulatory evidentiary standards. Understanding the key statutory provisions and how they have evolved could help patients, researchers, and advocates make more informed comments on the bill and future health care legislation. (shrink)

This article provides an explanation for how increased public participation can paradoxically translate into limited democratic decision-making in urban settings. Recent sociological research shows how governments can control participatory forums to restrict the distribution of resources to poor neighborhoods or to advance private land development interests. Yet such explanations cannot account for the decoupling of participation from democratic decision-making in the case of planning for climate change, which expands the substantive topics and public funding decisions that (...) involve urban residents. Through an in-depth case study of one of the largest coastal protection projects in the world and drawing on global scholarship on participation, this article narrates the social production of resistance to climate change infrastructure by showing how the state sidestepped public input and exercised authority through appeals to the rationality of technical expertise. After a lengthy participation process wherein participants reported satisfaction with how their input was included in designs, city officials switched decision-making styles and used expertise from engineers to render the publicly-supported plan unfeasible, while continuing to involve residents in the process. As a result, conflict arose between activists and public housing representatives, bitterly dividing the neighborhood over who could legitimately claim to represent the interests of the “frontline community.” By documenting the experience of participants in the process before and after the switch in decision-making styles, this article advances a sociological description of public influence in policy: The ability for participants in a planning process to recognize their own input reflected in finished plans. (shrink)

On February 13, 2020, the Toronto Police Services (TPS) issued a statement admitting that its members had used Clearview AI’s controversial facial recognition technology (FRT). The controversy sparked widespread outcry by the media, civil society, and community groups, and put pressure on policy-makers to address FRTs. Public consultations presented a key tool to contain the scandal in Toronto and across Canada. Drawing on media reports, policy documents, and expert interviews, we investigate four consultations held by the Toronto Police Services (...) Board (TPSB), the Office of the Privacy Commissioner (OPC), and the parliamentary Standing Committee on Access to Information, Privacy and Ethics (ETHI) to understand how public opinion and outrage translate into policy. We find that public consultations became a powerful closure mechanism in the policy-making toolbox, inhibiting rather than furthering democratic debate. Our findings show that consultations do not advance public literacy; that opportunities for public input are narrow; that timeframes are short; and that mechanisms for inclusion are limited. Even in the best-case circumstances, consultations are merely one of many factors in AI governance and seldom impact concrete policy outcomes in the cases studied here. (shrink)

After the Fukushima Daiichi nuclear disaster, the Japanese government tried to democratize energy policy-making by introducing public participation. Over the course of its implementation, however, public participation came to be subordinated to expert committees as the primary mechanism of policy rationalization. The expert committees not only neutralized the results of public participation but also discounted the necessity of public participation itself. This trajectory of public participation, from its historic introduction to (...) eventual collapse, can be fully explained only in reference to complex interactions between the macroinstitutions and microsituations of Japanese policy-making at the time of the nuclear disaster: the macroinstitutional reassembling of the developmental state to reallocate more power from the bureaucracy to the cabinet office and the civil society vis-à-vis the microsituational, shifting power dynamics involving political parties, citizens and NGOs, businesses and labor unions, and other relevant actors. This case study thus helps advance the growing science and technology studies research on how the macro and microparameters of policy-making, ranging from the durable institutions of nation-states to situationally specific political struggles, combine to shape the designs, implementations, and policy influences of public participation at particular places and times as well as in particular policy domains. (shrink)

This article argues that the narrative of public participation in environmental governance that emerged from the Earth Summit in 1992 can be read as a direct challenge to the neoliberal approach to environmental governance. The challenge comes from constructing the concept of public participation as (i) the practice of providing decision makers with more and better information in order to help them design more equitable policies, and (ii) the practice of potentially influencing policy decisions by bringing (...) new perspectives and values into the decision-making process. The article shows how this counter-narrative has itself now become a contested terrain: among a variety of normative presuppositions justifying practices of public participation, one can also find a market friendly rationale. (shrink)

Xavier Landes,Martin Andersen,Klemens Kappel.

Xavier Landes,Martin Andersen,Klemens Kappel.

Public participation is a prominent issue in the nanoethics literature. This paper analyses the emerging awareness of nanoscience and nanotechnology (nano S&T) in the Norwegian public sphere, as evidenced by newspaper coverage. In particular, attention is on representations of nano S&T and their relation to public participation. Three dominant representations are found; nano S&T as positive, nano S&T as important for the future and nano S&T as under control. It is argued that the prominence of (...) these representations is unfortunate because they can discourage public participation. The paper concludes by pointing to some broader questions about public participation as an instrument for governance of nano S&T. (shrink)

Citizens can be meaningfully involved in multiple phases of the urban planning process from decision-making to implementation via a dedicated online platform through which they can interact with planners and decision-makers. In historical contexts, local people are essential resources for decision-makers seeking critical local information needed for effective planning and intervention—including what those citizens recall from the past about the area’s social values and the built environment and what they imagine and hope for their neighborhood’s future. This public knowledge, (...) collected through storytelling and mapping, can play a fundamental role in shaping the framework for neighborhood rehabilitation plans. As a foundation for designing an online visual questionnaire to collect local knowledge and understand the views and expectations of local people, this study focuses on theoretical ideas to define a framework for an online visual questionnaire tool. The tool presented provides a common visual language that people can easily understand and use whatever their social class, education, or background. It also has the benefit of enabling citizens and planners to interact directly regardless of their geographical location. To proposing a framework for the online visual questionnaire, the first step was to review some existing visual tools and methods, including analog used for community engagement and digital used in urban planning to encourage and support public participation. Through an analysis of these methods, some important variables and criteria were identified that further our understanding of citizens’ perceptions of their neighborhoods. The next step, as part of a larger study, will be examining a historical public space, including a bazaar, hammam, and cistern—located in the historical context of Yazd— a central city in Iran registered as a cultural heritage site by UNESCO— as a case study with the larger goal of identifying some specific. (shrink)

Forums of public discussion on Internet Web sites have been promoted by some as having the potential to improve democracy through large increases in civic engagement. Such claims are scoffed at by others. To date, such forums tend to be found more on community networks and commercial Web sites than on sites owned by governments. We thus turn to an examination of forums hosted by a private New Jersey organization, to seek to understand the types and character of discussion (...) taking place. Discussion of politics and government, especially at the local level, represented slightly more than one half of the postings. Participation in the forums, however, appeared limited to a small number of people. (shrink)

For observers of pharmaceutical regulation and the Food and Drug Administration, these are uncertain times. Events in late 2016 raised concerns that the FDA's evidentiary standards were being weakened, compromising the agency's ability to adequately perform its regulatory and public health responsibilities. Two developments most directly contributed to these fears—the approval of eteplirsen, a treatment for Duchenne muscular dystrophy, against the recommendations of both FDA staff and an advisory committee and the December 2016 signing of the 21st Century Cures (...) Act, which encouraged greater use by the FDA of “real-world” evidence not obtained through randomized controlled trials. The arrival of the Trump administration—with its deregulatory, industry-friendly approach—has only amplified concerns over the future of the FDA. It is too early to know whether the recent developments are truly harbingers of an FDA less likely to prevent unsafe or ineffective products from reaching the market. But elements in the two events—the role of patient narratives in deliberations regarding eteplirsen and the enthusiasm for real-world evidence in the 21st Century Cures Act—raise critical issues for the future of evidence in the FDA's work. The rigorous, inclusive approach under way to consider issues related to real-world evidence provides a model for a similarly needed inquiry regarding public participation in FDA decision-making. (shrink)

The interactive nature of the Internet is seen by some as a technological innovation that might boost participation in politics and civic affairs. That potential, however, is clouded by imprecise definitions of interactivity found among scholars and practitioners alike. Evaluation of state legislature Web sites found them to not be very interactive under most definitions of the term. Chief technology officers of the legislatures appear to differ as to which site features promote interactivity. The current state of these sites (...) may do more to encourage civic engagement than to promote interactivity. (shrink)

Formalised public participation in project approval procedures is rarely addressed in technology assessment. Empirical data about public participation processes are taken into account even more rarely. This article explores the practice of public participation in infrastructure projects in the Federal Republic of Germany on the basis of empirical data from the period of 1990 to 2010. The author compares the empirical data about participation processes with the targets of the public participation (...) and asks for the reasons for the lack of participation in formalised approval procedures. Furthermore, the author contrasts participation formats used in technology assessment with formalised public participation. In his conclusions, he advocates for a stronger combination of formalised and informal public participation in technology assessment. (shrink)

Economist-philosopher Amartya Sen's writings on social and political issues have attracted wide audiences. Section 2 introduces his contributions on: how people reason as agents within society; social determinants of people's (lack of) access to goods and of the effective freedoms and agency they enjoy or lack; and associated advocacy of self-specification of identity and high expectations for ‘voice’ and reasoning democracy. Section 3 considers his relation to social theory, his tools for theorizing action in society, and his limited degree of (...) attention to work by sociologists and to capitalism and power structures. Section 4 characterizes a style marked by conceptual refinement, emphases on complexity and individuality, including personal individuality, and reformist optimism. Section 5 shows the features from Sections 3 and 4 at work in his conception of personhood that advocates freedom to make a reasoned composition of personal identity. Similarly, Section 6 addresses his conception of public reasoning and neglect of the sociology of democracy. It contrasts the ideal of a reasoning polity with features in many countries. Sen's programmes for critical autonomy in personhood and for reasoned politics play, nevertheless, a normic role, while his analytical formats help investigation of obstacles to more widespread agency, voice, and democratic participation. (shrink)

Universal health coverage is often implemented within countries through several national insurance schemes that collectively cover their populations. Yet the extent of services and benefits available can vary substantially between different schemes. This paper argues that these variations in coverage comprise tiering and then reviews different accounts of health and social justice that consider whether and when a tiered health system is fair. Using these accounts, it shows that the fairness of tiering can be determined by assessing whether differences in (...) coverage mean enrolees under some national insurance schemes do not achieve sufficient health or normal functioning and/or feel inferior relative to those belonging to other national insurance schemes. The paper further contends that these determinations of fairness should involve the people covered by different insurance schemes. Key universal health coverage questions to involve the public in answering are: Do the sum of differences between the schemes in your country generate feelings of unequal moral worth and/or mean enrolees struggle to achieve sufficient health or normal functioning? Which specific differences between health insurance schemes generate the greatest feelings of unequal moral worth in individuals? Which specific differences generate the greatest barriers to individuals achieving sufficient health or normal functioning? Rather than identifying which services to extend coverage to first, answering these questions will identify which disparities in services and benefits are the most morally urgent to address. Finally, some initial thoughts are offered on who from the public should be involved in making these decisions and how they might be involved as a matter of justice. (shrink)

Andreas Christiansen,Karin Jonch-Clausen,Klemens Kappel | : Many instances of new and emerging science and technology are controversial. Although a number of people, including scientific experts, welcome these developments, a considerable skepticism exists among members of the public. The use of genetically modified organisms is a case in point. In science policy and in science communication, it is widely assumed that such controversial science and technology require public participation in the policy-making process. We examine this view, which we (...) call the Public Participation Paradigm, using the case of GMOs as an example. We suggest that a prominent reason behind the call for public participation is the belief that such participation is required for democratic legitimacy. We then show that the most prominent accounts of democratic legitimacy do not, in fact, entail that public participation is required in cases of controversial science in general, or in the case of GMOs in particular. | : Beaucoup d’avancées scientifiques et de technologies émergentes sont controversées. Bien qu’un certain nombre de personnes, incluant des experts scientifiques, sont favorables à ces développements, la population demeure largement sceptique. Le recours aux organismes génétiquement modifiés illustre une telle situation. Dans les politiques et communications scientifiques, il est largement tenu pour acquis que de telles controverses scientifiques et technologiques requièrent la participation publique dans le processus de prise de décision politique. Nous examinons ce point de vue, que nous appelons le paradigme de la participation publique [Public Participation Paradigm], en nous servant du cas des OGM. Nous suggérons qu’une raison centrale en faveur de l’appel à la participation publique se situe dans la croyance qu’une telle participation est requise par la légitimité démocratique. Nous montrons ensuite que la plupart des principales conceptions de la légitimité démocratique n’impliquent pas, en fait, que la participation publique puisse être requise pour les controverses scientifiques en général, et pour les OGM en particulier. (shrink)

This article argues that the quantitative and quasi-experimental approach to evaluating public participation exercises is deficient in at least two respects. First, casting participants in instrumental terms excludes that participants have an experience and that this may be dramatic and emotional. If people are to be invited, even obliged, to participate, then this experience should be considered in event evaluation. Second, current evaluation frameworks tend not to be sensitive to what actually happened in terms of the actions of (...) participants and how these influenced the proceedings and outcome, thus ignoring that such events are fora where positions, values, decisions, and so forth are constructed and constrained rather than simply reported. This article considers the possible contribution of dramaturgical, discourse and conversation analytic, and ethnographic and phenomenological approaches to evaluating participation exercises and illustrates their potential with data gathered during the U.K. “GM Nation?” public debate. (shrink)

In this article, the author, after describing the technocratic nature of the current science policy process, presents five arguments for changing it into a more participatory one. All five arguments draw on different sectors of the STS endeavor—both high and low church—to show why increased public involvement would benefit science. The first argues that the degree of potential harm from science-based technology demands greater accountability. The second draws on the adage that the buyer should have some say on the (...) product. The third uses the social constructed nature of science. The fourth builds on feminist and marxist arguments. Finally, the last uses Kant to claim that all people matter. The author ends by providing a quick view describing the appearance of a more participa-tory process. The key is not the final process but the process of working together to reach it. (shrink)

The book considers the relationship between governance and participation, and the ways participation has been understood, framed and applied in the context of synthetic biology (SB) governance approaches. Based on fundamental questions about the scope, purpose, and responsibilities assigned to public participation activities, the authors conducted an literature review of policy reports and articles on SB governance. The authors identify key characteristics of synthetic biology, such as the complex interplay of research, engineering and IT expertise in (...) the field, as well as the challenges these characteristics pose in designing governance frameworks. Drawing on insights from a literature review, the authors contest calls for “earlier” and “more” participation on the basis that such calls fail to consider the necessary structural adjustments and resources needed for such endeavors. The brief addresses ethical questions arising in synthetic biology that could be used for developing frameworks of governance in the ongoing COVID-19 crisis and the consequent innovations in vaccine research. (shrink)

Engaging the public in decision-making processes is commonly accepted as an effective strategy for a better policy making, a better policy support and for narrowing the gap between government and the public. In today’s digitised society, participation via online media is becoming more important. But is this so-called e-participation being used optimally? Or is a better design possible? In my opinion, the answer to these questions is a ‘yes’. Despite numerous efforts in engaging the public (...) with policy deliberation, the actual amount of participants remains low. In this article, I have used the YUTPA model (Nevejan 2009 ) to analyse some existing e-participation projects. Additionally, I derived ten characteristics of ‘play’ to make proposals for a more designerly e-participation approach. (shrink)