Elisabeth Kübler-Ross’ seminal 1969 work, On Death and Dying, opened the door to understanding individuals’ emotional experiences with serious illness and dying. Patient’s emotions, however, are on...

The problem of theorizing privacy moves on two levels, the first consisting of an inadequate conceptual vocabulary and the second consisting of an inadequate institutional grammar. Privacy rights are supposed to protect individual subjects, and so conventional ways of understanding privacy are subject-centered, but subject-centered approaches to theorizing privacy also wrestle with deeply embedded contradictions. And privacy’s most enduring institutional failure modes flow from its insistence on placing the individual and individualized control at the center. Strategies for rescuing privacy from (...) irrelevance involve inverting both established ways of talking about privacy rights and established conventions for designing institutions to protect them. In terms of theory, turning privacy inside out entails focusing on the conditions that are needed to produce sufficiently private and privacy-valuing subjects. Institutionally, turning privacy inside out entails focusing on the design, production, and operational practices most likely to instantiate and preserve those conditions. (shrink)

Within the political economy of informational capitalism, commercial surveillance practices are tools for resource extraction. That process requires an enabling legal construct, which this essay identifies and explores. Contemporary practices of personal information processing constitute a new type of public domain—a repository of raw materials that are there for the taking and that are framed as inputs to particular types of productive activity. As a legal construct, the biopolitical public domain shapes practices of appropriation and use of personal information in (...) two complementary and interrelated ways. First, it constitutes personal information as available and potentially valuable: as a pool of materials that may be freely appropriated as inputs to economic production. That framing supports the reorganization of sociotechnical activity in ways directed toward extraction and appropriation. Second, the biopolitical public domain constitutes the personal information harvested within networked information environments as raw. That framing creates the backdrop for culturally situated techniques of knowledge production and for the logic that designates those techniques as sites of legal privilege. (shrink)

Professional directives are unwavering: educational intimate exams should only ever occur with patients’ explicit consent. This article describes the current clinical, educational, and ethical landscape of educational pelvic examinations under anesthesia, underscores the imperative that these exams only ever occur with patients’ explicit consent, and offers accessible modifications to students’ involvement in these exams.

There is a long history of women being underrepresented in biomedical and health research. Specific women’s health needs have been, and in some cases still are, comparatively neglected areas of study. Concerns about the health and social impacts of such bias and exclusion have resulted in inclusion policies from governments, research funders, and the scientific establishment since the 1990s. Contemporary understandings of foregrounding sex and gender issues within biomedical research range from women’s rights to inclusion, to links between human rights, (...) women’s health and sustainable development, and the increasing scientific and funding expectation for studies to consider the sex and gender implications of research design, results and impact. However, there are also exploitation issues to consider when foregrounding the inclusion of women as research participants, especially for research ethics committees and institutional review boards. A hidden risk is that exploitative research designs and practices may be missed, particularly by reviewers who may not have a nuanced understanding of gender-based harm. Utilizing contemporary case studies of ethics dumping, this paper highlights some of the concerns, and makes recommendations for IRBs/research ethics reviewers to help ensure that essential research is undertaken to the highest ethical standards. (shrink)

This Article examines the regulatory state through the lens of evolving political economy, arguing that a significant reconstruction is now underway. The ongoing shift from an industrial mode of development to an informational one has created existential challenges for regulatory models and constructs developed in the context of the industrial economy. Contemporary contests over the substance of regulatory mandates and the shape of regulatory institutions are most usefully understood as moves within a larger struggle to chart a new direction for (...) the regulatory state in the era of informational capitalism. A regulatory state optimized for the information economy must develop rubrics for responding to three problems that have confounded existing regulatory regimes: platform power — the power to link facially separate markets and/or to constrain participation in markets by using technical protocols; infoglut — unmanageably voluminous, mediated information flows that create information overload; and systemic threat — nascent, probabilistically-defined harm to be realized at some point in the future. Additionally, it must develop institutions capable of exercising effective oversight of informationera activities. The information-era regulatory models that have begun to emerge are procedurally informal, mediated by networks of professional and technical expertise that define relevant standards, and financialized. Such models, however, also have tended to be both opaque to external observation and highly prone to capture. New institutional forms that might ensure their legal and political accountability have been slow to develop. (shrink)

Achieving equity in international research is one of the pressing concerns of the twenty-first century. In this era of progressive globalization, there are many opportunities for the deliberate or accidental export of unethical research practices from high-income regions to low- and middle-income countries and emerging economies. The export of unethical practices, termed “ethics dumping,” may occur through all forms of research and can affect individuals, communities, countries, animals, and the environment. Ethics dumping may be the result of purposeful exploitation but (...) often arises from lack of awareness of good ethical and governance practice. This chapter describes the work of the TRUST project toward counteracting the practice of ethics dumping through the development of tools for the improvement of research governance structures. Multi-stakeholder consultation informs all of TRUST’s developments. Most importantly, this gives voice to marginalized vulnerable groups and indigenous people, who have been equal and active partners throughout the project. At the heart of the TRUST project is an ambitious aim to develop a Global Code of Conduct for Research in Resource-Poor Settings. Uniquely, the Code provides guidance across all research disciplines in clear, short statements, focusing on research collaborations that entail considerable imbalances of power, resources and knowledge and using a new framework based on the values of fairness, respect, care, and honesty. The code was recently adopted by the European Commission as a reference document for Horizon 2020 and Horizon Europe. (shrink)

Axel Honneth distinguishes between recognitive practices according to the social domain in which they occur and this allows him to theorise the relationship between power and recognition. 'Love-based recognition', which suggests the centrality of recognition to the relationships that nurture us in the first instance, is located in the family. Honneth argues that relationships encompassed by this category are pre-political, thereby repeating the distinction between the public and the private common to much political theory. This article explores the structure of (...) this delineation in his thinking. I argue that Honneth's analysis marginalises feminist concerns with how power functions through recognition in the private sphere. Honneth also robs himself of a rejoinder to recognition sceptics, who suggest that the desire for recognition is a condition of subordination. The article argues for an alternative approach to the analysis of 'love' within recognitive theory. © 2010 Macmillan Publishers Ltd. (shrink)

Since the mid-1970s, some artists have portrayed Jesus Christ in female form. The depiction of a female Christ crucified is a particularly controversial representation that challenges theological orthodoxies and upsets the gender symbolism ingrained upon the Christian cross. The controversy and ecclesiastical censure that such works often provoke indicates the emotive power of gender subversion. This study provides a detailed account of five images of the female-Christ form in art, considers their function as theological symbols, and assesses their contribution to (...) feminist theology. It will be suggested that the Christa offers a subversive feminist strategy of representation. And—while such representations do not remove the unanswered theological difficulties associated with divine suffering, the problem of evil and the mystery of salvation—the graphic portrayal of female suffering powerfully exposes the reality of the cross as a site of patriarchal violence. (shrink)

This paper explores the development of Honneth’s thought on work. It considers how his initial concerns with the embodied experience of labour and the absence of a contemporary and compelling class-specific lexicon with which to explore suffering at work have been surpassed and subordinated by his analysis of the social relations of recognition in civil society, which is distributed according to a contested and contestable achievement principle. I argue that despite the purchase of the criticisms offered by recent rejoinders, they (...) fail to engage with the strength of his analysis: that modern economics contains a normative (recognition) order which works to justify the extant division of labour and income, even if its current formulation supports inequity, exclusion and exploitation. Feminist political economy is an ally in this analysis. The paper explores the points of intersection between these projects, but argues that incorporating feminist insights will require a fundamental revision to Honneth’s account of social rationalization in modernity. (shrink)

As the prospects for a negotiated two-state solution to the Israeli–Palestinian conflict have dwindled, Jewish scholars in the United States have increasingly invoked the concept of diaspora to counter a purported Jewish consensus regarding Zionism. In this essay, I critique prominent exponents of this approach from a diasporic standpoint. My concern is not that Butler and the Boyarins attack Israel publicly, endorse a binational solution to the Israeli–Palestinian conflict, and/or support the movement for Boycott, Divestment, and Sanctions—rather, it is that (...) they lack a compelling vision for diasporic politics. Their visions prove wanting because they contest Zionism on the terrain of Jewish identity. To loosen Zionism’s hold, Butler and the Boyarins recover alternative approaches to the attainment or grounding of Jewish identity. Yet when framed as an ethic of particular identity, diasporic thinking can neither rebut Zionism’s political arguments, nor can it develop alternative models of Jewish self-rule. Instead of theorizing Jewish identity, I argue, diasporic thinkers should envision Jewish political solidarity beyond the confines of the nation-state. (shrink)

There is general agreement among ecofeminists regarding the desirability of a variety of expressions of ecofeminism, but this pluralism is under threat with the emergence of an approach that emphasizes the primacy of a philosophical ecofeminism which claims the authority to prescribe what ecofeminism should be. The recent anthology Ecological Feminism is symptomatic of this trend, with contributors who affirm the philosophical significance of ecological feminism by privileging philosophers’ voices over those of other ecofeminists, rather than by engaging in critical (...) dialogue with, and exploring connections between, different ecofeminist discourses. This colonizing strategy actively excludes many women’s voices from the creation of an environmental ethic, including those of activist, spiritual, and “Third World” ecofeminists, but fails to offer any adequate philosophical grounds for doing so. (shrink)

This article proposes that the French performance artist Orlan, has, by undertaking a series of surgical interventions on her face and body, radically challenged current standards of beauty. By engaging with Judeo-Christian iconography, Greek mythology and French literature in her operations/performances, she has established an oeuvre that aligns her not only with corporeality and the abject body through images of the sacrificial, but also with aberrant body forms associated with the carnival. Although seduced by the rhetoric that surrounds the body (...) in technology, she has turned to excess as a strategy against the benign and controlled nature of the screen, and the media's homogenization of body images. Her new identity, although not extreme, is a site of resistance in a society bent on eliminating forms that threaten the status quo. (shrink)

The Supreme Court’s Dobbs v. Jackson Women’s Health Organization decision, first leaked to the public on 2 May 2022 and officially released on 24 June 2022, overturned Roe v. Wade and thereby determined that abortion is no longer a federally protected right under the Constitution. Instead, the decision gives individual states the right to regulate abortion. Since the Dobbs decision first leaked, our institution has received numerous requests for permanent contraception from individuals stating that their motivation to pursue permanent contraception (...) was influenced by the Dobbs decision and concerns about their reproductive autonomy. Discussions with patients seeking permanent contraception since the Supreme Court’s leaked decision have led us to ask ourselves, is legislative anxiety an indication for surgery? This article presents a case series consisting of a convenience sample of 17 young, nulliparous individuals who sought out permanent contraception in the six months following the leak of the Dobbs decision. Healthcare professionals often feel discomfort in offering permanent contraception to young and nulliparous individuals. Accordingly, we discuss pertinent legal issues, review relevant ethical considerations, and offer a framework for these discussions intended to empower the consulting healthcare professional to center the bodily autonomy of every patient regardless of age, parity, or indication for permanent contraception. (shrink)

In civil libertarian discourse, the inverse relationship between government secrecy and privacy is well recognized and widely acknowledged - so widely, in fact, that it can come to seem as though we might regain sufficient privacy simply by cabining official secrecy. But regimes of secrecy that insulate private-sector data processing practices also contribute materially to the decline of privacy, and indeed play a vital role in facilitating government efforts to make citizens' lives transparent. In addition, there is an inverse relationship (...) between openness and privacy that we are inclined to resist discussing. When, for example, a government agency posts on its website documents containing private information about individual citizens, or when a social networking service establishes default rules for transmitting information from member pages to commercial partners, openness contributes materially to the exposure that people experience. Our public discourse about information policy reinforces the devaluation of privacy in two opposite but mutually-reinforcing ways, by valorizing political economies organized around secrecy and by elevating openness as an ultimate good. The shelter that privacy affords for self-development is essential to a healthy democracy. It is therefore important to interrogate both our regimes of secrecy and our discourses about openness. (shrink)

In recent years, scholars of Jewish politics have invested political hopes in the revival of “political imagination.” If only we could recapture some of the imaginativeness that early Zionists displayed when wrestling with questions of regime design, it is argued, we might be able to advance more compelling “solutions” to the Israeli-Palestinian conflict. Yet how does one cultivate political imagination? Curiously, scholars who rehearse the catalogue of regimes that Jews have historically entertained seldom pose this question. In this Article, I (...) revisit a historical episode—the appropriation of diasporic historical narratives by Zionists in mandatory Palestine—in an effort to cultivate a richer political imaginary. I analyze the labor Zionist deployment of Simon Dubnow’s influential master narrative, focusing on a 1926 speech in which David Ben Gurion depicts the autonomist regime that he advocates as a variation upon diasporic political practices. On my reading, this episode illustrates the dilemmas that confront thinkers who invest political hopes in regime design. To realize the promise that new political configurations may emerge from reflections upon Jewish history, I argue, we must develop a new account of political agency, once foundational assumptions of the nation-state have been suspended. (shrink)

If politics is about the state, can a stateless people be political? The field of Jewish political thought examines how Jewish individuals and communal organizations have behaved politically both within and beyond statehood. The study of Jewish political thought promises to expand received conceptions of what counts as "political.".

El presente trabajo se propone estudiar las modalidades del aparecer de una imagen en el seno de una ficción, jugando sobre categorías tales como la substitución, la analogía, la permanencia o incluso la ausencia de lugar. Apoyándonos en la novela del escritor japonés Kawabata, titulada en su versión francesa Nuée d’oiseaux blancs (Nube de pájaras blancos), trataremos de mostrar cómo el deseo se encarna en determinadas huellas depositadas sobre objetos, y cómo la mirada del personaje masculino queda prendida en ellas (...) al extremo de perderse por entero en aquellas. (shrink)

In this article I consider instances in visual culture in which artists and filmmakers aestheticize women with damaged, missing or anomalous limbs. I focus upon Joel Peter Witkin’s photomontage Las Meninas (1987), Peter Greenaway’s film “A Zed and Two Noughts” (1985), Alison Lapper Pregnant a statue by Marc Quinn, Mathew Barney’s film “Cremaster” (2002), David Cronenberg’s “Crash” (1996), Luis Buñuel’s “Tristana” (1970) and David Lynch’s short film “The Amputee” (1973). I argue that although the artists and filmmakers reveal, rather than (...) disguise the damaged, anomalous or missing limb(s) of the women, thus valorising their particular embodiment, these women are paradoxically still portrayed as deviant and monstrous. (shrink)

This paper argues for the inclusion of a fourth order of recognition, pertaining to self-recognition, in Axel Honneth's critical theory of social recognition. I argue for the significance of this on the basis of examining the critical potential of the social psychology he has developed across his career as it pertains to autonomy, authenticity and agency. However, incorporating a fourth order of recognition into Honneth's internally differentiated account of recognition will not be easy given the architecture of his theory. To (...) remain consistent with Honneth's delineation between love, rights and solidarity, a fourth order of recognition would need to be capable of generating a practical relation to self and a normative attitude; it would require an institutional locale in which it could be articulated through social practices that admit conflict and thereby the possibility for further extension and/or reconstitution. Self-recognition fulfils three of these four criteria: it may lack for a specific institu.. (shrink)

The concept of recognition, and its relationship to the way we theorise identity and justice, has emerged as part of an important debate in contemporary political and social theory. With contributions from Nancy Fraser and international commentators, this new collection examines key theoretical and practical problems of 'recognition' in politics. Beyond important normative issues in social theory, such as how cultural claims to difference may be justly accommodated in liberal polities, it addresses a range of practical problems in which a (...) politics of recognition approach casts new light on old conflicts and tensions, examining these problems within the context of processes of globalisation and increasing cultural diversity. Organised into three sections, Recognition in Politics: Theory, Policy and Practice analyses new theoretical directions, the challenges of managing multicultural societies, and social policy case studies. Featuring a recent paper by Professor Nancy Fraser based on her 2004 Spinoza Lecture, this collection examines core issues in contemporary debates over recognition, extending these debates in new and significant ways. The contributors extend the literature on recognition by applying the theory to practical, contemporary political problems. These papers reveal the capacity of the recognition paradigm to generate new insights into political problems, but also the limitations of the concept's theoretical purview. Together, these commentaries offer an invaluable road map to the most recent scholarship on recognition. (shrink)

Across three decades in both Britain and the United States, surveys indicate that women must work harder than men do. Using data from the 1997 Skills Survey of the Employed British Workforce and the 1997 National Study of the Changing Workforce, the authors investigate two possible explanations for this gap in reports of required effort: gender differences in job characteristics and family responsibilities. In multivariate ordered logistic regressions, extensive measures of job characteristics do not explain the difference between women and (...) men. Family obligations, as well, account for little or none of the gap. The authors argue that the association between gender and reported required work effort is best interpreted as reflecting stricter performance standards imposed on women, even when women and men hold the same jobs. The authors discuss alternative interpretations and implications for research. (shrink)

Life is so wretched that it would be impossible to endure were it not for the luminous beams of illusion that guide us through its darkest moments. Many argue, perhaps not to this degree, that were it not for some modest illusions about the world and ourselves we would experience a serious decline in quality of life. On those not-so-good days, this claim strikes me as irresistible. How would I endure life and maintain my sanity if I had to embrace (...) each and every disgusting and disheartening fact about the world? Perceiving the world in a way that is neither clear-eyed nor complete may not be without its advantages. But even if being mistaken about the world or self-deceived causes one to be healthier or more comfortable, it is worth asking whether there is something to be said against a life of this kind. Might there not be some knowledge about ourselves or the world that we ought to have? Do not these ‘positive illusions,’ or flattering but inaccurate beliefs that people have about themselves and the world, interfere with their ability to live the good life? In the first part of this paper, I will briefly review the psychological literature which suggests that mild self-deception in the positive direction contributes to, rather than compromises, a person’s well-being. I will then, in the second part of the paper, examine what three thinkers, Joseph Butler, Immanuel Kant, and W.K. Clifford, have said about the wrongfulness of self-deception. While their arguments call attention to various reasons for thinking that some cases of self-deception might give rise on balance to negative consequences, they fail to show that all cases must have this effect. In the final part of the paper, I will consider whether our interest in autonomy might provide us with a better explanation of the supposed wrongfulness of self-deception. I will try to show that in virtue of being mistaken alone, the self-deceiver generally experiences some loss of a particular kind of autonomy. Nevertheless, my analysis will leave open the following two possibilities: that the loss of autonomy was autonomously brought about, and that the loss of autonomy in question may result on balance in an increase in the self-deceiver’s autonomy. (shrink)

Photographers John Shimon and Julie Lindemann use antique cameras, modern lens technology, artificial light, and contemporary pop culture to create portraits of the people in their native state amidst backyards, living rooms, parking lots, and the landscape of Wisconsin. These recent photographs are juxtaposed with portraits from the Milwaukee Art Museum’s permanent collections, including daguerreotype portraits, ambrotypes, and tintypes of anonymous people taken by nineteenth-century photographers, as well with photographs by such well-known artists as Alfred Stieglitz, Sally Mann, Larry (...) Clark, Walker Evans, Nan Goldin, Eugene von Beuenchenhein, and Francis Ford. The pairings of new and old illustrate the legacy of portraiture and the significance of “posing” before the lens, and each image is enriched by its proximity to another, unmasking sitter, photographer, and viewer. Unmasked & Anonymous: Shimon & Lindemann Consider Portraiture includes more than sixty color and black-and-white photographs plus essays by Shimon, Lindemann, and Milwaukee Art Museum curator Lisa Hostetler. (shrink)

Autobiographical memory is intimately linked to the self. However, the relation between the self and involuntary recall has been understudied. Theoretically, the more relevant an event is to the self the more accessible the memory should be. In line with this prediction, the present study tested the hypothesis that self-relevance of a stressor modulates involuntary recall. Healthy student participants viewed distressing film clips and were presented with information that defined the main characters as more or less similar to them, or (...) without any information about the characters. In line with predictions, participants in the high self-relevance condition reported more involuntary memories of the film clips after one week compared to participants in the low self-relevance and control conditions. The findings support the theoretical relation between the self and memory accessibility and extend findings from previous research to the domain of involuntary recall. (shrink)

In Morality and Global Justice, Michael Boylan presents us with a set of solutions to some of the world’s most pressing moral issues. Boylan claims that his solutions are not utopian; instead, they are practical, workable policy recommendations that governments and other organizations should adopt. For the most part, Boylan is correct; there are no obviously insurmountable obstacles to implementing many of his recommendations. But, as he himself admits, his position on immigrants and refugees borders on the utopian (Boylan 2011, (...) 204). In what follows, I will discuss two concerns that I have about his position. The first concern (1) is consequentialist: I fear that implementing a policy of open borders may lead to economic, environmental, and political consequences that are on balance undesirable. The second (2) is practical: even if American citizens have moral reasons for supporting a policy of open borders, they may have reasons of self-interest for rejecting it. If this is correct, then Boylan may have a difficult time garnering the support necessary to make the policy a reality. (shrink)

Is it possible to develop a personal narrative that is not fictitious or self-deceptive? In this essay, I will look at the way that personal narratives contribute to self-deception. In so doing, I will consider the narrative that the narrator or pastor of André Gide’s Pastoral Symphonie develops while reflecting upon his romantic relationship with his blind adopted “daughter”, Gertrude. Although the pastor’s narrative is largely self-deceptive, we need not fear that all narratives are equally delusional. When a narrative is (...) not self-deceptive, it can make a positive contribution to self-knowledge and moral understanding. (shrink)