BackgroundPersonal health information and biospecimens are valuable research resources essential for the advancement of medicine and protected by national standards and provincial statutes. Research ethics and privacy standards attempt to balance individual interests with societal interests. However these standards may not reflect public opinion or preferences. The purpose of this study was to assess the opinions and preferences of patients with kidney disease about the use of their health information and biospecimens for medical research.MethodsA 45-item survey was distributed to a (...) convenience sample of patients at an outpatient clinic in a large urban centre. The survey briefly addressed sociodemographic and illness characteristics. Opinions were sought on the research use of health information and biospecimens including consent preferences.ResultsTwo hundred eleven of 400 distributed surveys were completed. Respondents were generally supportive of medical research and trusting of researchers. Many respondents supported the use of their information and biospecimens for health research and also preferred consent be sought for use of health information and biospecimens. Some supported the use of their information and biospecimens for research without consent. There were significant differences in the opinions people offered regarding the research use of biospecimens compared to health information. Some respondent perspectives about consent were at odds with current regulatory and legal standards.ConclusionsClinical health data and biospecimens are valuable research resources, critical to the advancement of medicine. Use of these data for research requires balancing respect for individual autonomy, privacy and the societal interest in the greater good. Incongruence between some respondent perspectives and the regulatory standards suggest both a need for public education and review of legislation to increase understanding and ensure the public’s trust is maintained. (shrink)

BackgroundResearch Ethics Boards, or Institutional Review Boards, protect the safety and welfare of human research participants. These bodies are responsible for providing an independent evaluation of proposed research studies, ultimately ensuring that the research does not proceed unless standards and regulations are met.Main bodyConcurrent with the growing volume of human participant research, the workload and responsibilities of Research Ethics Boards (REBs) have continued to increase. Dissatisfaction with the review process, particularly the time interval from submission to decision, is common within (...) the research community, but there has been little systematic effort to examine REB processes that may contribute to inefficiencies. We offer a model illustrating REB workflow, stakeholders, and accountabilities.ConclusionBetter understanding of the components of the research ethics review will allow performance targets to be set, problems identified, and solutions developed, ultimately improving the process. (shrink)

Ethics review of research involving humans has become something of an institution in recent years. It is intended to protect participants from harm and, to that end, follows rigorous standards. Giv...

Background: Compassion fatigue is recognized as impacting the health and effectiveness of healthcare providers, and consequently, patient care. Compassion fatigue is distinct from “burnout.” Reliable measurement tools, such as the Professional Quality of Life scale, have been developed to measure the prevalence, and predict risk of compassion fatigue. This study reviews the prevalence of compassion fatigue among healthcare practitioners, and relationships to demographic variables. Methods: A systematic review was conducted using key words in MEDLINE, PubMed, and Ovid databases. Data were (...) extracted from a total of 71 articles meeting inclusion criteria, from studies measuring compassion fatigue in healthcare providers using a validated instrument. Quantitative and qualitative data were extracted and compiled by three independent reviewers into an evidence table that included basic study characteristics, study strength and quality determination, measurements of compassion fatigue, and general findings. Meta-analysis, where data allowed, was stratified by Professional Quality of Life version, heterogeneity was quantified, and pooled means were reported with 95% confidence interval. A table of major study characteristics and results was created. Ethical consideration: This paper contains no primary data obtained directly from research participants. Data obtained from previously published resources have been acknowledged within references. Psychological distress, particularly compassion fatigue, can be insidious, no health profession is immune, and may significantly impact the ability to provide care. Results: A total of 71 studies were included. Compassion fatigue was reported across all practitioner groups studied. Relationships to most demographic variables such as years of experience and specialty were either not statistically significant or unclear. Variability in reporting of Professional Quality of Life results was found. Interpretation: Compassion fatigue exists across diverse practitioner groups. Prevalence is highly variable, and its relationship with demographic, personal, and/or professional variables is inconsistent. Questions are raised about how to mitigate compassion fatigue. (shrink)

In lieu of an abstract, here is a brief excerpt of the content:Reviewed by:Aquinas on Faith, Reason, and Charity by Roberto Di CeglieGregory StaceyDI CEGLIE, Roberto. Aquinas on Faith, Reason, and Charity. New York: Routledge, 2022. x + 196 pp. Cloth, $160.00Suppose one wishes to argue that Christian faith (that is, supernatural belief in propositions insofar as they are divinely revealed) is compatible with the proper exercise of reason (that is, forming beliefs through natural cognitive processes). Two strategies suggest themselves. (...) First, one could argue that faith is itself a natural cognitive process or else meets criteria by which natural beliefs are considered rational or appropriate. Alternatively, one might contend that faith can meet its own, independent criteria for rationality or propriety. Thomas Aquinas, whose natural theology and discussion of public evidence that God has revealed himself in Christ are famously robust, may appear to be an exponent of the former strategy. Yet in this volume, Roberto Di Ceglie advances a reading of Thomas that illustrates how faith can support rational enquiry, while remaining independent of it. On this view, faith is "caused mainly by God" and is therefore "at least partly unresponsive to rational criteria."Part 1 begins Di Ceglie's case obliquely, by criticizing both efforts to argue (following Gilson and Maritain) that philosophy can be influenced by Christian faith and recent attempts to explain Aquinas's account of faith and reason. Reviewing the work of commentators including Anthony Kenny, Richard Swinburne, and Eleonore Stump, the author objects that many philosophers hold that for Thomas, faith is primarily a form of propositional belief that should be evaluated for propriety in the same way as natural beliefs. He alleges that this understanding of faith is inherited from Locke, who endorsed "methodological naturalism": the view that appropriate "religious belief can only be taken as the outcome, if any, of a rational exploration of our experience." While this material usefully outlines views which Di Ceglie means to oppose, readers unfamiliar with scholarship on Aquinas and Locke may find these initial chapters difficult to follow.The argument becomes easier to follow in part 2, which provides Di Ceglie's own interpretation of Aquinas. The key third chapter explores Aquinas's definition of faith as "an act of the intellect assenting to the Divine Truth at the command of the will moved by the grace of God" (ST II-II, q. 2, a. 9). It demonstrates that while for Aquinas faith involves firm propositional belief, its certitude derives not from believers' assessment of signs that God has revealed the articles of faith but from their free choice—itself a gift of grace—to embrace those articles. More precisely, in cases of "formed" faith, this choice is motivated by supernatural love for God (charity). Charity's role in Aquinas's religious epistemology is [End Page 547] highlighted in two subsequent chapters. Inter alia, Di Ceglie charges that faith is meritorious principally due to its grounds in charity rather than because the articles of faith are not evidently true. He further claims that Aquinas understood "unformed" faith as merely "faith commonly so called"—that is, natural belief in propositions because one judges that they are testified to by a competent authority. Accordingly, unformed faith lacks perfect confidence because it is merely based on probabilistic evidence that God has revealed the articles of faith, rather than on a strong, loving will to trust God. More generally, the certitude of one's faith is proportionate to the perfection of one's charity.Having developed a reading of Aquinas's religious epistemology that stresses the distinction between faith and reason, in part 3 Di Ceglie considers their positive relationship. First, he attempts to reconcile the apparently opposing views that Aquinas's philosophy is purely an exercise of natural reason, and that his philosophical work was influenced by his Christian faith. Broadly, the charity that grounds formed faith also inspires and enhances rational investigation, although philosophical arguments cannot presume faith's truth. Believers with formed faith, however, should reject positions that contradict faith and seek to revise their philosophical reasoning accordingly. The final chapter argues that Christian faith affords a better position from which to engage in rational reflection than atheism or agnosticism. Among other advantages, faith... (shrink)

In lieu of an abstract, here is a brief excerpt of the content:Philosophy and Rhetoric 36.4 (2003) 330-352 [Access article in PDF] Liberal Irony, Rhetoric, and Feminist Thought: A Unifying Third Wave Feminist Theory Valerie R. Renegar School of Communication San Diego State University Stacey K. Sowards Department of Communication Studies California State University, San Bernardino The meanings of a feminist movement and feminism have changed significantly over the past hundred years. From the women's suffrage movement, to the Supreme (...) Court decision in Roe v. Wade, to the 1980s label "feminazi," feminist theories and movements have emphasized many different issues for a variety of reasons. In part, it is these differences that make identification with feminist principles and practices so difficult. As part of the new generation of feminists, we are often left wondering if we are good enough as feminists, if we do enough as activists, and what it is that we really stand for. Many of us have grown up with the benefits and the victories of the feminists in the second wave and feel a responsibility to continue to seek the end of oppression. However, our experiences as feminists and young women often leave us feeling angry, hopeless, and confused as to where we are supposed to go, how we are supposed to get there, and what battles we are supposed to wage as part of a feminist movement. Resolving these tensions and questions will allow us to better understand and articulate what it is that we want and need in a feminist theory. Recent and ongoing division within and among feminist movements and theories, lack of consensus, in-group fighting, and a focus on singular women's theories and issues have created problems and a lack of solidarity that is counterproductive to feminism as a whole."Third wave feminism" is a term used to describe feminists who were born in the 1960s and 1970s. Although not universally recognized as a discrete wave of feminism, the third wave is increasingly distinguishing itself in both popular culture and academic writing. 1 We believe that third wave feminism is an emerging movement that currently lacks an overarching or coherent philosophy of praxis. While this type of unifying philosophy is not necessarily required by a movement, we believe that the presence of such a theory, in the instance of third wave feminism, would be highly [End Page 330] beneficial since it could provide direction and explain the motives of young feminists who are still in the process of developing and defining their feminist beliefs and actions. Often the philosophy of a movement is not apparent until the movement is well established or has accomplished its goals. Third wave feminists, however, are in a unique position to simultaneously create and embrace a coherent philosophy while developing their feminist ideas and practices. In this essay, we argue that Richard Rorty's notion of liberal irony, as interpreted by third wave feminist experience, is a coherent philosophy of thought and action that will center the emerging feminist movement and allow it to prosper.For us, a rhetorical theory constructed from Rorty's liberal irony and pragmatism, together with various third wave feminist theories, provides the sort of solution that addresses many of our concerns about the direction of feminist theory. Rorty's philosophy of liberal ironism is compelling but has received scant attention from feminist or rhetorical theorists. A few feminist philosophers have examined a pragmatist feminism, but have largely focused on the early pragmatists, ignoring Rorty's liberal ironism entirely or discussing it only in the larger context of pragmatism (Aboulafia 1993; Hart 1993; Leffers 1993; Pappas 1993; Rooney 1993; Shuler and Tate 2001; Seigfried 1996; Sullivan 2001; Upin 1993). Donna Haraway (1990), although not dealing directly with irony from a pragmatist perspective, notes that language politics are strongly associated with feminist struggles. She argues that feminists can utilize ironic methods to negotiate identities that "seem contradictory, partial, and strategic" (197). An ironic perspective recognizes the exclusion inherent in naming and allows contradictory fusions of identity to emerge. In this way, irony blurs the boundaries of language... (shrink)

In lieu of an abstract, here is a brief excerpt of the content:Got Ethics? Envisioning and Evaluating the Future of Our Guild and DisciplineStacey M. Floyd-Thomas (bio)IN LIGHT OF THE SOCIETY OF CHRISTIAN ETHICS’ TWENTY-First Century and 2020 Initiatives, several ad hoc committees and working groups have examined the fate and future of both the Society and the field of Christian ethics. The stated purposes of these initiatives and their correlative task forces were to think about a new era that (...) is ostensibly different from the state of the discipline of Christian ethics and the demographics of the Society in the past. In effect, each initiative was charged with addressing the evolving needs of our field, particularly giving attention to our mission, membership, meeting, media, management, and mass appeal. There has also been considerable attention paid to our relevance in an academy and society where underrepresented groups of color are no longer minorities in the demographic composition of the United States. Further, numerous discussions have focused on the shifting dynamics of a global and postsecular age. Each initiative therefore chose to focus its attention on the practices of the Society in order to expand our ethical conversations with ethicists in other cultures, traditions, and institutional settings. Finally, each initiative executed its own inventory, and recommendations to the board and membership emerged.The 2016 preconference workshop titled “Got Ethics?” was a roundtable discussion that was an effort to make good on the hard work of those initiatives and the good intentions of the SCE board. Herein four ethicists—namely, Gloria Albrecht, Agnes Chiu, Gary Dorrien, and Miguel De La Torre, joined me in the quest to revisit the implications that a diverse demographic and discipline as well as the developing global context may pose for the future of our scholarship and society. Each panelist stated hard truths for these troubling times that poignantly mark both the crises of theological education and the church, and even more urgently for the future of our discipline and our Society as Christian ethicists. [End Page 195]Gary Dorrien offered a rigorous overview of the history of Christian social ethics that coalesced around the ever-growing gap that threatens its viability:Today, as in previous generations, some ethicists work hard at straddling the divide between social justice activism and disciplinary scholarship. For many of us, our purview consists entirely of ethicists fitting this description. All of us up here work hard at doing both things and we struggle with the trade-offs of doing so. I have completed my assignment and my time is up, but I have a cautionary conclusion. Unlike previous generations of social ethicists, we cannot assume that our field has a future. The existence of our field is in jeopardy except in Catholic institutions. On the road I have talked with many academic administrators who are skeptical that their schools need to teach anything called Christian ethics or comparative religious ethics or social ethics. We cannot settle for merely asserting that our work is relevant and that our field has an established standing. The weight of presumption is shifting against us. The field is shrinking, and we must prove that our work is substantial and relevant.1As Dorrien traces the history of social ethics as a discipline, beginning with the rise of the Social Gospel and its modern social consciousness, he also causes us to reflect on our postmodern consciousness as well. Social ethics began with black and white Social Gospel ministers who preached radical social change; however, Reinhold Niebuhr’s Christian realism tempered this radical vision, moving the discipline in a more moderate direction. Today social ethics remains in a crisis of identity and relevance, caught between the need to establish itself as a discipline in its own right and the ethical exigency of speaking directly to social injustices.As an emerging moral theologian, Agnes Chiu echoes Dorrien’s perspective by asserting thatChristian ethics is a discipline that intersects and calls for Christian engagement with the world. It enables Christianity to be relevant because it deals with issues with which the world wrestles such as justice, conflicts, and human dignity. Theologians have long warned against the danger of irrelevancy and indifference by both our discipline and the... (shrink)

The stimulant “benefits” of amphetamine and its derivative, methamphetamine, have endured since the drugs first became popular nearly a century ago. The concepts of increasing energy for functional purposes related to work and productivity have been well studied. However, the broader idea of increased alertness, and what this means in the lives of users, has not yet been sufficiently examined. This article draws from ongoing research with active methamphetamine users to explore the perceived benefits, drawbacks, and meanings of remaining alert—awake (...) and vigilant—while most of the world sleeps. The experiences of several users are situated in the contexts of sociostructural and mental health issues that shape cycles of use and meanings of addiction. (shrink)

In Tanzania, the encounter between a traditional malady called degedege and the modern malady malaria is a fight to participate in the making of the bodies of women and children as well as the agents that afflict them. In their respective settings,degedege and malaria are considered two of the most common threats to the well-being of pregnant women and their young children. Local, national, and international public-health concerns for the early treatment of malaria compel biomedical practitioners to claim that degedege (...) is malaria. This article explores the power of this translation through an examination of the processes involved in treating degedege and the processes involved in treating malaria. I examine what is gained and what is lost through scientific or public health efforts to translate concepts, objects of practice, and agents of affliction from one form of care to another. (shrink)

Under the umbrella of the burgeoning neurotransdisciplines, scholars are using the principles and research methodologies of their primary and secondary fields to examine developments in neuroimaging, neuromodulation and psychopharmacology. The path for advanced scholarship at the intersection of law and neuroscience may clear if work across the disciplines is collected and reviewed and outstanding and debated issues are identified and clarified. In this article, I organize, examine and refine a narrow class of the burgeoning neurotransdiscipline scholarship; that is, scholarship at (...) the interface of law and functional magnetic resonance imaging (fMRI). (shrink)

This article examines the privacy and security issues associated with mobile application-mediated health research, concentrating in particular on research conducted or participated in by independent scientists, citizen scientists, and patient researchers. Building on other articles in this issue that examine state research laws and state data protection laws as possible sources of privacy and security protections for mobile research participants, this article focuses on the lack of application of federal standards to mobile application-mediated health research. As discussed in more detail (...) below, the voluminous and diverse data collected by some independent scientists who use mobile applications to conduct health research may be at risk for unregulated privacy and security breaches, leading to dignitary, psychological, and economic harms for which participants have few legally enforceable rights or remedies under current federal law. Federal lawmakers may wish to consider enacting new legislation that would require otherwise unregulated health data holders to implement reasonable data privacy, security, and breach notification measures. (shrink)

Advances in science and technology frequently raise new ethical, legal, and social issues, and developments in neuroscience and neuroimaging technology are no exception. Within the field of neuroethics, leading scientists, ethicists, and humanists are exploring the implications of efforts to image, study, treat, and enhance the human brain.This article focuses on one aspect of neuroethics: the confidentiality and privacy implications of advances in functional magnetic resonance imaging. Following a brief orientation to fMRI and an overview of some of its current (...) and proposed uses, this article highlights key confidentiality and privacy issues raised by fMRI in the contexts of health care, research, employment, insurance, criminal justice, litigation, and cognitive privacy. (shrink)

Advances in science and technology frequently raise new ethical, legal, and social issues, and developments in neuroscience and neuroimaging technology are no exception. Within the field of neuroethics, leading scientists, ethicists, and humanists are exploring the implications of efforts to image, study, treat, and enhance the human brain.This article focuses on one aspect of neuroethics: the confidentiality and privacy implications of advances in functional magnetic resonance imaging. Following a brief orientation to fMRI and an overview of some of its current (...) and proposed uses, this article highlights key confidentiality and privacy issues raised by fMRI in the contexts of health care, research, employment, insurance, criminal justice, litigation, and cognitive privacy. (shrink)

Advances in neuroscience have implications for criminal law as well as civil and regulatory law, including health, disability, and benefit law. The role of the behavioral and brain sciences in health insurance claims, the mental health parity debate, and disability proceedings is examined.

In the early 1970s, Congress considered enacting comprehensive privacy legislation, but it was unable to do so. In 1974, it passed the Privacy Act, applicable only to information in the possession of the federal government. In the intervening years, other information privacy laws enacted by Congress, such as the Health Insurance Portability and Accountability Act, have been weak and sector specific. With the explosion of information technology and the growing concerns about an absence of effective federal privacy laws, the legal (...) focus has shifted to the states. Signaling a new direction in state data privacy and consumer protection law, the California Consumer Privacy Act establishes important rights and protections for California residents with regard to the collection, use, disclosure, and sale of their personal information. The CCPA is certain to spur similar legislation and to affect national and international businesses that collect data from California's residents. Understanding the new law is important for all data‐driven industries, including health care. (shrink)

_The Infrastructure of Accountability _brings together leading and emerging scholars who set forth an ambitious conceptual framework for understanding the full impact of large-scale, performance-based accountability systems on education. Over the past 20 years, schools and school systems have been utterly reshaped by the demands of test-based accountability. Interest in large-scale performance data has reached an unprecedented high point. Yet most education researchers focus primarily on questions of data quality and the effectiveness of data use. In this bold and thought-provoking (...) volume, the contributors look beneath the surface of all this activity to uncover the hidden infrastructure that supports the production, flow, and use of data in education, and explore the impact of these large-scale information systems on American schooling. These systems, the editors note, “sit at the juncture of technical networks, work practices, knowledge production, and moral order. (shrink)

Although many people choose to sign consent forms and participate in research, how many thoroughly read a consent form before signing it? Across 3 experiments using 348 undergraduate student participants, we examined whether personality characteristics as well as consent form content, format, and delivery method were related to thorough reading. Students repeatedly failed to read the consent forms, although small effects were found favoring electronic delivery methods and traditional format forms. Potential explanations are discussed and include participant apathy, participants trying (...) to save time by not reading the consent form, and participant assumptions about consent forms. (shrink)

Mobile devices with health apps, direct-to-consumer genetic testing, crowd-sourced information, and other data sources have enabled research by new classes of researchers. Independent researchers, citizen scientists, patient-directed researchers, self-experimenters, and others are not covered by federal research regulations because they are not recipients of federal financial assistance or conducting research in anticipation of a submission to the FDA for approval of a new drug or medical device. This article addresses the difficult policy challenge of promoting the welfare and interests of (...) research participants, as well as the public, in the absence of regulatory requirements and without discouraging independent, innovative scientific inquiry. The article recommends a series of measures, including education, consultation, transparency, self-governance, and regulation to strike the appropriate balance. (shrink)

A growing body of empirical literature challenges philosophers’ reliance on intuitions as evidence based on the fact that intuitions vary according to factors such as cultural and educational background, and socio-economic status. Our research extends this challenge, investigating Lehrer’s appeal to the Truetemp Case as evidence against reliabilism. We found that intuitions in response to this case vary according to whether, and which, other thought experiments are considered first. Our results show that compared to subjects who receive the Truetemp Case (...) first, subjects first presented with a clear case of knowledge are less willing to attribute knowledge in the Truetemp Case, and subjects first presented with a clear case of nonknowledge are more willing to attribute knowledge in the Truetemp Case. We contend that this instability undermines the supposed evidential status of these intuitions, such that philosophers who deal in intuitions can no longer rest comfortably in their armchairs. (shrink)

Though stereotype threat is most well-known for its ability to hinder performance, it actually has a wide range of effects. For instance, it can also cause stress, anxiety, and doubt. These additional effects are as important and as central to the phenomenon as its effects on performance are. As a result, stereotype threat has more far-reaching implications than many philosophers have realized. In particular, the phenomenon has a number of unexplored “epistemic effects.” These are effects on our epistemic lives—i.e., the (...) ways we engage with the world as actual and potential knowers. In this paper I flesh out the implications of a specific epistemic effect: self-doubt. Certain kinds of self-doubt can deeply affect our epistemic lives by exacerbating moments of epistemic injustice and by interacting with pernicious ideals of rationality. In both cases, self-doubt can lead to a person questioning their own humanity or full personhood. Since we have reasons to believe that stereotype threat can trigger this kind of self-doubt, then stereotype threat can affect various aspects of ourselves besides our ability to perform to our potential. It can also affect our very sense of self. (shrink)

A key concern of global ethics is the equitable distribution of benefits and burdens amongst persons belonging to different populations. Until recently, the philosophical literature on global distribution was dominated by the question of how benefits and burdens should be divided amongst contemporaries. Recent years, however, have seen an increase in research on the scope and content of our duties to future generations. This has led to a number of innovative attempts to extend principles of distribution across time while retaining (...) a focus on the entitlements of the existing poor. In this article, I examine a key aspect of intergenerational justice, namely, the appropriate 'pattern' of well-being that should be obtained across generations. With the aid of research into the impacts of global climate change, I evaluate a number of rival accounts of the pattern of justice and go on to explore the merits of a 'global sufficientarian' ethic, which holds that as many persons as possible should enjoy a satisfactory level of well-being regardless of when or where they live. (shrink)

If asked whether stereotypes about people have the potential to help overcome injustice, I suspect that many think there is a clear-cut answer to this question, and that answer is “no.” Many stereotypes do have harmful effects, from the blatantly dehumanizing to the more subtly disruptive. Reasonably then, a common attitude toward stereotypes is that they are at best shallow, superficial assumptions, and at worst degrading and hurtful vehicles of oppression. I argue that on a broad account of stereotypes, this (...) is not is not an inherent feature of them nor a foregone conclusion about them. At least some positive stereotypes have the potential to help resist certain forms of epistemic injustice--though they likely can only play a limited or temporary role in this regard. The takeaway is that we should approach moral and epistemic analyses of stereotypes by thinking about them as (crude) cognitive tools, and as such, focus on what these tools are being used for, and what their actual impact is. (shrink)

En este trabajo critico la interpretación moralizada de la obligación política en Hobbes que defiende Luciano Venezia. Exploro una lectura diferente que evita una dicotomía tajante entre las razones prudenciales y las razones morales y subraya en cambio la discontinuidad entre la normatividad subjetiva de la ley natural y la normatividad objetiva de la ley positiva. Sostengo que el contrato de sujeción política establece obligaciones objetivas recién cuando el soberano exige el cumplimiento de los contratos. La obligación política es entonces (...) una forma de obligación jurídica. Además, enfatizo que la comunidad moral de Hobbes solo es posible dentro del Estado. In this paper, I criticize Luciano Venezia's moralized interpretation of the Hobbesian concept of political obligation. I explore a different reading that avoids a clear-cut dichotomy between prudential and moral reasons and underscores instead the discontinuity between natural law's subjective normativity and civil law's objective normativity. I contend that the pact of political subjection establishes objective obligations only when the sovereign requires the fulfillment of contracts. Political obligation is then a form of legal obligation. In addition, I emphasize that Hobbes's moral community is only possible within the State. (shrink)

The contemporary operating environment for deployed United States military operations largely focuses on deployments to predominantly Islamic countries. The differences in cultural values between d...

Global climate change raises profound questions for social and political theorists. The human impacts of climate change are sufficiently broad, and generally adverse, to threaten the rights and freedoms of existing and future members of all countries. These impacts will also exacerbate inequalities between rich and poor countries despite the limited role of the latter in their origins. Responding to these impacts will require the implementation of environmental and social policies that are both environmentally effective and consistent with the equality (...) and liberty of populations to which they are applied. This article considers whether global emissions trading, namely, the creation of a global market for tradable allowances conferring the right to emit a certain amount of greenhouse gas over a specified time period, is normatively defensible from a liberal egalitarian perspective. After a brief review of the theory and practice of emissions trading, a number of normative objections to the international trade in emissions allowances are analysed. These objections appeal to one, or a combination, of two claims. First, emissions trading schemes are likely to produce undesirable outcomes, such as environmental neglect, in the further future. I call these ‘instrumental objections’. Second, emissions trading schemes violate non‐consequential norms of justice and fairness. I call these ‘intrinsic objections’. It is argued that, when combined, instrumental and intrinsic objections indicate that instituting a global network of emissions trading schemes, as envisioned by a number of parties to the Kyoto Protocol and Copenhagen Accord, would be illegitimate in absence of significant procedural and consequential safeguards. (shrink)

The literature on deep brain stimulation (DBS) and adaptive DBS (aDBS) raises concerns that these technologies may affect personality, mood, and behavior. We conducted semi-structured interviews with researchers (n = 23) involved in developing next-generation DBS systems, exploring their perspectives on ethics and policy topics including whether DBS/aDBS can cause such changes. The majority of researchers reported being aware of personality, mood, or behavioral (PMB) changes in recipients of DBS/aDBS. Researchers offered varying estimates of the frequency of PMB changes. A (...) smaller majority reported changes in personality specifically. Some expressed reservations about the scientific status of the term ‘personality,’ while others used it freely. Most researchers discussed negative PMB changes, but a majority said that DBS/aDBS can also result in positive changes. Several researchers viewed positive PMB changes as part of the therapeutic goal in psychiatric applications of DBS/aDBS. Finally, several discussed potential causes of PMB changes other than the device itself. (shrink)

The widespread use of stimulants among healthy individuals to improve cognition has received growing attention; however, public attitudes toward this practice are not well understood. We determined the effect of framing metaphors and context of use on public opinion toward cognitive enhancement. We recruited 3,727 participants from the United States to complete three surveys using Amazon’s Mechanical Turk between April and July 2017. Participants read vignettes describing an individual using cognitive enhancement, varying framing metaphors (fuel versus steroid), and context of (...) use (athletes versus students versus employees). The main outcome measure was the difference in respondent-assigned level of acceptability of the use of cognitive enhancement by others and by themselves between the contrasting vignettes. Participants were more likely to support the use of cognitive enhancement by others than by themselves and more when the use of enhancement by others was framed with a fuel metaphor than with a steroid metaphor. Metaphoric framing did not affect participants’ attitudes toward their own use. Participants supported the use of enhancement by employees more than by students or athletes. These results are discussed in relation to existing ethical and policy literature. (shrink)

This work resulted from a conference held in 2003 that was jointly sponsored by the Rockefeller Archive Center and Quinnipiac University. Drawing upon perspectives from history, philosophy, and the social sciences, as well as public health and medicine, the authors in this volume examine and critique the role of Foundations, most prominently the Rockefeller Foundation, in promoting and expanding the development of Western medicine around the world during the 20th century. The first half of the book examines the historical involvement (...) of philanthropic foundations in public heath, basic medical research, and related social and political issues. These studies range from an examination of the Rockefeller's Foundation's anti-malaria campaigns to the involvement of Foundations in promoting eugenic ideology and population control. The second half of the book considers current situations in which philanthropic foundations are active in promoting public health and westernized medicine, including consideration of the fight against AIDS in Africa, the resurgence of tuberculosis as a major public health threat, and the ongoing war against malaria. Finally, the book concludes with thoughts on the future of health, disease, and public health by Peter C. Goldmark, Jr., a former president of the Rockefeller Foundation. By considering issues of public health and health policy from a wide range of perspectives, this book seeks to contribute both to our understanding of the past successes and failures of growing dominance of Westernized medicine over global health, and to consider present and future possibilities for improving the delivery of health services to the population of the world. (shrink)

Frederick the Great of Prussia was hailed by many as the model of an ‘Enlightened Despot’. Historians continue to debate both the concept of ‘Enlightened Despotism’ and Frederick’s credentials as an enlightened monarch. Should we talk in terms of ‘enlightened absolutism’? Of ‘reform absolutism’? Or simply drop the use of any such terms for a monarch who used his enlightened philosophising and flute playing as window dressing for a system of governance that was essentially conventional absolutism? In light of continuing (...) debate about the nature of Frederick’s reign, it is worth revisiting the views of contemporaries. As a friend of Voltaire, Frederick’s place was well established in traditional depictions of the Enlightenment as centred on the French philosophes. In the past two decades, however, scholars have broadened and deepened our conception of Enlightenment by researching the ‘social history of ideas’ and illuminating Enlightenment in various national and cultural contexts. In this vein, an analysis of perceptions of Frederick the Great can shed light on the nature of Enlightenment in Britain. Frederick’s popularity in Britain reached dizzying heights in the late 1750s as he won spectacular victories in the Continental campaign against Britain’s enemies in the Seven Years War. From the 1760s on, however, British opinion was generally critical of his regulated and militaristic state and his aggrandisement through diplomacy. While it is not within the scope of this essay to explore broader perceptions of Frederick II in late eighteenth-century Britain, it appears that writers who can be located within ‘conservative’ enlightened thought had a more positive perception of Frederick than dissenters. Samuel Johnson declared that the King of Prussia could get away with wearing plain cloths because ‘of the dignity of his character’. On separate occasions in 1780 Edmund Burke praised Frederick for the economy and efficiency of his royal court and for his religious toleration. An article is in preparation that will explore the range of British opinion on Frederick the Great at the end of his long reign. This essay, however, will focus on how some leading Rational Dissenters perceived the self-consciously enlightened King of Prussia, and provide an exposition of the Memoirs of the life and reign of Frederick (1788) by Joseph Towers. (shrink)

In crisis situations, the authority of the nurse is legitimised by legal powers and professional knowledge. Crisis stakeholders include those who directly use services and their families, and a wide range of health, social service and justice agencies. Alternative strategies such as therapeutic risk taking from the perspective of socially inclusive recovery policy coexist in a sometimes uneasy relationship with mental health legislation. A critical discourse analysis was undertaken to examine mental health policies and guidelines, and we interviewed service users, (...) families, nurses and the police about experiences of accessing services. For those who attempt to access services early in crisis, as is suggested to lead to a better outcome, provision of services and rights appear to be reversed by an attempt to exclude them through practices that screen them out, rather than prioritising a choice in access. (shrink)

Global climate change raises profound questions for social and political theorists. The human impacts of climate change are sufficiently broad, and generally adverse, to threaten the rights and freedoms of existing and future members of all countries. These impacts will also exacerbate inequalities between rich and poor countries despite the limited role of the latter in their origins. Responding to these impacts will require the implementation of environmental and social policies that are both environmentally effective and consistent with the equality (...) and liberty of populations to which they are applied. This article considers whether global emissions trading, namely, the creation of a global market for tradable allowances conferring the right to emit a certain amount of greenhouse gas over a specified time period, is normatively defensible from a liberal egalitarian perspective. After a brief review of the theory and practice of emissions trading, a number of normative objections to the international trade in emissions allowances are analysed. These objections appeal to one, or a combination, of two claims. First, emissions trading schemes are likely to produce undesirable outcomes, such as environmental neglect, in the further future. I call these ‘instrumental objections’. Second, emissions trading schemes violate non‐consequential norms of justice and fairness. I call these ‘intrinsic objections’. It is argued that, when combined, instrumental and intrinsic objections indicate that instituting a global network of emissions trading schemes, as envisioned by a number of parties to the Kyoto Protocol and Copenhagen Accord, would be illegitimate in absence of significant procedural and consequential safeguards. (shrink)