In theory, at least, we might achieve a certain sort of invulnerability right at the end of life. Suppose that under favorable circumstances we can live a certain number of years, say 125, but no longer, and also that we can make life as a whole better and better over time. Under these assumptions we might hope to disarm death by spending 125 years making life as good as it can be. If we were lucky enough to (...) accomplish that, afterwards we would be immune to mortal harm. Especially for those who are closer to the beginning of life than to the end, however, this strategy leaves much to be desired. It is like devouring an entire banquet so as to eliminate the danger of someone stealing it from us. Like a feast, a good life is safely ours after it is over, but then safety comes too late to be of any use to us. To be of practical value, we need protection from mortal harm much earlier in life. (shrink)

“Pale Blue Dot” and “Anthropocene” are common tropes in astrobiology and often appear in ethical arguments. Both support a decentering of human life relative to biological life in terms of value. This article introduces a typology of life-value narratives: hierarchical narratives with human life above other life and holistic narratives with human life among other life. Astrobiology, through the two tropes, supports holistic narratives, but this should not be viewed as opposed to Christianity. (...) Rather, Christian scriptures provide seeds of both hierarchical and holistic narratives, each of which may flourish in different environments. By attending to which aspects of human life are valued—or disvalued—relative to biological life, we can better understand how life-concepts do work in ethics, anthropology, and soteriology in secular as well as theological contexts. (shrink)

This study aims to examine the philosophical life values of the Manggarai people in Western Flores, which are reflected in the proverbs of the Manggarai language (Go'et). Go'et is an oral literature that contains the values that govern the life of the Manggarai people. This study uses a qualitative descriptive approach design involving semantics theory to interpret the meaning of Go'et. The data in this study were obtained by conducting in-depth interviews with one of the Manggarai (...) community leaders with the initials AW (52) and secondary data available on the Manggarai Nuca Lale website. The data obtained were then validated using the Indonesian-Mangarai dictionary to find samples that fit this study. Nine data are relevant to the scope of this study based on the results of data collection that have been done. From the data found, the researcher concluded that there are three central values in go'et which contain advice and instructions for living a life under the norms that apply to the Manggarai community, such as unity, Manners and Wisdom, and passion and hard work. These findings are consistent with the fact that the Manggarai people uphold the values of unity, cooperation, and harmony among community members. (shrink)

In his seminal reflection on the badness of death, Nagel links it to the permanent loss “of whatever good there is in living.” I will argue, following McMurtry, that “whatever good there is in living” is defined by the life-value of resources, institutions, experiences, and activities. Enjoyed expressions of the human capacities to experience the world, to form relationships, and to act as creative agents are intrinsically life-valuable, the reason why anyone would desire to go on living indefinitely. (...) As Nagel argues, “the fact that we will eventually die in a few score years cannot by itself imply that it would not be good to live longer. If there is no limit to the amount of life that it would be good to have, then it may be that a bad end is in store for all of us.” In this paper I want to question whether in fact there is no limit to the amount of life it would be good to have. My general conclusion will be that it is not the case that the eternal or even indefinite prolongation of any particular individual life necessarily increases life-value. Were death thus somehow removed as an inescapable limiting frame on human life, overall reductions of life-value would be the consequence. Individual and collective life would lose those forms of moral and material life-value that form the bases of life’s being meaningful and purposive. (shrink)

Since its publication in 1971, John Rawls’ A Theory of Justice has defined the terrain of political philosophical debate concerning the principles, scope, and material implications of social justice. Social justice for Rawls concerns the principles that govern the operation of major social institutions. Major social institutions structure the lives of citizens by regulating access to the resources and opportunities that the formulation and realization of human projects require. Rawls’ theory of social justice regards major institutions as just when they (...) distribute what he calls “primary goods” in a manner that he regards as egalitarian. Hence, the subsequent social justice debate has been shaped by and large as a debate about the meaning and implications of egalitarianism. While on the surface a debate about egalitarianism as a distributional principle seems to uncover the core problem of social justice—how much of what everyone should get as a matter of right—the entire history of the debate has been conducted in abstraction fr om what matters most to people’s lives. It is as a corrective to such abstractions that the life-value approach to social justice has been developed. (shrink)

Volume 24, Issue 3-4, May - June 2019, Page 437-445.

Current patterns of global economic activity are not only unsustainable, but unethical - this claim is central to Materialist Ethics and Life-Value. Grounding the definition of ethical value in the natural and social requirements of life-support and life-development shared by all human beings, Jeff Noonan provides a new way of understanding the universal conception of "the good life." Noonan argues that the true crisis affecting the world today is not sluggish rates of economic growth but the (...) model of measuring economic and social health in terms of money-value. In response, he develops an alternative understanding of good societies where the breadth and depth of life-activity and enjoyment are dependent on dominant institutions. The more social institutions satisfy the necessary requirements of human life, the more they empower each person to develop and enjoy the capacities that make human life valuable and meaningful. A well-reasoned synthesis of traditional philosophical concerns and contemporary critiques of global capitalism, this book is a forward-looking treatise that defends political struggle and reconsiders what is most important for a happy life. (shrink)

This paper aims at giving an account of the philosophy of norms of Georges Canguilhem in the framework of his philosophical vitalism. According to Canguilhem, vitalism is not a metaphysical or ontological theory, but rather a general attitude or a perspective about life and living beings, both understood employing the axiological concept of ‘normativity’. This notion allows Canguilhem to enlarge the concept of life beyond the field of biological phenomena, encompassing also phenomena of the social world, included technique (...) and scientific knowledge and rationality. Canguilhem’s perspective relocates human activities within a vitalistic conception of life, which redefines the meaning of human reason by putting it in relation to values and norms. (shrink)

To the extent that classical, neoclassical, and Marxist political economy have traditionally ignored the problem of economic scale and valorized economic growth, all three have much to learn from ecological economics. Its most important contribution is the argument that the human economy is a subsystem of the finite earth’s natural life-support system. Implied in this argument is a new metric of economic health, the life-value rather than the money-value of that which economies produce and distribute.

The paper argues that the future of socialism depends upon the category of use value being grounded in a wider and deeper conception of life value. Only as such can it serve as the regulating principle of a future democratic socialist society. Life value is anchored in an understanding of the human life's space-time continuum understood as a continuum of life requirements. The multiple life crises regularly generated by capitalism are crises of its incapacity to (...) adequately satisfy these life requirements. The practical conclusion is that a democratic socialist economy must prioritize the production not of use values as such, but only of those use values that also have life value. (shrink)

This analysis maps the deepening global crisis and the principles of its resolution by life-value analysis and method. Received theories of economics and justice and modern rights doctrines are shown to have no ground in life value and to be incapable of recognizing universal life goods and the rising threats to them. In response to this system failure at theoretical and operational levels, the unifying nature and measure of life value are defined to provide the long-missing (...) basis for understanding the common interest, human rights and social justice—that is, the universal life necessities of humanity across cultures and the evolving civil commons infrastructures to ensure them. In contrast, the treaty-imposed corporate rights system miscalled “globalization” is structured to predate life means and support systems at all levels with no accountability beyond itself. Only the logic of life value, human rights and life-protective law, it is concluded, can comprehend or govern this inherently life-blind and cumulatively eco-genocidal regime. (shrink)

Spinoza's ethics is founded on the idea that we are egoists who should do nothing but search our own advantage , but that in doing so, this is when we are most virtuous, most moral, and most social . Community, taken in any sense stronger than a mere collection of things, only occurs, then, when each is drawn to seek his self-interest. ;Spinoza would hold that no study of ethics can be done in a metaphysical vacuum . To discuss the (...) ethics of an individual existing in community, one must first address the metaphysical foundations of the individual, its rights, and its place in community. To this end, the greater part of this work examines just those metaphysical bases which define an individual and how it relates in community. The analysis is textually based; focusing on how Spinoza uses certain terms , we attempt to understand what Spinoza understood to be an individual, community, right, etc. Then, because society affects an individual and the individual in turn affects society, the study looks at human individuals and their affects, that is, how humans affect and are affected by other humans. Just as a group of rocks makes only a pile and not what might be called a community, so too a group of human individuals does not necessarily make a society. The move from many individuals to one community is examined. ;Finally, after the metaphysical and psychological considerations are established, the study addresses its main question, that is, the value that should be accorded to a particular human life vis-a-vis the society in which the person lives. The study touches, therefore, questions concerning capital punishment, euthanasia, assisted suicide, and even abortion. The surprising conclusion is that Spinoza's ethics do allow for and can support what could be called a consistent human life ethic in which the right to life remains primary. (shrink)

This analysis maps the deepening global crisis and the principles of its resolution by life-value analysis and method. Received theories of economics and justice and modern rights doctrines are shown to have no ground in life value and to be incapable of recognizing universal life goods and the rising threats to them. In response to this system failure at theoretical and operational levels, the unifying nature and measure of life value are defined to provide the long-missing (...) basis for understanding the common interest, human rights and social justice—that is, the universal life necessities of humanity across cultures and the evolving civil commons infrastructures to ensure them. In contrast, the treaty-imposed corporate rights system miscalled “globalization” is structured to predate life means and support systems at all levels with no accountability beyond itself. Only the logic of life value, human rights and life-protective law, it is concluded, can comprehend or govern this inherently life-blind and cumulatively eco-genocidal regime. (shrink)

For as long as humans have pondered philosophical issues, they have contemplated the good life. Yet most suggestions about how to live a good life rest on assumptions about what the good life actually is. Thomas Carson here confronts that question from a fresh perspective. Surveying the history of philosophy, he addresses first-order questions about what is good and bad as well as metaethical questions concerning value judgments. Carson considers a number of established viewpoints concerning the good (...) life. He offers a new critique of Mill's and Sidgwick's classic arguments for the hedonistic theory of value, employing thought experiments that invite us to clarify our preferences by choosing between different kinds of lives. He also assesses the desire- or preference-satisfaction theory of value in detail and takes a fresh look at both Nietzsche's Übermensch ideal and Aristotle's theory of the good life. In exploring foundational questions, Carson observes that many established theories rest on undefended assumptions about the truth of moral realism. Arguing against this stand, he defends the view that good means desirable and presents a divine-preference version of the desire-satisfaction theory. In this he contends that, if there exists a kind and omniscient God who created the universe, then what is good or bad is determined by His preferences; if such a God does not exist, what is good or bad depends on what we as rational humans desire. Value and the Good Life is the only book that defends a divine-preference theory of value as opposed to a divine-command theory of right and wrong. It offers a masterfully constructed argument to an age-old question and will stimulate all who seek to know what the good life truly is. (shrink)

Are bacteriophage T4 and the long-nosed elephant fish valuable in their own right? Nicholas Agar defends an affirmative answer to this question by arguing that anything living is intrinsically valuable. This claim challenges received ethical wisdom according to which only human beings are valuable in themselves. The resulting biocentric or life-centered morality forms the platform for an ethic of the environment. -/- Agar builds a bridge between the biological sciences and what he calls "folk" morality to arrive at a (...) workable environmental ethic and a new spectrum--a new hierarchy--of living organisms. The book overturns common-sense moral belief as well as centuries of philosophical speculation on the exclusive moral significance of humans. Spanning several fields, including philosophy of psychology, philosophy of science, and other areas of contemporary analytic philosophy, Agar analyzes and speaks to a wide array of historic and contemporary views, from Aristotle and Kant, to E. O. Wilson, Holmes Rolston II, and Baird Callicot. The result is a challenge to prevailing definitions of value and a call for a scientifically-informed appreciation of nature. (shrink)

In this book Christopher Belshaw draws on earlier work concerning death, identity, animals, immortality, extinction, and builds a large-scale argument on the value and meaning of life. Rejecting suggestions that life is sacred or intrinsically valuable, he argues instead that its value varies, and varies considerably, both within and between different kinds of things. So in some case we might have reason to improve or save a life, while in others that reason will be lacking. The book's (...) central section focuses on just one key question; that of whether we ever have reason to start lives. Not only is it denied that there is any such reason, but some sympathy is afforded to the anti-natalist contention that there is always reason against. The final chapters deal with meaning. Support is given to the sober and familiar view wherein meaning derives from an enthusiasm for, and some success with, the pursuit of worthwhile projects. Now suppose we are immortal. Or suppose, in contrast, that we face imminent extinction. Would either of these threaten meaning? The claim here is that the force of such threats is often exaggerated. The Value and Meaning of Life is essential reading for students and researchers in philosophy, ethics and religion, and will be of interest to all those concerned with how to live, and to how to think about the lives of others. (shrink)

Life's Values offers new analyses of the nature of pleasure, happiness, well-being, and meaning in life. Recognizing how individuals have different priorities, Goldman explains what is of ultimate value in our lives and argues that making our desires rational - relevantly informed of what it's like to satisfy them - maximizes well-being.

The shape of a life hypothesis holds that the temporal sequence of good or bad times in a life can itself be a valuable feature of that life. This is generally thought to be incompatible with additivism about lifetime well-being, which holds that lifetime well-being is fully determined by momentary well-being. This discussion examines Dale Dorsey’s recent argument that these views are in fact compatible. I argue that accepting the conjunction of these views requires stronger commitments than (...) Dorsey recognizes. After arguing that these commitments are problematic, I conclude that we should reject the compatibility claim. (shrink)

I distinguish various ways in which human life may be thought to be meaningful and present an account of what might be called existential meaningfulness. The account is neutral with respect to both theism and naturalism, but each is addressed in several places and the paper's main points are harmonious with certain versions of both. A number of important criteria for existential meaningfulness are examined, and special emphasis is placed on criteria centering on creativity and excellence, on contributing to (...) the well-being of persons, and on human relationships, particularly those pervaded by love. In the light of a conception of intrinsic goodness, the good life is compared with the meaningful life, and the relation between the two notions is explored. I argue that goodness in a life counts towards its meaningfulness and that the goodness of a life is sufficient for an important kind of meaningfulness. I also suggest that the overall notion of rewarding elements in a life—intrinsically good elements that are typically but not necessarily pleasurable—is a significant unifying concept that helps both in understanding existential meaningfulness and in integrating the various kinds of constituents in a life that conduce to its meaningfulness. (shrink)

The present era of biological annihilation lends significant urgency to the need to radically reconfigure human-animal-nature relations along more ethical lines and sustainable trajectories. This article engages with largely post-humanist scholarship to offer up an in-depth qualitative analysis of a set of semi-structured interviews, conducted in August 2017-2018 with 26 radical environmental activists (REAs) from a variety of movements. These activists are posited as contemporary manifestations of the 'post-anthropocentric paradigm shifts' that challenge traditional notions of human separateness from - and (...) superiority to - the nonhuman world. However, despite being broadly categorised as post-humanist or post-anthropocentric in their efforts to deconstruct hierarchical and dualistic constructions of the human-animal-nature relationship, considerable variations abound in terms of who and what REAs value and on what basis. The article concludes with a brief discussion of the nature of REAs' post-anthropocentric sensibilities and mobilisations, and considers implications for the development of more ethical modes of human-animal-nature relationality that value and respect the irreducible alterity of nonhuman others. (shrink)

This book, like the practice of medicine itself, is about the value of life. Health care is one of the clearest and most visible expressions of a society's ...

Three common ethical principles for establishing the limits of parental authority in pediatric treatment decision making are the harm principle, the principle of best interest, and the threshold view. This paper consider how these principles apply to a case of a premature neonate with multiple significant comorbidities whose mother wanted all possible treatments, and whose health care providers wondered whether it would be ethically permissible to allow him to die comfortably despite her wishes. Whether and how these principles help to (...) understand what was morally right for the child is questioned. The paper concludes that the principles were of some value in understanding the moral geography of the case, but that the case reveals common bioethical principles for medical decision making are problematically value-laden because they are inconsistent with the widespread moral value of medical vitalism. (shrink)

Viable Values examines the most basic foundations of value and morality, demonstrating the shortcomings of major traditional views and proposing that morality is grounded in the objective requirements of human life. Smith argues that morality depends on a proper understanding of the concept of values, and that values depend on the alternative of life or death. She proposes that human beings need to be moral in order to live, explaining how life is the standard (...) of morality, how flourishing is the proper end and reward of living morally, and how an intelligent egoism is the path to flourishing. (shrink)

When considering the social valuation of a life-year, there is a conflict between two basic intuitions: on the one hand, the intuition of universality, according to which the value of an additional life-year should be universal, and, as such, should be invariant to the context considered; on the other hand, the intuition of complementarity, according to which the value of a life-year should depend on what this extra-life-year allows for, and, hence, on the quality of that (...) life-year, because the quantity of life and the quality of life are complement to each other. This paper proposes three distinct accounts of the intuition of universality, and shows that those accounts either conflict with a basic monotonicity property, or lead to indifference with respect to how life-years are distributed within the population. Those results support the abandon of the intuition of universality. But abandoning the intuition of universality does not prevent a social evaluator from giving priority, when allocating life-years, to individuals with the lowest quality of life. (shrink)

If humans eventually attain the ability to create new life forms, how will it affect the value of life? This is one of several questions that can be sources of concern when discussing synthetic life, but is the concern justified? In an attempt to answer this question, I have analyzed some possible reasons why an ability to create synthetic life would threaten the value of life in general (that is, not just of the synthetic creations), (...) to see if they really give us reason to worry. The main conclusion is that it is unlikely that a future human ability to create life will really have a great negative impact on these characteristics of life. It therefore seems unlikely that the value of life will be negatively affected by the ability to create synthetic life, though it is possible that the properties in question will be less salient in the synthetic life and thus that the value of the synthetic life will be lower than that of existing life, which in turn can lead to a disturbing difference in value between different kinds of life. (shrink)

The Value of Life is an exploration of the actual and perceived importance of biological diversity for human beings and society. Stephen R. Kellert identifies ten basic values, which he describes as biologically based, inherent human tendencies that are greatly influenced and moderated by culture, learning, and experience. Drawing on 20 years of original research, he considers: the universal basis for how humans value nature differences in those values by gender, age, ethnicity, occupation, and geographic location how (...) environment-related activities affect values variation in values relating to different species how vlaues vary across cultures policy and management implications Throughout the book, Kellert argues that the preservation of biodiversity is fundamentally linked to human well-being in the largest sense as he illustrates the importance of biological diversity to the human sociocultural and psychological condition. (shrink)

What is it for something to be good for you? It is for that thing to contribute to the appeal of being in your position or, more informally, “in your shoes.” To be in one’s position or shoes in the broadest possible sense is to have that person’s life. Accordingly, something is good or bad for a person in the broadest possible sense if and only if it contributes to or detracts from the appeal of having her life. (...) What, then, is a prudentially good life, or a life that goes well for the one living it? It is an appealing life. More precisely, it is a life such that having it is worthy of appeal, in and of itself. This dissertation is a defense and exploration of this way of understanding prudential value. I call it the "appealing life analysis." In Chapter I, I argue that this analysis fits well with our ways of talking about prudential value; preserves the relationship between prudential value and the attitudes of concern, love, pity, and envy; yields promising analyses of the concepts of well-being, luck, selfishness, self-sacrifice, and paternalism; and succeeds where three rival analyses fail. I also examine how this analysis bears on the relationship between prudence and morality and the debate between subjectivists and objectivists about prudential value. Chapter II draws upon the appealing life analysis to interpret a long-standing puzzle about prudential value and time. I highlight various ways in which this interpretation is informative and moves us closer to a solution to the puzzle. Chapter III provides a preliminary investigation and defense of an ethical theory that I call "prudentialism," which prescribes maximizing the appeal of having one’s own life. On certain conceptions of the appealing life, this theory has the virtue of avoiding the charge of being either too morally demanding or not morally demanding enough. I examine the structure of this theory, sketch a partial, substantive account of the appealing life, and discuss how the prudentialist can respond to various objections. (shrink)

: It is possible and necessary to compare stretches of human life with other goods, such as the good of conserving resources for others. A minute of human life is not of infinite value; all else being equal, a minute of life is less valuable than 10 years of the same life. Nevertheless, this ability to evaluate human life does not necessarily lead to total commodification of human life.

The presence of a human being/organism—a living human ‘whole’, with the defining tendency to promote its own welfare—has value in itself, as do the functions which compose it. Life is inseparable from health, since without some degree of healthy functionality the living whole would not exist. The value of life differs both within a single life and between lives. As with any other form of human flourishing, the value of life-and-health must be distinguished from the moral (...) importance of human beings: less fulfilled means not less important morally, but more in need of being fulfilled. That said, to say that life and health has value is not to say exactly what—if anything—that value requires by way of active promotion at a given time. Many factors must be taken into account in making health care decisions, even if the worth of all lives, and the dignity of all human beings, must in every case be acknowledged. (shrink)

Research shows that the physician’s personal attributes and social characteristics have a strong association with their end-of-life decision making. Despite efforts to increase patient, family and surrogate input into EOL decision making, research shows the physician’s input to be dominant. Our research finds that physician’s social values, independent of religiosity, have a significant association with physician’s tendency to withhold or withdraw life sustaining, EOL treatments. It is suggested that physicians employ personal social values in their EOL (...) medical coping, because they have to cope with existential dilemmas posed by the mystery of death, and left unresolved by medical decision making mechanisms such as advanced directives and hospital ethics committees. (shrink)

The essay combines a specific and a more general theme. In attacking ‘the doctrine of the sanctity of human life’ Singer takes himself thereby to be opposing the conviction that human life has special value. I argue that this conviction goes deep in our lives in many ways that do not depend on what Singer identifies as central to that ‘doctrine’, and that his attack therefore misses its main target. I argue more generally that Singer’s own moral philosophy (...) affords only an impoverished and distorted sense of the value of human life and human beings. In purporting to dig below the supposedly illusion–ridden surface of our thinking about value, Singer in fact often leads us away from the robust terrain of our lived experience into rhetorical, and sometimes brutal, fantasy. (shrink)

In Life's Dominion Dworkin argues that the debate about abortion is habitually misconstrued. Substantial areas of agreement are overlooked, while areas of disagreement are, mistakenly, seen as central. If we uncover a truer picture, then hope of a certain accord may no longer seem vain. I dispute many of these claims. Dworkin argues that both sides in the debate are united in believing that life is sacred, or intrinsically valuable. I disagree. I maintain that only in a very (...) attenuated sense of intrinsic value will this be agreed upon. I consider how an account of such value might be further fleshed out, but suggest, if this is done on any plausible lines, agreement will fall away. Dworkin argues, also, that the issue of personhood, does not, contrary to widespread belief, keep the parties apart. Again I disagree. We need to distinguish the question of whether there is in fact dispute over this issue from that of whether there is, in truth, good reason for dispute. And I argue that, rightly or wrongly, the issue of personhood remains central. Dworkin suggests that the purported proximity between the two sides offers some hope of an eventual reconciliation. At least, they will agree to differ, accepting that in this area freedom of choice is paramount. I am sceptical. Even this measure of reconciliation depends upon conservatives giving up positions which, I argue, they will continue to maintain. There is a further point. Dworkin appears to be, in many ways, cautiously optimistic. I appear, in contrast, to be pessimistic. I argue, however, that only so long as we do disagree over matters of substance is there much hope that our differences might be resolved. (shrink)

Life After Postmodernism is a pioneering text on the question of value in the postmodern scene. After a long hiatus in which discussions of value have been eclipsed by death of the subject in post-structuralist theory, this collection of essays suggest that we are on the threshold of a new value debate in contemporary politics, aesthetics, and society.

Abstract I distinguish various ways in which human life may be thought to be meaningful and present an account of what might be called existential meaningfulness. The account is neutral with respect to both theism and naturalism, but each is addressed in several places and the paper's main points are harmonious with certain versions of both. A number of important criteria for existential meaningfulness are examined, and special emphasis is placed on criteria centering on creativity and excellence, on contributing (...) to the well-being of persons, and on human relationships, particularly those pervaded by love. In the light of a conception of intrinsic goodness, the good life is compared with the meaningful life, and the relation between the two notions is explored. I argue that goodness in a life counts towards its meaningfulness and that the goodness of a life is sufficient for an important kind of meaningfulness. I also suggest that the overall notion of rewarding elements in a life-intrinsically good elements that are typically but not necessarily pleasurable-is a significant unifying concept that helps both in understanding existential meaningfulness and in integrating the various kinds of constituents in a life that conduce to its meaningfulness. (shrink)

Belliotti unravels the paradoxes of human existence to reveal paths for crafting meaningful, significant, valuable, even important lives. He argues that human life is not inherently absurd; examines the implications of mortality; contrasts subjective and objective meaning, and evaluates contemporary renderings of meaningful human lives.

In this paper, we explore three separate questions that are relevant to assessing the prudential value of life in infants with severe life-limiting illness. First, what is the value or disvalue of a short life? Is it in the interests of a child to save her life if she will nevertheless die in infancy or very early childhood? Second, how does profound cognitive impairment affect the balance of positives and negatives in a child’s future life? (...) Third, if the life of a child with life-limiting illness is prolonged, how much suffering will she experience and can any of it be alleviated? Is there a risk that negative experiences for such a child will remain despite the provision of palliative care? We argue that both the subjective and objective components of well-being for children could be greatly reduced if they are anticipated to have a short life that is affected by profound cognitive impairment. This does not mean that their overall well-being will be negative, but rather that there may be a higher risk of negative overall well-being if they are expected to experience pain, discomfort, or distress. Furthermore, we point to some of the practical limitations of therapies aimed at relieving suffering, such that there is a risk that suffering will go partially or completely unrelieved. Taken together, these considerations imply that some life-prolonging treatments are not in the best interests of infants with severe life-limiting illness. (shrink)

There has been growing global interest in livestock animal welfare. Previous research into attitudes towards animal welfare has focused on Europe and the United States, with comparatively little focus on Australia, which is an important location due to the prominent position of agriculture economically and culturally. In this article, we present results from qualitative research on how Australian meat consumers conceptualise sheep and beef cattle welfare. The study was conducted in two capital cities (Melbourne, Victoria and Adelaide, South Australia) and (...) a much smaller rural centre (Toowoomba, Queensland) using focus groups (involving 40.9% of participants) and mall-intercept interviews (59.1% of participants), totalling 66 participants. Qualitative analysis highlights that participants had clear ideas of what it means for an animal to live a ‘good life’ and experience a ‘good death,’ with their beliefs strongly tied to their expectations and cultural understandings of what Australian agriculture ‘should be.’ In response to open-ended questions, participants expressed attitudes that relied on romanticised visions of the ‘rural idyll’ as seen in frequent discussions about what is ‘normal’ for sheep meat and beef production, and relatedly, what count as ‘natural behaviours.’ Many participants rejected anything associated with the ‘other,’ classifying it as not ‘normal’: we argue that which is not considered normal, including intensive production, foreign ownership, and halal slaughter practices, appear to place participants’ conceptualizations of an animal’s ‘good death,’ and in turn the potential for a ‘good life,’ at risk. (shrink)

In 2018-2019, at the Keck School of Medicine of the University of Southern California, we developed and piloted a narrative-based health systems science intervention for patients living with HIV and medical students in which medical students co-wrote patients’ life narratives for inclusion in the electronic health record. The pilot study aimed to assess the acceptability of the “life narrative protocol” from multiple stakeholder positions and characterize participants’ experiences of the clinical and pedagogical implications of the LNP. Students were (...) recruited from KSOM. Patients and staff were recruited from the Maternal, Child, and Adolescent/Adult Center for Infectious Disease and Virology at Los Angeles County+USC Medical Center. Ten patients, seventeen students, and ten MCA staff participated in the pilot study. Qualitative methods were used to gather data from students’, patients’, and staff’s perspectives. Three themes emerged from the thematic analysis: patients’ life narratives conveyed their unique life experiences and voices; the protocol could result in wide-ranging effects on HIV care; the LNP enabled students to contribute value to patients’ healthcare. Across groups, participants considered the LNP an acceptable intervention. The LNP, its limitations, and implications for HIV care, narrative medicine, and health information technology are presented. (shrink)