Results for 'valueless research studies'

999 found
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  1.  19
    The Ethics of Net‐Risk Pediatric Research: Implications of Valueless and Harmful Studies.Wendler David - 2018 - IRB: Ethics & Human Research 40 (6):13-18.
    Net‐risk pediatric research encompasses interventions and studies that pose risks and do not offer a compensating potential for clinical benefit. These interventions and studies are central to efforts to improve pediatric clinical care. Yet critics argue that it is unethical to expose children to research risks for the benefit of unrelated others. While a number of ethical justifications have been proposed, none have received widespread acceptance. This leaves funders with uncertainty over whether they should support and (...)
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  2.  9
    Research Doctorate Programs in the United States: Continuity and Change.Marvin L. Goldberger, Brendan A. Maher, Pamela Ebert Flattau, Committee for the Study of Research-Doctorate Programs in the United States & Conference Board of Associated Research Councils - 1995 - National Academies Press.
    Doctoral programs at U.S. universities play a critical role in the development of human resources both in the United States and abroad. This volume reports the results of an extensive study of U.S. research-doctorate programs in five broad fields: physical sciences and mathematics, engineering, social and behavioral sciences, biological sciences, and the humanities. Research-Doctorate Programs in the United States documents changes that have taken place in the size, structure, and quality of doctoral education since the widely used 1982 (...)
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  3.  8
    The Bakhtin Circle: In the Master's Absence.Craig Brandist, David Shepherd, Lecturer in Russian Studies David Shepherd, Galin Tihanov & Junior Research Fellow in Russian and German Intellectual History Galin Tihanov - 2004 - Manchester University Press.
    The Russian philosopher and cultural theorist Mikhail Bakhtin has traditionally been seen as the leading figure in the group of intellectuals known as the Bakhtin Circle. The writings of other members of the Circle are considered much less important than his work, while Bakhtin's achievement has been exaggerated in proportion to the downgrading of the thinkers with whom he associated in the 1920s. This volume, which includes new translations and studies of the work of the most important members of (...)
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  4. Soviet Researchers Study English History.P. Lyashchenko - 1946 - Synthese 5 (1/2):61.
     
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  5.  8
    An Assessment of Research-Doctorate Programs in the United States: Mathematical and Physical Sciences.Lyle V. Jones, Gardner Lindzey, Porter E. Coggeshall & Conference Board of the Associated Research Councils - 1982 - National Academies Press.
    The quality of doctoral-level chemistry (N=145), computer science (N=58), geoscience (N=91), mathematics (N=115), physics (N=123), and statistics/biostatistics (N=64) programs at United States universities was assessed, using 16 measures. These measures focused on variables related to: program size; characteristics of graduates; reputational factors (scholarly quality of faculty, effectiveness of programs in educating research scholars/scientists, improvement in program quality during the last 5 years); university library size; research support; and publication records. Chapter I discusses prior attempts to assess quality in (...)
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  6. Psychopathological Researches: Studies in Mental Dissociation. [REVIEW]Boris Sidis - 1903 - Ancient Philosophy (Misc) 13:152.
     
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  7.  26
    What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.Rwamahe Rutakumwa, Jantina de Vries, Michael Parker, Paulina Tindana, Oliver Mweemba & Janet Seeley - 2019 - Global Bioethics:1-15.
    Previous research has consistently highlighted the importance of stakeholder engagement in identifying and developing solutions to ethical challenges in genomic research, especially in Africa where such research is relatively new. In this paper, we examine what constitutes good ethical practice in research, from the perspectives of genomic research participants in Uganda. Our study was part of a multi-site qualitative study exploring these issues in Uganda, Ghana and Zambia. We purposively sampled various stakeholders including genomic (...) participants, researchers, research ethics committee members, policy makers and community members. This paper presents the findings from in-depth interviews with 27 people with diabetes who had participated in a diabetes genomic study. Data were collected using semi-structured interviews. Manual thematic content analysis was conducted using a framework approach. Findings indicate three key requirements that research participants see as vital for genomic research to be more responsive to research participants’ needs and contextual realities: de-emphasising the role of experts and institutions in the consenting process, clarity about the timing and nature of feedback both of findings relevant to the health of individuals and about the broad progress of the study, and more effective support for research participants during and after the study. (shrink)
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  8. Can phase I cancer research studies in children be justified on ethical grounds?Henry Ekert - 2013 - Journal of Medical Ethics 39 (6):407-407.
    Joshua Crites and Eric Kodish focuses on unrealistic optimism as a significant factor in parental decisions when consenting for their child to participate in a phase I study.1 They define unrealistic optimism as ‘when people perceive their own personal outcomes as being more positive than those of other people in similar circumstances’. Faced with the dire circumstances of relapsed malignant disease with a fatal outcome, most parents are confronted with the dilemma of either accepting the inevitable death of their child (...)
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  9.  8
    An Assessment of Research-Doctorate Programs in the United States: Biological Sciences.Lyle V. Jones, Gardner Lindzey, Porter E. Coggeshall & Conference Board of the Associated Research Councils - 1982 - National Academies Press.
    The quality of doctoral-level biochemistry (N=139), botany (N=83), cellular/molecular biology (N=89), microbiology (N=134), physiology (N=101), and zoology (N=70) programs at United States universities was assessed, using 16 measures. These measures focused on variables related to: (1) program size; (2) characteristics of graduates; (3) reputational factors (scholarly quality of faculty, effectiveness of programs in educating research scholars/scientists, improvement in program quality during the last 5 years); (4) university library size; (5) research support; and (6) publication records. Chapter I discusses (...)
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  10.  14
    Compensation and reparations for victims and bystanders of the U.S. Public Health Service research studies in Tuskegee and Guatemala: Who do we owe what?Susan M. Reverby - 2020 - Bioethics 34 (9):893-898.
    Using the infamous research studies in Tuskegee and Guatemala, the article examines the difference between victims and bystanders. The victims can include families, sexual partners, and children not just the participants. There are also the bystanders in the populations who are affected, even vaguely, decades after the initial studies took place. Differing reparations for victims and bystanders through lawsuits and historical acknowledgments has to be part of broader discussions of historical justice, and the weighing of the impact (...)
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  11.  51
    A Mixed Methods Research Study of Parental Perception of Physical Activity and Quality of Life of Children Under Home Lock Down in the COVID-19 Pandemic.Gabriela López-Aymes, María de los Dolores Valadez, Elena Rodríguez-Naveiras, Doris Castellanos-Simons, Triana Aguirre & África Borges - 2021 - Frontiers in Psychology 12.
    Household confinement due to the rapid spread of the pandemic caused by COVID-19 has brought very significant changes, such as the forced stay-at-home of children due to the closure of schools. This has meant drastic changes in the organization of daily life and restrictions on their activities, including exercise, which could affect the quality of life of the children due to its importance. In order to study the relationship between physical activity and psychological well-being of minors, a study has been (...)
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  12.  33
    Against methodocentrism in educational research.John A. Weaver & Nathan Snaza - 2017 - Educational Philosophy and Theory 49 (11):1055-1065.
    This essay defines and critiques ‘methodocentrism’, the belief that predetermined research methods are the determining factor in the validity and importance of educational research. By examining research in science studies and posthumanism, the authors explain how this methodocentrism disenables research from taking account of problems and non-human actants that are presumed to be of no importance or value in existing social science research methodologies, both qualitative and quantitative. Building from a critique of these methods (...)
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  13.  8
    Metaanalysis of research studies related to effects of televised-violence on society.Erum Hafeez - 2016 - Journal of Social Sciences and Humanities 55 (1):75-86.
    With the advent and popularity of Television by the end of 1950s and early 1960s, researchers focused the role and effects of this new medium on its growing audience. Himmelweit and Schramm are considered the pioneer researchers in the field. The volume of scientific studies regarding televised violence was largely increased following the landmark State Reports in US published between 1972 and 1982. These reports indicated that the proliferation of TV has exposed children to media violence at home. However, (...)
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  14.  32
    Gaining and maintaining consent when capacity can be an issue: a research study with people with Huntington's disease.Eleanor Wilson, Kristian Pollock & Aimee Aubeeluck - 2010 - Clinical Ethics 5 (3):142-147.
    This paper recognizes the complexity of the debate on informed consent and discusses the importance of the ongoing process of consent for people affected by Huntington's disease (HD). Although written information may not be the most appropriate form of obtaining informed consent in qualitative research, it remains an important part of the ethical approval process for health research in the UK. This paper draws on a study in which the information sheet and consent form were specifically designed to (...)
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  15.  7
    Doing focus group research: Studying rational ordering in focus group interaction.Laura Bang Lindegaard - 2014 - Discourse Studies 16 (5):629-644.
    Scholars of ethnomethodologically informed discourse studies are often sceptical of the use of interview data such as focus group data. Some scholars quite simply reject interview data with reference to a general preference for so-called naturally occurring data. Other scholars acknowledge that interview data can be of some use if the distinction between natural and contrived data is given up and replaced with a distinction between interview data as topic or as resource. In greater detail, such scholars argue that (...)
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  16.  78
    Teaching Psychology Research Methodology Across the Curriculum to Promote Undergraduate Publication: An Eight-Course Structure and Two Helpful Practices.Stuart McKelvie & Lionel Gilbert Standing - 2018 - Frontiers in Psychology 9:424314.
    Teaching research methods is especially challenging because we not only wish to convey formal knowledge and encourage critical thinking, as with any course, but also to enable our students dream up meaningful research projects, translate them into logical steps, conduct the research in a professional manner, analyze the data, and write up the project in APA style. We also wish to spark interest in the topics of research papers, and in the intellectual challenge of creating a (...)
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  17. Does Informed Consent to Research Require Comprehension?Gopal Sreenivasan - 2007 - The Proceedings of the Twenty-First World Congress of Philosophy 1:85-93.
    According to the standard view of informed consent, a prospective subject's consent to participate in a research study is invalid if the individual fails to comprehend the information about the study standardly disclosed to him. I argue that this involves three mistakes. First, the standard view confuses an ethical aspiration with a minimum ethical standard. Second, it assigns the entire responsibility for producing comprehension in study participants to the investigators. Most importantly, the standard view requires the termination of many (...)
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  18.  66
    Reasoning: Studies of Human Inference and its Foundations.Jonathan Eric Adler & Lance J. Rips (eds.) - 2008 - New York: Cambridge University Press.
    This interdisciplinary work is a collection of major essays on reasoning: deductive, inductive, abductive, belief revision, defeasible, cross cultural, conversational, and argumentative. They are each oriented toward contemporary empirical studies. The book focuses on foundational issues, including paradoxes, fallacies, and debates about the nature of rationality, the traditional modes of reasoning, as well as counterfactual and causal reasoning. It also includes chapters on the interface between reasoning and other forms of thought. In general, this last set of essays represents (...)
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  19.  59
    Protecting communities in health research from exploitation.Segun Gbadegesin & David Wendler - 2006 - Bioethics 20 (5):248-253.
    Guidelines for health research focus on protecting individual research subjects. It is also vital to protect the communities involved in health research. In particular, a number of studies have been criticized on the grounds that they exploited host communities. The present paper attempts to address these concerns by providing an analysis of community exploitation and, based on this analysis, determining what safeguards are needed to protect communities in health research against exploitation. (edited).
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  20.  54
    Research on ethics in nursing care for older people: A literature review.Riitta Suhonen, Minna Stolt, Veikko Launis & Helena Leino-Kilpi - 2010 - Nursing Ethics 17 (3):337-352.
    The aim of this review was to analyse the empirical studies that focus on ethics in nursing care for older people, scoping the need and areas for further study. A search of the MEDLINE and CINAHL databases (earliest to August 2009) was conducted using the the keywords: ethic* and nursing or care or caring and elderly or aged or older. After a four-stage process, 71 empirical articles were included in the review, with informants ranging from elderly people to relatives, (...)
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  21.  9
    A Guide for Research Supervisors.David Black & Centre for Research Into Human Communication And Learning - 1994
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  22.  55
    Participatory improvement of a template for informed consent documents in biobank research - study results and methodological reflections.Bossert Sabine, Kahrass Hannes, Heinemeyer Ulrike, Prokein Jana & Strech Daniel - 2017 - BMC Medical Ethics 18 (1):78.
    For valid informed consent, it is crucial that patients or research participants fully understand all that their consent entails. Testing and revising informed consent documents with the assistance of their addressees can improve their understandability. In this study we aimed at further developing a method for testing and improving informed consent documents with regard to readability and test-readers’ understanding and reactions. We tested, revised, and retested template informed consent documents for biobank research by means of 11 focus group (...)
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  23.  52
    Disclosing individual genetic results to research participants.Vardit Ravitsky & Benjamin S. Wilfond - 2006 - American Journal of Bioethics 6 (6):8 – 17.
    Investigators and institutional review boards should integrate plans about the appropriate disclosure of individual genetic results when designing research studies. The ethical principles of beneficence, respect, reciprocity, and justice provide justification for routinely offering certain results to research participants. We propose a result-evaluation approach that assesses the expected information and the context of the study in order to decide whether results should be offered. According to this approach, the analytic validity and the clinical utility of a specific (...)
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  24.  80
    Engaging Communities to Strengthen Research Ethics in Low‐Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal K enya.Dorcas M. Kamuya, Vicki Marsh, Francis K. Kombe, P. Wenzel Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):10-20.
    There is wide agreement that community engagement is important for many research types and settings, often including interaction with ‘representatives’ of communities. There is relatively little published experience of community engagement in international research settings, with available information focusing on Community Advisory Boards or Groups (CAB/CAGs), or variants of these, where CAB/G members often advise researchers on behalf of the communities they represent. In this paper we describe a network of community members (‘KEMRI Community Representatives’, or ‘KCRs’) linked (...)
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  25.  23
    A Team Training Field Research Study: Extending a Theory of Team Development.Joan H. Johnston, Henry L. Phillips, Laura M. Milham, Dawn L. Riddle, Lisa N. Townsend, Arwen H. DeCostanza, Debra J. Patton, Katherine R. Cox & Sean M. Fitzhugh - 2019 - Frontiers in Psychology 10.
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  26.  38
    Environmentality in biomedicine: microbiome research and the perspectival body.Joana Formosinho, Adam Bencard & Louise Whiteley - 2022 - Studies in History and Philosophy of Science Part A 91 (C):148-158.
    Microbiome research shows that human health is foundationally intertwined with the ecology of microbial communities living on and in our bodies. This challenges the categorical separation of organisms from environments that has been central to biomedicine, and questions the boundaries between them. Biomedicine is left with an empirical problem: how to understand causal pathways between host health, microbiota and environment? We propose a conceptual tool – environmentality – to think through this problem. Environmentality is the state or quality of (...)
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  27. Advancing Multimodal and Critical Discourse Studies: Interdisciplinary Research Inspired by Theo van Leeuwen’s Social Semiotics.[author unknown] - 2018
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  28.  49
    Healing Without Waging War: Beyond Military Metaphors in Medicine and HIV Cure Research.Jing-Bao Nie, Adam Gilbertson, Malcolm de Roubaix, Ciara Staunton, Anton van Niekerk, Joseph D. Tucker & Stuart Rennie - 2016 - American Journal of Bioethics 16 (10):3-11.
    Military metaphors are pervasive in biomedicine, including HIV research. Rooted in the mind set that regards pathogens as enemies to be defeated, terms such as “shock and kill” have become widely accepted idioms within HIV cure research. Such language and symbolism must be critically examined as they may be especially problematic when used to express scientific ideas within emerging health-related fields. In this article, philosophical analysis and an interdisciplinary literature review utilizing key texts from sociology, anthropology, history, and (...)
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  29. Stoic studies.A. A. Long - 1996 - Berkeley, Calif.: University of California Press.
    For the past three decades A. A. Long has been at the forefront of research in Hellenistic philosophy. In this book he assembles a dozen articles on Stoicism previously published in journals and conference proceedings. The collection is biased in favour of Professor Long's more recent studies of Stoicism and is focused on three themes: the Stoics' interpretation of their intellectual tradition, their ethics and their psychology. The contents of the book reflect the peculiarly holistic and systematic features (...)
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  30.  87
    Children in Medical Research: Access versus Protection.Lainie Friedman Ross - 2006 - Oxford, GB: Oxford University Press.
    This book examines the ethical issues in pediatric medical research. It argues that policies and practices on the participation of children must focus primarily on minimizing risks. It offers specific recommendations to revise Subpart D of the federal regulations to provide greater protection where necessary and remove obstacles that do not provide additional protection but interfere with access. The book is divided into four sections. Section 1 focuses on the issue of access versus protection in pediatric research. Section (...)
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  31.  17
    Biodiversity Studies: Science and Policy.Paul R. Ehrlich & Edward O. Wilson - 1991 - Science 253 (5021):758-762.
    Biodiversity studies comprise the systematic examination of the full array of different kinds of organisms together with the technology by which the diversity can be maintained and used for the benefit of humanity. Current basic research at the species level focuses on the process of species formation, the standing levels of species numbers in various higher taxonomic categories, and the phenomena of hyperdiversity and extinction proneness. The major practical concern is the massive extinction rate now caused by human (...)
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  32.  51
    Using empirical research to formulate normative ethical principles in biomedicine.Mette Ebbesen & Birthe D. Pedersen - 2006 - Medicine, Health Care and Philosophy 10 (1):33-48.
    Bioethical research has tended to focus on theoretical discussion of the principles on which the analysis of ethical issues in biomedicine should be based. But this discussion often seems remote from biomedical practice where researchers and physicians confront ethical problems. On the other hand, published empirical research on the ethical reasoning of health care professionals offer only descriptions of how physicians and nurses actually reason ethically. The question remains whether these descriptions have any normative implications for nurses and (...)
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  33.  21
    Video ethics in educational research involving children: Literature review and critical discussion.Michael A. Peters, E. Jayne White, Tina Besley, Kirsten Locke, Bridgette Redder, Rene Novak, Andrew Gibbons, John O’Neill, Marek Tesar & Sean Sturm - 2021 - Educational Philosophy and Theory 53 (9):863-880.
    Video ethics in educational research involving children is a recent topic that has arisen since the increase in the use of visual mediums in research (such as photovoice and video) especially with the development of new and ubiquitous internet technologies and social media. This paper emerged as an expressed concerned by a group of scholars associated with the new Video Journal of Education and Pedagogy (Brill) that was established in 2016. The paper is the result of a collective (...)
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  34.  19
    Counselling, Research Gaps, and Ethical Considerations Surrounding Pregnancy in Solid Organ Transplant Recipients.Deirdre Sawinski, Steven J. Ralston, Lisa Coscia, Christina L. Klein, Eileen Y. Wang, Paige Porret, Kathleen O’Neill & Ana S. Iltis - 2022 - Journal of Bioethical Inquiry 20 (1):89-99.
    Survival after solid-organ transplantation has improved significantly, and many contemporary transplant recipients are of childbearing potential. There are limited data to guide decision-making surrounding pregnancy after transplantation, variations in clinical practice, and significant knowledge gaps, all of which raise significant ethical issues. Post-transplant pregnancy is associated with an increased risk of maternal and fetal complications. Shared decision-making is a central aspect of patient counselling but is complicated by significant knowledge gaps. Stakeholder interests can be in conflict; exploring these tensions can (...)
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  35.  42
    What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.Rwamahe Rutakumwa, Jantina de Vries, Michael Parker, Paulina Tindana, Oliver Mweemba & Janet Seeley - 2020 - Global Bioethics 31 (1):169-183.
    ABSTRACT Previous research has consistently highlighted the importance of stakeholder engagement in identifying and developing solutions to ethical challenges in genomic research, especially in Africa where such research is relatively new. In this paper, we examine what constitutes good ethical practice in research, from the perspectives of genomic research participants in Uganda. Our study was part of a multi-site qualitative study exploring these issues in Uganda, Ghana and Zambia. We purposively sampled various stakeholders including genomic (...)
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  36.  48
    Critique and negativity: Towards the pluralisation of critique in educational practice, theory and research.Dietrich Benner & Andrea English - 2004 - Journal of Philosophy of Education 38 (3):409–428.
    There are many possible ways to approach the topic of educational theory and critique. One could inquire into the meaning of critical phenomena and subject-matter in practical education and instruction, investigate the various forms of critique with the goal of determining the extent to which they assist in clarifying pedagogical action, or one could ask: ‘What is meant by critical educational research?’ and ‘How do the various approaches to this topic relate to one another?’. This article inquires into the (...)
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  37.  20
    The Relevance of Research Study Phase to Disclosure of Off-Label Drug Availability.Amrutha Baskaran & Robert M. Sade - 2014 - American Journal of Bioethics 14 (4):53-54.
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  38.  38
    Ethical Dilemmas and Ethical Competence in the Daily Work of Research Nurses.A. T. Höglund, G. Helgesson & S. Eriksson - 2010 - Health Care Analysis 18 (3):239-251.
    In spite of the growing interest in nursing ethics, few studies have focused on ethical dilemmas experienced by nurses working with clinical studies as ‘research nurses’. The aim of the present study was to describe and explore ethical dilemmas that Swedish research nurses experience in their day-to-day work. In a qualitative study a purposeful sample of six research nurses from five wards of differing disciplines in four Swedish hospitals was interviewed. The analysis displayed several examples (...)
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  39.  16
    Empirical studies on how ethical recommendations are translated into practice: a cross-section study on scope and study objectives.Daniel Strech, Holger Langhof & Johannes Schwietering - 2023 - BMC Medical Ethics 24 (1):1-8.
    BackgroundEmpirical research can become relevant for bioethics in at least two ways. First, by informing the development or refinement of ethical recommendations. Second, by evaluating how ethical recommendations are translated into practice. This study aims to investigate the scope and objectives of empirical studies evaluating how ethical recommendations are translated into practice. MethodsA sample of the latest 400 publications from four bioethics journals was created and screened. All publications were included if they met one of the following three (...)
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  40.  16
    Social studies instruction for students with mild disabilities: An (updated) progress report.Timothy Lintner & Gerda Kumpiene - 2017 - Journal of Social Studies Research 41 (4):303-310.
    Over the past two decades, there has been a marked increase in the number of students with mild disabilities who receive social studies instruction in the general education classroom. This research uses the seminal 1994 Passe and Beattie study as a comparative referent to examine current instructional strategies used to teach such students. The current study sought to answer: What instructional practices do contemporary general educators use to teach social studies to students with disabilities? And have these (...)
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  41.  86
    Gender studies in post-soviet society: Western frames and cultural differences.Anna Temkina & Elena Zdravomyslova - 2003 - Studies in East European Thought 55 (1):51-61.
    This article is devoted to theexploration of some trends in gender studies incontemporary Russia and is based on ourresearch and teaching in the field over thecourse of seven years. The main concepts ofgender research – gender, feminism,women's subjectivity – were introduced to theRussian public early in 1990s; Russian genderstudies began to develop as a whole due to theapplication of Western concepts and theories.The article examines the growth of genderstudies over the last 10 years, contextualdifferences as well as theoretical (...)
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  42.  43
    Twenty Years of Human Research Ethics Committees in the Baltic States.Vilius Dranseika, Eugenijus Gefenas, Asta Cekanauskaite, Kristina Hug, Signe Mezinska, Eimantas Peicius, Vents Silis, Andres Soosaar & Martin Strosberg - 2011 - Developing World Bioethics 11 (1):48-54.
    Two decades have passed since the first attempts were made to establish systematic ethical review of human research in the Baltic States. Legally and institutionally much has changed. In this paper we provide an historical and structural overview of ethical review of human research and identify some problems related to the role of ethical review in establishing quality research environment in these countries. Problems connected to (a) public availability of information, (b) management of conflicts of interest, (c) (...)
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  43.  10
    Misrepresenting “Usual Care” in Research: An Ethical and Scientific Error.Ruth Macklin & Charles Natanson - 2020 - American Journal of Bioethics 20 (1):31-39.
    ABSTRACTComparative effectiveness studies, referred to here as “usual-care” trials, seek to compare current medical practices for the same medical condition. Such studies are presumed to be safe and involve only minimal risks. However, that presumption may be flawed if the trial design contains “unusual” care, resulting in potential risks to subjects and inaccurately informed consent. Three case studies described here did not rely on clinical evidence to ascertain contemporaneous practice. As a result, the investigators drew inaccurate conclusions, (...)
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  44.  27
    The Ethics of Contacting Family Members of a Subject in a Genetic Research Study to Return Results for an Autosomal Dominant Syndrome.Holly A. Taylor & Benjamin S. Wilfond - 2013 - American Journal of Bioethics 13 (10):61 - 61.
    This case explores the ethical landscape around recontacting a subject's relatives to return genetic research results when the informed consent form signed by the original cohort of subjects is silent on whether investigators may share new information with the research subject's family. As a result of rapid advances in genetic technology, methods to identify genetic markers can mature during the life course of a study. In this case, the investigators identified the genetic mutation responsible for the disorder after (...)
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  45.  20
    Research ethics courses as a vaccination against a toxic research environment or culture.Nicole Shu Ling Yeo-Teh & Bor Luen Tang - 2021 - Research Ethics 17 (1):55-65.
    Hofmann and Holm’s recent survey on issues of research misconduct with PhD graduates culminated with a notable conclusion by the authors: ‘ Scientific misconduct seems to be an environmental issue as much as a matter of personal integrity’. Here, we re-emphasise the usefulness of an education-based countermeasure against toxic research environments or cultures that promote unethical practices amongst the younger researchers. We posit that an adequately conducted course in research ethics and integrity, with a good dose of (...)
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  46.  19
    An exploration of social justice intent in photovoice research studies from 2008 to 2013.Marie-Anne Sanon, Robin A. Evans-Agnew & Doris M. Boutain - 2014 - Nursing Inquiry 21 (3):212-226.
    In an age where digital images are omnipresent, the use of participant photography in qualitative research has become accessible and commonplace. Yet, scant attention is paid to the social justice impact of photovoice amongst studies that have used this innovative method as a way to promote social justice. There is a need to review this method to understand its contributions and possibilities. This literature review of photovoice research studies (i) explores whether authors implicitly or explicitly related (...)
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  47.  21
    Erosion of informed consent in U.S. research.Lois Shepherd & Ruth Macklin - 2018 - Bioethics 33 (1):4-12.
    This paper evaluates four recent randomized clinical trials in which the informed consent of participants was either not sought at all, or else was conducted with critical information missing from the consent documents. As these studies have been taking place, various proposals to conduct randomized clinical trials without consent have been appearing in the medical literature. Some of the explanations offered for why it is appropriate to bypass consent or disclosure requirements appear to represent a fundamental misunderstanding of applicable (...)
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    Ethical issues in multilingual research situations: a focus on interview-based research.Natalie Schembri & Alma Jahić Jašić - 2022 - Research Ethics 18 (3):210-225.
    Research Ethics, Volume 18, Issue 3, Page 210-225, July 2022. Interview-based research in multilingual situations can present researchers with specific ethical challenges relating to language-based power play, data handling and presentation. Studies indicate favouring the L1 as an interviewing language may produce better quality data, but external pressures can favour English as the dominant research language. This article examines researcher perceptions and experiences of the ethical consequences of language choice and the practical issues involved. Interviews were (...)
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  49. Canadian Research Ethics Boards, MRI Research Risks, and MRI Risk Classification.Jennifer Marshall & Michael Hadskis - 2009 - IRB: Ethics & Human Research 31 (4):9-15.
    In order to illuminate the potential harms of MRI research, we present data obtained by examining MRI research proposal files that had been submitted for review to several Canadian Research Ethics Boards. The data reveal that REB review of the studies contained omissions, considerable variability, and sometimes confusion regarding MRI research risks and risk classification. If our findings reflect the general state of REB review of MRI research in Canada and elsewhere, there is a (...)
     
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  50.  41
    The quality of informed consent in a clinical research study in Thailand.Christine Pace, Ezekiel J. Emanuel, Theshinee Chuenyam, Chris Duncombe, Judith D. Bebchuk, David Wendler, Jorge A. Tavel, Laura A. McNay, Praphan Phanuphak & Heidi P. Forster - 2004 - IRB: Ethics & Human Research 27 (1):9-17.
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