Results for 'Quality of Life Research'

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  1.  43
    Towards Self-Determination in Quality of Life Research: A Dialogic Approach.Leah McClimans - 2010 - Medicine, Health Care and Philosophy 13 (1):67-76.
    Health-related quality of life measures aim to assess patients’ subjective experience in order to gauge an increasingly wide variety of health care issues such as patient needs; satisfaction; side effects; quality of care; disease progression and cost effectiveness. Their popularity is undoubtedly due to a larger initiative to provide patient-centered care. The use of patient perspectives to guide health care improvements and spending is rooted in the idea that we must respect patients as self-determining agents. In this (...)
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  2.  33
    Can They Suffer? The Ethical Priority of Quality of Life Research in Disorders of Consciousness.L. Syd M. Johnson - 2013 - Bioethica Forum 6 (4):129-136.
    There is ongoing ethical and legal debate about withdrawing life sup- port for patients with disorders of consciousness (DOCs). Frequently fu- eling the debate are implicit assumptions about the value of life in a state of impaired consciousness, and persistent uncertainty about the quality of life (QoL) of these persons. Yet there are no validated methods for assessing QoL in this population, and a significant obstacle to doing so is their inability to communicate. Recent neuroscientific discoveries (...)
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  3. Quality of Life - Three Competing Views.Peter Sondøe - 1999 - Ethical Theory and Moral Practice 2 (1):11-23.
    The aim of the present paper is to describe three different attempts, which have been made by philosophers, to define what quality of life is; and to spell out some of the difficulties that faces each definition. One, Perfectionism, focuses on the capacities that human beings possess: capacities for friendship, knowledge and creative activity, for instance. It says that the good life consists in the development and use of these capacities. Another account, the Preference Theory, urges that (...)
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  4.  8
    Public Views About Quality of Life and Treatment Withdrawal in Infants: Limitations and Directions for Future Research.Ryan H. Nelson - 2020 - Journal of Medical Ethics 46 (1):20-21.
    Work done within the realm of what is sometimes called ‘descriptive ethics’ brings two questions readily to mind: How can empirical findings, in general, inform normative debates? and How can these empirical findings, in particular, inform the normative debate at hand? Brick et al 1 confront these questions in their novel investigation of public views about lives worth living and the permissibility of withdrawing life-sustaining treatment from critically ill infants. Mindful of the is-ought gap, the authors suggest modestly that (...)
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  5.  26
    Between Quality of Life and Hope. Attitudes and Beliefs of Muslim Women Toward Withholding and Withdrawing Life-Sustaining Treatments.Chaïma Ahaddour, Stef Van den Branden & Bert Broeckaert - 2018 - Medicine, Health Care and Philosophy 21 (3):347-361.
    The technological advances in medicine, including prolongation of life, have constituted several dilemmas at the end of life. In the context of the Belgian debates on end-of-life care, the views of Muslim women remain understudied. The aim of this article is fourfold. First, we seek to describe the beliefs and attitudes of middle-aged and elderly Moroccan Muslim women toward withholding and withdrawing life-sustaining treatments. Second, we aim to identify whether differences are observable among middle-aged and elderly (...)
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  6.  2
    Encyclopedia of Quality of Life and Well-Being Research.Alex C. Michalos (ed.) - 2014 - Springer.
    The aim of this encyclopedia is to provide a comprehensive reference work on scientific and other scholarly research on the quality of life, including health-related quality of life research or also called patient-reported outcomes research. Since the 1960s two overlapping but fairly distinct research communities and traditions have developed concerning ideas about the quality of life, individually and collectively, one with a fairly narrow focus on health-related issues and one with (...)
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  7.  53
    Quality of Life is a Process Not an Outcome.Leah McClimans & John P. Browne - 2012 - Theoretical Medicine and Bioethics 33 (4):279-292.
    Quality improvement mechanisms increasingly use outcome measures to evaluate health care providers. This move toward outcome measures is a radical departure from the traditional focus on process measures. More radical still is the proposal to shift from relatively simple and proximal measures of outcome, such as mortality, to complex outcomes, such as quality of life. While the practical, scientific, and ethical issues associated with the use of outcomes such as mortality and morbidity to compare health care providers (...)
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  8.  43
    Quality of Life, Health and Happiness.Lennart Nordenfelt - unknown
    The basic work for this book was carried out during the spring of 1989 in Edinburgh, where I had been granted a research position at The Institute for Advanced Studies in the Humanities. I should like to express here my indebtedness to the Institute for the opportunity thus afforded me. I should also like to say how very grateful I am for the stimulating conversations I had there with Professor Timothy Sprigge and Dr. Elizabeth Telfer. Dr. Telfers’s own treatise (...)
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  9.  32
    The Impossibility and the Necessity of Quality of Life Research.E. Haavi Morreim - 1992 - Bioethics 6 (3):219–232.
  10.  41
    Consciousness and Quality of Life Research.Shepherd Joshua - 2016 - American Journal of Bioethics Neuroscience 7 (1):54-55.
  11. Quality of Life Assessments, Cognitive Reliability, and Procreative Responsibility.Jason Marsh - 2014 - Philosophy and Phenomenological Research 89 (2):436-466.
    Recent work in the psychology of happiness has led some to conclude that we are unreliable assessors of our lives and that skepticism about whether we are happy is a genuine possibility worth taking very seriously. I argue that such claims, if true, have worrisome implications for procreation. In particular, they show that skepticism about whether many if not most people are well positioned to create persons is a genuine possibility worth taking very seriously. This skeptical worry should not be (...)
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  12. Encyclopedia of Quality of Life Research.Alex Michalos (ed.) - forthcoming - Springer.
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  13.  3
    Quality of Life in Children Brought Up by Married and Cohabiting Couples.Miroslav Popper, Ivan Lukšík & Martin Kanovský - 2020 - Human Affairs 30 (1):47-59.
    Under the Second Demographic Transition, alternative forms of living arrangement are on the rise. The aim of this article is to compare quality of life in children living in married and cohabiting families. We present the results of representative research conducted in Slovakia in 2018. We tested whether children brought up in traditional married families had better material resources and healthcare, fewer behavioural problems, better peer relations and spent more leisure time with their parents than children brought (...)
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  14. The Ableism of Quality of Life Judgments in Disorders of Consciousness: Who Bears Epistemic Responsibility?Joel Michael Reynolds - 2016 - American Journal of Bioethics Neuroscience 7 (1):59-61.
    In this peer commentary on L. Syd M. Johnson’s “Inference and Inductive Risk in Disorders of Consciousness,” I argue for the necessity of disability education as an integral component of decision-making processes concerning patients with DOC and, mutatis mutandis, all patients with disabilities. The sole qualification Johnson places on such decision-making is that stakeholders are educated about and “understand the uncertainties of diagnosis and prognosis.” Drawing upon research in philosophy of disability, social epistemology, and health psychology, I argue that (...)
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  15.  16
    Research Letter: What Are Quality of Life Improvements Measuring and Do They Last? An Explanatory Model.Michael J. Long - 1999 - Journal of Evaluation in Clinical Practice 5 (3):355-359.
  16.  9
    Quality of Life: Erosions and Opportunities Under Managed Care.E. Haavi Morreim - 2000 - Journal of Law, Medicine and Ethics 28 (2):144-158.
    In recent years a number of commentators have discussed the importance of measuring quality of life in health care. We want to know whether an intervention will help people to live better, not just longer, and whether some treatments cause more trouble than they are worth. New technologies promise wondrous benefits. But when millions of people have no insured access to health care, and when many others face increasingly stringent limits on care, technologies’ high costs require us to (...)
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  17. The Concept of Quality of Life.Greg Bognar - 2005 - Social Theory and Practice 31 (4):561-580.
    Quality of life research aims to develop and apply indices for the measurement of human welfare. It is an increasingly important field within the social sciences and its results are an important resource for policy making and evaluation. This paper explores the conceptual background of quality of life research. It focuses on its single most important issue: the controversy between the use of ``objective social indicators'' and the use of people's ``subjective evaluations'' as proxies (...)
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  18.  15
    Quality of Life: Erosions and Opportunities Under Managed Care.E. Haavi Morreim - 2000 - Journal of Law, Medicine and Ethics 28 (2):144-158.
    In recent years a number of commentators have discussed the importance of measuring quality of life in health care. We want to know whether an intervention will help people to live better, not just longer, and whether some treatments cause more trouble than they are worth. New technologies promise wondrous benefits. But when millions of people have no insured access to health care, and when many others face increasingly stringent limits on care, technologies’ high costs require us to (...)
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  19.  4
    The Impossibility and the Necessity of Quality of Life Research.E. Haavi Morreim - 1992 - Bioethics 6 (3):219-232.
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  20.  30
    Felicitometric Hermeneutics: Interpreting Quality of Life Measurements.Charles J. Kowalski, Jan L. Bernheim, Nancy Adair Birk & Peter Theuns - 2012 - Theoretical Medicine and Bioethics 33 (3):207-220.
    The use of quality of life (QOL) outcomes in clinical trials is increasing as a number of practical, ethical, methodological, and regulatory reasons for their use have become apparent. It is important, then, that QOL measurements and differences between QOL scores be readily interpretable. We study interpretation in two contexts: when determining QOL and when basing decisions on QOL differences. We consider both clinical situations involving individual patients and research contexts, e.g., randomized clinical trials, involving groups of (...)
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  21.  7
    Narrative Methods for Assessing “Quality of Life” in Hand Transplantation: Five Case Studies with Bioethical Commentary.Emily R. Herrington & Lisa S. Parker - 2019 - Medicine, Health Care and Philosophy 22 (3):407-425.
    Despite having paved the way for face, womb and penis transplants, hand transplantation today remains a small hybrid of reconstructive microsurgery and transplant immunology. An exceptionally limited patient population internationally complicates medical researchers’ efforts to parse outcomes “objectively.” Presumed functional and psychosocial benefits of gaining a transplant hand must be weighed in both patient decisions and bioethical discussions against the difficulty of adhering to post-transplant medications, the physical demands of hand transplant recovery on the patient, and the serious long-term health (...)
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  22.  46
    Creation Ethics: Reproduction, Genetics, and Quality of Life.David DeGrazia - 2012 - Oup Usa.
    The overarching aim of this book is to illuminate a broad array of issues connected with reproduction and ethics through the lens of moral philosophy. With novel frameworks for understanding prenatal moral status and human identity, DeGrazia sheds new light on the ethics of abortion and embryo research, genetic enhancement and prenatal genetic interventions, procreation and parenting, and decisions that affect the quality of life of future generations.
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  23.  13
    Philosophical Aspects of Social Indicators and Quality of Life Research - Some Tentative Conclusions.Werner Callebaut - 1980 - Philosophica 26.
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  24. Measuring the Quality of Life: Why, How and What?Matti Häyry - 1991 - Theoretical Medicine and Bioethics 12 (2):17.
    In this paper three questions concerning quality of life in medicine and health care are analysed and discussed: the motives for measuring the quality of life, the methods used in assessing it, and the definition of the concept. The purposes of the study are to find an ethically acceptable motive for measuring the quality of life; to identify the methodological advantages and disadvantages of the most prevalent current methods of measurement; and to present an (...)
     
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  25.  8
    Quality of Life and Value Assessment in Health Care.Alicia Hall - 2020 - Health Care Analysis 28 (1):45-61.
    Proposals for health care cost containment emphasize high-value care as a way to control spending without compromising quality. When used in this context, ‘value’ refers to outcomes in relation to cost. To determine where health spending yields the most value, it is necessary to compare the benefits provided by different treatments. While many studies focus narrowly on health gains in assessing value, the notion of benefit is sometimes broadened to include overall quality of life. This paper explores (...)
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  26.  8
    The Quality of Life, Meaning in Life, Positive Orientation to Life and Gratitude of Catholic Seminarians in Poland: A Comparative Analysis.Jacek Prusak, Krzysztof Kwapis, Barbara Pilecka, Agnieszka Chemperek, Agnieszka Krawczyk, Marcin Jabłoński & Krzysztof Nowakowski - 2021 - Archive for the Psychology of Religion 43 (1):78-94.
    The aim of the article is to examine differences in the quality of life as well as gratitude, meaning in life and positive orientation to life between diocesan and religious seminarians and secular students. The influence of religiosity on quality of life and subjective well-being is the subject of numerous studies, but seminarians have rarely been included in them. The present research was carried out for the first time with a group of diocesan (...)
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  27.  37
    Quality of Life Assessment and Human Dignity: Against the Incompatibility-Assumption.Michael Quante - 2005 - Poiesis and Praxis 3 (3):168-180.
    Only in recent years have the German bioethical and biopolitical debates begun to decline due to rationalization concerning stem cell research or the pre-implantation diagnosis related to the ethical status of the beginning of human life. This is due to the fact that in these contexts we have to ask whether quality of life assessment is ethically acceptable in principle. A fundamental premise in the current debate is that quality of life assessment and human (...)
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  28.  37
    Quality of Ethical Guidelines and Ethical Content in Clinical Guidelines: The Example of End-of-Life Decision-Making.D. Strech & J. Schildmann - 2011 - Journal of Medical Ethics 37 (7):390-396.
    Background While there are many guidelines on how to make ethical decisions at the end of life, there is little evidence regarding the quality of this sort of ethical guidelines. Objectives First, this study aims to demonstrate the conceptual transferability of the Appraisal of Guidelines for Research and Evaluation (AGREE) instrument for the quality assessment of ethical guidelines. Second, it aims to illustrate the status quo of the quality of guidelines on end-of-life decision-making by (...)
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  29.  7
    Quality of Life and Proactive Coping with Stress in a Group of Middle Adulthood Women with Type 2 Diabetes.Dorota Kalka - 2016 - Polish Psychological Bulletin 47 (3):327-337.
    In middle adulthood the intensity of stress is significantly higher than in the preceding developmental period. This stress is particularly significant in the case of chronically ill women, including those with type 2 diabetes. In this group, the disease-related stress intensifies the difficulties generated by the decrease of age-related organismic resources and in many instances impairs the quality of life. Therefore, an ability to cope with difficult situations is of crucial importance. The aim of the research was (...)
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  30.  7
    The Effect of Stress, Anxiety and Burnout Levels of Healthcare Professionals Caring for COVID-19 Patients on Their Quality of Life.Nuriye Çelmeçe & Mustafa Menekay - 2020 - Frontiers in Psychology 11.
    BackgroundThe healthcare system is among the institutions operating under the most challenging conditions during the period of outbreaks like pandemic which affects the whole world and leads to deaths. During pandemics that affect the society in terms of socioeconomic and mental aspects, the mental health of healthcare teams, who undertake a heavy social and work load, is affected by this situation.AimThis research was conducted with the aim of determining the effect of stress, anxiety, and burnout levels of healthcare professionals (...)
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  31.  44
    Strategic Marketing Planning Guided by the Quality-of-Life (QOL) Concept.M. Joseph Sirgy - 1996 - Journal of Business Ethics 15 (3):241 - 259.
    An emerging ethical philosophy in marketing is developing. This philosophy is based on quality-of-life studies which are becoming an important topic of research in behavioral and social sciences (basic and applied research). This paper addresses the QOL orientation in marketing from a decision-making perspective. Specifically, this paper shows how marketers can engage in strategic marketing planning guided by the QOL concept.
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  32.  1
    Getting Through COVID-19: The Pandemic’s Impact on the Psychology of Sustainability, Quality of Life, and the Global Economy – A Systematic Review.Mogeda El Sayed El Keshky, Sawzan Sadaqa Basyouni & Abeer Mohammad Al Sabban - 2020 - Frontiers in Psychology 11.
    The COVID-19 pandemic may affect the world severely in terms of quality of life, political, environmental, and economic sustainable development, and the global economy. Its impact is attested to by the number of research studies on it. The main aim of this study is to evaluate the impact of COVID-19 on the psychology of sustainability, on sustainable development, and on the global economy. A computerized literature search was performed, and journal articles from authentic sources were extracted, including (...)
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  33. Quality of Life as a Philosophically Interesting Concept.F. Peonidis - 2006 - Skepsis: A Journal for Philosophy and Interdisciplinary Research 17 (1-2).
     
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  34. Improving Quality of Life in Breast Cancer Survivors: The Cost-Effectiveness of Mindfulness Based Stress Reduction.C. A. Lengacher, H. Jim, R. Reich, E. Pracht, B. Craig, S. Ramesar, I. Carranza, C. Paterson, P. Budhrani & L. Millette - 2012 - IRB: Ethics & Human Research 1:01A2.
     
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  35.  2
    Perspectives on Quality of Life.Peter Draper - 1997 - Routledge.
    One of the fundamental aims of nursing is to safeguard or promote patients' "quality of life." Perspectives on Quality of Life examines existing ways of defining the concept and argues that nurses need to adopt a fresh approach, which more accurately reflects patients' concerns and helps them to develop practical ways of promoting the well-being of people in their care. Part One provides an analysis of statistical approaches to quality of life, including social indicators, (...)
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  36.  16
    Explosion of Needs, Quality of Life and the Ecology Problem.Friedrich Rapp - 1995 - Techné: Research in Philosophy and Technology 1 (1/2):23-26.
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  37.  32
    A Mixed Methods Research Study of Parental Perception of Physical Activity and Quality of Life of Children Under Home Lock Down in the COVID-19 Pandemic.Gabriela López-Aymes, María de los Dolores Valadez, Elena Rodríguez-Naveiras, Doris Castellanos-Simons, Triana Aguirre & África Borges - 2021 - Frontiers in Psychology 12.
    Household confinement due to the rapid spread of the pandemic caused by COVID-19 has brought very significant changes, such as the forced stay-at-home of children due to the closure of schools. This has meant drastic changes in the organization of daily life and restrictions on their activities, including exercise, which could affect the quality of life of the children due to its importance. In order to study the relationship between physical activity and psychological well-being of minors, a (...)
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  38. One-Year Quality of Life Trends in Early-Stage Lung Cancer Patients After Lobectomy.Chiara Marzorati, Ketti Mazzocco, Dario Monzani, Francesca Pavan, Monica Casiraghi, Lorenzo Spaggiari, Massimo Monturano & Gabriella Pravettoni - 2020 - Frontiers in Psychology 11.
    Objective: Quality of Life is an important predictor of patient's recovery and survival in lung cancer patients. The aim of the present study is to identify 1-year trends of lung cancer patients' QoL after robot-assisted or traditional lobectomy and investigate whether clinical and sociodemographic variables may predict these trends.Methods: An Italian sample of 176 lung cancer patients undergoing lobectomy completed the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire—Core 30 at the (...)
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  39.  5
    Health Enhancing Coping as a Mediator in Relationships of Positive Emotionality and Cognitive Curiosity with Quality of Life Among Type 2 Diabetes Patients.Monika Pawłowska & Dorota Kalka - 2015 - Polish Psychological Bulletin 46 (3):362-375.
    The number of people suffering from type 2 diabetes has been growing recently. This chronic disease is connected with lower perceived quality of life and experiencing a lot of stressful situations. Some of these situations can be anticipated. Thus, it is possible to prepare oneself for future difficult situations by using proactive coping strategies. The aim of this research was to verify the level of satisfaction with various areas of life, the frequency of use of proactive (...)
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  40.  4
    The Fragment of Research the Quality of Life and Professional Burnout of Doctors in Children's Polyclinics in Volgograd.L. P. Slivina, M. E. Morozov, A. A. Khaydukova, E. I. Kalinchenko & I. V. Fedotova - 2020 - Bioethics 26 (12):52-57.
    The level of medical care to patients and the success of the implementation of the national project "Health" depend on the health status and doctor's professionalism. Modern healthcare reform is being implemented by optimizing costs, merging medical organizations, closing ineffective hospitals, expanding the use of high-tech care and informatization of the doctor's activities. All this makes it necessary to assess the health of doctors. Scientists have studied the quality of life and identified the professional burnout of doctors in (...)
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  41.  25
    Democracy and Quality of Life in Asian Societies.Shinya Sasaoka & Katsunori Seki - 2011 - Japanese Journal of Political Science 12 (3):343-357.
    This article examines whether democracy affects quality of life. Scholars have conducted surveys to investigate whether democracy is likely to lead to good quality of life. There are two contested views to the relationship: some suggest that democracy has a positive causal effect on quality of life, whereas others contend that democracy does not play such a role. Previous findings are supported by cross-national statistical analysis with aggregated survey data. However, aggregated survey data may (...)
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  42.  3
    Measuring the Quality of Life in Forensic Psychiatric Hospitals.Michael Büsselmann, Larissa Titze, Maximilian Lutz, Manuela Dudeck & Judith Streb - 2021 - Frontiers in Psychology 12.
    Background: In Germany, a large proportion of mentally ill offenders spends many years in a forensic psychiatric hospital. To ensure that the highly restrictive living conditions in these closed institutions meet patient needs, research must assess and analyze patient quality of life. For this purpose, we adapted the Measuring the Quality of Prison Life questionnaire to measure the quality of life in forensic psychiatric hospitals from the patient perspective. This study aimed to assess (...)
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  43.  1
    Dancing With Health: Quality of Life and Physical Improvements From an EU Collaborative Dance Programme With Women Following Breast Cancer Treatment.Vicky Karkou, Irene Dudley-Swarbrick, Jennifer Starkey, Ailsa Parsons, Supritha Aithal, Joanna Omylinska-Thurston, Helena M. Verkooijen, Rosalie van den Boogaard, Yoanna Dochevska, Stefka Djobova, Ivaylo Zdravkov, Ivelina Dimitrova, Aldona Moceviciene, Adriana Bonifacino, Alexis Matua Asumi, Dolores Forgione, Andrea Ferrari, Elisa Grazioli, Claudia Cerulli, Eliana Tranchita, Massimo Sacchetti & Attilio Parisi - 2021 - Frontiers in Psychology 12.
    Background: Women's health has received renewed attention in the last few years including health rehabilitation options for women affected by breast cancer. Dancing has often been regarded as one attractive option for supporting women's well-being and health, but research with women recovering from breast cancer is still in its infancy. Dancing with Health is multi-site pilot study that aimed to evaluate a dance programme for women in recovery from breast cancer across five European countries.Methods: A standardized 32 h dance (...)
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  44. Philosophical Aspects of the Quality of Life.M. Nemcekova - 2004 - Filozofia 59 (9):665-674.
    The subject of the paper is the philosophical aspects of the quality of life. Although in philosophical terminology this notion is not used very often, the question “What is a good happy and high-quality human life?” is one of the earliest in the anthropological philosophy. Philosophical questions concerning this problem might therefore be inspiring, and determining for the theoretical and methodological orientations of the researches in this field. The author approaches the quality of life (...)
     
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  45.  56
    New Media and the Quality of Life.Philip Brey - 1997 - Techné: Research in Philosophy and Technology 3 (1):4-18.
    In this paper I evaluate the implications of contemporary information and communication media for the quality of life, including both the new media from the digital revolution and the older media that remain in use. My evaluation of contemporary media proceeds in three parts. First I discuss the benefits of contemporary media, with special emphasis given to their immediate functional benefits. I then discuss four potential threats posed by contemporary media. In a final section I examine the future (...)
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  46.  1
    Analysis Of Quality Of Life Of Dialysis Patients (Male And Female) With Kidney Disease.Aqeel Haider, Nasreen Aslam Shah & Muhammad Shahid - 2020 - Pakistan Journal of Gender Studies 20 (1):1-20.
    Focus of the investigation is to get some answers concerning the kidney illness and its effects on the everyday lives of the patients. Mostly patients don't think about the causes and how this illness is influencing and hauling them to finish their life step by step, so this examination will be useful to comprehend the Kidney sicknesses and financial and mental, effect of dialysis patients further to make sense of pretty much all that. Any harm which disturbs the roles (...)
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  47.  38
    Principles and Problems in the Assessment of Quality of Life in Health Care.Ray Fitzpatrick - 1999 - Ethical Theory and Moral Practice 2 (1):37-46.
    A remarkable surge in efforts to assess the quality of life of patients has occurred in recent years in medical research. Philosophical discussions of these developments have focused, on the one hand, on epistemological reservations about the plausibility of measuring quality of life and, on the other hand, on moral and ethical qualms about the meaning of life conveyed in such assessments. Whilst providing an important note of caution, such critiques fail to recognise two (...)
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  48.  21
    Assessment of Cognition and Quality of Life in Non-Hodgkin’s Lymphoma Patients One Year Post-Treatment.Pooja Gupta, Sakshi Mittal, Nidhi B. Agarwal & Rizwana Parveen - 2017 - Journal of Clinical Research and Bioethics 8 (3).
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  49.  5
    Effects of Teleassistance on the Quality of Life of People With Rare Neuromuscular Diseases According to Their Degree of Disability.Oscar Martínez, Imanol Amayra, Juan Francisco López-Paz, Esther Lázaro, Patricia Caballero, Irune García, Alicia Aurora Rodríguez, Maitane García, Paula María Luna, Paula Pérez-Núñez, Jaume Barrera, Nicole Passi, Sarah Berrocoso, Manuel Pérez & Mohammad Al-Rashaida - 2021 - Frontiers in Psychology 12.
    Rare neuromuscular diseases are a group of pathologies characterized by a progressive loss of muscular strength, atrophy, fatigue, and other muscle-related symptoms, which affect quality of life levels. The low prevalence, high geographical dispersion and disability of these individuals involve difficulties in accessing health and social care services. Teleassistance is presented as a useful tool to perform psychosocial interventions in these situations. The main aim of this research is to assess the effects of a teleassistance psychosocial program (...)
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  50.  99
    Utilitarianism and the Measurement and Aggregation of Quality-Adjusted Life Years.Paul Dolan - 2001 - Health Care Analysis 9 (1):65-76.
    It is widely accepted that one of the main objectives of government expenditure on health care is to generate health. Since health is a function of both length of life and quality of life, the quality-adjusted life-year (QALY) has been developed in an attempt to combine the value of these attributes into a single index number. The QALY approach - and particularly the decision rule that healthcare resources should be allocated so as to maximise the (...)
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