Results for 'Mary A. Majumder'

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  1.  70
    The Role of Participants in a Medical Information Commons.Mary A. Majumder, Juli M. Bollinger, Angela G. Villanueva, Patricia A. Deverka & Barbara A. Koenig - 2019 - Journal of Law, Medicine and Ethics 47 (1):51-61.
    Meaningful participant engagement has been identified as a key contributor to the success of efforts to share data via a “Medical Information Commons”. We present findings from expert stakeholder interviews aimed at understanding barriers to engagement and the appropriate role of MIC participants. Although most interviewees supported engagement, they distinguished between individual versus collective forms. They also noted challenges including representation and perceived inefficiency, prompting reflection on political aspects of engagement and efficiency concerns.
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  2.  10
    Data Sharing in the Context of Health-Related Citizen Science.Mary A. Majumder & Amy L. McGuire - 2020 - Journal of Law, Medicine and Ethics 48 (S1):167-177.
    As citizen science expands, questions arise regarding the applicability of norms and policies created in the context of conventional science. This article focuses on data sharing in the conduct of health-related citizen science, asking whether citizen scientists have obligations to share data and publish findings on par with the obligations of professional scientists. We conclude that there are good reasons for supporting citizen scientists in sharing data and publishing findings, and we applaud recent efforts to facilitate data sharing. At the (...)
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  3.  15
    Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation.Mary A. Majumder, Matthew L. Blank, Janis Geary, Juli M. Bollinger, Christi J. Guerrini, Jill Oliver Robinson, Isabel Canfield, Robert Cook-Deegan & Amy McGuire - 2021 - J. Pers. Med 7 (11):646.
    Understanding the clinical significance of variants associated with hereditary cancer risk requires access to a pooled data resource or network of resources—a “cancer gene variant commons”—incorporating representative, well-characterized genetic data, metadata, and, for some purposes, pathways to case-level data. Several initiatives have invested significant resources into collecting and sharing cancer gene variant data, but further progress hinges on identifying and addressing unresolved policy issues. This commentary provides insights from a modified policy Delphi process involving experts from a range of stakeholder (...)
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  4.  14
    National Institutes of Mental Health Data Archive: Privacy, Consent, and Diversity Considerations and Options for Improvement.Scott M. Lee & Mary A. Majumder - forthcoming - American Journal of Bioethics Neuroscience:1-7.
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  5.  69
    Introduction: Sharing Data in a Medical Information Commons.Amy L. McGuire, Mary A. Majumder, Angela G. Villanueva, Jessica Bardill, Juli M. Bollinger, Eric Boerwinkle, Tania Bubela, Patricia A. Deverka, Barbara J. Evans, Nanibaa' A. Garrison, David Glazer, Melissa M. Goldstein, Henry T. Greely, Scott D. Kahn, Bartha M. Knoppers, Barbara A. Koenig, J. Mark Lambright, John E. Mattison, Christopher O'Donnell, Arti K. Rai, Laura L. Rodriguez, Tania Simoncelli, Sharon F. Terry, Adrian M. Thorogood, Michael S. Watson, John T. Wilbanks & Robert Cook-Deegan - 2019 - Journal of Law, Medicine and Ethics 47 (1):12-20.
    Drawing on a landscape analysis of existing data-sharing initiatives, in-depth interviews with expert stakeholders, and public deliberations with community advisory panels across the U.S., we describe features of the evolving medical information commons. We identify participant-centricity and trustworthiness as the most important features of an MIC and discuss the implications for those seeking to create a sustainable, useful, and widely available collection of linked resources for research and other purposes.
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  6.  38
    Future Directions for Oversight of Stem Cell Research in the United States.Cynthia B. Cohen & Mary A. Majumder - 2009 - Kennedy Institute of Ethics Journal 19 (1):79-103.
    In lieu of an abstract, here is a brief excerpt of the content:Future Directions for Oversight of Stem Cell Research in the United StatesCynthia B. Cohen (bio) and Mary A. Majumder (bio)Human pluripotent stem cell research, meaning research into cells that can multiply indefinitely and differentiate into almost all the cells of the body, has become a minefield in which science, ethics, and politics have collided over the last decade in the United States. President Barack Obama entered this (...)
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  7. Future Directions for Oversight of Stem Cell Research in the United States: An Update.Cynthia B. Cohen & Mary A. Majumder - 2009 - Kennedy Institute of Ethics Journal 19 (2):195-200.
    In lieu of an abstract, here is a brief excerpt of the content:Future Directions for Oversight of Stem Cell Research in the United States: An UpdateMary A. Majumder (bio) and Cynthia B. Cohen (bio)On 9 March 2009, President Barack Obama (2009a) signed an executive order revoking the statement issued by President George W. Bush during a televised speech in August 2001, in which the latter had sharply restricted the scope of federally funded human embryonic stem cell (hESC) research to (...)
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  8.  14
    Learning Health System — Moving from Ethical Frameworks to Practical Implementation.Stephanie R. Morain, Mary A. Majumder & Amy L. McGuire - 2019 - Journal of Law, Medicine and Ethics 47 (3):454-458.
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  9.  26
    Ethical and Legal Challenges Associated with Public Molecular Autopsies.Quianta L. Moore, Mary A. Majumder, Lindsey K. Rutherford & Amy L. McGuire - 2016 - Journal of Law, Medicine and Ethics 44 (2):309-318.
    There is a national movement supporting the retention and use of bio-specimens from deceased individuals for the purpose of genetic testing. This manuscript discusses the significance of postmortem genetic testing in the context of death determination by medical examiners. We highlight distinctive concerns that are raised in the areas of consent, confidentiality, and return of results when genetic testing is performed as part of a public molecular autopsy. We believe our manuscript will contribute to the development of a robust ethical (...)
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  10.  38
    The “Permanent” Patient Problem.Courtenay R. Bruce & Mary A. Majumder - 2014 - Journal of Law, Medicine and Ethics 42 (1):88-92.
    Patients who enter the health care system for acute care may become “permanent” patients of the hospital when a lack of resources precludes discharge to the next level of post-acute care. Legal, professional, and ethical norms prohibit physician and acute care hospital “dumping” of these patients. However, limitless use of hospital resources for indefinite stays is untenable. In the absence of hospital policy addressing this specific issue, the availability of financial support will be determined by health care professionals' willingness to (...)
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  11.  29
    The “Permanent” Patient Problem.Courtenay R. Bruce & Mary A. Majumder - 2014 - Journal of Law, Medicine and Ethics 42 (1):88-92.
    Patients who enter the health care system for acute care may become “permanent” patients of the hospital when a lack of resources precludes discharge to the next level of post-acute care. The care of these patients contributes to the rising costs of health care and will remain largely unaffected by the Affordable Care Act. For example, some resources may be available for treatment of undocumented persons, but Medicaid enrollment is unavailable for this population. Even where patients have access to Medicaid, (...)
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  12.  30
    The Ethical Health Lawyer.Amy L. McGuire, Mary A. Majumder & J. Richard Cheney - 2005 - Journal of Law, Medicine and Ethics 33 (3):603-607.
  13.  31
    The Ethical Health Lawyer.Amy L. McGuire, Mary A. Majumder & J. Richard Cheney - 2005 - Journal of Law, Medicine and Ethics 33 (3):603-607.
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  14.  65
    Future directions for oversight of stem cell research in the united states.Cynthia B. Cohen Mary A. Majumder - 2009 - Kennedy Institute of Ethics Journal 19 (1):pp. 79-103.
    In lieu of an abstract, here is a brief excerpt of the content:Future Directions for Oversight of Stem Cell Research in the United StatesCynthia B. Cohen (bio) and Mary A. Majumder (bio)Human pluripotent stem cell research, meaning research into cells that can multiply indefinitely and differentiate into almost all the cells of the body, has become a minefield in which science, ethics, and politics have collided over the last decade in the United States. President Barack Obama entered this (...)
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  15.  41
    Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.Patricia A. Deverka, Dierdre Gilmore, Jennifer Richmond, Zachary Smith, Rikki Mangrum, Barbara A. Koenig, Robert Cook-Deegan, Angela G. Villanueva, Mary A. Majumder & Amy L. McGuire - 2019 - Journal of Law, Medicine and Ethics 47 (1):70-87.
    A medical information commons is a networked data environment utilized for research and clinical applications. At three deliberations across the U.S., we engaged 75 adults in two-day facilitated discussions on the ethical and social issues inherent to sharing data with an MIC. Deliberants made recommendations regarding opt-in consent, transparent data policies, public representation on MIC governing boards, and strict data security and privacy protection. Community engagement is critical to earning the public's trust.
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  16.  36
    Genomic Data-Sharing Practices.Angela G. Villanueva, Robert Cook-Deegan, Jill O. Robinson, Amy L. McGuire & Mary A. Majumder - 2019 - Journal of Law, Medicine and Ethics 47 (1):31-40.
    Making data broadly accessible is essential to creating a medical information commons. Transparency about data-sharing practices can cultivate trust among prospective and existing MIC participants. We present an analysis of 34 initiatives sharing DNA-derived data based on public information. We describe data-sharing practices captured, including practices related to consent, privacy and security, data access, oversight, and participant engagement. Our results reveal that data-sharing initiatives have some distance to go in achieving transparency.
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  17.  21
    Characterizing the Biomedical Data-Sharing Landscape.Angela G. Villanueva, Robert Cook-Deegan, Barbara A. Koenig, Patricia A. Deverka, Erika Versalovic, Amy L. McGuire & Mary A. Majumder - 2019 - Journal of Law, Medicine and Ethics 47 (1):21-30.
    Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a typology characterizing the data-sharing landscape in biomedical research to advance understanding of the key stakeholders and existing data-sharing practices. The typology highlights the diversity of data-sharing efforts and facilitators and reveals how novel data-sharing efforts are challenging existing norms regarding the role of individuals whom the data describe.
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  18.  18
    Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?Christi J. Guerrini, Meaganne Lewellyn, Mary A. Majumder, Meredith Trejo, Isabel Canfield & Amy L. McGuire - 2019 - BMC Medical Ethics 20 (1):1-13.
    Background Citizen science is increasingly prevalent in the biomedical sciences, including the field of human genomics. Genomic citizen science initiatives present new opportunities to engage individuals in scientific discovery, but they also are provoking new questions regarding who owns the outputs of the research, including intangible ideas and discoveries and tangible writings, tools, technologies, and products. The legal and ethical claims of participants to research outputs become stronger—and also more likely to conflict with those of institution-based researchers and other stakeholders—as (...)
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  19.  46
    What is a Medical Information Commons?Juli M. Bollinger, Peter D. Zuk, Mary A. Majumder, Erika Versalovic, Angela G. Villanueva, Rebecca L. Hsu, Amy L. McGuire & Robert Cook-Deegan - 2019 - Journal of Law, Medicine and Ethics 47 (1):41-50.
    A 2011 National Academies of Sciences report called for an “Information Commons” and a “Knowledge Network” to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.
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  20.  73
    An Embedded Model for Ethics Consultation: Characteristics, Outcomes, and Challenges.Courtenay R. Bruce, Adam Peña, Betsy B. Kusin, Nathan G. Allen, Martin L. Smith & Mary A. Majumder - 2014 - AJOB Empirical Bioethics 5 (3):8-18.
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  21.  15
    Same Goal, Different Path.Adam Peña, Courtenay R. Bruce & Mary A. Majumder - 2014 - American Journal of Bioethics 14 (1):23-24.
    In their article “Structuring a Written Examination to Assess ASBH Health Care Ethics Consultation Core Competencies” (2014), White, Jankowski, and Shelton argue that a written examination to evalu...
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  22.  18
    Building Effective Mentoring Relationships During Clinical Ethics Fellowships: Pedagogy, Programs, and People.Trevor M. Bibler, Ryan H. Nelson, Bryanna Moore, Janet Malek & Mary A. Majumder - 2024 - HEC Forum 36 (1):1-29.
    How should clinical ethicists be trained? Scholars have stated that clinical ethics fellowships create well-trained, competent ethicists. While this appears intuitive, few features of fellowship programs have been publicly discussed, let alone debated. In this paper, we examine how fellowships can foster effective mentoring relationships. These relationships provide the foundation for the fellow’s transition from novice to competent professional. In this essay, we begin by discussing our pedagogical commitments. Next, we describe the structures our program has created to assist our (...)
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  23.  50
    “Systematizing” Ethics Consultation Services.Courtenay R. Bruce, Margot M. Eves, Nathan G. Allen, Martin L. Smith, Adam M. Peña, John R. Cheney & Mary A. Majumder - 2015 - HEC Forum 27 (1):35-45.
    While valuable work has been done addressing clinical ethics within established healthcare systems, we anticipate that the projected growth in acquisitions of community hospitals and facilities by large tertiary hospitals will impact the field of clinical ethics and the day-to-day responsibilities of clinical ethicists in ways that have yet to be explored. Toward the goal of providing clinical ethicists guidance on a range of issues that they may encounter in the systematization process, we discuss key considerations and potential challenges in (...)
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  24.  36
    Bad Words.Courtenay R. Bruce, Martin L. Smith, Adam M. Peña & Mary A. Majumder - 2014 - Hastings Center Report 44 (2):13-14.
    The clinical ethicist met with Ms. H to clarify what information she wants and does not want to know. First, she wants to receive any treatment that could prolong her life, regardless of how the treatment affects her ability to engage in activities of daily living. Second, she wants to be included in the decision‐making process as much as possible, as long as clinicians use only “positive” language. Ms. H considers the words “dying,” “chemotherapy,” “radiation,” and “cancer” to be “bad (...)
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  25.  8
    Cultivating Administrative Support for a Clinical Ethics Consultation Service.Amy McGuire, Janet Malek, Ashley Stephens, Mary A. Majumder & Courtenay R. Bruce - 2016 - Journal of Clinical Ethics 27 (4):341-351.
    Hospital administrators may lack familiarity with what clinical ethicists do (and do not do), and many clinical ethicists report receiving inadequate financial support for their clinical ethics consultation services (CECSs). Ethics consultation is distinct in that it is not reimbursable by third parties, and its financial benefit to the hospital may not be quantifiable. These peculiarities make it difficult for clinical ethicists to resort to tried-and-true outcome-centered evaluative strategies, like cost reduction or shortened length of stay for patients, to show (...)
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  26.  24
    Cyberbanks and Other Virtual Research Repositories.Mary Anderlik Majumder - 2005 - Journal of Law, Medicine and Ethics 33 (1):31-39.
    Few things seem more a part of the material world than biological specimens. Yet the processes by which collections of specimens are assembled, translated into information, combined with more information, and distributed are taking research repositories into the virtual realm.The term “virtual” has a number of meanings, and so a research repository can qualify as virtual in a variety of ways. The term would seem to apply, for example, to constructing a repository by forming a network among institutions; using the (...)
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  27.  22
    Off-Target Effects of a Defense of Denial.Mary Anderlik Majumder & Christopher Thomas Scott - 2018 - American Journal of Bioethics 18 (9):22-24.
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  28.  34
    Cyberbanks and other Virtual Research Repositories.Mary Anderlik Majumder - 2005 - Journal of Law, Medicine and Ethics 33 (1):31-39.
    Few things seem more a part of the material world than biological specimens. Yet the processes by which collections of specimens are assembled, translated into information, combined with more information, and distributed are taking research repositories into the virtual realm.The term “virtual” has a number of meanings, and so a research repository can qualify as virtual in a variety of ways. The term would seem to apply, for example, to constructing a repository by forming a network among institutions; using the (...)
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  29.  27
    Supplementing the Fairness Framework: System-Level and Implementation Concerns.Mary Anderlik Majumder - 2004 - American Journal of Bioethics 4 (3):112-114.
    The organizational self-assessment tool presented in this issue (Wynia et al. 2004) is a valuable contribution not merely to the ethics literature, but also, one hopes, to health insurer practice....
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  30.  26
    Neuroethics at 15: Keep the Kant but Add More Bacon.Gabriel Lázaro-Muñoz, Peter Zuk, Stacey Pereira, Kristin Kostick, Laura Torgerson, Demetrio Sierra-Mercado, Mary Majumder, J. Blumenthal-Barby, Eric A. Storch, Wayne K. Goodman & Amy L. McGuire - 2019 - American Journal of Bioethics Neuroscience 10 (3):97-100.
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  31.  9
    De la aurora.María Zambrano - 1986 - Madrid: Tabla Rasa Libros y Ediciones. Edited by Jesús Moreno Sanz.
  32.  8
    Hacia un saber sobre el alma.María Zambrano - 1987 - Madrid: Alianza.
  33.  8
    Claros del bosque.María Zambrano - 1977 - Madrid: Cátedra. Edited by Mercedes Gómez Blesa.
    «Claros del bosque» es uno de los libros esenciales de la trayectoria filosófica de María Zambrano en el que vemos, por primera vez, en marcha su «razón poética». Nadie mejor que la propia autora para presentarnos el significado de esta obra: “«Claros del bosque» dentro de mi pensamiento vertido en lo impreso, salvo alguna excepción, aparece como algo inédito salido de ese escribir irreprimible que brota por sí mismo y que ha ido a parar a cuadernos y hojas que nadie (...)
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  34. Extensions of first order logic.María Manzano - 1996 - New York: Cambridge University Press.
    Classical logic has proved inadequate in various areas of computer science, artificial intelligence, mathematics, philosopy and linguistics. This is an introduction to extensions of first-order logic, based on the principle that many-sorted logic (MSL) provides a unifying framework in which to place, for example, second-order logic, type theory, modal and dynamic logics and MSL itself. The aim is two fold: only one theorem-prover is needed; proofs of the metaproperties of the different existing calculi can be avoided by borrowing them from (...)
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  35.  13
    Filosofía y educación: manuscritos.María Zambrano - 2007 - [Málaga]: Editorial Ágora. Edited by Angel Casado & Juana Sánchez-Gey.
  36.  87
    Narrar el mal: una teoría posmetafísica del juicio reflexionante.María Pía Lara - 2009 - Barcelona: Editorial Gedisa.
    En este libro, la autora desarrolla su concepción del juicio reflexionante inspirada en Emmanuel Kant y en Hannah Arendt para concentrarse en cómo cierto tipo de narraciones modelan nuestras nociones de lo que consideramos moral. Lara nos ofrece distintas concepciones sobre el mal en su formulación histórica mediante los ejemplos de las tragedias griegas, las diferentes concepciones sobre el mal en la obra de Shakespeare, el uso literario de la metáfora en la obra de Joseph Conrad y en narraciones fílmicas (...)
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  37.  37
    “Blaming the victim” and other ways business men and women account for questionable behavior.Mary A. Konovsky & Frank Jaster - 1989 - Journal of Business Ethics 8 (5):391 - 398.
    Impression management refers to behaviors used by individuals to control the impressions they make on audiences. This study demonstrated that business men and women were more likely to defend their questionable behavior by using excuses and justifications than to openly concede errors of judgment and behavior. Three hundred and sixty two participants received a scenario in which they had allegedly engaged in questionable behavior. The participants then wrote a position paper explaining their actions. Results indicated that people in business attempt (...)
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  38.  39
    Whitehead's philosophy of science in the light of wordsworth's poetry.Mary A. Wyman - 1956 - Philosophy of Science 23 (4):283-296.
    Admirers of Whitehead who know him best have suggested that Wordsworth had possibly a greater influence upon him than anyone except Plato. Nowhere apparently has Whitehead admitted such an influence, as he has that of Plato and Locke and that of William James, Bergson, and Alexander among traditional and contemporary philosophers But he had a predilection for poetry, and attributes to the great poets philosophical importance. They capture uniquely, he says, “a fragrance of experience”; and “… express deep intuitions of (...)
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  39.  41
    Kant's aesthetic.Mary A. McCloskey - 1987 - Houndmills, Basingstoke, Hampshire: Macmillan Press.
    Introduction The aim of this book is to show that the Critique of Aesthetic Judgement is not a set of disconnected remarks about aesthetic matters more ...
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  40.  4
    El exilio como patria.María Zambrano - 2014 - Morelia: Universidad Michoacana de San Nicolás de Hidalgo, Instituto de Investigaciones Filosóficas "Luis Villoro". Edited by Ortega Muñoz, Juan Fernando & Eduardo González Di Pierro.
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  41.  6
    La inteligibilidad del derecho.María del Pilar Zambrano - 2019 - Madrid: Marcial Pons. Edited by Juan Cianciardo.
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  42.  24
    Obras completas.María Zambrano - 1983 - Barcelona: Círculo de Lectores. Edited by Jesús Moreno Sanz.
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  43. Agustín Stahl y Los indios borinqueños: un etudio etnográfico.María Teresa Cortés Zavala - 2016 - In Nicolás Cuvi, Elisa Sevilla, Rosaura Ruiz Gutiérrez & Miguel Angel Puig-Samper (eds.), Evolucionismo en América y Europa: antropología, biología, política y educación. [Quito, Ecuador]: Pontificia Universidad Católica del Ecuador (PUCE).
     
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  44.  15
    Adolescents, Sensitive Topics, and Appropriate Access to Biomedical Prevention Research.Mary A. Ott - 2023 - American Journal of Bioethics 23 (6):110-112.
    Adolescence, defined in the US as 11–21 years of age, is a critical period for prevention, as it marks the onset of risk behaviors. Minor (<18 years) self-consent and inclusion in biomedical resear...
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  45.  4
    70 años de vida: homenaje a María Noel Lapoujade.María Noel Lapoujade & Ernesto Priani Saisó (eds.) - 2018 - Ciudad de México: Universidad Nacional Autónoma de México, Facultad de Filosofía y Letras.
  46.  4
    Amor y reflexión: la teoría del amor puro de Fénelon en el contexto del pensamiento moderno.María Elton - 1989 - Pamplona: Ediciones Universidad de Navarra.
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  47. Hermenéutica e historia de la filosofía desde la Academia en Argentina entre los años 1945 y 1965.María Victoria Santorsola - 2019 - In Lértora Mendoza, Celina Ana & María Victoria Santarsola (eds.), Filosofía argentina reciente: nuevos enfoques historiográficos. Buenos Aires: Ediciones F.E.P.A.I..
     
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  48. La enseñanza universitaria de la filosofía a mediados del siglo XX : documentos y testimonios.María Victoria Santorsola - 2015 - In Lértora Mendoza & Celina Ana (eds.), La filosofía argentina en la segunda mitad del siglo XX: testimonios. Bahía Blanca: Universidad Nacional del Sur.
     
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  49.  5
    Moral science and practical reason in Thomas Aquinas.María Elton - 2013 - Zürich: Lit.
    The conventional interpretation of Thomas Aquinas's concept of "moral science" casts it as a knowledge of moral rules that are the outcome of a deductive method of theoretical reason. However, there is a practical moral science that is possessed by ordinary people who are capable of a moral wisdom that is not derived from philosophy. The doctrine concerning this moral science is found in the texts of Aquinas as he takes up and strengthens the philosophy of Aristotle. This book examines (...)
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  50.  9
    Filosofía de la imaginación.María Noel Lapoujade - 1988 - México: Siglo Veintiuno Editores.
    Una investigación que se centra en torno a la fuerza de la imaginación con el propósito básico de alcanzar una aproximación desde perspectivas plurales, diversas al poder humano de imaginar. La imaginación es una función compleja que exige ser abordada desde diversos ángulos, cada uno de los cuales arrojará una luz parcial sobre determinados aspectos y facetas pero no sobre otros, no sobre todos.
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